I didn't know if I wanted to post this until this morning.
After a somewhat successful career in law and politics over 36 years, I was her primary caregiver for the last four years. I added nursing skills and a few medical skills along the way through her needs, and my autistic ability to imitate, improvise and create. When she could still talk (before several strokes), she would tell me to "stop doing so much" to help her and maintain the house. One of the few times I refused her.
She was quite fascinated with my autism, and said that my descriptions of it matched her father's behaviors perfectly. He died of tuberculosis a year before I was born. To her, my autism seemed perfectly normal. Apparently, I had his sense of humor.
As a newly minted gay teen-ager, I noticed that she stopped attending our neighborhood LDS Church as a newly minted divorced parent. It wasn't until this week that I learned that she stopped attending because of the stage-whispered comments of other neighborhood congregants who punctuated the words "gay" and "divorced," and would leave her isolated as they always found better seats farther away from her. Many years after the fact, she presented me a folder stuffed with newspaper clippings about my LGBT political work. She had carefully and proudly read and recorded my career since its early college years. She also left me a few Easter Egg surprises among her family photographs including a few of me at ages six weeks and three months. Who knew I once had jet-black hair before becoming a towhead at age two (then auburn ginger and finally grey)?!?
On Wednesday, she will return to that same neighborhood church for the first time in years for her viewing and funeral. I would like to say that I will describe in detail the ridicule those neighbors visited on her for decades since her self-imposed absence; especially since the church now (mostly) welcomes LGBT, autistic and divorced members, but I doubt I could accomplish that goal without melting down.
So, I will remember her terminal lucidity of last week. She loved me combing her hair (it calmed her agitation) before she slept. This time, however, she turned her head to face me and opened her eyes just inches away. She didn't speak, but was staring me down with an expression that seemed to me to be her intentional way of understanding and apologizing. After a few moments, she closed her eyes and slept. A day and a half later, she stopped breathing, and died.
I will also remember her through just three things she owned (that I now own): 1) the Revereware sauce pan that she used to make the gelatin for homemade cheesecake for my birthdays (nobody else in the family liked cheesecake much), 2) the pink "SUNDANCE" sweatshirt she bought for herself when I had called her to drive to the Sundance Resort that evening for a private barbecue party that Robert Redford hosted (I teased her about how her constant looking at his butt would get me fired from my job; hehe), and 3) the annual Sears Roebuck studio photographs of me after buying new clothes for every image; they were evidence of "me" days alone with her (though I often had brief meltdowns because of the flashes, noises and tedium).
This is the obituary that should have been written.