Porphyria

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Anyone here have porphyria?

Is there any known link between autism and porphyria?

If you have one of the hepatic porphyrias, would you mind talking with me a bit about your symptoms and how you got diagnosed? Same goes if you know someone who has it. Feel free to PM me if you don't want to post about it.

The famous example of misdiagnosis of someone with porphyria is George the Third, who was considered to be mad rather than sick. I have never encountered anyone who has been diagnosed with it, despite having read many hundreds of medical histories in the past, related to a job I had. So either it is very rare, or the diagnosis is missed because the symptoms of porphyria are considered to fit other heuristics, which might explain the possibility of porphyria being misdiagnosed as other more common conditions?

I know about 50 people on the spectrum personally, and so far as I know none of them have the condition.

I was trying to PM you but maybe you don't accept private PM 'cause I had no success.

Dianthus has been gone from WrongPlanet about a year or so.

It seems like every weird illness I've never heard of before or even common ones have some connection to autism.

There are thousands of threads created over the long history of Wrong Planet. If porphyria was intrinsically connected to AS then we would have heard about it long before now, I think, and there would have been a number of threads/reports and discussions. The lack of these, and any research of a reliable nature, indicates to me that any correlation between these two issues is illusory.

I am (vaguely) aware that some of the more evidence resistant antivaxxers tried to link porphyrins to their anti vax beliefs. https://leftbrainrightbrain.co.uk/2007/ ... ism-again/

It sounds like a rare combo that you'd be better off researching on a Porphyria forum