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Ilikemusic
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26 May 2018, 12:22 pm

I hate functioning labels. They make me feel sad for some reason. Im moderate to high functioning according to people. Its weird. Like im apparently not quite high functioning. I have always wanted to have Aspergers or something else instead. Maybe my speech and language skills would be better. I feel very high functioning on some days and some days I have very bad days. For me it seems like I go forward and backwards then forward again. I just want to know what its like to be neurotypical. For one day maybe. I want to not get anxiety from speaking and I want to stop having meltdowns. I want to be able to be completely independent. Sometimes it depresses me


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skibum
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26 May 2018, 12:24 pm

Ilikemusic wrote:
I feel very high functioning on some days and some days I have very bad days. For me it seems like I go forward and backwards then forward again.
I am like that too.


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26 May 2018, 12:32 pm

Functioning labels seem inaccurate to me anyway.

I'm right on the edge of high functioning and moderately functioning, some days I seem far more one than the other.
Unlike you, I think I would rather be seen as moderate because i feel I would be taken more seriously.

When I talk about my issues a lot of people act like I'm being over dramatic, unless they are seeing me near meltdown.

I'm currently diagnosed aspergers, but will get reevaluated soon and whether I end up level 1 or level 2 with likely depend on the day.


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26 May 2018, 12:57 pm

I don't like them either; they tend to group autistic people into neat categories, when really it's more complicated and everyone is different.



Ilikemusic
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26 May 2018, 1:45 pm

I agree with that. Im a human not a box.


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27 May 2018, 12:27 am

It annoyed me too much trying to neatly box my autism in ways that hindered my thinking of myself, so I keep pushing not to do that. There is a fair chance that I can be independent (with roommates) one day. There are so many more variables to me than functioning.


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Ilikemusic
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27 May 2018, 1:09 am

Yeah, I feel the same way. I want to be accepted for who I am. I want to be able to live fully independently but it might not be a possibility. I get overstimulated and anxious most days and I have a respite worker who comes every Friday. Shes nice.


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Dylanperr
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27 May 2018, 1:55 am

Ilikemusic wrote:
I hate functioning labels. They make me feel sad for some reason. Im moderate to high functioning according to people. Its weird. Like im apparently not quite high functioning. I have always wanted to have Aspergers or something else instead. Maybe my speech and language skills would be better. I feel very high functioning on some days and some days I have very bad days. For me it seems like I go forward and backwards then forward again. I just want to know what its like to be neurotypical. For one day maybe. I want to not get anxiety from speaking and I want to stop having meltdowns. I want to be able to be completely independent. Sometimes it depresses me

I agree. I hate it when they base it of off how much support a person needs. I am Moderately Autistic and I have a high potential of being independent. Functioning labels are inaccurate. Every person is different even if they are equally effected.



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27 May 2018, 2:32 am

So then don't use them. They've been scrapped by some definitions, anyways. That's why we now have a catch-all umbrella term of "ASD." And everyone's functioning levels fluctuate some - over the short run, over the long run. I doubt there are very many of us that could say we've always had ~the same functioning level our entire lives, so it's normal to have good days and bad.

In time, through advances in knowledge of medicine, there will be a lot more higher functioning days for a lot more of us. In the meantime, do the things that work to keep you functioning as highly as you can - or at least the things that help you cope & keep calm.


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