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Lorrent
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09 Jul 2018, 3:05 am

I‘m not sure if this is the right section of the forum to post this, but let‘s give it a try.
Also in advance, I have to apologize for any grammar mistakes, english isn’t my native language.

Lately, alot of things happened in my life, many changes happened. In the last couple of weeks, I don‘t really know who I am anymore. I cannot really explain why I feel that way, but I have two theories in mind.

The first one is masking. When I‘m with different people, I always change my personality a bit. For example, I talk or dress differently. I also try to avoid saying wrong things. I have different views on different topics. When I‘m with a group of people, I try to avoid saying things that could upset them. But when I‘m with another group, I can talk freely about the stuff, that could upset the other group. I came to realize, that I don‘t really know anymore, which is the real me.

The second problem that probably evolved from the first one is my asperger diagnosis. I was very interested in autism as a whole in the last few months. I noticed, that I don‘t have all traits of my diagnosis. For example, I almost never use immediate echolalia, only the delayed variant. I also don‘t have what you call a special interest. Yes, I do have narrow interests, but they don‘t seem like special interests at all. And apart from very subtle cues or sarcasm, I can read facial expressions, or body language just fine. Lately, I‘m very anxious about not being autistic at all. For me it‘s like all that I have left. And without it, I have nothing left, no personality. I know it sounds a little bit strange.

Does someone have made similar experiences? Can I do something to „bring back“ my personality? Thank you alot for any advice!

Tldr: Due to drastic life changes, I have proplems to determine, who I am. I am very afraid of not being autistic, because it‘s the only thing I have left that is truly me.


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Lorrent
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11 Jul 2018, 2:43 am

I‘m sorry to bump this thread, but someone here already posted an answer, and then deleted it. Unfortunatly, I didn‘t had the the time to answer it yet, sorry! It‘s not like I didn‘t care about your answer. If you want, you can post it again :wink:


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AprilR
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11 Jul 2018, 3:31 pm

I feel like that from time to time. Mostly when i'm social and create appropriate "personas" that people would like. I also have the same fear of not being autistic and just faking it because i feel that if it's like that, i will be just an empty shell with no personality. I think that because of this disorder we spend so much time to mask and fit in with people we don't have enough time to develop a sense of self. I've also heard that people with too much empathy have this problem (which is kind of strange i guess) They try to please people so much that they forget about their sense of self. I think the best thing to do if i feel like this is to spend some time alone.



isloth
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11 Jul 2018, 4:04 pm

Yeah, I kinda have that problem too. I realized at some point that all the major actions I had taken in my life were in a large part influenced by what other people told me or what I thought society considers correct. That doesn't mean that it wasn't my own decision and opinion, but if it just happens to always coincide with what everyone else says, then it's hard to know if it was really me.

Of course, I only became aware that I was doing masking my whole life to a large extent once I got diagnosed, and that was only a couple years ago. But like you, when looking back, I'm unsure whether I ever actually wanted anything for myself, and although the diagnosis gave me a lot of relief initially, I am now pretty unsure what I am beyond it. I tried cutting myself off from all outside influence, but found that resulted in me just doing absolutely nothing for some years, now I am planning to once again go back to the super basic path to success (finish college,get job,etc.) that society sets out because I have no better ideas.

Lorrent wrote:
Can I do something to „bring back“ my personality?
I suppose the best thing I can think of is to try to self-reflect on some of your past situations and experiences, after all, experiences can play a big role in shaping personality. Were there times in the past where you made a decision that seemed weird and you didn't understand why at the time? Maybe with the added info you know now, that decision might make more sense, and your reason for making it might be evidence of who you are?
Lorrent wrote:
I‘m very anxious about not being autistic at all.
That seems to be one of the most common concerns people ask about on this forum (you are not alone, I have it too). You definitely do not need to exhibit all or even most of the typical symptoms in textbook definitions (few people do). It's not just autism that is on a spectrum, but all personalities in general. The difference between "I have a lot of autistic-like traits and I'm introverted but NT" and "I have autism but am high-functioning and have NT-like traits" is very small and it doesn't actually matter much at all. Everyone's brains are slightly different anyways, having the label or not doesn't change who you are, and you already seem to know that you are at the very least similar, and you will have that as part of who you are regardless of diagnosis.

Sorry if my posts are lengthy and somewhat confusing, please tell me if there is something you didn't understand!


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Lorrent
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12 Jul 2018, 3:30 am

AprilR wrote:
I feel like that from time to time. Mostly when i'm social and create appropriate "personas" that people would like. I also have the same fear of not being autistic and just faking it because i feel that if it's like that, i will be just an empty shell with no personality. I think that because of this disorder we spend so much time to mask and fit in with people we don't have enough time to develop a sense of self. I've also heard that people with too much empathy have this problem (which is kind of strange i guess) They try to please people so much that they forget about their sense of self. I think the best thing to do if i feel like this is to spend some time alone.


Thank you for your answer. I'm glad to hear that I'm not the only one. It's actually very sad to read how many of us have to mask their personalities. But I'm optimistic for the future. There is much more acceptance than like 10 years ago. The empathy part is quite interesting, I have high levels of it, especially if someone else cries, I tend to cry as well. So time spending alone sounds like a good Idea, maybe I should spend more time with my hobbies. How do you usually manage to “get back on track"?


_________________
PDD-NOS (2013)
AQ: 32
Aspiequiz: 140/82
RAADS-R: 134


Lorrent
Snowy Owl
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Posts: 134
Location: Zurich

12 Jul 2018, 4:00 am

isloth wrote:
Yeah, I kinda have that problem too. I realized at some point that all the major actions I had taken in my life were in a large part influenced by what other people told me or what I thought society considers correct. That doesn't mean that it wasn't my own decision and opinion, but if it just happens to always coincide with what everyone else says, then it's hard to know if it was really me.

Of course, I only became aware that I was doing masking my whole life to a large extent once I got diagnosed, and that was only a couple years ago. But like you, when looking back, I'm unsure whether I ever actually wanted anything for myself, and although the diagnosis gave me a lot of relief initially, I am now pretty unsure what I am beyond it. I tried cutting myself off from all outside influence, but found that resulted in me just doing absolutely nothing for some years, now I am planning to once again go back to the super basic path to success (finish college,get job,etc.) that society sets out because I have no better ideas.
Lorrent wrote:
Can I do something to „bring back“ my personality?
I suppose the best thing I can think of is to try to self-reflect on some of your past situations and experiences, after all, experiences can play a big role in shaping personality. Were there times in the past where you made a decision that seemed weird and you didn't understand why at the time? Maybe with the added info you know now, that decision might make more sense, and your reason for making it might be evidence of who you are?
Lorrent wrote:
I‘m very anxious about not being autistic at all.
That seems to be one of the most common concerns people ask about on this forum (you are not alone, I have it too). You definitely do not need to exhibit all or even most of the typical symptoms in textbook definitions (few people do). It's not just autism that is on a spectrum, but all personalities in general. The difference between "I have a lot of autistic-like traits and I'm introverted but NT" and "I have autism but am high-functioning and have NT-like traits" is very small and it doesn't actually matter much at all. Everyone's brains are slightly different anyways, having the label or not doesn't change who you are, and you already seem to know that you are at the very least similar, and you will have that as part of who you are regardless of diagnosis.

Sorry if my posts are lengthy and somewhat confusing, please tell me if there is something you didn't understand!


It's really no problem :)
Thank you a lot for your answer :)
Same here, I also did and still do observe a lot, what people around me are doing. I cannot really stop it, I automatically change my behavior according to it. Maybe it's a survival mechanism, that alot of us do automatically? Who knows. Right now I'm heavily interested in autism. I think that's the main problem right now. It seems that I obsess on negative thoughts too much. I miss the times of having positive thoughts/special interests. I also saw the DSM5 criteria for someone to be diagnosed with ASD. It was really shocking to me. I wouldn't be diagnosed today. I once heard, that the new diagnosis excludes 75% of all Aspies and almost 80% of people with PDD-NOS like me, that sounds very strange to me. Unfortunately I'm in now the process of cutting myself out as well. I'm interested, how did you manage to come out of this thinking pattern?

Hmm right now, I cannot think of such a decision. Well, what I did once was starting to smoke for a limited time period, because the "cool people" did it. Luckily, I was never addicted. Do you mean something like this maybe?

Well hearing that a lot people here have concerns about being autistic is a huge relief for me. It's not like I don't feel bad for them. It's more like not feeling alone with my problems anymore.


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AprilR
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12 Jul 2018, 5:23 pm

Lorrent wrote:


Thank you for your answer. I'm glad to hear that I'm not the only one. It's actually very sad to read how many of us have to mask their personalities. But I'm optimistic for the future. There is much more acceptance than like 10 years ago. The empathy part is quite interesting, I have high levels of it, especially if someone else cries, I tend to cry as well. So time spending alone sounds like a good Idea, maybe I should spend more time with my hobbies. How do you usually manage to “get back on track"?


I'm also optimistic about the future, just the fact that there's a site like this gives me hope. When i get "burned out" so to speak i usually listen to music and manage my blog. Writing my feelings down helps me a lot too.



Magna
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12 Jul 2018, 8:26 pm

You are NOT alone in this. I didn't "mask" at all as a child. My Mom allowed me to be who I was. When I was in preschool the teacher took my Mom aside after the first day or two and said she was concerned because I had NO interest in playing with the other kids and was content to just play in the corner with blocks and toys the whole time. The teacher apparently tried to get me to join the group and I strongly protested. My Mom told the teacher to let me play by myself if that's what I wanted to do. That was back in the early seventies. Kudos to my Mom, God rest her soul. Forced play with peers? No thank you.

I lived out in the country and spent a huge amount of my childhood outdoors by myself. I loved it. I would talk to the birds and listen to them. I would call out to the wind trying to control it. I would lay, belly down on the ground and fill my nostrils with the smell of earth and climb trees, swaying in their branches. I didn't know how to "mask" and didn't have to. I was who I was. I was the king of my own world!

It wasn't until middle school when I started to see a need for masking to try to "fit in". Like most of us here I would guess, masking has been a big part of how I interact with NT people outside of my own immediate family. Trying to mimic others or trying to mimic the dynamic of different groups of people. I've had the dour feeling at times that I'm an empty shell of a person with no real personality of my own as a result of the mimicry. Worn out from it all and tired of "keeping up appearances"...

HOWEVER.......I take heart in remembering who I was and how much I loved life as a kid when I was king of my own private world. I'm still that same person who, at my core, loves life and the beauty of nature. I'm a kind person who doesn't hate anyone. While life and even each day can be a roller coaster of ups and downs, wonderful, great, good, bad, terrible and tragic, I wouldn't give up or give it up for anything. Periodic soul searching and remembering "who I am" based on my past experiences, likes, dislikes, etc helps me to connect with myself.

I hope that helps?



Magna
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12 Jul 2018, 8:38 pm

I also wonder how different we'd all be if we were able to hang out, coming together in our ND worlds away from the NT world. I've always got along with and felt more comfortable around people others consider "misfits". I'm a misfit and quite proud of it, thank you.

I had an older cousin who did not have Downs Syndrome, but was severely mentally challenged. I loved when we would visit or his family would visit ours. He was one of my favorite people to this day that I've ever known. Not a single mean bone in his body.

My point is, I would think if ND people hung out together in groups there would be less judgement and no need to mask and I would like to think our personalities we may often think aren't there would bloom beautifully even to our own surprise.

Wouldn't it be awesome if there was an international movement or organization of thousands of local groups of ND people who could get together on a regular basis in an environment where we could "be ourselves"? Play games, share interests, talk, share, help and support.



Lorrent
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13 Jul 2018, 12:22 am

AprilR wrote:

I'm also optimistic about the future, just the fact that there's a site like this gives me hope. When i get "burned out" so to speak i usually listen to music and manage my blog. Writing my feelings down helps me a lot too.


Thanks. Well I already do the music part. It‘s something I already do anyway. Writing down my feelings and strengths is something my therapist also highly recomends. I don‘t really like to do that, because I can often only write down the feeling, I currently have. But there is a good chance, that she wants me to do that today, so maybe your hear from me again. :lol:


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Lorrent
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13 Jul 2018, 4:32 am

Magna wrote:
You are NOT alone in this. I didn't "mask" at all as a child. My Mom allowed me to be who I was. When I was in preschool the teacher took my Mom aside after the first day or two and said she was concerned because I had NO interest in playing with the other kids and was content to just play in the corner with blocks and toys the whole time. The teacher apparently tried to get me to join the group and I strongly protested. My Mom told the teacher to let me play by myself if that's what I wanted to do. That was back in the early seventies. Kudos to my Mom, God rest her soul. Forced play with peers? No thank you.

I lived out in the country and spent a huge amount of my childhood outdoors by myself. I loved it. I would talk to the birds and listen to them. I would call out to the wind trying to control it. I would lay, belly down on the ground and fill my nostrils with the smell of earth and climb trees, swaying in their branches. I didn't know how to "mask" and didn't have to. I was who I was. I was the king of my own world!

It wasn't until middle school when I started to see a need for masking to try to "fit in". Like most of us here I would guess, masking has been a big part of how I interact with NT people outside of my own immediate family. Trying to mimic others or trying to mimic the dynamic of different groups of people. I've had the dour feeling at times that I'm an empty shell of a person with no real personality of my own as a result of the mimicry. Worn out from it all and tired of "keeping up appearances"...

HOWEVER.......I take heart in remembering who I was and how much I loved life as a kid when I was king of my own private world. I'm still that same person who, at my core, loves life and the beauty of nature. I'm a kind person who doesn't hate anyone. While life and even each day can be a roller coaster of ups and downs, wonderful, great, good, bad, terrible and tragic, I wouldn't give up or give it up for anything. Periodic soul searching and remembering "who I am" based on my past experiences, likes, dislikes, etc helps me to connect with myself.

I hope that helps?


Thank you for your insight on your childhood! :) Yes I think it helps :)

Sounds like a very cool and beautiful childhood to me :) (except for the earth part maybe). I also miss some parts of my childhood. I loved to draw. I also loved to look at maps, especially skiing plans for hours. I also love the smell of fresh printed paper. You should try it too :). I had a huge collection of this plans and my mother was always annoyed, when she found something for me in the mailbox AGAIN :lol:

I know what you mean with being a kind person who doesn't hate anyone. I was like this too. But the negativity, the newspapers, bullying, influences of other people made me embittered and depressed. It's sad. But I try to avoid negativity now. I don't read newspapers anymore. Maybe that helps me to connect with my true self again.

I honestly never heard of periodic soul searching. Maybe you can explain it to me?


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Lorrent
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13 Jul 2018, 4:36 am

Magna wrote:
I've always got along with and felt more comfortable around people others consider "misfits". I'm a misfit and quite proud of it, thank you.


I know exactly what you mean 8)

Magna wrote:
Wouldn't it be awesome if there was an international movement or organization of thousands of local groups of ND people who could get together on a regular basis in an environment where we could "be ourselves"? Play games, share interests, talk, share, help and support.


Awesome idea!


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Magna
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13 Jul 2018, 9:42 am

Lorrent wrote:
Magna wrote:
You are NOT alone in this. I didn't "mask" at all as a child. My Mom allowed me to be who I was. When I was in preschool the teacher took my Mom aside after the first day or two and said she was concerned because I had NO interest in playing with the other kids and was content to just play in the corner with blocks and toys the whole time. The teacher apparently tried to get me to join the group and I strongly protested. My Mom told the teacher to let me play by myself if that's what I wanted to do. That was back in the early seventies. Kudos to my Mom, God rest her soul. Forced play with peers? No thank you.

I lived out in the country and spent a huge amount of my childhood outdoors by myself. I loved it. I would talk to the birds and listen to them. I would call out to the wind trying to control it. I would lay, belly down on the ground and fill my nostrils with the smell of earth and climb trees, swaying in their branches. I didn't know how to "mask" and didn't have to. I was who I was. I was the king of my own world!

It wasn't until middle school when I started to see a need for masking to try to "fit in". Like most of us here I would guess, masking has been a big part of how I interact with NT people outside of my own immediate family. Trying to mimic others or trying to mimic the dynamic of different groups of people. I've had the dour feeling at times that I'm an empty shell of a person with no real personality of my own as a result of the mimicry. Worn out from it all and tired of "keeping up appearances"...

HOWEVER.......I take heart in remembering who I was and how much I loved life as a kid when I was king of my own private world. I'm still that same person who, at my core, loves life and the beauty of nature. I'm a kind person who doesn't hate anyone. While life and even each day can be a roller coaster of ups and downs, wonderful, great, good, bad, terrible and tragic, I wouldn't give up or give it up for anything. Periodic soul searching and remembering "who I am" based on my past experiences, likes, dislikes, etc helps me to connect with myself.

I hope that helps?


Thank you for your insight on your childhood! :) Yes I think it helps :)

Sounds like a very cool and beautiful childhood to me :) (except for the earth part maybe). I also miss some parts of my childhood. I loved to draw. I also loved to look at maps, especially skiing plans for hours. I also love the smell of fresh printed paper. You should try it too :). I had a huge collection of this plans and my mother was always annoyed, when she found something for me in the mailbox AGAIN :lol:

I know what you mean with being a kind person who doesn't hate anyone. I was like this too. But the negativity, the newspapers, bullying, influences of other people made me embittered and depressed. It's sad. But I try to avoid negativity now. I don't read newspapers anymore. Maybe that helps me to connect with my true self again.

I honestly never heard of periodic soul searching. Maybe you can explain it to me?


Sorry, I forgot that English isn't your first language.

"Soul searching" is a figure of speech which I would define as introspection, contemplation or more or less thinking deeply about how you feel about something. If you're having difficulty making an important decision about something you would "search your soul". Thinking about something deeply, etc.

I hope that makes more sense. Thank you for your post. I'm glad you posted this topic.



Slug on a Bike
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13 Jul 2018, 10:44 am

Late late late
diagnosis for me
(I hate late).

I don't think
I'll ever finish
trying to distinquish
mask from me.

WP helps.



AshtenS
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13 Jul 2018, 10:54 am

Nobody has every single symptom, if you've been diagnosed then you can rest assured that you are most likely autistic. But even if you arent autistic, you are you.

It's natural to adapt to certain situations and among certain people. Everyone masks in some way.



Lorrent
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13 Jul 2018, 11:38 am

AshtenS wrote:
Nobody has every single symptom, if you've been diagnosed then you can rest assured that you are most likely autistic. But even if you arent autistic, you are you.

It's natural to adapt to certain situations and among certain people. Everyone masks in some way.


Thank you for your answer. I tend to forget that I am who I am, thanks for your encouragement! Well the thing is, that I don‘t display alot of social deficits. It‘s strange because the new diagnosis of ASD requires alot of them, and I guess some of us don’t have all four. Maybe they made them more strict? It‘s very dumb because I never heard of anyone that isn‘t autistic, who did stim or used echolalia like me. Well I heard, that anyone diagnosed with any form of autism keeps the diagnosis, so maybe I shouldn‘t be that worried after all...


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