One-fourth of autistic children are undiagnosed

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ASPartOfMe
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10 Jan 2020, 3:33 am

https://www.sciencedaily.com/releases/2020/01/200109130218.htm

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The findings, published in the journal Autism Research, show that despite growing awareness about autism, it is still under-diagnosed, particularly in black and Hispanic people, said study co-author Walter Zahorodny, an associate professor at Rutgers New Jersey Medical School and director of the New Jersey Autism Study, which contributed to the research.

Researchers analyzed the education and medical records of 266,000 children who were 8 years old in 2014, seeking to determine how many of those who showed symptoms of the disorder were not clinically diagnosed or receiving services.

Of the nearly 4,500 children identified, 25 percent were not diagnosed. Most were black or Hispanic males with deficits in mental abilities, social skills and activities of daily living who were not considered disabled.

"There may be various reasons for the disparity, from communication or cultural barriers between minority parents and physicians to anxiety about the complicated diagnostic process and fear of stigma," Zahorodny said, "Also, many parents whose children are diagnosed later often attribute their first concerns to a behavioral or medical issue rather than a developmental problem."

The research was conducted through the Autism and Developmental Disabilities Monitoring Network, a surveillance program funded by the U.S. Centers for Disease Control and Prevention that tracks the prevalence of the developmental disorder in 11 states: Arizona, Arkansas, Colorado, Georgia, Maryland, Minnesota, Missouri, New Jersey, North Carolina, Tennessee and Wisconsin.


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Fireblossom
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10 Jan 2020, 4:45 am

1/4? That's surprising; I'd think it'd be more. Or maybe children these days are so much likelier to get diagnosed that this is accurate?



GiantHockeyFan
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10 Jan 2020, 7:25 am

Given how extremely difficult (and expensive!) the diagnostic process has been for me I would have presumed its the other way around. What's frustrating is that an ADHD assessment can be covered by the provincial healthcare plan but not an ASD one. There are only a handful of people who specialize in ASD in my city and I live in the "big" city in my area.



shortfatbalduglyman
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10 Jan 2020, 9:09 pm

How does anyone count the number of undiagnosed autistics? They are undiagnosed



aquafelix
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11 Jan 2020, 5:27 am

shortfatbalduglyman wrote:
How does anyone count the number of undiagnosed autistics? They are undiagnosed

They don't do it directly. Prevalence studies usually estimate a characteristic in the general population by taking a large representative sample of the population and test just that group. They determine the % of the sample who meet a diagnosis and then then generalise to the general population.



darkwaver
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11 Jan 2020, 4:05 pm

The article does not mention girls at all, I wonder if undiagnosed females were even considered in this study.



IsabellaLinton
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11 Jan 2020, 4:10 pm

What percentage of the 1/4 who aren't diagnosed are on waiting lists, or being ignored when they seek help?


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kraftiekortie
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11 Jan 2020, 4:47 pm

There wasn’t an emphasis on gender/sex. There was more of an emphasis on race/ethnicity. I’m sure the study included females.