Anyone find themselves wondering about their dx?

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Whale_Tuune
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31 Jan 2020, 7:45 pm

I received my dx at a young age, and sometimes I feel like I don't have Autism, or people tell me that I don't "seem Autistic."

It is true that I don't have obvious problems with eye contact, metaphorical thinking, tone of voice and expressions. I used to have more problems with eye contact, I'm told, although I don't remember. I had more issues with conversational topics, situational cues, and more subtle or less overt problems with nonverbal cues (inappropriate smiling or conveying sarcasm or irony). Sensory issues were not as intense since I started high school. I had basically one routine that I enjoyed and would melt down if it was violated, but that was about it. I had many other rituals that were attributed to "Autism", but were really OCD. I also had OCD fixations that were separate from my ASD interests, but doctors conflated them, too. However, I did stim frequently. I have only experienced "shut-down" once, mildly.

Thinking back to high school, I did so much stuff that I didn't realize was socially awkward back then. Therapists in their office would be shocked at my Asperger's diagnosis, but none of my classmates were. It made more sense to my peers who saw me regularly than therapists.

People who see me one on one and older people also frequently do not believe the diagnosis. Socialization is much easier in a stable environment with steady topics of conversation, and I think older adults are more tolerant of differences. Younger people are hypersensitive to others who act "different."

Like, when I look back on it, I feel that the diagnosis was accurate, but many times I don't "feel" Autistic until my next social blunder happens. I think that "Autism" is not really one thing, but a range of symptoms and presentations of symptoms that are incredibly varied. When two of us say "I have Autism", we may be speaking about different underlying factors that have all been grouped under the same label.


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JD12345
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02 Feb 2020, 6:55 am

In hindsight the surprise as far as my own situation goes is that it took until I was 16. Throughout secondary school there were fairly obvious signs, and indeed I was actually placed in special 'side' classes for people who had issues with interaction and so on.



kraftiekortie
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02 Feb 2020, 8:11 am

People who have conditions and disorders don’t always exhibit the symptoms of the conditions and disorders.

Just because one does not always “seem autistic” doesn’t mean one is not autistic.



Sahn
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02 Feb 2020, 10:52 am

Whale_Tuune wrote:
I think that "Autism" is not really one thing, but a range of symptoms and presentations of symptoms that are incredibly varied. When two of us say "I have Autism", we may be speaking about different underlying factors that have all been grouped under the same label.

I was given my dx about a year and a half ago. I embraced it and found some comfort in the notion that I "had" something, a distinct difference that put me within a certain subgroup but more recently I'm erring towards your way of thinking.



Emu Creations
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02 Feb 2020, 1:06 pm

I agree that not everyone is going to be the same-it’s a a SPECTRUM- there are different quirks, stims, and symptoms for everyone.



IsabellaLinton
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02 Feb 2020, 1:24 pm

I believe my Autism Dx wholeheartedly, and I'm amazed that I wasn't identified sooner. I keep realising how "autistic" I am and have always been, with new memories about my development being reconsidered all the time.

I think that for some people, they doubt their diagnosis because they have nothing to compare themselves against.

We've never been NT or allistic, so it's hard to see that we are "different" in our development.

We feel normal, because we've always been the way we are and we don't know any differently.


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