Jjuniper715 wrote:
Hi!
I realize the chances of a reply are nil, seeing as this was posted back in '08. But, I, too, am neurodivergent and have AIWS. Most of the obvious episodes were before I was 16. Have had one or two bigger episodes in adulthood, but it has decreased in intensity over the years. I have lately wondered in ASD and AIWS might have a link as well. There's so little info out there. I didn't even know what I experienced had a name until 10 years ago. Interested to know if you've discovered anything.

Hi Jjuniper715
How strange. I was just reading through this thread and I wanted to share but then I saw this was from 2008 so I wasn't going to bother untill I saw your likeminded comment at the end. Thank You.
I would experience AIWS quite often when I was young, under 10 yrs old. While laying on my bed my pillow started to feel enormous and it would feel hard. It felt like I was sinking into my pillow and getting smaller and smaller. I had a bedside lamp next to my bed but it look so far away in the distance. I started to enjoy the strange experiece and I would play with it using my mind. One night I went into a full on seizure because of it and I was fully aware of it happening but it felt like my brain was malfunctioning. I didn't play with it again and I eventually grew out of it.
I'm 46 years old now and last year I suddenly remembered that I used to have AIWS. I had totally forgot about it. Anyway I remembered the strange smell and the feeling on my skin that I used to get with AIWS. While I was in bed one night and meditating I managed to bring back an AIWS episode and it returned exactly like I used to experience as a child. To this day I now have the feeling just in the background and ready to emerge at any time. I was silly to bring it back because seizures are dangerous at my age. I occasionally suffer from intense migranes... my vision goes blury on the left and it slowly works its way to the right. This blury vision takes about half an hour to cross from one side to the other. Then as soon as the blury vision disappears, thats when the headache starts pounding the back of my head. Its awful because it drains all of my energy. I get these a couple times per month.
I just want to say. Today I done an online assessment for Asperger syndrome and Autism. They do say its not an official diagnosis but I have a strong likelihood of Asperger syndrome or Autism. I can't go into everything but this would explain so much about my life. I know I need to get an offical diagnosis to see if I am on the Autism spectrum.
I've given my mental health a lot of thought today and I know I need to see my GP but I don't know what to say. I've never told him about my AIWS symptoms returning as an adult and I can constantly feel a seizure or an episode in the background ready to pounce at any time, Also I need to ask for an official Autism test. Also, I've never told him about the Migranes I experience each month, or my depression and daily isolation I choose.
Its a lot of stuff to tell a GP and I don't want him to think that I am making it all up. My GP only allows 10mins for face-to-face appointments so I don't know what to do or say in this short time.