Does anyone have Ehlers-Danlos Syndrome?

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I have found a few suggestions of links between Ehlers-Danlos and Autism Spectrum Disorders.

I was just curious if anyone else has it?

I know at least a couple of people here on WP have Ehlers-Danlos.

Oh good, I hope they see this.

I mean, not good they have it.

My 6-year-old NT daughter and I both have it.

Funny a topic like this pops up. My sister was actually just diagnosed and the whole family shows symptoms, including myself. Hyper-mobility, Scoliosis, varicose veins, seemingly weak, soft skin, skin heals badly, etc and from my understanding the gene is dominant. I'm a transman in the midst of planning my top surgery. EDS could have a big impact on what surgery I should go for, because I'm afraid of bad scarring. So I'm going to ask for genetic testing the next time I see my doc. Given from what I've read, it's highly likely I have it, but it's very mild.

"Coincidentally", it's that side of the family that have Aspergers.

My *was* mild, but that can change at the drop of a hat.

I'm glad you will be getting testing before your surgery.

Vascular EDS is the one you *really* want to rule out before surgery. Extra scarring would not, but dying would be worse.

Do you have any symptoms of dysautonomia? Over 75% of people with EDS have some form of dysautonomia.

I wish you the best!

I have Autism and Ehlers Danlos syndrome GO ZEBRAS

A couple of days ago I went into my re-evaluation for college, and the doctor suggested that I might have EDS hypermobility type.

I'm going to be getting tested for it.

It seems like most of the symptoms of EDS-III are also physical traits of autism. I have hypermobile joints, autoimmune issues, problems with a high heart rate, scoliosis, etc, etc. Although I'm sure I'd qualify for a diagnosis of EDS, I don't think it necessary to put a label on everything, especially when it falls under the autism umbrella of symptoms and traits. It's the same reason I've never sought out a diagnosis of ARFID or OCD. Sure, I meet the criteria, but why go chasing after a slew of labels when autism can account for everything on its own? Unless the physical symptoms by themselves constitute a disability, there's just no reason for an additional diagnosis. In my case, my doctor says that my hypermobility would only require surgery if I was physically active - which I'm not, so it's fine. I think that it's silly to try to diagnose problems that aren't problems. Now, if my autoimmune issues ever become as serious as my mom's I might look for a EDS diagnosis, but until then it would be redundant and petty.