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Zarathustra
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11 Dec 2007, 12:53 pm

Neurodiversives appear to be getting the upper hand. John Best Jnr has condemned the forum as being a nest of anti-cure loonies. People are leaving and writing letters of complaints about threads like "Reasons Not to Cure Aspergers" www.autismspeaks.org/community/forums/s ... php?t=3662 . It's lonely there without you. Drop by once in a while and contribute to the debate.


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Zarathustra
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11 Dec 2007, 1:25 pm

O dear! No replies. Well I thought it was a significant development. Obviously not. I'd better go back to my cave... ...


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lau
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11 Dec 2007, 1:41 pm

I looked at the thread you pointed at, and agree that it's all a bit depressing.

However, I have no wish to add to their membership statistics.


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Zarathustra
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11 Dec 2007, 2:14 pm

They're going to be dropping members by the score if many more of us go over...


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ouinon
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11 Dec 2007, 2:47 pm

yes, sad, and quite scary to read actually; so many people not understanding other peoples point of view.
The Granny reminded me of what my mother might sound like if she ever joined a forum to find info re my sons PDD, or my own aspergers. So so NT, and so suffering in the face of aspergers inability to think like "a reasonable and considerate" (! !) NT. So forgetting what aspergers means. So well meaning.

I think that it's a very serious point though about whether the great creations of some aspergers ( we know not how many, nor how much the achievements depended on the AS brain in each case, nor whether the world might have been a better, quieter, less polluted, less mechanised place without these creations) make up for the serious difficulties and constant frustrations of many others.

I think i would have preferred to understand social signals, to have been better at wider perspectives, at judging longer time periods, etc etc so that i might have managed a job at my IQ level, might have grasped the real dangers of heavy drinking and chronically poor eating habits , and that it really wasn't necessary to have sex with all those guys to be a correctly functioning woman. And so that i might have been able to realise at a useful level that sex may REALLY produce a baby, without having to see the evidence myself before it really got into my head, at which point had an abortion i would have liked to have avoided, etc etc. O billions of things.
My life is a shining example of why a cure for the disabling aspects of aspergers would be a very good idea.
I think i might feel a lot differently if i hadn't managed to get myself pregnant a second time and convince myself with masterly aspie executive dysfunctionality that it might be a good idea this time round. Complete lack of judgement about me and life. When i have lived alone, and on state benefit, i have been peaceful, quietly creative, relatively happy, ...but obviously not enough because then i've thrown it all in to find pastures new.
If i could have had someone to look after me always,( not my parents because i couldn't tolerate all their restrictions, and they could no longer tolerate me,) someone non-invasive, invisible, a sane restraining influence on my off whack aspie decisions, my past drinking, smoking dope, confused sexual activities, poor study habits, poor job choices etc etc. Then perhaps i would not have made one disastrous mistake after another.
But i think it might be difficult, in fact impossible to provide this kind of sympathetic full time care , at least on a nat health service anyway! :lol:
500 years ago i might well have been put into a convent. That would probably have been an excellent solution. I am sorry that such an option was not really available in my lifetime!

:(



Last edited by ouinon on 11 Dec 2007, 3:53 pm, edited 1 time in total.

Basshead
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11 Dec 2007, 3:43 pm

There, I've signed up to Autism Speaks, and I feel dirty.


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Zarathustra
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11 Dec 2007, 4:10 pm

EXCELLENT! Zarathustra, Basshead, nom_nom_goes_the_hamster and EvilZakkie on the Autist Speaks forum at the same time! The most fun you can have with your clothes on. BTW Basshead, 10/10 For your first post. Nom_Noms getting some flak; support needed.


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Age1600
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11 Dec 2007, 4:20 pm

im on autismspeaks as well, im age926, i usually dont say anything because ppl take my opinion wayyy too seriously, but ill reply on cure to kanners, about aspergers and kanners, because the only main difference is language, because there is ppl with aspergers who are even more low functioning that ppl with kanners, and vice a versa(ugh yea i just mispelled again, ahhh oh well lol, ignore my spelling errors haha).


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beau99
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11 Dec 2007, 4:24 pm

To the people who signed up on there today, thanks for giving us a bad reputation.


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nobodyzdream
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11 Dec 2007, 5:26 pm

I would sign up, but I'm not really all that enthusiastic about signing up to a site where they are intent on finding a cure... especially when it is so debatable a topic for all, even those in the spectrum.

beau-I agree with your opinion. I make sure to give my kiddos lots of choices in things. My son, in fact, upon receiving his diagnosis at 6 years old, asked me "can the doctors give me anything to make my clothes not feel so itchy? Aside from that, my brain works perfectly fine... just different from most." I think the other parents have it a bit mixed up in your meaning on the subject.


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Zarathustra
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11 Dec 2007, 5:27 pm

Beau99, there's a major culture clash. 4 of my five first posts got deleted; I got infarctions and all sort. And I was trying really hard to fit in. Look at Basshead and nom_noms posts here. These people aren't trolls! Straight away they got jumped on and hammered! And after all three of us were back on topic, the NT f*ckwits just kept on beating the s**t out of then. Basshead even started a flamethread to take the crap out of the thread. All basshead did was wittily point out a flaw in someones argument; nom_nom just stated her opinion. and they got beasted.


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EvilKimEvil
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11 Dec 2007, 5:36 pm

I respect the anti-cure people who are joining Autism Speaks in order to defend this point of view. I think that most pro-cure people would have a hard time believing that any autistics do not want to be cured, unless they hear from us directly. If even a few people start to question the pro-cure message, it's worth it.

I read part of the linked thread and found it depressing. Reading more of that stuff might really bring me down, so I'm not going to join and start posting at this point in time. Thank you to those who are standing up for us and for our rights to be treated respectfully and to resist being "cured".



Zarathustra
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11 Dec 2007, 5:39 pm

And then nom_nom apologised [apologised for a perfectly reasonable opinion], deleted the post and they still kept hammering her. why do you think i posted above for people to support her?


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11 Dec 2007, 5:48 pm

the autism speaks forum has 1/3rd the amount of members as wrongplanet, yet they have national television ads and a team of publicists. how can you take them seriously anymore?


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11 Dec 2007, 6:22 pm

God.
It's hell out there.
Sorry, Zarathustra.


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Zarathustra
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11 Dec 2007, 6:38 pm

Basshead, you've got nothing to apologise for. You were a star. I was just trying to cool things down - i didn't want you to get banned. I need all the friends I can get over there. O, beware Pegasus, we think it's John Beast Jnr [He's trying to get my real name. I wonder why]


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