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Strapples
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04 Dec 2007, 2:46 pm

my parents already know i have been diagnosed with PDD-NOS and sensory integration disorder. i have had problems sleeping ever since i was little. i have recently learned that my sensory integration disorder could be responsible. but i am afraid to tell them what sensations i like, i am afraid they will think there is something wrong with me when there isnt anything wrong. but i really want help with my sensory issues and i have learned there are multitudes of things available i.e weighted blankets. what should i do? both parents are NTs :( i hate living in an NT family :( and i am an only child.

WHAT SHOULD I DO?

i have a counselor, should i speak to her in confidentiality about the situation?


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insomniakat
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04 Dec 2007, 2:49 pm

What do you think would happen if you were honest with them?


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Strapples
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04 Dec 2007, 2:51 pm

insomniakat wrote:
What do you think would happen if you were honest with them?

i dont know... i just feel insecure about telling them... afraid they may think something is mentally wrong with me and put me in a nut ward... and im not mentally impaired. they dont know anything about the list in my signature and im really afraid to tell them that list :(


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Last edited by Strapples on 04 Dec 2007, 2:52 pm, edited 1 time in total.

Age1600
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04 Dec 2007, 2:52 pm

I have nt parents also, and i was also diagnosed as first with severe pdd-nos, im very honest with my family, i even print things offline for them to read. Try printing things off the internet, it might help.


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insomniakat
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04 Dec 2007, 2:54 pm

If they already know you have sensory issues, then it's just a matter of you educating them about ways to help you negotiate the world. I agree with Age1600's idea. :wink:


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04 Dec 2007, 3:04 pm

i would say to talk to counseller about it, also try to tell the parents about your symptoms that make you believe you have aspergers then show them the website that has (may want to use something like national autism society or some medical info page (such as webmd.com) and maybe that the counseller

and just hope that parents can connect the interests that you have with your condition (pddnos and other things) to why you like things like for instance blood pressure cuffs and mummy restraints

good luck


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Strapples
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04 Dec 2007, 3:05 pm

doordoctor wrote:
i would say to talk to counseller about it, also try to tell the parents about your symptoms that make you believe you have aspergers then show them the website that has (may want to use something like national autism society or some medical info page (such as webmd.com) and maybe that the counseller

and just hope that parents can connect the interests that you have with your condition (pddnos and other things) to why you like things like for instance blood pressure cuffs and mummy restraints

good luck


i am already diagnosed with PDD-NOS autism and sensory integration disorder... where would i find articles focused on the sensory end of things... i do have the obsessiveness, but mostly my PDD-NOS is sensory.


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Strapples
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04 Dec 2007, 3:46 pm

team effort please, if anyone can find reports on sensory integration disorder and the things that help it please post links here... thank you :)


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04 Dec 2007, 4:05 pm

This is a book to purchase, I have a copy. Most books about sensory integration disorder feature children, this one also features adults. One thing that is good is that Sensory Integration Disorder doesn't just affect "mental cases", but a variety of people. So, you shouldn't fear that your sensory issues are about being crazy or weird. A lot of people have have these issues.

Amazon page for book

The great thing about sensory exercises is that you can control them, start and quit them without side effects. Some things may work like magic, some may not work at all.



Strapples
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04 Dec 2007, 4:07 pm

KimJ wrote:
This is a book to purchase, I have a copy. Most books about sensory integration disorder feature children, this one also features adults. One thing that is good is that Sensory Integration Disorder doesn't just affect "mental cases", but a variety of people. So, you shouldn't fear that your sensory issues are about being crazy or weird. A lot of people have have these issues.

Amazon page for book

The great thing about sensory exercises is that you can control them, start and quit them without side effects. Some things may work like magic, some may not work at all.

quick thing... i dont think i am defensive, and it says "too tight" at the bottom of the book... problem with me is im the exact opposite... i find tight calming... is this book going to cover both sensory defensiveness (hypersensitivity) and sensory obsessiveness (hyposensitivity)


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Age1600
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04 Dec 2007, 4:18 pm

Strapples wrote:
team effort please, if anyone can find reports on sensory integration disorder and the things that help it please post links here... thank you :)



http://children.webmd.com/tc/sensory-in ... c-overview

http://en.wikipedia.org/wiki/Sensory_in ... n_disorder

Those two sites might help!


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insomniakat
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04 Dec 2007, 4:20 pm

yes. i have it, too. :)


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Strapples
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04 Dec 2007, 4:21 pm

insomniakat wrote:
yes. i have it, too. :)

what do you have too?

if you have sensory integration disorder please tell me what sensations you like (mine are listed in my signature) and please tell me what you and your parents are doing to help you...


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04 Dec 2007, 4:21 pm

Strapples, the book covers both hypo and hypersensitivites. That's just the title. Please read the descriptions, the reviews and excerpts if they're there. I recommend it because it's about a variety of people and degrees of severity, not just small, autistic children that don't like scratchy clothing.



Strapples
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04 Dec 2007, 4:23 pm

KimJ wrote:
Strapples, the book covers both hypo and hypersensitivites. That's just the title. Please read the descriptions, the reviews and excerpts if they're there. I recommend it because it's about a variety of people and degrees of severity, not just small, autistic children that don't like scratchy clothing.

thank you... i am going to look at that book then... and no i hate scratchy clothing ha ha... i like soft and silky things... if it cant be silky then it must be soft...


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insomniakat
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04 Dec 2007, 4:24 pm

I mean that i have the book. I have too many sensory issues to go on about here.

And I'm 27, and my parents had no clue, so you are one up on me, eh?


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