Seizures!! I HATE THEM!! !! !! !! !! !! ! ! !! !! !! !! !

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OregonBecky
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04 Mar 2008, 5:07 pm

My daughter had a seizure yesterday and while falling, she knocked the space heater down on her legs. I was in the bathroom when it happened so I couldn't move as fast as I needed to. I got to her moments later but not in time to save her from the big nasty blisters. My heart breaks so much. My daughter is coping with the pain but I'm not coping well with my emotional pain. I wish so much that I could trade places with her. She doesn't deserve this.


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Sally
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04 Mar 2008, 5:12 pm

oh dear i hope she gets better soon.

i have only ever had 2 seizures, but one was on the back of a galloping horse which ran out onto a road where luckily no cars were coming & then fell on top of me. miraculously i was not injured at all apart from a cut on my elbow & thigh (which has left an impressive scar!)


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04 Mar 2008, 5:15 pm

I know what they're like, not fun. I'm on medication for it now.



OregonBecky
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04 Mar 2008, 5:19 pm

Sally wrote:
oh dear i hope she gets better soon.

i have only ever had 2 seizures, but one was on the back of a galloping horse which ran out onto a road where luckily no cars were coming & then fell on top of me. miraculously i was not injured at all apart from a cut on my elbow & thigh (which has left an impressive scar!)


Okay, I'm amazed. Maybe seizure people are part cat and have nine lives.


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Odin
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04 Mar 2008, 8:02 pm

OMG! 8O :cry:


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04 Mar 2008, 8:17 pm

I had a cousin with epilepsy and back in the 1970s the medications were pretty hard on him. I think they have made advances in medications since then.

Personally I've had only two seizures, one when I was about three and the other when I was around 40. I remember everything going black and then waking up on a gurney. Wasn't hurt at all - fortunately I was with my sister in a hospital in Queens, New York. I had a fever and the doctor had just told me that all I had was a sore throat and to go home. They were really surprised when I passed out and convulsed on the floor of the emergency room on my way out of the place!

Z



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04 Mar 2008, 8:24 pm

I take Dilantin for a seizure disorder. Luckily, I haven't had any breakthroughs while on medication. My heart goes out to you and your daughter.



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04 Mar 2008, 8:25 pm

8O

I hope she's doing better... :(


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04 Mar 2008, 8:34 pm

I know a person with a seizure disorder. She says that while they're painful, they're nothing to worry about as long as someone is able to respond to them.


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Danielismyname
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05 Mar 2008, 1:00 am

When I was younger, a little child, I had seizures for a while, I was on medication for months. Hospitalized and all, but they never gave my mother an answer other than, 'we don't know.' I'm betting it was seizures/epilepsy in association to my autism. Especially as they were always caused by fevers and whatnot. I was having many, many seizures for a few weeks; perhaps the prevalence was too great for them to say epilepsy, and then they stopped/progressed to myoclonus when I had a fever, whether due to the medication or....

I have migraines now, and my mother says my "meltdowns" are like seizures in appearance. But I don't think I have it anymore, i.e., I grew out of it (see: remission). I do have staring spells, but I'd chalk that up to visual and auditory disturbances.

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Seizures. One in four children with ASD develops seizures, often starting either in early childhood or adolescence. 5 Seizures, caused by abnormal electrical activity in the brain, can produce a temporary loss of consciousness (a “blackout”), a body convulsion, unusual movements, or staring spells. Sometimes a contributing factor is a lack of sleep or a high fever. An EEG (electroencephalogram—recording of the electric currents developed in the brain by means of electrodes applied to the scalp) can help confirm the seizure's presence.

In most cases, seizures can be controlled by a number of medicines called “anticonvulsants.” The dosage of the medication is adjusted carefully so that the least possible amount of medication will be used to be effective.



scumsuckingdouchebag
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05 Mar 2008, 1:12 am

Seizures sound horrible. :(



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05 Mar 2008, 1:59 am

Sorry to hear about your daughter Becky.

This is timely since in my digital media class today one of the students had a grandmal seizure.

I learned something new today... VNS - Vagus Nerve Stimulation.
This guy has one of those units in his chest and wears a clip-on magnet to switch it on incase he has a seizure or knows he's fixing to.

Unfortunately he didn't get a chance to do anything and wound up on the floor.
I've been working in emergency medicine since 1976, so seizures are nothing new for me to see.
I went over and held his head so he didn't bang it against the floor or furniture, and I also removed his glasses.
The instructor, meanwhile kept telling me to leave him alone.. we aren't supposed to touch him!

He came around after the first responders passed the magnet over his unit.
I left class eventually and when I got home I looked it up.
First time I have ever heard of VNS.
But since I've been working in a lab for a number of years, I wouldn't have a reason to know about it anyway.


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05 Mar 2008, 6:50 am

I hope she's okay, and you are too. I'd imagine seizures are not that pretty to watch.

I know people have already suggested it, but if she's having them regually have you thought about medication? It might make it easier. Plus, if she's young, she might grow out of them anyway. ^___^

And if it's really affecting you, have you considered seeing a councillor? It might help you be able to deal with things properly, and help you feel calmer when you're dealing with things like that.


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anbuend
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05 Mar 2008, 9:57 am

beau99 wrote:
I know a person with a seizure disorder. She says that while they're painful, they're nothing to worry about as long as someone is able to respond to them.


That depends on a lot of things.

If they're a sort that involves falling down, for instance, you can drown if you're in the wrong circumstances, and you can also injure yourself depending on what you fall on. (I was lucky to mostly get bruises, rugburns, and other minor things when I had that kind, although I don't suppose falling on my head was usually a good thing either.)

If they're a sort that involves your arms flinging out, they can be dangerous to people around you, at least if you're holding objects at the time. I can remember flinging knives across crowded restaurants involuntarily when I had that kind.

If they're a sort that impairs consciousness or awareness, then they can be a problem when driving or doing anything else that requires constant attention or awareness of one's surroundings. I don't drive for that reason, but I once found myself disoriented and halfway down the block, holding my dog's leash, and she'd dragged my wheelchair that far, fortunately not into the street, but she easily could have. My normal (uninfluenced by medications) seizures don't involve anything spectacular looking, but they do involve loss of consciousness and/or extreme disorientation, while I go on physically doing whatever I was doing beforehand, or else something repetitive.


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05 Mar 2008, 10:55 am

OregonBecky wrote:
My daughter had a seizure yesterday and while falling, she knocked the space heater down on her legs. I was in the bathroom when it happened so I couldn't move as fast as I needed to. I got to her moments later but not in time to save her from the big nasty blisters. My heart breaks so much. My daughter is coping with the pain but I'm not coping well with my emotional pain. I wish so much that I could trade places with her. She doesn't deserve this.
I'm sure you do. She's probably having an easier time of things than you are, knowing parents.

Seizures are a real nuisance, and, in this case, they're a dangerous nuisance. I would consider it a general object lesson in safety, and, consequently, I'd try to find a safer way to keep a room warm. Just don't mess with electric blankets. My room-mate is scarred for life from that time his arm got caught in the wire to one, and I tend to disagree with the idea of them.

Talk about it with her, and share your feelings. It'll help get your head glued back on, and it's important for you to stay glued together for those days that your daughter isn't holding up so well. I'm confident that she'll be perfectly fine, and, right now, I'm more worried for you. Blisters heal, but emotional wounds can worsen and interfere with daily living.



OregonBecky
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05 Mar 2008, 1:14 pm

Thanks for everyone's reply. She is on medication but she is transitioning from a medication that has bad side effects to one that hopefully isn't so bad. The seizure probably happened because it's hard to get a balance while switching over.

The burns are big and painful but we're using a cream that I strongly recommend that everyone have on hand. It's a prescription but tell your doctor you need it anyway. We first got some of this stuff a few years ago for a serious burn and had some left over. Whenever one of us got burned, even a little one, we used the cream. The pain stopped and the healing started. It's amazing stuff. When I expected a burn scar, I didn't get one.

It's called silver sulfadiazine.

http://en.wikipedia.org/wiki/Silver_sulfadiazine


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