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KingdomOfRats
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25 Mar 2008, 12:13 pm

Does anyone else on here get regressions [doesnt matter where are on spectrum]?
What exact regressions have had?
If get them at adult age,have always gotten them?



Am have always had 'regressions',they seem to attack all of the skills am already struggle at the most,and they can even affect mobility but only get that one for up to a day-can suddenly find have no use of legs so end up having to have family/staff help with lifting/anything physical and have to drag self around home for a while until it switches back on [which is up to a day,and think it might be meltdown related],am also have never understood the feelings completely needed to know when to go toilet,but at it's worst mostly managed to get to toilet on time-however,the regression puts am back to start again with this one and am have to re learn it again.

However,there is some that a staff complained about that am think is crap-she told parents,and the rest of the staff team am had had regressions since she saw am a long time back-apparently not making them a cup of tea is a regression now,am only ever think of making tea for others when it's in a long term routine and also hate the horrible woman for various things that could have had her arrested for so am not going to make her a cup of tea any time soon.
She came up with more stupid non existant regressions about medication,would like to swap this lady please,any takers.


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dawndeleon
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25 Mar 2008, 12:38 pm

Let her make her own damn tea.
Sometimes i have a lapse of motor skills here and there . I often trip over things or lose my balance. I think i know what you mean about the bathroom thing. I am 31 years old and still have trouble making it to the restroom on time. I have no real warning that i can feel until its so urgent that i have to run. (There have been a few times i havent made it either)
When this happens, are you usually engaged in an activity that requires a lot of concentration? Sometimes i am just so engrossed in something I tune everything else out, including physical urges. I would not call that a regression. I call that over-concentration, or physical priority cancellation. I have always had this problem since potty training on.

I cant say i have had any physical shutdowns, maybe overexertion at times. A bad meltdown usually puts me out for the evening. but they are so few and far in between now.



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25 Mar 2008, 12:58 pm

I notice i have some bad regressions as well, like you said how theres days you can't literally function physically or days where you have to relearn things over and over. I never understood why, thought maybe my brain is taking too much in, and just sometimes says "Ahhh get me out of here, i cant take it anymore!" and poof i'm back to the starting point all over again. Maybe its between an overload and meltdown to the point your brain can't handle either? I know thats what its like for me.


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25 Mar 2008, 1:40 pm

I feel like I'm only walking backwards.


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Danielismyname
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26 Mar 2008, 1:55 am

The only "official" line I've found is that it's common for those with autistic disorder to "regress" in early adulthood to how they were when young.

It holds true for me as whilst I've never approached anyone for conversation in my life, throughout my younger years I could talk [verbally] to those who interacted with me. Now, I am no different to how I was when around the age of four other than having a greater level of insight and self-awareness, i.e., I "ignore" people and I know I'm doing it, but I just cannot interact like when I was younger when they approached me (primary to high school years).

I also have seemed to develop a greater level of sensory sensitivity, or perhaps I'm just aware of it now, but I am unsure (my mother seems to think I'm worst).

Some good news, they say that it's common for us to improve around midlife.

Making tea for others spontaneously isn't something I'd expect of an autistic individual (as you said, you need your routine), nor would I expect them to make a cup of tea for someone they didn't like.



anbuend
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26 Mar 2008, 2:13 am

I tend to call the shorter-term things "shutdowns" (where it can be "total" or "partial" shutdown).

As far as so-called regression goes, I don't know the statistics for childhood, but 17-38% (I have the cites somewhere, and those numbers are from different studies) of autistic people are said to "regress" sometime in adolescence. (I could be wrong on the 38%, but it's something close to that.)

As far as long-term "regressions" go I had one in early childhood, regained those skills, and then a gradual loss of certain skills starting in adolescence and in some areas continuing into adulthood. (That one being a set of motor problems that a little over 12% of autistic people got in one study, which surprised me in how high it was. I mean, I know a lot of people who've experienced something similar. But I didn't realize the research would show so many already.)

On a day-to-day basis I have so many abilities flipping around all the time to make room for each other that I find it hard to count and describe them all, but those I'd consider fluctuations, shutdowns, etc.

Oh, and the study that said about 38% of autistic people experienced "regression" in puberty, it also said that about half of those who did, regained those abilities later on.


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