Seizures in the Autism Spectrum: A Survey

Page 1 of 1 [ 6 posts ] 

Sophist
Professor of Pedantry
Professor of Pedantry

User avatar

Joined: 23 Apr 2005
Age: 38
Gender: Female
Posts: 6,379
Location: Louisville, KY

06 Apr 2008, 11:40 am

I've written a brief survey focusing on seizures in the autism spectrum. For anyone who is autistic (diagnosed, self-diagnosed, or suspected), and who has epilepsy, please take part. It's just 9 questions. :)

A Survey on Seizures in the Autism Spectrum

Once I get a fair enough sample size, I'll be analyzing and posting the results for everyone to see.

Thanks!


_________________
My Science blog, Science Over a Cuppa - http://insolemexumbra.wordpress.com/

My partner's autism science blog, Cortical Chauvinism - http://corticalchauvinism.wordpress.com/


katrine
Veteran
Veteran

User avatar

Joined: 23 Nov 2006
Age: 45
Gender: Female
Posts: 576
Location: Copenhagen

06 Apr 2008, 11:59 am

Hi Sophist!! ! :D
Can parents answer?



KingdomOfRats
Veteran
Veteran

User avatar

Joined: 31 Oct 2005
Age: 35
Gender: Female
Posts: 5,313
Location: f'ton,manchester UK

06 Apr 2008, 12:10 pm

Done.


_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!


anbuend
Veteran
Veteran

User avatar

Joined: 5 Jul 2004
Age: 39
Gender: Female
Posts: 5,482

06 Apr 2008, 4:17 pm

As I mentioned in my comments, you seizure types are very outdated, you ought to consider both allowing people to choose multiple types, and listing the actual current names for the types of seizures.

Because there are:

  • Simple-partial
  • Complex-partial
  • Absence
  • Myoclonic
  • Clonic
  • Tonic
  • Tonic-clonic
  • Atonic


Your list left me zero choices except to click "other" and list which ones I have had, despite being able to answer yes to two of them.


_________________
"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams


Sophist
Professor of Pedantry
Professor of Pedantry

User avatar

Joined: 23 Apr 2005
Age: 38
Gender: Female
Posts: 6,379
Location: Louisville, KY

06 Apr 2008, 5:13 pm

katrine wrote:
Hi Sophist!! ! :D
Can parents answer?


Hi, sure, go ahead. :)

anbuend wrote:
As I mentioned in my comments, you seizure types are very outdated, you ought to consider both allowing people to choose multiple types, and listing the actual current names for the types of seizures.

Because there are:


* Simple-partial
* Complex-partial
* Absence
* Myoclonic
* Clonic
* Tonic
* Tonic-clonic
* Atonic



Your list left me zero choices except to click "other" and list which ones I have had, despite being able to answer yes to two of them.


Sorry, brain fart. You're right, I should've made that a multiple choice selection.

I chose to use those terms in particular though because I've noticed from past threads on epilepsy that those are the terms more often used. I wanted to use terms that people would be familiar with, since I've noticed, accurate or not, if a respondent doesn't know what I'm talking about, they won't answer.

I appreciate the suggestions, but for the terms, I'd still probably stick with the ones I gave so as not to risk the above. However, since I knew the choice selection I gave was incredibly narrow, I included Other with a text option so people could still answer accurately.


_________________
My Science blog, Science Over a Cuppa - http://insolemexumbra.wordpress.com/

My partner's autism science blog, Cortical Chauvinism - http://corticalchauvinism.wordpress.com/


Sophist
Professor of Pedantry
Professor of Pedantry

User avatar

Joined: 23 Apr 2005
Age: 38
Gender: Female
Posts: 6,379
Location: Louisville, KY

06 Apr 2008, 5:18 pm

I should say though, anbuend, I'll be analyzing these in a different program. I've just used SurveyMonkey to collect them. So when the final analysis is done, the question about epilepsy types will be categorized according to the full number of epilepsy types given by respondents. I will be breaking it up more than just Grand Mal, Petite Mal, TLE, or Other.


_________________
My Science blog, Science Over a Cuppa - http://insolemexumbra.wordpress.com/

My partner's autism science blog, Cortical Chauvinism - http://corticalchauvinism.wordpress.com/