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Age1600
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31 Jul 2008, 2:13 pm

So i saw my physician today he says i might have lymes disease and said lymes disease is known for causing psychairitric diseases like the one i have. I like blew up and screamed, im not diseased and said i have a neurological disorder. He was like well lymes may cause that also. Now in all my findings ive heard vaccinations, animal shampoos, environmental, genetics, but never heard of lymes causing autism. Ive been tested for lymes many many many times but he said the tests are more reliable now. He also said lymes caused be causing my tourettes as well.

I'm alittle angry with my doctor, because he also is the one who said i didnt have asthma my breathing problems are due to allergies so once again went back to the allergist and the allergist confirmed that no i have only minor minor allergies to dust and very minor allergies due to cats, but nothing stopping me from breathing like that and to go get an xray of my chest to see if i have asthma! Huh so go figure. So did i get my breathing problem taking care of, no, instead now my physician is saying i have a gas problem thats affecting my breathing, and im congested, so he gave me antibiotics to fix that, oh yay! But Somehow i did find out lymes might be the answer to all my neurological problems :roll: :?

So I decided to ask everybody here what you think about lymes causing autism? and if any of you could give me info on lymes disease, i would appreciate it so much? Also if anybody has experience with lymes, i would love to hear, or if any of you had doctors suspect you had lymes, love to hear also!


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Diamonddavej
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31 Jul 2008, 2:34 pm

There was a famous women on the internet a few years ago, from Canada I think, called Kathleen (nicknamed by others Kathloon). She used to post vast quantities of information about her hypothesis that claimed a link between Lyme disease, chronic fatigue syndrome and Asperger's (she claimed she had all three). She blamed the government for not treating her Lyme disease.

No one took her seriously, even more hated her. Her endless, never ending posts were often 10 to 15 pages long. I don't know where she got the energy for her near industrial output of pseudoscience.

So no, there is no connection between Lyme and Asperger's, you can't contract Asperger's via Lyme disease.

Anyone else know of Kathloon? How is she these days?



teflon_woman
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31 Jul 2008, 2:38 pm

Almost everybody in my family has had Lyme disease. Wikipedia has a pretty good article on the topic.



coyote
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31 Jul 2008, 2:44 pm

Quote:
"No one took her seriously, even more hated her"

where were she posting, on an NT's site ? ;)



corroonb
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31 Jul 2008, 2:47 pm

Mercury poisoning

Lyme's disease

vaccinations

Anymore "causes"?

How about wearing blue shoes or having black hair?

:wink:



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31 Jul 2008, 2:53 pm

I suspect we will probably all agree that Lyme disease isn't going to cause ASD.

But here is a more precise question: is it possible for Lyme disease to cause symptons that mimic ASD? To cause someone who is not ASD to present as if they are?

I would personally doubt it, because if that were true it seems to me (strictly off the top of my head, so if I get accused of unresearched conjecture, well, I'm not going to argue it):

a) There should be more cases presenting as late onset or adult onset ASD.
b) There should be more cases of ASD clustering with Lyme disease.

To me those stats would be a way to test the hypothesis.


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Last edited by DW_a_mom on 31 Jul 2008, 2:58 pm, edited 1 time in total.

Diamonddavej
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31 Jul 2008, 2:54 pm

coyote wrote:
Quote:
"No one took her seriously, even more hated her"

where were she posting, on an NT's site ? ;)


No, I found her on the alt.support.autism board in 2004.

I just did a search and I found her current website; if you read and you will understand why she can be a little annoying at times.

http://www.actionlyme.org/



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31 Jul 2008, 2:56 pm

DW_a_mom,
am would say it is likely it could mimic but not be asd as am have read about it being one of the real diagnosis of those misdiagnosed with adhd.


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corroonb
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31 Jul 2008, 2:56 pm

I was under the impression that Lyme's disease caused brain damage because of the parasite in the blood stream. I don't think brain damage would present as Asperger Syndrome. The person might have movement difficulties but many people with AS, don't have dyspraxia (clumsiness).



DW_a_mom
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31 Jul 2008, 2:56 pm

Info added to previous post instead.


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DW_a_mom
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31 Jul 2008, 3:01 pm

KingdomOfRats wrote:
DW_a_mom,
am would say it is likely it could mimic but not be asd as am have read about it being one of the real diagnosis of those misdiagnosed with adhd.


It sounds like ADHD is the misdiagnosis for a lot of things ...

Since ADHD is also a misdiagnosis for ASD, I could see then where Lyme disease and ASD might get confused.

At least Lyme disease can be tested for and ruled out, is that correct?


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31 Jul 2008, 3:06 pm

Quote:
I just did a search and I found her current website; if you read and you will understand why she can be a little annoying at times.

http://www.actionlyme.org/


Wow.
Might be interesting to read if the sciency words weren't all mixed in with the insulty words.



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31 Jul 2008, 3:10 pm

I did a google search on lymes autism, and this site is the first site that came up that seems to be unbiased: http://autism.about.com/b/2007/01/10/is ... autism.htm



corroonb
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31 Jul 2008, 3:12 pm

DW_a_mom wrote:
KingdomOfRats wrote:
DW_a_mom,
am would say it is likely it could mimic but not be asd as am have read about it being one of the real diagnosis of those misdiagnosed with adhd.


It sounds like ADHD is the misdiagnosis for a lot of things ...

Since ADHD is also a misdiagnosis for ASD, I could see then where Lyme disease and ASD might get confused.

At least Lyme disease can be tested for and ruled out, is that correct?


I think Lyme disease can be tested for but its very expensive and they usually just give suspected cases antibiotics. My younger brother was diagnosed with it last summer when he was working in Boston and they gave him a month's course of antibiotics. He seems fine now.



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31 Jul 2008, 3:24 pm

Diamonddavej wrote:
There was a famous women on the internet a few years ago, from Canada I think, called Kathleen (nicknamed by others Kathloon). She used to post vast quantities of information about her hypothesis that claimed a link between Lyme disease, chronic fatigue syndrome and Asperger's (she claimed she had all three). She blamed the government for not treating her Lyme disease.

No one took her seriously, even more hated her. Her endless, never ending posts were often 10 to 15 pages long. I don't know where she got the energy for her near industrial output of pseudoscience.

So no, there is no connection between Lyme and Asperger's, you can't contract Asperger's via Lyme disease.

Anyone else know of Kathloon? How is she these days?


I remember her.

I don't like the nickname, though. Reminds me too much of how a bunch of people at a community center I went to bullied a woman who acted weird and had a bunch of psych labels. They called her Eiloon instead of Eileen and did all kinds of nasty things to her.

No idea how she's doing -- but Age1600 if your doctor is like this please get another one, this is really not the proper practice of medicine.


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DW_a_mom
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31 Jul 2008, 3:24 pm

MR wrote:
I did a google search on lymes autism, and this site is the first site that came up that seems to be unbiased: http://autism.about.com/b/2007/01/10/is ... autism.htm


That was really interesting. Thanks.

I firmly believe that my son's ASD is genetic, but at the same time I've puzzled over some of the related conditions he has that previous generations did not. The difficulty writing, for example (he has a lot of trouble with his hands). Could that be induced or triggered by something other than his ASD? It is certainly a question worth giving some thought to, and I have. I've actually come up with all sorts of possibilities, but none of them have been anything we could do anything about at this stage. But if it was Lyme ... well, I'll have to think about if that is a road worth looking into.


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