Things that just complicate things further...

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Padium
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17 Dec 2008, 9:05 pm

Anyone have a condition that just makes dealing with the spectrum worse? For example, I have Reynold's Phenomena which starts cutting off circulation to my outer extremities when I get cold, so my hands get even colder faster. That was a problem as a kid, cuz I'd come in from the cold after delivering papers and just have a meltdown crying, partly in pain from the cold, partly in hatred of having to do this so I could have a little spending money, fortunatly for me, the meltdown couldn't be aggressive simply because I was in too much pain from the cold. I would also start having meltdowns from knowing I was going to have to go out into the cold to do the papers, and from having to put the stacks of flyers into the papers, and, hell, I have a kid on the spectrum, they are not having a paper route based on my experience. But back on topic... Anyone have a condition that just further complicated things, and was not in some way related?


EDIT: I'm adding another question: Anyone find that there is a lot of memories you know exist but have forgotten about? I have found that I have had a very very very very negative childhood, but there is a lot of that negativity (roughly 90%) that I can't remember. I don't want to remember it, as it all had to do with difficulties with peers that I don't care to remember, but there is a lot of memories I know I have forgotten over the years, and I am remembering some more recently, but I still don't want to. For example, if you have seen one of my two posts about being treated for ODD when I should have been diagnosed AS instead, I actually only recently remembered the horrible memory of the treatment, but other than one example I don't remember any of the specifics.... It was torture though pretty much. a lot of my life from grade 6 - grade 8 I can't remeber, stuff before that, it is a couple of very specific stuff, and that stuff I can remember. I know what it was that I am forgetting but can't remember exactly what had happened.



Last edited by Padium on 17 Dec 2008, 9:18 pm, edited 1 time in total.

pensieve
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17 Dec 2008, 9:14 pm

I have eczema and Kerotosis Polaris. 10 minutes in the sun is enough to get burnt, which goes itchy and then my skin will peel. I'm also allergic to most creams, especially anything with spf in it. It actually makes my skin go red and blotchy.

And I told you before that my stim is actually scratching the most affected areas.

The KP just looks ugly. Damn chicken skin.



BastetsEye
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17 Dec 2008, 9:14 pm

I have a cleft palate, and was born with a split tongue. I had it shortened and sewn up but still had to learn to talk a different way (meaning I had to move my tongue differently. Now I speak very well (So I've been told) for someone with this condition. But when I get Allergys my speech can be impaired If I don't focus on my words, But when I get stressed out due to...well everything, I can't focus on my words, which makes communicating harder than normal, which stresses me out....and round and round it goes.

Also I have Oral/Facial/Digital Syndrome. So it's bad enough that I have no spacial awareness. But sometime I have troubles holding things which makes that even worse.

pensieve, I have the exact same problem with Excema, I haven't been able to wear a skirt in over 10 years because my legs are covered in it. I'm seeing someone in the new year who deals in meridians or something, to see if he can help.



Island
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17 Dec 2008, 9:28 pm

About your second question: I am the same way. I always figured I just blocked my childhood out, because there's very little that I remember. Hmm.

And your first: I have eczema like the others. I use Protopic for it and that seems to work really well. I've recently started having GI problems. My symptoms match up with Krohn's disease, but I'm hoping it's not that serious. Maybe just a functional problem like IBS, but I'm having ulcer problems too. :? And to top it all off, I have endometriosis.


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Padium
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17 Dec 2008, 9:31 pm

I'm gonna clarify what I said in my edit: I would for example come home from school wanting to kill so and so for doing something to me, but my parents could never help me because by the time I'd get home, I'd forgotten what that person did and never remember since. One exception to that was when one guy spit on me. As for issues at home, the treatment for ODD is the only thing I clearly know I have ever forgotten, as well as my mom and my dad splitting up, some of that stuff I had forgotten... mostly how bad my mom actually treated my dad... My mom still treats my dad the same way, and she has always treated me and my siblings well, mostly in hopes that she could use us against him... (my sister actually caved to my moms hidden agenda) I have always trusted my dad with everything though, and have been helping him since before he and my mom split. Thankfully he married the right woman the second time. I love my step mom, and would take her over my mom any day.

I guess family issues are a thing you can call an issue to complicate things further...



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17 Dec 2008, 9:34 pm

I'm 50% deaf, both ears, if you want to count that.



BastetsEye
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17 Dec 2008, 9:37 pm

As for memory. I have two problems with memory.

First of all I have a blank before my 2nd year, My first memory is of our second house, being brought to it,that's how it feels even though given my mum said we had no furniture when we moved in and the presence of furniture in the memory I would have been there before it just doesn't feel like it, I remember feeling and understanding that this was where I was supposed to be now and just accepting it and feeling like I'd been given to my parants. This lead to me later thinking I was adopted but that's been disproven. I just have a gap in memory. The over one is I can't remember my Dog being given away, I can remember having him. I can remember going to my grandad's house, which is when my dad gave him away. But after that it's a blank again. I can't remember feeling his loss. Just again later or the acceptance that he was gone and had been gone.

The other thing is I can't remember alot of my life, but they aren't blanks, I know the big picture of them. Went to school, went to congregation, went to big school, etc. I know how events happened I just have no recollection. It's like I have the facts but no really pictures.



ike
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18 Dec 2008, 5:02 am

Padium wrote:
Anyone have a condition that just makes dealing with the spectrum worse?


Nope, just the horseshoe kidney, yeeeha! ;)

Padium wrote:
Anyone find that there is a lot of memories you know exist but have forgotten about? I have found that I have had a very very very very negative childhood, but there is a lot of that negativity (roughly 90%) that I can't remember.


Ummm... yeah... I had to hear second hand from my sister about the time my mother in response to what seemed to be an innocent question lifted me off the floor by a handful of the back of my neck, yanked open the utility drawer and started beating me about the head and neck with a random assortment of egg-wisks and wooden spoons while screaming at the top of her lungs. Apparently she beat me... a lot... and I don't remember it. I had to hear from my mother second hand about an incident in which my father threatened suicide in the kitchen and although my sister ran to her room crying, my mother had to carry me to bed because I'd become catatonic (according to her, waxy flexibility of the limbs and all).

Padium wrote:
I don't want to remember it, as it all had to do with difficulties with peers that I don't care to remember, but there is a lot of memories I know I have forgotten over the years, and I am remembering some more recently, but I still don't want to. For example, if you have seen one of my two posts about being treated for ODD when I should have been diagnosed AS instead, I actually only recently remembered the horrible memory of the treatment, but other than one example I don't remember any of the specifics.... It was torture though pretty much. a lot of my life from grade 6 - grade 8 I can't remeber, stuff before that, it is a couple of very specific stuff, and that stuff I can remember. I know what it was that I am forgetting but can't remember exactly what had happened.


I don't blame you for not wanting to remember. I'm pretty sure I don't want to remember a lot of my childhood either. Actually it makes me glad I'm not having to drink to forget. Not that I've ever really drank... socially I guess, but I can count the number of alcoholic drinks I have in a year on my hands... not like the "normal" people I know who seem unable to enjoy themselves unless they're getting hammered on the weekend.


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18 Dec 2008, 5:14 am

Island wrote:
And to top it all off, I have endometriosis.

So sorry to hear that. I have dysmenorrhea but if I take my pills at the right time I'm ok. I wish I had known that when I was 13, which is when I first got it. I also have PMDD, which is probably the reason why my moods have been everywhere and I feel really depressed lately. Actually the last few months I felt suicidal, but that could have to do with a break up. I hope I never feel that way again.

As for childhood memories I remember most bad things that happened to me. I cannot suppress any of it. I also have this strange feeling that when something happens I immediately know that it is going to be a memory. Anyone got that? And they're both positive and negative ones too. I just find it weird that I know I'll have a memory as it happens.



ike
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18 Dec 2008, 5:15 am

Oh and I have an duodenal ulcer and a hiatal hernia at either end of my stomach. I don't think about those very much. And I have a couple of prolonged dizzy spells every year which only started in my late 20's.

Having any memory at all prior to age 2 would be extraordinarily unusual. I think the general consensus amongst those who study it is that the brain isn't equipped to store conscious memory before that... although I have to wonder, how would they know? It's not like a 2-year old can tell you.


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prillix
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18 Dec 2008, 5:23 am

Padium wrote:
Anyone find that there is a lot of memories you know exist but have forgotten about? I have found that I have had a very very very very negative childhood, but there is a lot of that negativity (roughly 90%) that I can't remember. I don't want to remember it, as it all had to do with difficulties with peers that I don't care to remember, but there is a lot of memories I know I have forgotten over the years, and I am remembering some more recently, but I still don't want to.


I go through the same thing myself. The sad part is, i don't want to remember them, but on the other hand, i haven't been diagnosed so i am constantly Trying to remember tid-bits from my past that might help me figure out whether i am or aren't on the spectrum.



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18 Dec 2008, 5:42 am

pensieve wrote:
Actually the last few months I felt suicidal, but that could have to do with a break up. I hope I never feel that way again.


I can relate. When I was 20, I had a four-year relationship end quite abruptly. In addition to the standard NT emotional response, this was also the epitome of unwanted routine changes and a revocation of the cornerstone of my (albeit limited) social support network. For a few months, I was so depressed that I often took an hour or more just to tie my shoes. My substance abuse also escalated to near-suicidal proportions, which lasted for about 20 months after the break. The positive news is that we can and do rebound from such losses. The depression ultimately subsided. I have been clean for four years, and am in a new relationship. Granted, it may take longer and be a more difficult path, since we have to recover from more than most, due to the 'peculiarities' of our neurotype. There is light at the end of the tunnel. Keep the faith.

Something that I have noticed is that I seldom have a personal, emotional attachment to my memories. It is almost as if they happened to someone else. From what I understand, this fits in with depersonalization disorder. However, I have not been diagnosed. For that matter, I don't think I ever brought this up with a psych.

I also have mild ichthyosis - a form of dry skin that runs in my family.

I had asthma as a child, but grew out of it.

I guess HPPD and SVT also count, but these are of my own doing (see the first paragraph of this post)



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18 Dec 2008, 6:13 am

Kaysea wrote:
In addition to the standard NT emotional response, this was also the epitome of unwanted routine changes and a revocation of the cornerstone of my (albeit limited) social support network. For a few months, I was so depressed that I often took an hour or more just to tie my shoes.


I was that way too. I saw him every weekend for three days, but then I had to stop that. It took me ages to adapt and I'd find on those days I would have seen him to be my most emotional days ever. In the early week I was fine.

I would just sit on my bed for hours with my clothes to one side. I was that depressed.
But now I think he is an arrogant ass and if we were still together I would not know about AS. He would not even support me when I had anxiety, so I doubt he'd care about the AS. Actually he would ignore me then pretend that I never told him. Ass!

Sorry got a bit emotional there.