Severe Asperger's
KingdomOfRats
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Age: 41
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Location: f'ton,manchester UK
there isnt one way to say it as there are many different experiences of ASDs-not only one can represent it,the severe aspies am have lived with in LD/DD residentials all had strong problems with challenging behavior,meltdowns whether outside or inside,strong need for routines and no changes,had difficulties with communication in different ways,none of them had sensory problems but it will differ in what eachs worst and good part of their as is dont know if that makes any sense....severity also affects functioning so a severe aspie may be lower functioning,and complex needs get a lot stronger.
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>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
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A gluten/casein free diet can relieve the symptoms of those with severe Asperger's. In some cases, parents have claimed that dietary changes have cured their child's autism. http://www.chetday.com/autismdiet.htm
Have you met anyone who fit that description?
KingdomOfRats
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Joined: 31 Oct 2005
Age: 41
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
Have you met anyone who fit that description?
all the aspies in trafford LD/DD residential care fit those examples [the females are no different],though the severity of each trait or difficulty differs for each aspie,it's not a blue print for severe aspergers [for example,many with severe as have strong sensory problems,am dont know any s/aspie service user in this borough with sensory problems to any level,only one has atypical senses [she's hyposensitive],but they are all common difficulties and traits to the severe end,am have never lived with a s/aspie who am did not assume had classic autism first.
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>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!
I'm tired of people who are lead to believe that having Asperger's Syndrome or Autism, is the same as diagnosing someone who has a cold. The symptoms are not the same for everyone, we're all different people, who have Asperger's Syndrome, and who go through life with it differently.
Yeah, it could be "severe" for any number of reasons. Ny main handicaps are sensory and unexpected-event overload. I know other Aspies who function about as well as I do, but have more problems with social interaction and hardly get bothered at all by uncomfortable clothing or humidity or a missed bus. And then there are the ones whose meltdowns are violent--and there's a whole lot more trouble with that, because that puts you in danger for a lot of things, especially abuse and overmedication. One guy I know got dosed with heavy-duty antipsychotics for 15 YEARS because of meltdowns. (They made the meltdowns worse, naturally, but the stupid doctors kept labeling them "psychotic episodes" and for some reason kept thinking "If this drug makes him worse, he must not be getting enough of it!") Oh, and you don't even have to have "severe AS" specifically for it to be enough of a problem to need a great deal of outside help--just a dash of mental illness, even the common ones like depression or PTSD, could give you too much to process, and you'd end up with your AS looking a lot worse.
Ummm... and GF/CF is SO not a cure-all.
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Last edited by Callista on 10 Dec 2008, 10:49 pm, edited 1 time in total.
My worst days are when I don’t do anything, except maybe goof-off on the computer and watch TV. I hate those days. But if I try to do anything my mind just trips over itself and I makes the wrong decisions and just make a mess of everything so I have learned to just do nothing; which I hate even more.
As KingdomOfRats said, it's usually defined as very challenging behaviour. However, I can see an extremely withdrawn individual who just so happened to be verbal as a child who presents with no challenging behaviour [other than getting upset when routine is broken], could be seen as "severe" (unable to work and unable to [socially] interact with people except family members for example).
(This latter individual could probably be seen as PDD-NOS, i.e., closer to Autism than Asperger's, but some would diagnose this individual with Asperger's.)
You could have somebody with speech but hardly any social perception, who gets flustered when the cashier says "Looks like it's going to rain tonight" instead of the expected "How are you?"... that kind of thing, with language very formulaic and no flexibility. You'd probably need to live with your family if you had really big semantic-pragmatic issues, because you could be totally confused by something like the "Keep Refrigerated" directions on a jug of milk, and end up standing in front of the fridge trying to guess what you were supposed to keep... Also there's the executive dysfunction thing, which can make really simple things take forever, like taking two hours to take a shower (I used to do that), or not being able to figure out how to do shopping unless you have a list of steps, and going into overload when they're out of stock on something that you had on your list, or not being able to order in a restaurant because the choices for your food are too overwhelming... I mean, an Aspie could have any and all of those problems, and now you put him on his own and he's got to pay the bills and hold a job and learn to drive and, oh, by the way, keep himself fed and clean, which is hard enough all by itself... Yeah, if you've got enough trouble in that area, you're probably going to need extra help. Living independently is not an easy thing to do.
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Do you think I could have severe AS
I have a definete diagnose of straight autism but i think i am aspie because my IQ is a bit above average but I have had difficulty with language which is more typical with some with autism Like i said I am Aspie, mild autism is AS, I thought. Most people wouldnt suspect that i have autism unless they was trained to know.
I am thinking with the BPD diagnose i was recently given and before that schizophrenia (which is not true) Then my PTSD & PD diagnose + ASD. Learning disability diagnose by neuropsych. ADHD diagnose. Then my complex partail seizures epilepsy. I have also been hospitalised for clinical depression & adjustment disorder, anger problems suspected schiz illness and there is more which is ridiculous but they are the confirmed and what I have been given treatment for. Except for epilepsy I was given ten tablets a day for that and it just numbed me out. After being tested several times since a child the neurologists said to me this year, Again, he doesnt think I have epilespy and so I dont. No depression no more and the psych that diagnosed BPD doesnt believe I have ANY schizophrenic illness AT ALL and my case manager agree's.
All I want to do. Is ignore all of these labels and just say that I am an Aspie! Maybe, I have severe AS but I know I don't or think I wouldnt 'cause I meet an 18 year old girl who had severe AS. Some ways we was similar but in comparison I was much more normal. She was beautiful girl but you could tell she really wasnt normal, as having mental disability.
Not my psychaitrist but my case manager and clinical psychologist I have seen for thearpy have said, "I am an enigma' I get everyone puzzled, the best of doctors. They both have said on different occasion 'I've got a bit of everything" because the schizophrenia was diagnosed as being mild too.
Everyone has always argued about me. Its funny. Doctors in bad moods with other doctor cause they dont agree. It has always been like that and I think, WHY, why do i even bother.
I am not really accepting BPD because that doctor also said I am a woman who is chronically and severe illness in whatever he thinks my mind thinks; of that thinking being a problem. Its not a problem unless I make it that way. It's not a disorder either. We all got our own personality traits just because some one is different you shouldnt say there personality is disordered! It's rude and it's putting people down. It's not good for people's self esteem. to say s**t like that, well I really don't think so! I just wanna be aspie.
Always Aspie & Forever AS :!:
also note the symptoms don't have to be severs all the way, as others said
EDIT:
the IQ that Neurotypicals excel at? If that is true you can have it updated. Thought the definition is done via language delay often (Aspergers have no delay, while 'lower functioning' do have a delay). But there are differences...yes this is complicated. If I'm wrong, someone tell me

she wouldn't have Asperger's if she's ret*d...

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Asperger defined it, normal to above IQ, strong interests, and a lack of concern with social interaction.
His subjects fit that profile and nothing else.
I think he did see it as Autism, but lacking the factors that define Autism.
Anything else rules out Asperger's.
Now I hear of Psychs saying Asperger's and a can of worms.
They never read the original, and they self medicate.
Before Asperger it was shy, bookish, and odd.
The current view has to do with billable hours.
I don't think it's 'lack of concern with social interaction', it's 'lack of success with social interaction'. This lack of success can be of *serious* concern to the Aspie.
I think he did see it as Autism, but lacking the factors that define Autism.
Anything else rules out Asperger's.
Now I hear of Psychs saying Asperger's and a can of worms.
They never read the original, and they self medicate.
Before Asperger it was shy, bookish, and odd.
The current view has to do with billable hours.
Yes, I think the original definition appears to have broadened somewhat. Also due to an increased emphasis on "appearing normal'. A lot of people suspect their 4 year old has AS because he/she isn't as sociable as the other kids and occasionally has a meltdown. I think it's quite normal for a 4 year old to be self centred and throw the occasional tantrum. Images of perfection in the media cause us to lose touch with reality, though.
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Circular logic is correct because it is.
Last edited by ManErg on 11 Dec 2008, 11:58 am, edited 1 time in total.
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