If you suddenly no longer had a diagnosis... (CONT.)

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KiyokosOnlyOnigiri
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02 Mar 2009, 3:30 pm

If you suddenly no longer had a diagnosis, and yet you were still, in your heart's belief, whatever diagnosis you are (hey, I can't assume you're all Aspies!), then what would you do?
I'd try to act normal, but would miserably fail at it.


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AmberEyes
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02 Mar 2009, 3:46 pm

Speaking from real life experience (there's no hypothetical situation in it for me!). I just assumed that I was "normal" and that a genuine mistake had been made.

I just acted like me. Some people loved it, others loathed it.

The weird thing was because I assumed I was "normal" I just attributed all of my faux pas and people commenting on my lack of coordination to "bad luck" or "uncaring people". I still had the same sense of humour/way of approaching people (I just became slightly more polite) because no-one had told me explicitly what I was "doing wrong" or that my "issues" were even social!

I was lucky for a time to have people who accepted who I was in a safe environment. After I left, I really noticed the social interaction differences. I thought that everyone was being unfriendly by not talking to me. It turns out that I had been completely oblivious to any clique system and just made friends with everyone in the previous place. I've struggled since then.

How well I cope does seem to heavily depend on the social environment I'm placed in.
If there are clear rules, clear expectations, a low population density and accepting people, I'm usually fine (bar the usual ups and downs odd bad day or two).

Remember that once a dx or label is removed, people won't tend to cut you as much slack. You'll be expected to function on your own just like a normal person without any special assistance.

I hope this helps.



KiyokosOnlyOnigiri
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02 Mar 2009, 3:56 pm

Heh, I know. Thanks.

I also put it up for others, too, even if they weren't in such a situation, though.


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whitetiger
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02 Mar 2009, 4:14 pm

I wouldn't believe it anymore. Too many experts have assessed me.


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Callista
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02 Mar 2009, 4:28 pm

A diagnosis is kind of irrelevant. I'm still the same person.

I might end up losing services and ending up on the street, of course.


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02 Mar 2009, 4:33 pm

I would lose my SSI which would happen soon anyway.

I would probably lose CareOregon too.



Callista
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02 Mar 2009, 4:34 pm

If you're in danger of that, get yourself a car... I hear it's a lot easier to be homeless if you have one. Doesn't matter if you can drive it or if the thing runs or even has an engine--it's a place out of the weather.


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sinsboldly
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02 Mar 2009, 8:15 pm

Yes, absolutely on the car and being homeless! I would almost rather be with out my current apartment if I only had a car! I got so much more good out of having a car when I was moving from couch to couch and tent to garden shed!

as for un DXed I lived only two years of my life knowing about AS and only 6 months with a DX anyway. the DX means nothing. Learning to live in the context of the DX does. It's still me, I just have more of a handle on the AS.

I can understand your question, though, KiyokosOnlyOnigiri, it has been the best relief for me to say "hey, I'm sort of an odd duck, (to my supervisor, my doctor, my dentist) I'm high functioning autistic so give me a minute to absorb this, OK? Just today when I was at the doctor, they actually turned off the overhead light and only had the under cabinet lights on, just because I started out with the above. I would have had to grimace and bear it (and have many times) had I not had my DX to hold up before me like a gold crucifix to a vampire.

Merle


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whitetiger
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02 Mar 2009, 8:53 pm

I think I took your question only literally, as something logical that could happen. It can't, I really don't think and certainly hope, at this point. But, if it did, I would lose everything, including SSDI and the ability to get medicare and medications. I don't have a car, so if I didn't move in with my dad with dementia for support, I would be homeless, since I cannot keep a job. I would also wander around confused, with no ability to make friends, since my only friends ever have been in AS support groups.


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Danielismyname
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04 Mar 2009, 4:06 am

They'd then just label me with something else. That's how it goes for us outliers of human behaviour; labels, labels, and more labels to help explain to them why we're so damn weird/different. They need a reason, and a label gives them one.