Some one explain the problems with Autism Speaks?

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LennytheWicked
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17 Jun 2012, 4:33 pm

Sweetleaf wrote:

Well not really considering neurology has nothing to do with race really, it would be a type of discrimination and/or prejudice which racism also falls under.

I say racism because there is a physical difference, a culture, and [most likely] a genetic component; but I suppose given the connotation it's a poor choice of words.

We should just make up more words so that there's no connotation tagged on.

Sweetleaf
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17 Jun 2012, 5:00 pm

LennytheWicked wrote:

Sweetleaf wrote:

Well not really considering neurology has nothing to do with race really, it would be a type of discrimination and/or prejudice which racism also falls under.

But it is not a race, racism indicates hating someone for their race. Also what do you mean there is a culture, I was not aware there was a culture to having a mental disorder. I mean I don't really feel like I share a general culture with others with aspergers, just have the same disorder.

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LennytheWicked
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17 Jun 2012, 5:04 pm

Sweetleaf wrote:

LennytheWicked wrote:

Sweetleaf wrote:

Well not really considering neurology has nothing to do with race really, it would be a type of discrimination and/or prejudice which racism also falls under.

Well, what I meant is...

I'm not sure how to explain it much more without getting really off topic. Basically, I liken lots of things to ethnicity. Not everyone in an ethnic group shares a culture either. But I understand that it's a weird way to group people, so I'll drop it and chalk this up to you.

dalurker
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17 Jun 2012, 7:38 pm

LennytheWicked wrote:

dalurker wrote:

androbot2084 wrote:

Also independence is over rated. Independence is a sacred value of a capitalist society. People who are dependent are judged by the capitalists as being worthless.

No, it's not overrated. Prove you think so by relinquishing your IQ points. I think you're very much like a capitalist.

You're like the "socialists" from 1984. You keep saying that two and two make five, and expect us to believe you.

I'm sighing again cause of those who are obsessed with that book, who don't realize they're being manipulated by pessimism. If I'm that, then what are you? I've made so many points over and over, and have only seen "rebuttals" that are meaningless, off point, and nearly random. Like nothing I've said can be refuted, so I see no other reason for the weird responses.

Quantum_Immortal
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17 Jun 2012, 7:53 pm

i think our case is unique.

Whats the meaning of our social problems?

in my opinion, we are at the early stages of sympatric speciation.
http://en.wikipedia.org/wiki/Sympatric_speciation

The true meaning of our social problems, its that evolution is trying to split a new human species.

Autism speaks, and the likes, are just sympatric speciation.

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dalurker
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17 Jun 2012, 8:02 pm

Sweetleaf wrote:

There is only one right way to do things? that's interesting...not sure I agree. Also if one has to depend on others to care for them then they at least shouldn't be put down for it. I am not opposed to helping low functioning people to improve their functioning but the goal should be improvement of their life...not in the name of making them more 'normal.' to make things easier for everyone else.

Quote:

Who says the ones who want independent lives and to depend more on themselves cannot work to learn skills to help them with that? that's not a cure that is just general self betterment which I never suggested is a bad thing.

We're talking of developmental disorders. They can't be worked out of.

Sweetleaf
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17 Jun 2012, 8:07 pm

dalurker wrote:

Sweetleaf wrote:

You're not acknowledging much of what I'm saying. You keep saying the word normal. I haven't brought it up once. You're focusing on the ideas and perceptions of those around them. That's not the point. Increases in functioning are improvements in life.

Not sure else how to word it, also I realize that point...but at some point sometimes its better to let someone be them then try and force some unnatural way of being upon them. Yes increased functioning is good, but pushing too hard can be just as detrimental as doing nothing.

Quote:

We're talking of developmental disorders. They can't be worked out of.

No functioning can be improved, no one has been totally rid of their autism...people have just learned to better function with it, but some people can only 'improve' so much and they should have the right to pick their battles not be forced into fighting every one. I mean I feel like I probably would not have graduated highschool if the focus was on trying to get me to interact normally, make eye contact ect...I think I am glad to have put more effort into reading, writing and well the interesting school work.

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dalurker
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17 Jun 2012, 8:15 pm

Sweetleaf wrote:

they should have the right to pick their battles not be forced into fighting every one. I mean I feel like I probably would not have graduated highschool if the focus was on trying to get me to interact normally, make eye contact ect...I think I am glad to have put more effort into reading, writing and well the interesting school work.

They don't have to be forced into fighting other battles. Curative treatments are supposed to deal with the problems for them. Then things will really be easier.

Sweetleaf
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17 Jun 2012, 8:20 pm

dalurker wrote:

Sweetleaf wrote:

They don't have to be forced into fighting other battles. Curative treatments are supposed to deal with the problems for them. Then things will really be easier.

I just don't see those as 'cures' of any sort I see it as treatment to become more functional...which can help some people.

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17 Jun 2012, 10:16 pm

LennytheWicked wrote:

Sweetleaf wrote:

LennytheWicked wrote:

Sweetleaf wrote:

Well not really considering neurology has nothing to do with race really, it would be a type of discrimination and/or prejudice which racism also falls under.

The word you're looking for is probably closest to ableism. That one is for disability in general, but the point stands still.

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17 Jun 2012, 10:24 pm

soutthpaw wrote:

Sweetleaf wrote:

androbot2084 wrote:

YOU FIGURED OUT HOW TO MAKE COMMUNISM WORK.

No I just read up on it and like what I found, I have no idea how to make it work on a large scale. I am good at researching information but don't create it. Besides liking the idea of communism is not exactly something most people find all that cool...I even got made fun of in high school when I first got interested in it as usual I was thinking I should have just kept my opinions to myself. So I am not sure I would consider knowledge about communism and ideas how it could work is very useful.

Communism works very well in the animal world. its only when you add human greed and emotion etc that it fails.

I'm still wading through this thread, but must comment here. Communism works in the animal world ?!?!?!? Where praytell!?!?!? When the predator devours the prey? When the Alpha bullies the Omega away from the kill? When the dominant male fights and even maims less able males for the right to breed?

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17 Jun 2012, 11:25 pm

Having waded through the whole thread . . . .

The problem I have with Autism Speaks is their narrow focus.

It would be far more productive to include everyone on the spectrum.

Early screening, diagnosis and intervention would help everyone on the spectrum reach their full potential.

Increased awareness and understanding would help everyone on the spectrum as well. Regardless of our sensory challenges, most on the spectrum do suffer more from uneducated NTs than from Autism or related challenges.

Educational protocols that help spectrumites harness their strengths and become productive members of society would benefit everyone, be they on the spectrum or not.

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aghogday
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18 Jun 2012, 3:43 am

CuriousKitten wrote:

In regard to the focus of the research the organization is funding per the 2012 research emphasis area linked and quoted below, the research emphasis addresses issues associated with Autism across the spectrum, and addresses issues not only within the boarders of the US, but those across the globe as well.

http://www.autismspeaks.org/sites/default/files/documents/science-grants/2012_research_emphasis_areas_general__1_17.pdf

Quote:

Autism Speaks 2012 Research Emphasis Areas

Autism Speaks supports global biomedical research into the diagnosis, causes, prevention, and treatment of autism or its disabling symptoms. Our mission is to improve the future for all who struggle with autism spectrum disorders. In support of that mission we provide funding along
the entire research continuum ‐‐ from discovery to development to dissemination ‐‐ for innovative projects that hold considerable promise for significantly improving the lives of persons with autism.

Autism Speaks research funding will be restricted to projects that address one of the following
priorities:

• Understand environmental risk factors and their interaction with genetic susceptibility to
enable prevention and improve diagnosis and treatment
• Discover biomarkers that can improve risk assessment and subtype stratification that will allow
for an individualized approach to treatment
• Improve quality of life through more effective medicines, behavioral interventions, and
technologies

• Enhance diagnosis and treatment of underserved and under‐studied populations, specifically,
o Nonverbal persons with ASD
o Ethnically‐diverse and/or low resource communities
o Adults
o Those with medical co‐morbidities

• Disseminate and implement evidence‐based clinical practices to the broader community
worldwide

The organization provides a number of specific examples of research related to this restricted research emphasis on the linked webpage.

androbot2084
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18 Jun 2012, 7:55 am

See Autism Speaks calls it autism spectrum disorder. That means if you think differently from everyone else you must have a disorder or a disease.

Sora
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18 Jun 2012, 9:50 am

androbot2084 wrote:

See Autism Speaks calls it autism spectrum disorder. That means if you think differently from everyone else you must have a disorder or a disease.

I'm not sure I follow that train of thought? Thinking different isn't the same as having autism. Not everyone who thinks differently has an ASD. (Besides that, "thinking differently" doesn't exactly have an official or even commonly agreed upon definition.)

Everyone who has an ASD must however - or they cannot and should not be diagnosed with an ASD according to how PDDs are defined - meet a certain number of behavioural criteria and have a certain number of abnormalities that must impair them in everyday life/that must limit everyday functioning.

If they don't, officially, they do not have this autism spectrum disorder/pervasive development disorder today.

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18 Jun 2012, 10:12 am

CuriousKitten wrote:

What about the ones who don't like this society and agree that. 'Its no measure of good health to be well adjusted to a profoundly sick society.'

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