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Krasher
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06 Oct 2009, 7:37 pm

Friskeygirl wrote:
Why do we hate Autism Speaks, well they don't speak for for us, they only
speak for the parents, and want to cure or eradicate people who have are
on the spectrum. They see us and defective and not capable of speaking
for ourselves.


Finally I found someone who sees the reality of being an aspie.

When Autism Speaks about eradicating aspies and the like I smell something gnarly, what is it? Brimstone.



MsTriste
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03 Jan 2010, 7:01 pm

It seems to consist of NT parents who, rather than love and accept their OTS kids for their strengths, spend their time and energy finding ways to blame their kids' diagnoses on things outside themselves.



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03 Jan 2010, 11:42 pm

Because they want to erase autism from the world through eugenetics and abortion.


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BokeKaeru
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04 Jan 2010, 4:39 am

Autistics get enough flak from people who are outright malicious with no pretense of help. The last thing any of us need is an organization like Autism Speaks that acts well-meaning, but fans the flames of fear, resentment and hatred against people on the spectrum. With "friends" like them, who needs enemies?



CockneyRebel
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04 Jan 2010, 9:44 pm

BokeKaeru wrote:
Autistics get enough flak from people who are outright malicious with no pretense of help. The last thing any of us need is an organization like Autism Speaks that acts well-meaning, but fans the flames of fear, resentment and hatred against people on the spectrum. With "friends" like them, who needs enemies?


They were probably playground bullies who called autistics, ret*ds as well. :x


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DentArthurDent
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05 Jan 2010, 7:40 am

Well guys I am going to throw a spanner in the works here. I have only just found out about Autism Speaks via WP and was going to post exaclty the question that the OP posed. So far none of the replies actually cite any evidence for the claims and then there is this - "and want to cure or eradicate people who have are on the spectrum" - really they want to go around forcibly curing or killing people wow.

As to the video, yes the voice over is a little excessive, but then this is an American group so what do you expect, subtlety is not a national trait. The message I got was yes having an Autisitc child can be a huge burden, but if we all stick together and support family members this burden can be eased. What is so insidious about that message

The video did not mention Aspergers of HFA so I presume that this is a group who are trying to help parents with severely affected kids, again if my assumption is correct what is wrong with that.

And as to the evil desire to find a cure, let me tell you if they are successful in this I will be first in line.

I am not saying that what some of you guys are stating is not factual, but could you please give links to some of your claims. The financial stuff is irrelevant to me.

for example

BokeKaeru wrote:
The last thing any of us need is an organization like Autism Speaks that acts well-meaning, but fans the flames of fear, resentment and hatred against people on the spectrum


and

CockneyRebel wrote:
Because they want to erase autism from the world through eugenetics and abortion


and

Maggiedoll wrote:
How about that, multiple times, they've sued autistic children? This makes it rather clear that they don't care


and

Vector wrote:
The emotional abuse. Autism Speaks takes the position that any expression of the humanity or dignity of people who have ASD threatens the families of people who have low-functioning children. Autism Speaks spreads the lie that it is okay to emotionally abuse us because we have no feelings and don't really notice. If we say, "We do have feelings," they say, "The fact that you can say you have feelings means you don't have autism


Again I am not saying you are wrong but these are pretty full on accusations. Do you have supporting evidence?


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05 Jan 2010, 8:10 am

See their website - AutismSpeaks.org

Their front page wrote:
Autism affects:
- 1 in 110 children
- 1 in 70 boys

A bit needless if they're only about the 'low functioning' end of the spectrum, isn't it? If they are only about LFA, then the only conceivable explanation is that they're trying to use scare tactics, by misrepresenting the evidence.

Just have a root around their website.



smischmal
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05 Jan 2010, 4:08 pm

Krasher wrote:
Jono wrote:
Another problem with Autism Speaks is that most of their money goes into research and looking for a "cure" rather than helping to improve the lives of the autistic people that are already here.


Curing us? I absolutely agree with you, these people are stepping into territory when they have no clue what lurks behind the bush waiting for revenge.

This cannot be ignored, this is an insult that must be punished. War is upon us, let us engage in unbridled brutality to show them who is "socially superior".


This reminds me of in X-Men III.
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They wish to cure us. But I say, we are the cure.



SDFarsight
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05 Jan 2010, 4:35 pm

Sarge2008 wrote:
Even though Autism Speaks can be distant from what the actual feelings of the Austistic/Asperger's community are, they have given a lot of leverage towards the general public's knowledge of these disorders.
Since it seems that Autism Speaks only focuses on the worst instances of these disorders, it becomes a useful jumping point for me when its mentioned in a conversation-- a chance to prove to other people that those with Asperger's are actually quite smart and don't lack common sense.


Aye, it's better in the UK where the Autism organisations aren't so panic-mongering and inflammatory as Autism Speaks. Infact The National Autistic Society (leading Autism charity/organisation) in the UK is publicly against some of Autism Speak's messages.



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06 Jan 2010, 1:47 am

Why do we hate Autism Speaks? I can't speak for anyone else, but I hate them primarily because they are genocidal maniacs.

DentArthurDent wrote:
"and want to cure or eradicate people who have are on the spectrum" - really they want to go around forcibly curing or killing people wow.

Not exactly. Current research is towards a pre-natal genetic test for autism, which would allow screening and selective abortion of autistic fetuses. Regardless of your feelings about abortion in general, this would indisputably be genocide. It would also seriously devalue the lives of autistics already born- society would be sending a message that we are not wanted, that they would prefer for us not to exist. The person in charge of overseeing medical ethics in the UK is on record saying she has no problem with such screening, and she also stated that if a pre-natal cure was ever found (most likely in the form of hormone manipulation on the pregnant mother) it could well be compulsory. (This was reported in the BBC, I don't have the link handy but I could excavate it if you insist on evidence)

Quote:
As to the video, yes the voice over is a little excessive, but then this is an American group so what do you expect, subtlety is not a national trait. The message I got was yes having an Autisitc child can be a huge burden, but if we all stick together and support family members this burden can be eased. What is so insidious about that message

It's more about how the video fits into their overall message. In an earlier video published by Autism Speaks, a woman who is now a VP with the organization openly expressed a desire to murder her autistic daughter. The only reason she didn't was out of consideration for her non-autistic (and thus more valuable) daughter. They constantly push the message that an autistic life is not worth living, that autistics are sub-human, that there is no hope for us to live normal, fulfilling lives. Also, they refuse to have any input from actual autistic people. They are only interested in speaking for us, not in representing us.

Quote:
The video did not mention Aspergers of HFA so I presume that this is a group who are trying to help parents with severely affected kids, again if my assumption is correct what is wrong with that.

Half wrong. Autism Speaks likes to have it both ways. They count AS/HFA people when they talk about how many autistics there are (gotta have a big number to scare people) but then they try their hardest to pretend that high-functioning autistics don't exist.


Quote:
I am not saying that what some of you guys are stating is not factual, but could you please give links to some of your claims. The financial stuff is irrelevant to me.

...

Maggiedoll wrote:
How about that, multiple times, they've sued autistic children? This makes it rather clear that they don't care

They sued a kid who made a parody website (ntspeaks.org) and they sued another kid for making t-shirts that said something like "Autism Speaks can go away. I have autism, I can speak for myself." Links are probably in the WP news archive.

The financial stuff is somewhat relevant because it shows where their priorities lie, and it clearly is not in helping autistics.

Quote:
Again I am not saying you are wrong but these are pretty full on accusations. Do you have supporting evidence?

Hang around this subforum a while and you'll see enough links to interesting information. I can assure you that most of the accusations leveled against Autism Speaks in this thread are very well supported.


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DentArthurDent
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07 Jan 2010, 7:26 am

Orwell wrote:
W Regardless of your feelings about abortion in general, this would indisputably be genocide. It would also seriously devalue the lives of autistics already born- society would be sending a message that we are not wanted, that they would prefer for us not to exist.

Sorry my friend but I can not agree with this. Personally I would not want to raise a severely autistic child. I do not see a test carried out in the first trimester and a half and a decision to abort based upon this as genocide. The Downs syndrome community have been through this and there are still downs kids being born, the difference of course being that their parents are prepared for the journey. I do not see any devaluing of downs kids if anything they are more valued, as in they are not shoved off to institutions, and are now often educated in mainstream schools.

The difficulty with Autism being that it is a spectrum disorder, so where does the test draw the line?


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07 Jan 2010, 7:31 am

DentArthurDent wrote:
Orwell wrote:
W Regardless of your feelings about abortion in general, this would indisputably be genocide. It would also seriously devalue the lives of autistics already born- society would be sending a message that we are not wanted, that they would prefer for us not to exist.

Sorry my friend but I can not agree with this. Personally I would not want to raise a severely autistic child. I do not see a test carried out in the first trimester and a half and a decision to abort based upon this as genocide. The Downs syndrome community have been through this and there are still downs kids being born, the difference of course being that their parents are prepared for the journey. I do not see any devaluing of downs kids if anything they are more valued, as in they are not shoved off to institutions, and are educated in mainstream schools.

The difficulty with Autism being that it is a spectrum disorder, so where does the test draw the line?


That is the problem. It could conceivably carve too far into the regular genome and hurt humanity as a whole. With DS its a lot more clear cut.


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DentArthurDent
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07 Jan 2010, 7:37 am

^ I agree the science as it stands is far too broad, but what if it was more defined


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07 Jan 2010, 7:39 am

DentArthurDent wrote:
^ I agree the science as it stands is far too broad, but what if it was more defined


I dont know that it could be refined all that much. Too much variation in the spectrum. That probably says something about the diagnostic criteria, doesnt it?

In any case, I cant take seriously a man without a WP avatar.


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DentArthurDent
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07 Jan 2010, 7:47 am

Fuzzy wrote:

I dont know that it could be refined all that much. Too much variation in the spectrum.
Probably not, in which case it should not be an option to parents

Fuzzy wrote:

In any case, I cant take seriously a man without a WP avatar.

:lol: Two things come to mind, 1. This remark is going to look kinda odd once WP gets its act together, and 2. Beware the enigmatic abortionist


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07 Jan 2010, 8:03 am

I don't hate the organization at all.