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Laz
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18 Aug 2010, 11:47 am

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Exactly, and it's stupid. The NAS actually put a statement on their site about the I Am Autism video, because they felt they had to specifically note that they didn't support it and were not affiliated with Autism Speaks (though I can't seem to find it on their revamped site unfortunately, which is a shame). Shortly after, the UK branch of Autism Speaks went and changed it's name to Autistica, I assume to also distance itself from it's US counterpart. Those a**holes didn't down too well here, and I'm very glad.


They have a UK branch :lol: Oh dear. Well I hope they fail like the con artist austrialian company that tried to setup here in the Uk but failed miserably and went bankrupt (I forgot their name they had a green puzzle peice logo of some sort that looked similair to the NAS's old logo, they were mainly catering to dyslexia charging £90 an hour for stuff you could find yourself off the internet)

The NAS could have gone further with its criticism. I wished my former employers would have openly criticised them as well because I consider autism speaks to be a learning disability hatred organisation more then they are an autism one. They use autism as the scape goat but they are primarily trying to achieve a nigh on impossible outcome of reversing aquired brain injury in children. It's such a fundamental perversion that just screams mental health issues to anyone in the mental health/psychology field. The video Alex had on here were he interviews the parent from autism speaks was an eye opener. He came across as irrational, emotive and completly lacking in any understanding of his childs medical or cognitive condition. Were he in this country I think he would have been put under a safeguarding of children risk group.



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25 Aug 2010, 12:20 pm

Autism Speaks is Chartered to raise funds for Scientific Research.

They are not a Charity, not Autism Advocates, not a Support Service.

Their two functions, raise funds, which does take staff, then study where grants would have the most impact for advancing knowledge about Autism. Their Science Board is first class.

They are not over staffed or over paid. The raito of funds spent to raise funds, and research where to give grants, to grants given, is low compared to Charities, who spend most on themselves, advocating for the cause.

Charities spend little except on themselves, Autism Speaks Grants are targeted where they will be a "Seed Money" Grant, that will bring in matching funds. Their actual impact on funding Scientific Research is much larger than their grants.

I find all these demands that they should employ, support, and advocate for the autistic, reflect badly on autism, showing that the posters cannot read, do not understand the function of a non profit, (To act within their Charter) and continually demand that all that money be spent on them, which makes them seem to lack advanced mental skills, any knowledge of the structure of the world, or math. All that money would be enough, in the best years, to send a cheap comic book to each Autistic person.

In the choice between Nanny State Beggers, and the only group funding research, Autism Speaks has my support.



EnglishLulu
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29 Aug 2010, 6:42 pm

I had a quick look through the accounts, but it doesn't specify details about travel and accommodation arrangements. I'm not sure whether Bob and Suzanne Wright's expenses were met by the Qatari authorities, or whether they came out of Autism Speaks funds, but I do know for an absolute fact that they stayed in this very plush 5* hotel when I was living and working in Doha and was shocked and appalled to see them in my workplace one day (an international broadcaster's headquarters), so I decided to find out where they were staying, because I wanted to ask Bob and Suzanne Wright face to face why they think people like me don't deserve to live, why they're funding 'preventive' research that will likely lead to prenatal testing and people like me not being born.

I would really, really hope that they didn't bill Autism Speaks for their time in this rather opulent, palatial hotel. There is more modest and reasonably priced accommodation is available in Doha. The Wrights certainly didn't stay anywhere modest and reasonably priced:

http://www.fourseasons.com/doha/

NB: I have no proof who paid their hotel bill. But they were there on Autism Speaks business. I understand they met with the Sheikha who was instrumental in getting the UN Autism day on the calendar and they also visited the Shafallah Centre (a special school over there), because they turned up at my workplace in Shafallah Centre vehicles.



ShadesOfMe
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01 Sep 2010, 7:12 am

Can someone explain the Data for me?



Asp-Z
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01 Sep 2010, 7:24 am

ShadesOfMe wrote:
Can someone explain the Data for me?


If you search "autism speaks money" on YouTube, all sorts of interesting stuff pops up. This seems the most relevant:

[youtube]http://www.youtube.com/watch?v=uv6ztnOhvSc[/youtube]

It looks like it's based on the same documents as I posted when I started this thread. If so, it's the newest data.



hyperlexian
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01 Sep 2010, 12:05 pm

RaquiGirl wrote:
Laz wrote:
RaquiGirl wrote:
Ha! Unfortunately that's not a legal requirement. If it were, this world would be a much different place.


Well there is a critique to be made there. IF they claim to speak for autistic people then why do they not have in place a garunteed interview scheme for any perspective applicatant to their organisation who has an ASD diagnosis?


Unfortunately, there is no claim that they actually speak for austistic people. They claim to speak out about autism. Their marketing tagline and their name "Autism Speaks" is nothing more than that. Their actual mission statement says absolutely nothing about speaking on behalf of autistic people. Even if they did... legally speaking (at least here in the US) they can't really be held liable for that unless they are lobbying to the government on behalf of autistic people... so far they're only lobbying to government for funding research to help people find a cure and treatment for autism... and as far as I can tell they are staying within their legal boundaries. I have no doubt that they have a team of lawyers who spend all of their time making sure of that. :(


the claim is in the title: Autism Speaks

regardless of their mission statement or goals, etc. the title itself implies that they are speaking on behalf of autistic people.


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rossc
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17 Sep 2010, 9:00 am

Interesting thread. Must read for all. Especially in light of the Autism Speaks deal brokered with Alex