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ci
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11 Mar 2011, 3:19 am

DandelionFireworks wrote:
I'm against a cure being available until we effect societal change that will keep it from being forced on people. After that, I'm all for it existing, I just don't want it and don't think most people do, actually.


Inhuman. Forcing a cure is typically when someone is unable to make their own decisions and even then certain rights are held intact. Conservatorship is usually for the extreme cases whereas laws in California for instance with services are designed to help sustained the independence of choice. When others make statements such as most choose no cure I'd ask for a certified and authentic vote on the matter. Also when people do vote are they being forced feed only a certain point of view on what cure means. An honest cure does not take away unique per say as everyone is unique but removed difficulties so one has more choices. It's lawful to make unlawful certain perspectives of cure manifest into reality such as forcing inhumane treatments or treatments that against ones choice. However a cure is different from many people with autism as said symptoms differ from one to the other and it is the individual difficulties which cures are for.


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ci
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11 Mar 2011, 3:27 am

TeaEarlGreyHot wrote:
I agree, there needs to be a major ethical shift in society before a cure can be safely revealed and offered. The OP is talking about forcing a cure on children that get no say... before they've grown enough for us to know their potential as they are. I'm not okay with that.

I certainly wouldn't choose a cure for myself, nor would I expect my husband to. We're happy the way we are, even with our deficits.


Nonesense. I received treatments for speech therapy, learning difficulties and so that was forcing an unethical treatment? When I am speaking of cure now I speak about myself as an adult. The choice to have advancements in treatment for sensory overload and other issues is a human right and a shift away from that would violate human rights. The ethical shift you perceive is not defined and a cultural shift is one of perceptions and diversity acceptance perhaps and I agree with that. That's part of my job.

However if you want to put words in my mouth and at the same time attempt to prevent advancements that adults with autism can choose you got a challenge. For children that self-harm, cannot speak, have major sensory issues and so on removing a cure is inhuman and no shift will be made on that less society goes back to the stone age. This reminds me of a kind of fundamentalism but this one is based on the thought that genetics are perfect always and my genetics are better then your genetics and so on. I think it's counter-productive when humans are born imperfect and we can choose to adapt, learn and change as we so please as a human right.


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claudia
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11 Mar 2011, 3:30 am

I think that autistic people have the same rights other people have...
when you are a child, you can't decide for yourself, so parents decide for you. Parents have to decide respecting your human rights. That's the point. There are not proven medical treatments that can violate human rights and a child can't stand up for himself.
How can we avoid this? (it's not an autism issue but a general issue for chidrens' rights)
It's plain that the will of a grown-up person should be respected. Is there anyone who is forced to have a tratment that he/she doesn't want?



ci
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11 Mar 2011, 3:37 am

DandelionFireworks wrote:
TeaEarlGreyHot wrote:
Honestly, I think the disconnect over the cure has to do with higher functioning ASD individuals feeling they have a right to be who they are.

I'm not against a cure for those that are so low functioning that they can't really enjoy their lives. The problem here is where that cutoff should be, and are we going to be comfortable providing this cure only to half the community?

I would much rather see more effective therapies developed to help individuals with ASD cope with day to day life.


This view is obvious, intuitive and easy to defend (mostly because everyone else has already come to the same conclusion). It'd be perfect if not for the tiny little issue of it not being correct.


Everyone has the right to be who they are. But should others even if a perceived majority believe they should remove the options for others to choose cures because it is insulting? If the world was perfect which it will be never we can look at perceived defect which creates societal burden as a unique gift. Yet even if society was vastly wealthy for the individuals seeing the others function well despite this social sphere of peer pressure based I am that I am as I am unique politics or else your "one of them" individuals who do not choose to think like you should then still have the option to function as typically as they desire. It's not being a trader to the aspie folk to not want sensory overload, desire to speak, desire to function within so called normalcy with as much ease as others and so on.

Yes let's talk about ethics and the denial of basic human liberties in context to removing research and the choices it brings.


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ci
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11 Mar 2011, 3:42 am

claudia wrote:
I think that autistic people have the same rights other people have...
when you are a child, you can't decide for yourself, so parents decide for you. Parents have to decide respecting your human rights. That's the point. There are not proven medical treatments that can violate human rights and a child can't stand up for himself.
How can we avoid this? (it's not an autism issue but a general issue for chidrens' rights)
It's plain that the will of a grown-up person should be respected. Is there anyone who is forced to have a tratment that he/she doesn't want?


Then the issue is not about cures but children rights. Removing the right to cure because of children's rights is just for other political reasons of anti-cure. Issues need to be separated as adults have the right to choose cures and cure based research. To think I was so glad at one point that finally the professionals understood me and the difficulties I had. Now to find out the people that I suppose experienced as I did which likely didn't are against treatment advancements sometimes. It's kind of shocking to me but I do understand the idea of accepting myself for who I am but you folks I don't think actually experienced as I did nor longed to just function well in mainstream environments in school.

It seems like the folks online here would not have been in my best interest ultimately. As a child I would have chosen a cure and I wouldnt have chosen to socialize with aspies or many others. Just wanted to do my own thing. Sorry if that's rude.


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11 Mar 2011, 6:00 am

i can not understand how there can be a "cure" for something that has been manifested due to genetic design. genetics are determined the minute that the egg is fertilized by whatever the successful sperm cell's "other side of the genetic story" is that it impregnates it with.

i was autistic from the moment of my conception. how can anyone imagine a mechanism that can unwire my synaptic assembly, and then rewire it according to another grand plan? i have about 100 billion neurons in my brain, and each of those neurons has a preferential propensity to fire toward peculiar and maybe unpredictable adjacent neurons who themselves repeat the same process in a radially expansive convection pattern that is predetermined by my basic genetic blueprint.

the only way that i can imagine a cure for autism is to prevent the birth of autistic people either by abortion or genetic therapy for the parents that will make them less likely to produce gametes that will blend in a way that is favorable to the manifestation of the autism signature.

if i was born without autism, then i would still have almost exactly the same molecular structure i do now, and i am sure i would not fail to thrive. i would just be the same me as i am now but with an extra layer of "whatever" on top, and i would probably learn how to take advantage of that extra layer and be more capable than i currently am.

but because i have consolidated the roots of my soul within the structure of my own physical capacities, then i would be distraught if i was told i was going to have my foundations dug up.

i am so comfortable living in me that i want to live in me forever. i never want to be anywhere else or i will suffer hell by separation.

if i took some "cure" and lost the world which i grew up in, and then lived my whole life in, then i could never readjust to whatever was the residue and i would want to die. i would not even bother to pay attention to the new world that would be apparent to me because my homesickness for my old world of "sensoria" (?) would drown out any sensations i have of the new world i would be thrust into.

i think that if someone is born blind, then they do not grow up in a world of darkness.
light and dark is not even a concept that exists in the mind who never knew vision.

most people live through their eyes. they think that what they see is all that exists, and they imagine that a lack of "visual sight" would be akin to the vision of blackness.

but "blindness" is not a "vision of blackness". blindness is a vision of nothing. no one can see behind their head. everyone is blind to what is behind their head. what do people see behind their heads?

you do not see "blackness" behind your head. you see nothing behind your head, and in the same way, congenitally blind people see nothing all the way around, and they grow into that foundation that has not "vision" as a constituent.

if you suddenly instilled sight into someone who grew up never knowing vision, then i would imagine that the sensation would drive them insane because they would not be able to assemble or process the information, and they would not see the world as congenitally sighted people do. they would just be bombarded with sensations that they can not make heads or tails of.

"sighted" people have incorporated the sensation of vision into their psyche from the moment they came into consciousness. every sensation integrates with each other to simultaneously and cooperatively facilitate the procession of the evolution of notional familiarity with the environment, and that is conducive to restful complacency.

i do not want to be forced intractably to experience a sensation that i have never known, because i may probably become scared and homesick for who i was.



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11 Mar 2011, 8:13 am

Woodpecker wrote:
I am nervous about the "cure", I have seen details of other cures for conditions of the mind such as poking knitting needles through the eye sockets into the brain for depression.


Nobody does that anymore. Where are you getting your information, medical journals from the 1950s?


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11 Mar 2011, 9:18 am

Delirium wrote:
Woodpecker wrote:
I am nervous about the "cure", I have seen details of other cures for conditions of the mind such as poking knitting needles through the eye sockets into the brain for depression.


Nobody does that anymore. Where are you getting your information, medical journals from the 1950s?


While the jab in the eye with the knitting needle has thankfully gone to the dustbin of histroy, I have seen a recent report of a medical treatment for AS which uses the gadget used for curing brain tumors by blasting them into submission with gamma rays. While I am not against the use of radiation to cure cancer (it can be used to wipe the smile off the face of cancer and make it crawl away with its tail between its legs) it is not an OK way to 'cure' AS.

From memory I know that a large dose of gamma or X-rays to the brain can cause brain damage, I am aware of some experiments which the US did on monkeys back in the cold war.


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11 Mar 2011, 10:06 am

I feel and think that every autistic child who has a way of communication, such as verbal, with a voice machine or through the PECS system should be asked if they wish to be cured. The question should be asked in a way that they understand. "Do you wish to be fixed so that you an be like everybody else your age?" Or, "Do you want to take therapies or classes that will change you into a normal child?" If their answer is No, than parents, teachers and doctors should respect that answer at face value. As for older kids and adults, it should be up to them if they wish to be cured or not. They and we are old enough to make our own decisions regarding the topic of a cure. I believe that God gives us all free will and that no one should be forced to be cured of their autism against their will. If some people wish to be cured, that option should be there as well. I personally don't wish to be cured of my AS/Autism, though I may be more obvious than some people on WP.


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11 Mar 2011, 11:46 am

ci wrote:
TeaEarlGreyHot wrote:
I agree, there needs to be a major ethical shift in society before a cure can be safely revealed and offered. The OP is talking about forcing a cure on children that get no say... before they've grown enough for us to know their potential as they are. I'm not okay with that.

I certainly wouldn't choose a cure for myself, nor would I expect my husband to. We're happy the way we are, even with our deficits.


Nonesense. I received treatments for speech therapy, learning difficulties and so that was forcing an unethical treatment? When I am speaking of cure now I speak about myself as an adult. The choice to have advancements in treatment for sensory overload and other issues is a human right and a shift away from that would violate human rights. The ethical shift you perceive is not defined and a cultural shift is one of perceptions and diversity acceptance perhaps and I agree with that. That's part of my job.

However if you want to put words in my mouth and at the same time attempt to prevent advancements that adults with autism can choose you got a challenge. For children that self-harm, cannot speak, have major sensory issues and so on removing a cure is inhuman and no shift will be made on that less society goes back to the stone age. This reminds me of a kind of fundamentalism but this one is based on the thought that genetics are perfect always and my genetics are better then your genetics and so on. I think it's counter-productive when humans are born imperfect and we can choose to adapt, learn and change as we so please as a human right.


Speech therapy isn't comparable to changing the wiring of someone's brain so they aren't Autistic anymore.


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ci
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11 Mar 2011, 1:09 pm

Cure to me does not necessary mean rewiring my neurological circuit boards. That is some sort of wacko science. I don't think that is possible.


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Last edited by ci on 11 Mar 2011, 1:11 pm, edited 1 time in total.

TeaEarlGreyHot
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11 Mar 2011, 1:11 pm

Curing it means no more ASD. Period.

Treatments like speech therapy don't make you less Autistic. They just help you cope and overcome your deficits.


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11 Mar 2011, 1:13 pm

CockneyRebel wrote:
I feel and think that every autistic child who has a way of communication, such as verbal, with a voice machine or through the PECS system should be asked if they wish to be cured. The question should be asked in a way that they understand. "Do you wish to be fixed so that you an be like everybody else your age?" Or, "Do you want to take therapies or classes that will change you into a normal child?" If their answer is No, than parents, teachers and doctors should respect that answer at face value. As for older kids and adults, it should be up to them if they wish to be cured or not. They and we are old enough to make our own decisions regarding the topic of a cure. I believe that God gives us all free will and that no one should be forced to be cured of their autism against their will. If some people wish to be cured, that option should be there as well. I personally don't wish to be cured of my AS/Autism, though I may be more obvious than some people on WP.


brilliant post, summed up how i feel about the subject.

even in that scenario we would have to think about the "manipulative grasp of over protective parents who dont know better"
what i mean is children are easily influenced, and to some extent(depending on age) they can even be manipulated to say things that goes againt their wishes.
only way to do it is to have an independant party do the asking and interpretation.


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ci
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11 Mar 2011, 1:13 pm

That's a matter of interpretation as speech problems are part of more severe forms of ASD and to treat it means curing it. If you believe behavior is not part of ASD but only neurology then that's wrong. If you believe a cure of autism is re-wirign the brain I don't think that is even feasible. When organizations say they want to cure autism I don't think they mean brain surgery I think they mean any hardship a person experiences.


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11 Mar 2011, 1:17 pm

TeaEarlGreyHot wrote:
Curing it means no more ASD. Period.

Treatments like speech therapy don't make you less Autistic. They just help you cope and overcome your deficits.


that is how i look at it as well, i think that these kinds of treatment ultimately leads to more good than most medical treatments


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11 Mar 2011, 1:21 pm

ci wrote:
That's a matter of interpretation as speech problems are part of more severe forms of ASD and to treat it means curing it. If you believe behavior is not part of ASD but only neurology then that's wrong. If you believe a cure of autism is re-wirign the brain I don't think that is even feasible. When organizations say they want to cure autism I don't think they mean brain surgery I think they mean any hardship a person experiences.


You are talking about curing ASD in the OP. Now you're talking about curing some of the issues an Autistic person can have.

Which one do you wish to discuss?


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