Dear Autistic Self-Advocacy Network (ASAN)

Post Reply New Topic

There is no telling what people have and do not have. There is an identity associated with autism at times in politics. Whether or not a subjective individual qualifies for the new criteria when they were previously diagnosed with Asperger's Syndrome cannot be determined by me nor is the criterion of interest to me. My goal was to grab some folks attention and in doing so draw them to the perceptive of rights, dignities and treatment rationale. As I explained to another poster I'm frankly simply upset with people claiming to have Asperger's online who otherwise have careers and function very well whom find insult toward people otherwise trying to help people like me and all the way on the other end of the spectrum of profound impairment differing from simply substantial as defined by federal law. Every individual in need should receive help in the ideal world and help should always be made available by means of a compassionate resolve and not whenever possible "your a bigot so provide it" types of approaches.

The people that otherwise function well and whom use autism in politics for their advantage and go up against advocacy for individuals who manifest more life limiting symptoms to their choices then need to step back and think about it. They need to help with other rights not centered on their own gain and in the case of ASAN and corporations handing out jobs to otherwise proven to be functionality extremely able was a down right slap in the face and kick of dirt in the eyes as the saying goes. First they call people who help pity, bigots and so on then they use "autism" which is more classically known as the original diagnoses to serve the highest functioning whilst alienating advocacy for those in more need. It's like stealing something called compassion and framing it as pity and taking away "hope" for those that really seem to already have it and be insulted at any inclination of inferiority of people with autism that need help to be included beyond capable already of self-inclusion. The reason I say so is compassion which they call pity and typical everyday community members that march whom they call bigots are the key to compassionate transitional inclusion and relevant hope.

I think they have attempted to steal in order to control aspects of the public psyche and only have achieved in part the removal from public expression compassionate means because it simply insults their self-images of autism as very high functioning individuals. A great injustice is underway and it cannot be allowed to persist. ASAN cannot and should not dictate autism awareness simply due to abortion politics relating to the image of autism nor some kind of version of dignity rights which seems quite obviously to me counter productive.

Yes but the hamburger and bottom verbal slur they may not enjoy.

im personaly not offended by the asan or autism speaks.i just dont get the much ado bout nothin.i think either org is perfect but i dont get what all the big deal is.ci i do agree that sometimes it seems like you talk without saying anything although at other times you have profound points.i say to both asan and autism speaks haters.spend more time away from autistic culture and see how many people just dont care.spend some time on the general disability advocay sites and see how trivialized anyone with autism or mental retardation are.im talking to AS speaks haters just as much too.get a life everyone and grow up

I spend allot of time working with the general public and my point is calling them bigots or acting like they are simply bigots when they are caring is wrong headed and very destructive. Mr. Vermont You have voiced opposition to Autism Speaks and ASAN. You flip flop to much. I personally will never be party to ASAN who calls people bigots without facts and to just get attention. I do not want anything to do with and other people do not want anything to do with selective abortion issues which ASAN uses to get attention. Also in my real-life that is full of humor which is a needed component in life to assist with creating progress and with my record of achievement in advocacy should the likes of ASAN show up and want to do anything like they have done in those protest here my response will be in media and broadcasting. It will also be availible in a counter protest with flyers outlining their modality that people with disabilities hand out. It is a very rare find the kinds of mentality derived of them which comprises ASAN in individuals with disabilities I work around where I live.

Once you have a stable and consistant point of view I'd take your remarks seriously. Either you want them both to fall or like them both. I think your just nervious to show support for one but not the other and it's some kind of popularity game. Instead of my saying to you get a life how about make up your mind and move on in life.

A republican such as you would love to spoil the love of others so they will resort to dislike. That means they will not fund research or programs. The ASAN approach is so bad at times it could be argued the leadership is two faced and others are unwittingly going along with it. I don't believe most republicans or even democrats are like that. It's just a perfect storm of good and bad advocacy. Besides going along with the psycho-social division creating to me is not only unethical but mind altering propaganda. We both know the world is imperfect and yes discrimination does exist but it's how you handle it that counts.

i have never never ever flip floped you know from our very first conversation that i have been advocating moderation,cooperation and solidarity from the beginning.i have not changed,im against in fighting that has been my psition since day one

i wanted to clarify my viewpoint.i dont think i have strong feelings about the politics of autism the way you do at least.i do have very strong feelings about being against infighting and that what my post are mostly about

Chris Murray is first and foremost a human being, with multi-dimensions, people he likes to see, things he likes to do, places he like to go, etc, etc, etc. He might also be a public example of someone who is middle-functioning on the Asperger's / Autism Spectrum. His brother Tom made the following film:

Dad's in Heaven with Nixon
http://www.inheavenmovie.com/

Now, some of it is a difficult film to watch because much of the beginning is about their father, who was a troubled and pretty abusive individual.

But, Chris with some help, has jobs he likes, has an apartment, has his mother and his brother and other family members. And he has his artwork, his own unique voice, yes, he's sold, yes, he's made some money. But anything artistic is a long shot (whether a person is on the spectrum or not!), it's talent, hardwork, timing, marketing, but also a goodly quantity of just plain luck.

So, we would need a system that provides some kind of subsidized housing and not bad housing, but good housing. And perhaps subsidized employment or job coaching, although Chris actually seems like a pretty good employee.

What he might really need from time to time is a boss who's an engaged individual and if he or she sees something, even if not sure of the details, needs to say to the person (potential bully): "We need to talk. Everyone who works for this company is treated with respect. Every single employee. Do we understand each other?" (And that's only the first step. You need to have the second, third, fourth steps vaguely planned out, although you're hoping that each one works. But really, sadly, I'd say only about 1 out of 5 bosses is enough of a stand-up individual to do this. Most bosses, including in big, fancy, supposed high-class companies, generally are disengaged individuals.)

Our medical and education systems seem to "need" to diagnose someone as either high-functioning or low-functioning.

It will be a step forward once our systems become more comfortable diagnosing someone as middle-functioning (if appropriate). And as middle-functioning, the person needs some help in some areas, it's highly dependent on the individual, as well it should be.

I really do not like social networking beyond theory. The idea of keeping up with it all in a sustained way is not interesting to me. The ideas and premises of innovative inclusion design and it's awareness is important. Although I simply cannot affiliate with ASAN nor those that publicly affiliate with them because of the ethics issues. I have about another three weeks that I am allowed to be on this forum for public relations studies (intervention methods and prevention) and then poof I will be gone in exception for direct work related awareness distribution and related short conversation.

I am going to design a non-central based leadership model which does not compromise advocacy as a whole but clusters out psycho-social risks. The intent in premise is fundamental action so as to manifest in local and regional capacities inclusion public relations models and action advocacy on a national level for intervention in human rights and inclusion matters strictly by participants in their say so. Moreover the central agenda is collaboration of diversity and not so much a pre-formatted dictation and is a service of participants and not otherwise. It's website will be http://www.autismadvocacynetwork.com & .org and autismselfadvocacynetwork.com & .org which are already registered. There must be a backup plan to ASAN and a realization of something which differs from them in encompassing premise which is not bogged down by their histology in politics and methodology.