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There are for better thing sin need of cures...

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Zeraeph
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11 Sep 2011, 11:04 am

Sweetleaf wrote:

That is because not everyone can learn their way out of all their difficulties.


That is so true, and, in many ways epitomises all forms and levels of Autism...as something that you cannot realistically learn your way out of...

As for the topic...I haven't said anything because it is all about a numbers game...the more people involved in any condition, the more votes and money it draws, and the more research it gets...even if it is non-urgent bordering on elective...while the more obscure conditions are ignored not matter how heart wrenchingly desperate they are...

:(

Such is the human condition.



Gedrene
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11 Sep 2011, 1:39 pm

Sweetleaf wrote:
Gedrene wrote:
I think it must be important to understand that there are some people with serious difficulties, really bad problems that are inbuilt. And I think though whatever we are at our sort of level requires no cure it doesn't mean that they should be left out. It's just that people look at everything as one big problem: 'Autism'. I think in reality there are many distinct parts to this 'autism' and I even suppose that people are calling whatever an 'autistic' suffers from autism even if in other people they would be considered completely separate disorders. That some of these inflict upon people such problems that asking for a cure for those particular issues would be right.

However, you hit on the phrase we can learn, because I have learned my way out of every supposed 'difficulty' I have ever had. Whenever I suggest the same every one starts shooting everywhere like old western cowboys in a saloon. I think you're just seeing the same problem miss: Everyone's in fortress mode.


That is because not everyone can learn their way out of all their difficulties.

And there is no reason to think that I don't believe that. I have said so several times. I even say so above. I say up there: Some of these inflict such problems that asking for a cure would be right.

I just think people believe that a lot more difficulties are ingrained than they think. I have seen that fault in myself. It's frustrating fatalism

I also think that people say things that are faults about us that are in fact not faults at all. Furthermore I think some people on this forum think that faults they have somehow apply to all people on the forum and if they don't they aren't 'truly autistic'.



dalurker
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11 Sep 2011, 2:23 pm

iheartmegahitt wrote:
I was watching a Japanese Drama about a girl with this progressive disease. It's very sad too because she died at the age of 25. It makes me think how so many parents or others out there want a cure for autism... yet when you think of rare incurable diseases, its like... no one cares. Why is Autism so special? What makes it so bad that everyone has to cure it?

http://en.wikipedia.org/wiki/Aya_Kit%C5%8D

That's about the girl. The disease she had was called Spinocerebellar ataxia. There is no cure for it STILL to this day. SO tell me, for those who want to cure autism, why do you think Autism needs a cure more than any other condition like this one? It handicaps her severely to the point where she can't do things herself. She can't walk, talk, speak, eat or do anything but lay in bed and suffer.

Would you rather have her disease or would you rather have a child with autism? I mean I'm not being mean here its just... this story... if you guys could just see it then it would break your heart. She was so young when she got this disease and she was still young when she DIED because of it.


Why do you choose to pit those autistics who are severely impaired who need a cure, against those suffering from terrible diseases? Don't pretend that there aren't autistics who have severe impairments that can't be eliminated with current therapies. There isn't much of a scarcity where one of the two has to be chosen to be cured. It's not fair that rare conditions have underfunded research, but why not identify a different competitor for the resources necessary to research a cure, such as the other entities which are funded by governments in much higher amounts, which aren't involved in curing diseases at all, and which have dubious benefits for society? Such as useless bureaucrats, defense contractors, bailouts to bankers, etc. Why not pick on a target your own size or larger, instead of one who can barely fight back? Think of the things that could be researched if funds going to unworthy spending were put to better uses?