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anneurysm
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26 Oct 2011, 10:39 pm

Gedrene wrote:
Tambourine-Man wrote:
Gedrene wrote:
Finally, something. I wonder what it originally said though.


The original quote is no secret. It said something like, "With increased awareness, we will end this epidemic."

Dana was just using words all too common to the autism vernacular. She meant no offense. When she was educated as to the offensive nature of the word, she made a change.

If this is true surreptitious changes in language would mean much. I know what power the hidden meanings of words have on NT's opinions. This seems to appreciate that. As I said: Finally, something.


Exactly. It may be a word, but simple words (and their inferences) can affect the perception of an organization's messages. When an organization admits their faulty thinking and decides to take a step forward instead and change things, that is a very bold and gutsy thing to do. Not only that, but it is a very positive step in the right direction.

Now, I can gladly say that Autism Speaks is working WITH autistics instead of pushing them away.


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Given a “tentative” diagnosis as a child as I needed services at school for what was later correctly discovered to be a major anxiety disorder.

This misdiagnosis caused me significant stress, which lessened upon finding out the truth about myself from my current and past long-term therapists - that I am an anxious and highly sensitive person but do not have an autism spectrum disorder.

My diagnoses - social anxiety disorder and obsessive-compulsive disorder.

I’m no longer involved with the ASD world.


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26 Oct 2011, 11:26 pm

AardvarkGoodSwimmer wrote:
aghogday wrote:
. . . .
England screened for autism in the adult population and found the numbers in it equivalent to childhood cases, at about 1 percent. . .

So presumably, one out of a hundred adults in the U.S. is on the spectrum?


The government statistics of 1 in 110 children with autism is based on 8 year old children, in the US. No statistics are currently available for adults in the US.

My understanding is that the statistics for children with autism in England is close to what it is in the US, so it stands to reason that the results for Adults in England might be similiar to that in the US.

It would probably be good to do it before the DSMV goes into effect so the statistical comparisons would not be affected by new diagnostic criteria.



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27 Oct 2011, 5:09 am

the autism epidemic is good for drawing attention to autism.instead of hating the notion of autism being a epidemic.use it as an opertunity to raise awareness to valid autism related issues


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Gedrene
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27 Oct 2011, 10:59 am

vermontsavant wrote:
the autism epidemic is good for drawing attention to autism.instead of hating the notion of autism being a epidemic.use it as an opertunity to raise awareness to valid autism related issues


True, but when people misrepresent things, even with good intentions, it is bad. It's of primary concern that all people must understand. The ends don't justify the means, because the means causes injustices that lead to your end.



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27 Oct 2011, 11:01 am

anneurysm wrote:
Gedrene wrote:
Tambourine-Man wrote:
Gedrene wrote:
Finally, something. I wonder what it originally said though.


The original quote is no secret. It said something like, "With increased awareness, we will end this epidemic."

Dana was just using words all too common to the autism vernacular. She meant no offense. When she was educated as to the offensive nature of the word, she made a change.

If this is true surreptitious changes in language would mean much. I know what power the hidden meanings of words have on NT's opinions. This seems to appreciate that. As I said: Finally, something.


Exactly. It may be a word, but simple words (and their inferences) can affect the perception of an organization's messages. When an organization admits their faulty thinking and decides to take a step forward instead and change things, that is a very bold and gutsy thing to do. Not only that, but it is a very positive step in the right direction.

Now, I can gladly say that Autism Speaks is working WITH autistics instead of pushing them away.

Whoah, slow down Anneurysm. Just because someone changes their tack doesn't mean they made an apology. Why the bad inferences to begin with? It is also a minor detail. There's also one other thing... *looks around*



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27 Oct 2011, 11:09 am

*finishes looking*
There was athread where some girl who was going to tell us about some Autism Speaks video was found. Where is it now?



AardvarkGoodSwimmer
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27 Oct 2011, 2:06 pm

aghogday wrote:
AardvarkGoodSwimmer wrote:
aghogday wrote:
. . . .
England screened for autism in the adult population and found the numbers in it equivalent to childhood cases, at about 1 percent. . .

So presumably, one out of a hundred adults in the U.S. is on the spectrum?


The government statistics of 1 in 110 children with autism is based on 8 year old children, in the US. No statistics are currently available for adults in the US.

My understanding is that the statistics for children with autism in England is close to what it is in the US, so it stands to reason that the results for Adults in England might be similiar to that in the US.

It would probably be good to do it before the DSMV goes into effect so the statistical comparisons would not be affected by new diagnostic criteria.

Plus, as a spectrum, there might be a fair number of people just barely not on the spectrum, right? And these people might be 'bridge' people, aspie friendly, potential allies, and also benefit from self-advocacy.

And I really think, if more of our institutions were multi-path rather than single-path that would be a major change for the better.



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27 Oct 2011, 2:49 pm

Gedrene wrote:
vermontsavant wrote:
the autism epidemic is good for drawing attention to autism.instead of hating the notion of autism being a epidemic.use it as an opertunity to raise awareness to valid autism related issues


True, but when people misrepresent things, even with good intentions, it is bad. It's of primary concern that all people must understand. The ends don't justify the means, because the means causes injustices that lead to your end.
i know,there is such a fine between awareness and starting panic


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aspie48
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27 Oct 2011, 3:23 pm

Gedrene wrote:
True, but when people misrepresent things, even with good intentions, it is bad. It's of primary concern that all people must understand. The ends don't justify the means, because the means causes injustices that lead to your end.

thats a pretty good saying there. did you make that up? i aint heard it before.



Gedrene
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27 Oct 2011, 3:40 pm

aspie48 wrote:
Gedrene wrote:
True, but when people misrepresent things, even with good intentions, it is bad. It's of primary concern that all people must understand. The ends don't justify the means, because the means causes injustices that lead to your end.

thats a pretty good saying there. did you make that up? i aint heard it before.


Ends don't justify the means is an old phrase. The second part is my own creation. I am linking up morality to personal motivations.

Fact is morality boils down a case of not messing with people by action or omission. I hoped my little addition would make that clear.



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27 Oct 2011, 9:47 pm

Tambourine-Man wrote:
I recently emailed Dana Marnane suggesting that she change a quote in her website bio that some members here were offended by. She was happy to make the change, removing a reference to autism as an epidemic and replacing it with...

Image


I think this represents progress. I would appreciate it if you guys would use this thread to express your approval (if you approve). This may be a small victory, but if this one change gets a positive response, there are sure to be more changes made in the future.

I understand that one word will not inspire immediate forgiveness, but if you guys could please concentrate on this one little victory, we may see more such changes in the near future.

However, if everyone responds with the same old criticism, Autism Speaks may feel that this is a lose/lose situation and keep doing what they are doing. I, for one, am thrilled that this change was made and am very eager to see more such changes in the future.


So, A New World Order. (That was sarcastic humor!)

I would second the role of adults, we did just blend in. Compared to the recently drugged children, we are the vast majority, and as John Robison will tell you, Old Free Range Aspies. No Shrinks, no legal drugs, and looking around, not the worst of the lot by far.

Focus and persistance, we self produced ourselves. Those Special Interests do pay off, not instant gradification, The American Plan, but a few years spent reading books and learning gives a wider world view.

There was a conflict with the world, they live for today, do not understand why anyone would consider what they would be doing years from now.

The world works for a paycheck, and anyone who spends time and money trying to do something never done before is considered a fool.

"The fool who persists in his folly soon becomes wise."

All are fools, few have the persistance to gain wisdom.

It was because of the tangents in our learning style we made connections others missed. Focus on the issue at hand was why I was hired to run a room full of IBM punch card machines at eighteen. It also made me a great mechanic. The do it now live for today types broke them, I fixed them, it worked for me.

When the PC came out I did not have to go to school to fix them, I could rebuild dual Holly four barrel carbs, tune them to perfection, and that is critical work. The 99% non autistic paid me well to keep their little boxes running.

I was considered odd, not bad when many neurotypicals are considered dangerous, dishonest, and worse.

There were a few times when those with friends in government had me checked out, and they did not believe the results, looking back forty years, I had never gotten a traffic ticket.

I know others, I started an Inventors Organization, both the inventors, and everyone who works at the Patent Office, is Autistic. Machine shops, optics, cameras and microscopes, and when I hung around Sandia Labs, Los Alamos, those were the most normal people I ever met. The Millitary puts them in Intelligence, I have met some.

During World War II, the INTP ENTP types were used to assemble the Norton Bomb Sight. Wrong Planet strongly groups around that sector. Hardly 1% of the population.

So what about the children? Will they be like us? Or will the future have our skills altered for the sake of conformity?

Without a baseline of adult outcome, how could anyone aid the children to prosper in their natural paths, as we did, and many generations before us?

Yes, we can be problem children, but when doing what we were born for, good citizens.

Becoming self actualized is all that any human wants.



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27 Oct 2011, 11:13 pm

In the past, Autism Speaks has advocated primarily for parents and children with classic autism.

Self-advocates have been largely Aspies advocating for, well, themselves.

This idealogical divide is unwarranted. As I've said before, autism in not always a curse, not always a blessing. Sometimes it is one or the other, but it is often a mixed bag.

If 30% of the population share autistic genes, and the medical community recognizes autism as a group of similiar deficits, but self-advocates view autism as an essential part of their personality to be embraced... what the heck is autism?

Some say it is a disability. Some say it is not.

What the heck is it?

Well, it isn't simple, that's for sure.


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27 Oct 2011, 11:43 pm

I don't think early treatment will take away those special skills, it will just make them high functioning enough to achieve their goals. I can tell you it's not easy having an idea in your head but being so limited that you can't pursue it. Feel lucky that you were high functioning, that you had those skills and were in the right place at the right time to be able to reach those goals. Not everyone is that lucky.
We'll always think differently and it's that thinking differently that makes some of us successful.


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28 Oct 2011, 4:21 am

Tambourine-Man wrote:
This idealogical divide is unwarranted.


So why make one?



Gedrene
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28 Oct 2011, 4:23 am

Here some particular people are making a huge fuss about 'yay no epidemic!' in an example that can't be independently confirmed and replacing something for which we don't have a picture like the replacement. Yet at the same time elsewhere lau is pointing out that another word is being used with negative connotations against autism elsewhere. This isn't consistent. I really did think autism speaks has changed its tack. :

lau wrote:
Autism Speaks have yet again made zero attempt to think through their (or rather, HP's) campaign slogan. I suspect that, if they have any autistics on board, those autistics would easily have seen (as you have) the ambiguities present in "hacking autism".

Furthermore, to the majority of NTs, I would guess that the negative connotations are what will taken... at least subconsciously, motivating them to donate. Nice trick.



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28 Oct 2011, 9:24 am

Autistics can find ambiguities and points to dispute in a black hole. :D


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You may know me from my column here on WrongPlanet. I'm also writing a book for AAPC. Visit my Facebook page for links to articles I've written for Autism Speaks and other websites.
http://www.facebook.com/pages/JohnScott ... 8723228267