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raisedbyignorance
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25 Jul 2013, 9:03 pm

benh72 wrote:
I personally don't believe a cure is possible, and even if it was, the cost of the change in personality could be so great as to cause some other type of mental dysfunction, especially in older ASDs.


Same here, a cure would only work on younger children who have yet to define their actual lives but I think it would be too late to apply any cure to an autistic adult, even a low functioning one.

Realistically speaking, we're more likely to find a cure to cancer or the common cold in our lifetime. Since autism is caused by wiring of the brain, I doubt that a quick fix can even be made.



equestriatola
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25 Jul 2013, 9:04 pm

I don't believe autism is a disease.


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Drehmaschine
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27 Jul 2013, 4:08 pm

If cures existed, it is a very personal choice, not something I have a right to comment on. If somebody wanted it, let them have it. I haven't a right to tell them they should not be cured, as they haven't a right to tell me what to do with myself.



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27 Jul 2013, 4:16 pm

I find my AS to be debilitating in quite a few ways, but I think hoping for a cure is a waste of time...how are they going to cure a different neurology? I am all for accomidations, drugs to treat more unpleasant parts of it such as sensory issues and such but I don't think they are going to develop any treatment that takes an autistic person and turns them neurotypical.

The only cure I could think of is trying to prevent autism in the first place if they can even narrow it down to one cause, but that is not curing people with autism.


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Ann2011
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28 Jul 2013, 8:55 am

SEINNICHT wrote:
Neurodiversity is fine when you are talking about high-functioning autism. Low-functioning autism is nothing but a disease. Yes, high-functioning autism has advantages and benefits, but low-functioning autism or even mid-functioning autism is debilitating. Anyone with a heart or brain would support a cure for low or middle-functioning autism. The best thing would be a treatment that would change LFA into HFA, but Aspies For Freedom is against even that. I know this because I used to be an active user of that forum and I bought into all of their BS because I wanted to belong to something.

But feels > reals, right?

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I'm high functioning. I support research into autism and possible treatments. I'm not sure that autism does have advantages and benefits - at least, not for me.



Feralucce
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28 Jul 2013, 12:39 pm

Sorry to burst any bubbles... BY DEFINITION, Autistic Spectrum Disorders are a disease. It is not a popular stance to take... but it is a fact...

As I wrote in my blog (HERE)

Quote:
I find it odd that a group of people who are noted for their literal nature would react with such vehemence to such a simple statement.

The medical definition of a disease is "an impairment of the normal state of the living animal or plant body or one of its parts that interrupts or modifies the performance of the vital functions, is typically manifested by distinguishing signs and symptoms, and is a response to environmental factors (as malnutrition, industrial hazards, or climate), to specific infective agents (as worms, bacteria, or viruses), to inherent defects of the organism (as genetic anomalies), or to combinations of these factors"

For some reason, the word disease carries a stigma with it. There are negative connotations that Autistic Spectrum individuals and their families apply to the word.

I don't understand it... and in most cases, the individuals getting offended with the application of the word. So, let's take a look at some of the arguments.


Autism isn't a disease because:
It occurs in both disabling and non-disabling forms.
Whether or not it is a disabling condition is not part of the definition of disease, nor should it be. Vitiligo, exzema, psoriasis, diabetes and lichen simplex chronicus are all diseases. Each of these are also non-disabling conditions. They are no less diseases because of that.
Autism is a disorder - autism isn't an illness.
Technically... it is an illness. The World English Dictionary defines an illness as "a disease or indisposition." Again, I will go back to the definition of a disease... "an impairment of the normal state of the living animal... that interrupts or modifies the performance of the vital functions." So, this argument is belied by the definition of disease.
It just means the brain is wired differently - not better or worse just... differently.

Wired Differently
This is the part of the definition of disease that states "that interrupts or modifies the performance of the vital functions, is typically manifested by distinguishing signs and symptoms." The fact that Autism Spectrum disorders have a set of symptoms fits into the distinguishing signs and symptoms. This argument typically comes from family. Speaking as an Autistic Spectrum individual... it is worse... over stimulation, stimming, meltdowns, tantrums, excessive cognitive dissonance and comorbid conditions make it worse.
Some people insist on labeling autism in a negative light.
I have made this point before, but there are often emotional connotations placed on words that have nothing to do with their actual definitions. I have often cited the words whore and prostitute. They both mean a person who has sex for money. Whore has an emotional impact that prostitute does not. If you call a prostitute a whore... they will become angry, often to the point of becoming enraged.

Obviously, the word disease has negative connotations that are not inherent to the word. Applying these connotations to a word defeats the purpose of having a dictionary.
Autism is not a disease - it can't be cured.
Again, nowhere in the definition does it mention that a disease can be cured. Diabetes is a disease. Lupus is a disease. Marfam's is a disease. None of these conditions can be can be cured. Therefore, curability is not a deciding factor as to whether or not it is a disease.
It is a syndrome, not a disease.
The dictionary defines a Syndrome as a "group of symptoms that together are characteristic of a specific disorder, disease, or the like." Look at that definition... I mean read it... A syndrome... is a group of symptoms that define a DISEASE... Just for the heck of it... the definition of symptom is " a phenomenon that arises from and accompanies a particular disease or disorder and serves as an indication of it."

No... THIS is syndrome... He might be autistic... but...
well... you get the point.

It goes on like that. The issues are that there is a lack of education and a surplus of emotion surrounding the word Disease.

As an Autistic Spectrum individual, I am forced to look at it from an objective standpoint. We either admit that there is something wrong with us... and by wrong, I am referring to the fact that our mental and emotional functions are different... we are not normal, by the medical and psychological definitions of normal... or we accept what we are and move forward.

We have to decide.

The thing is - Autistic Spectrum Disorders have a set of symptoms. It can be diagnosed. There is research into diagnostic criteria and treatment plans.

If Autism isn't a disease, then we have no rights to mental health treatment. We can't be disabled because of it. We can't expect the world to work with us. If we're just different, we have no right to tell people about our condition.

If we let the negative connotation of the word interfere; if we let our pride get in the way; we lose our greatest tool in the battle of Autistic Spectrum survival.

If you give up those tools, the Neurotypicals of the world are proven right. If there is nothing wrong with us... then we are just using it as an excuse to be rude; quiet hands are a necessity; we're probably just mentally ret*d; we can just get over it; we are just anti-social; we are just attention seeking; there's no such thing as a special needs adult.

The mantra of "There is nothing wrong with me." is essential for the self esteem needed to function in NT society, but it is detrimental to our cause - which should be finding treatment plans and skill training that can help us survive the minefield of the NT world around us. If there is nothing wrong with us, we are (to the last of us) destined to end up miserable and alone. Our friends and family accept us... we should do ourselves the same courtesy.


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KingdomOfRats
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28 Jul 2013, 3:54 pm

SEINNICHT wrote:
Neurodiversity is fine when you are talking about high-functioning autism. Low-functioning autism is nothing but a disease. Yes, high-functioning autism has advantages and benefits, but low-functioning autism or even mid-functioning autism is debilitating. Anyone with a heart or brain would support a cure for low or middle-functioning autism. The best thing would be a treatment that would change LFA into HFA, but Aspies For Freedom is against even that. I know this because I used to be an active user of that forum and I bought into all of their BS because I wanted to belong to something.

But feels > reals, right?

SEINNICHT,
well it looks like am heartless and brainless then because am not supporting this BS cure idea ever for low functioning autism, am speaking as a LFA autistic who has spent the last decade in institutional and residential care, the past four years of them in a new centre just for those of us with severe or profound autism; they have made huge differences to life,everyone here are doing positive things.
also find it incredibly offensive that anyone can assume we lack qualities and want a cure forcing on us but its ok for high functioning autistics to make their own choice,am sorry but when did we become subhuman and void of having any choice of our own body and mind?

feel free to have a look at recent post of mine; if have got any care about what we actualy think will have something to think about in there- http://www.wrongplanet.net/postp5522794.html#5522794
am not a supporter of the neurodiverse movement and am pro choice of the whole BS idea of the cure, but no one shoud ever take away someones right to be themselves if they feel perfectly fine as they are.


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DVCal
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28 Jul 2013, 11:50 pm

Strange it seems the more damage you are in the head, the less likely you are to see your self as being damaged.



syzygyish
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29 Jul 2013, 7:23 am

I disagree with everyone
Aspyness is a human condition
It has evolved with us and we are intertwineded with it

removing it(us) would be an act of racism as destructive as killing Jews or n****rs or Poles or Gypsies or Gays
for purely political reasons


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BuyerBeware
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29 Jul 2013, 8:45 am

I'd take a cure if there was one offered. Unpopular, maybe, but realistic.

No, I am not broken. Yes, I like me.

That doesn't change the fact that there are a lot of people out there that view me as broken, and aren't going to change.

That doesn't change the fact that, at least when dealing with people who have that view (something I have to do unless I am willing to accept a severely curtailed life), I am, de facto, broken. Power, prestige, and numbers give them the luxury of having their point of view prevail over mine no matter how pigheaded, foolish, or outright wrong they may be.

That doesn't change the fact that being different makes life harder. Lots of people that move from one country to another, one culture to another, suffer the same phenomenon. Most of them end up surrounding themselves with their own countrymen, or going home.

Going home isn't an option for us. Neither is surrounding ourselves with our own countrymen. There is Chinatown, there is Little Havana, they tell me Detroit is becoming an American Mecca. Outside of possibly Silicon Valley, there is no Autieburg and is not going to be.

So-- yes, I will accept a cure if one is ever offered. They say they're doing interesting things by bombarding autistic brains with magnetic waves-- that for a while after treatment, the test subjects read nonverbal social cues and think and act pretty much as NT's. If I had the time to make repeated trips to New England and the money to pay OOP for experimental treatments, I'd probably go for it (at least, if it didn't do something like cause frequent migraines or something that would prevent me from using my newfound neurotypicality); if it gives me brain cancer later, well, we all have to die of something.

But I draw the line at a real cure, or at least something that can force a true remission-- something that makes me normal, or able to do all the things I do now but in the same way that NTs do them, plus able to do all the things NTs do that right now I have to feign, avoid, or make excuse for.

Not something like the things that have already been done to me in the interest of keeping me passive and quiet regardless of how much they damage my ability to actually function.


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Feralucce
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29 Jul 2013, 12:23 pm

syzygyish wrote:
I disagree with everyone
Aspyness is a human condition
It has evolved with us and we are intertwineded with it

removing it(us) would be an act of racism as destructive as killing Jews or n****rs or Poles or Gypsies or Gays
for purely political reasons


Wow... How wildly inappropriate. When making a statement that compares a cure for Autistic Spectrum Disorders to racism... why would you use two racial slurs? Do you not realize that it completely invalidates any argument you might make and offends a lot of people?


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animalcrackers
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29 Jul 2013, 1:18 pm

DVCal wrote:
Strange it seems the more damage you are in the head, the less likely you are to see your self as being damaged.


Maybe your definition of "damaged" isn't the same as everyone else's?


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Feralucce
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29 Jul 2013, 2:08 pm

DVCal wrote:
Strange it seems the more damage you are in the head, the less likely you are to see your self as being damaged.


I kind of agree... this seems like a relatively ignorant and rude thing to say.


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babybird
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29 Jul 2013, 2:16 pm

What, I don't get it. What's everyone on about? Autism, where, who?


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29 Jul 2013, 3:24 pm

Disease or not, I don't think I'd want to be cured if I could. If I were NT I wouldn't be ME anymore. I would have to relearn the entire world and my entire self and everything I know would be undone.



Feralucce
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29 Jul 2013, 4:18 pm

diablo77 wrote:
Disease or not, I don't think I'd want to be cured if I could. If I were NT I wouldn't be ME anymore. I would have to relearn the entire world and my entire self and everything I know would be undone.


I disagree... while we have a pervasive developmental disorder, by the time we have reached the age fo cognitive recognition, we are who we are... we have the habits, personality traits, quirks and memory of what we have experienced... I believe that eliminating the mechanisms of autism would do very little for most of us, as personality, etc. is a wired response formed by exposure to emotional stimuli... Meaning, that by the time we reach puberty, our personality changes very little as we grow further.. (this is true for NTs and Autsist on the whole)... There are staggering exceptions, but not many...

I do not believe that removing my Asperger's would, at this point, make me any less or a different person is would simply remove some of the issues that I suffer from, such as sensory overload, and HOPEFULLY the crippling obsessions that rule my life.


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