Page 2 of 3 [ 34 posts ]  Go to page Previous  1, 2, 3  Next

Noam2353
Snowy Owl
Snowy Owl

User avatar

Joined: 15 Dec 2018
Age: 37
Gender: Male
Posts: 172
Location: Israel

10 Aug 2019, 12:33 am

martianprincess wrote:
Using the word "prevent" is inappropriate. Autism can't be "prevented" and the implication here is not good.

However, early intervention to help children with autism can help them learn to communicate more effectively, manage their anxiety, and decrease the intensity of meltdowns.

I don't believe the goal should be to eradicate autism but I don't think that's the real goal here, and early intervention doesn't change kids for the worse and it doesn't erase their autism because it's not meant to. It's meant to help them. My son is successful in school and life because he had speech therapy, occupational therapy, ABA therapy, and he can effectively calm himself down enough so it doesn't escalate to a full blown meltdown. Because, I don't know about you, but it's way more frustrating to have to figure out everything on your own, or not being able to get the people around you to understand you. It sure was for me growing up.

I agree, it's impossible to erase it. But the bigger problem is just that - some people are trying to erase Autism by trying certain methods of treatment, which never reach that impossible goal. I think only if an autistic child receives the exact treatment he or she needs, they can start dealing with their autism a lot earlier than other people who have it and don't receive the treatment in the right time.
I wasn't diagnosed until I was about 22, but even if I was diagnosed earlier - in Israel, Asperger is a relatively unknown thing. Even for psychiatrists here in Israel, they never found out I have it for a long time.
Indeed, the system here in Israel is lacking a lot compared to places like Kansas, and the US as a whole in generally.
The therapies you mentioned are especially helpful for people with asperger, since I remember back when in my childhood, I had a lot of speech problems.
Preventing autism is such an impossible mission, but I still dont get why are there still people who think it is possible. Also, even if it was possible, wouldn't it come back to the autistic person, if the treatment stops at a certain point?
I gotta admit I'd have a lot more friends than I have now in real life, if I would have received treatment earlier, but I also realize life in generally isn't always fair.


_________________
Being different is very normal.


Teach51
Veteran
Veteran

User avatar

Joined: 28 Jan 2019
Gender: Female
Posts: 2,808
Location: Where angels do not fear to tread.

10 Aug 2019, 2:29 am

ASPartOfMe wrote:
carlos55 wrote:
Preventing disabilities from occuring is not ableism, if that was the case it would automatically apply to all doctors & medical professionals.

Whether it works or not is another thing and i have my doubts about that.

Ableism is in part defined as thinking the disabled are inferior. If you are working to prevent autism you are inherently thinking autistics are inferior otherwise why would you be spending all that money to prevent it?

If one does not think autistics are inferior why would you think signs of autistic traits are “red flags”?, Why would a parent think an autism diagnosis is “devastating”?



It is natural for a parent to want their children to have a healthy trauma free life. All NT parents (I would imagine ND also, surely) want a healthy child which is understandable. A parent envisions the suffering that lays in the child's future and a sense of loss and heartbreak is experienced. They are able to imagine all the future milestones' and the child's pain and difficulties every step of the way. They feel their child's suffering as their own. That's why they are devastated, not for the hate of the disability but empathy for the child. Autism is known for its isolation and sensory discomfort, parents want their children to feel at home in the world. That said, most parents I know adapt quickly and find the best way they can to ease their autistic child into life the best way possible after the initial shock. They are well loved by their parents, my autistic friends .


_________________
My best will just have to be good enough.


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 38,088
Location: Long Island, New York

10 Aug 2019, 4:51 am

martianprincess wrote:
Using the word "prevent" is inappropriate. Autism can't be "prevented" and the implication here is not good.

However, early intervention to help children with autism can help them learn to communicate more effectively, manage their anxiety, and decrease the intensity of meltdowns.

I don't believe the goal should be to eradicate autism but I don't think that's the real goal here, and early intervention doesn't change kids for the worse and it doesn't erase their autism because it's not meant to. It's meant to help them. My son is successful in school and life because he had speech therapy, occupational therapy, ABA therapy, and he can effectively calm himself down enough so it doesn't escalate to a full blown meltdown. Because, I don't know about you, but it's way more frustrating to have to figure out everything on your own, or not being able to get the people around you to understand you. It sure was for me growing up.

I think eradicating autism or if that can not be done eradicating as much of it as possible is the unwritten agenda. of this research. I am not saying every ABA therapist wants to eradicate autism most probably don’t but it must be remembered that ABA was started by a person who wanted autistics to be indistinguishable from their peers. That may not be talked about openly these days but elements of it remain among researchers people who decide how it is implemented.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


carlos55
Veteran
Veteran

Joined: 5 Mar 2018
Gender: Male
Posts: 2,102

10 Aug 2019, 1:54 pm

"Ableism is in part defined as thinking the disabled are inferior. If you are working to prevent autism you are inherently thinking autistics are inferior"

But autism is a disability for most individuals.

Leaving aside on average shorter life expectancy and on average poorer mental & physical health, most of us with autism are unable to live independently.
If an individual is unable to cope independently as an adult then that is a disability unfortunatly.

Im refering to the majoriy here, we know there are some of us with a high iq and are able to live well etc etc but for most autistics life has some serious roadblocks that NTs just dont have.

We can face that fact or be in denial of it.

Those with disabilities, blind, deaf, autistic are not inferior citizens and deserve the same rights and opportunities as everyone else. Under the law we are all equal value, age, sex and regardless of health issues.

I dont think ive ever heard a blind person saying a child's sight should not be saved because it automatically says blind people are inferior citizens.


_________________
"The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends upon the unreasonable man."

- George Bernie Shaw


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 38,088
Location: Long Island, New York

10 Aug 2019, 5:54 pm

carlos55 wrote:
"Ableism is in part defined as thinking the disabled are inferior. If you are working to prevent autism you are inherently thinking autistics are inferior"

But autism is a disability for most individuals.

Leaving aside on average shorter life expectancy and on average poorer mental & physical health, most of us with autism are unable to live independently.
If an individual is unable to cope independently as an adult then that is a disability unfortunatly.

Im refering to the majoriy here, we know there are some of us with a high iq and are able to live well etc etc but for most autistics life has some serious roadblocks that NTs just dont have.

We can face that fact or be in denial of it.

Those with disabilities, blind, deaf, autistic are not inferior citizens and deserve the same rights and opportunities as everyone else. Under the law we are all equal value, age, sex and regardless of health issues.

I dont think ive ever heard a blind person saying a child's sight should not be saved because it automatically says blind people are inferior citizens.

Most people do not view physical disabilities as the person fault, mental disabilities are often still viewed that way, the mentally disabled are often viewed as morally inferior. If you are around here for any length of time you are going to read how members have been bullied, called attention seekers, accused of faking it, told they are lazy and if they try harder everything will be all right. Those with physical disabilities get told these things a lot less often. People are not often told stop being lazy, try harder and get out of that wheelchair. LBGQT's are not told these things nearly as often these days. ABA is not the gold standard recommended treatment for "acting black" or having sex with a person of the same gender.

Roadblocks for autistics come from a combination of actual impairments and impairments caused by being a small minority that thinks and acts differently. How many impairments are "disabilities" and how many are the bad luck of being born a small minority is going to vary based on the person and the people and environment that person has to interact with. I think much more autistic impairments are caused by being a small minority than many autistics realize. What the vast majority defines as good and bad, inferior etc is ingrained in most of us. This "internalized ableism" is understandable, most of us have been told or lived in a world where it is assumed a lot of these judgements are true our whole lives, how can we not believe it?

Teach51 wrote:

It is natural for a parent to want their children to have a healthy trauma free life. All NT parents (I would imagine ND also, surely) want a healthy child which is understandable. A parent envisions the suffering that lays in the child's future and a sense of loss and heartbreak is experienced. They are able to imagine all the future milestones' and the child's pain and difficulties every step of the way. They feel their child's suffering as their own. That's why they are devastated, not for the hate of the disability but empathy for the child. Autism is known for its isolation and sensory discomfort, parents want their children to feel at home in the world. That said, most parents I know adapt quickly and find the best way they can to ease their autistic child into life the best way possible after the initial shock. They are well loved by their parents, my autistic friends .

There would probably be a lot less roadblocks sans what I was describing above. Parents are not immune to the harsher view of mental disabilities I described above. These days a lot less parents are devastated when their child comes out as gay than when they find out they are autistic. There are all sorts of serious roadblocks based on how someone is born not everyone gets the degree of angst finding out your child is autistic gets.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,712
Location: New York City (Queens)

19 Aug 2019, 6:51 pm

carlos55 wrote:
Preventing disabilities from occuring is not ableism, if that was the case it would automatically apply to all doctors & medical professionals.

Whether it works or not is another thing and i have my doubts about that.

What's "ablist" here is the long history of the psychotherapeutic establishment not listening to autistic people's complaints about ABA, specifically.

Autistic rights activists do NOT object to ALL childhood autism therapies. No one objects to physical therapy and occupational therapy, for example.

Also, hardly anyone objects to speech therapy, as long as there are (which too often there aren't, alas) concurrent attempts to teach the child to read and write, type, or point to letters. Many (not all) autistic children have hyperlexia, meaning they can learn to read and write before they begin talking. (Of course their reading comprehension won't be the greatest, but that can come later.) Alas, too many parents assume that all children must learn to talk before they can learn to read and write, thus failing to take advantage of the strengths of some autistic children.

However, many autistic people do object to ABA and feel that they were traumatized by it as children. Hence the anger about the idea of administering it to younger and younger children.


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.


Rainbow_Belle
Deinonychus
Deinonychus

Joined: 16 Jan 2019
Gender: Female
Posts: 336
Location: Sydney

19 Aug 2019, 9:41 pm

Another Ableist article pushing claptrap to prevent Autism. Experts are still looking for a miracle cure or prevent people being born Autistic.



CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 118,420
Location: In my little Olympic World of peace and love

20 Aug 2019, 12:52 pm

That's the most stupidest idea I've ever read. I've nearly lost my breakfast reading that article.


_________________
The Family Enigma


green0star
Veteran
Veteran

User avatar

Joined: 5 Apr 2016
Gender: Female
Posts: 1,415
Location: blah

20 Aug 2019, 1:33 pm

How much brain matter did this person have removed???



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 38,088
Location: Long Island, New York

20 Aug 2019, 2:31 pm

green0star wrote:
How much brain matter did this person have removed???

None. They looked for eye contact and reaction to sounds and if they did not like what they saw they started immediate “treatments”.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


SocOfAutism
Veteran
Veteran

Joined: 2 Mar 2015
Gender: Female
Posts: 3,029

28 Aug 2019, 8:53 am

I’m having a bad morning so please forgive the plain speak.

Researchers that do these kinds of studies on babies and toddlers are almost always dumb and presumptuous.

1) Kids who live with an autistic person pick up autistic mannerisms. It’s natural. It’s like if you have people from two different cultures living together-they will start using each other’s words and gestures without thinking about it.

2) You can’t ask a baby or toddler why they are doing a thing. For example, my five year son avoids eye contact with pretty women until he knows them very well, and then he still does it if he gets a little crush on them. To rule it out as autism, you’d have to get a parade of all kinds of different looking and acting people to interact with the kid, and even then the kid may have eye contact issues for any number of reasons. AND, even if you get to the point where you can ask them, you can’t be sure what’s going on because the person could misunderstand, lie, etc. Studies like this have to be done on a large scale (with more than a hundred people) and then get replicated, to be taken seriously at all.

The reason I think these studies are notable is ASPoMs title here- the powers that be are showing that they are still hard at working trying to eradicate autistic people. Hm. Good to know that your differences and obvious contributions to society are not valued by these geniuses.



Touretter
Velociraptor
Velociraptor

User avatar

Joined: 18 Mar 2006
Age: 42
Gender: Male
Posts: 406

28 Aug 2019, 3:06 pm

ASPartOfMe wrote:
Local Study Aims To Prevent Autism Through Early Intervention
Quote:
Siblings of children with autism have a one-in-five chance of developing autism as well. In a first-of-its-kind study in New England, a local researcher is screening babies soon after birth to see whether the very earliest intervention might help prevent autism in these at-risk children.

“I noticed that her language wasn’t increasing,” said school teacher Lauren Byron. She suspected her almost 2-year-old daughter, Mackenzie, had autism.

“Still, having somebody else assess your child and tell you that they’re on the autism spectrum was kind of devastating,” Byron told WBZ-TV.

Infant Sibling Project at The New England Center for Children in Southboro. Dr. MacDonald and her team are looking for the earliest markers of autism in very young babies and are replicating a Wisconsin study from 2017.

“What they found was that when they identified those markers and treated them right away, they could prevent a full onset of an autism diagnosis,” Dr. MacDonald said.

In her study, babies younger than 6 months with affected siblings undergo an assessment in their homes every other week until they’re at least 2 years old. Lauren’s third child, 3-month old Graeme, is one of those babies.

Dr. MacDonald looks for eye contact, tracking an object from side to side, turning their head to sounds (like the shake of a rattle), babbling and smiling.

If red flags are found, treatment begins immediately.

My nomination for most ablest article of the year so far.
Let infants be infants.
I think that the referenced article might have meant well , but it was still worded horribly . It might have been referring to the idea that growing up around a sibling on the spectrum can tend to have an impact upon their own personal development , in some respects , but it came across as implying that autism can be brought about by environmental nurture , rather than is the product of congenital nature . This sort of notion is not unique though . For instance , it is thought that children of a parent with a mental illness are more likely to exhibit emotional disturbances of their own . https://www.healthyplace.com/parenting/parents-with-mental-illness/impact-of-parents-mental-illness-on-children , https://www.sheknows.com/health-and-wellness/articles/1092211/mentally-ill-parent/ P.S. And for the record , my sister grew up around me , yet I don't think that she's altogether autistic as a result . But I do suppose that it might be helpful for siblings of those of us on the autistic spectrum to have interactions with neurotypical friends , rather than just with the likes of those such as myself . Still it feels devastatingly lonely when a sibling goes out with friends , and you might tend to not have many if any companionship apart from her .



Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,712
Location: New York City (Queens)

29 Aug 2019, 3:46 pm

martianprincess wrote:
I don't believe the goal should be to eradicate autism but I don't think that's the real goal here, and early intervention doesn't change kids for the worse and it doesn't erase their autism because it's not meant to. It's meant to help them. My son is successful in school and life because he had speech therapy, occupational therapy, ABA therapy, and he can effectively calm himself down enough so it doesn't escalate to a full blown meltdown.

When your son had ABA therapy, what were its exact goals?

Back in the bad old days at least, the goal was to make autistic kids "indistinguishable from their peers," e.g. by getting them to make eye contact just like an NT, and by "extinguishing" stimming and other autistic behaviors. These goals caused an awful lot of stress for many of the kids. What were the behavioral goals for your son?

Another criticism of ABA is that too much focus on rewards-based training may have the unintended side-effect of making kids afraid to reveal what they enjoy, lest the things they enjoy be held hostage as rewards.


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,712
Location: New York City (Queens)

10 Sep 2019, 2:08 pm

ASPartOfMe wrote:

I just now came across a Spectrum News article about a study showing that this or a similar method (I'm not sure if it's the exact same method) isn't working. See Test of ‘preemptive’ autism therapy detects few benefits by Nicholette Zeliadt, 5 August 2019.


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.


Bobik
Emu Egg
Emu Egg

Joined: 12 Sep 2019
Age: 28
Gender: Female
Posts: 8

12 Sep 2019, 1:48 am

Hi guys :D



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 38,088
Location: Long Island, New York

12 Sep 2019, 3:32 am

Here is a South Bend, Indiana TV report that is typical of the mentality we have been discussing.

Spotting autism early: The importance of early childhood diagnosis
Bolding mine for emphasis

Quote:
Autism is a complex developmental disorder that affects a child's ability to communicate and interact with others.


Most children with autism are diagnosed after age 4, but new research shows parents and doctors may be able to spot the disorder much sooner. And when it comes to an autism diagnosis, as with so many other things – the earlier, the better.

The numbers are alarming: One in every 59 children is diagnosed with an autism spectrum disorder.

While there's a lot scientists don't know about this common condition, there's one thing they do: Diagnosing and treating it early does improve outcomes. That's because from birth to age 3, the human brain has the most neuroplasticity.

"That means that their brain is the most flexible it's ever going to be for learning and developing new skills," Dr. Christopher J. Smith said.

It's in this window that therapies are most effective. Recent research has shown an autism diagnosis can be made as early as 14 months of age.

Still, about half of young children who are referred for an autism diagnosis are put on a "watch-and-wait" list, which means their treatment will be delayed, many times for years.

Some early signs to watch out for in babies include not making eye contact, not responding to their name, repeating certain actions again and again, unusual emotional responses and one more that parents often overlook.

"Their report about them when they were a baby is they were such a good baby. They could play alone for so long. Well, that's not what a typically developing baby should be doing," Smith said.

The best advice for parents: If there are any red flags, talk to your doctor about an evaluation and push for an early diagnosis. It could make a difference down the road.

Experts are divided on exactly when to start screening children for autism. The American Academy of Pediatrics recommends screening start at 18 months. But the U.S. Preventive Services Task Force says there's insufficient evidence to recommend universal screening before age 3.

New research at Stanford suggests technology could alleviate the bottleneck in autism diagnosis around the world. Using artificial intelligence, they can analyze short home videos of children playing and interacting with others to distinguish autism from other developmental delays with 85% accuracy.

Warning RED FLAG, RED FLAG babies playing alone and learning about themselves and their surroundings is so alarming(sarcasm).


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman