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madbutnotmad
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20 Jan 2021, 7:26 pm

<joke reply, please do not take offence>

When I was given my diagnosis of Asperger Syndrome, i read up on Hans Asperger
and decided to take the diagnosis literally.

So I went about on researching Hans Asperger, and modelled myself on him.
Buying myself a white doctors coat, and stethoscope, I started to self style myself as a Nazi Doctor, and converted by garage into a self styled Nazi doctors clinic.

Sadly my clinic was shut down, as apparently the red Nazi Swastica flags that I had decorated my self styled make shift doctors surgery were no longer considered politically correct, and the local parents objected me to giving their local children injections and making record of their "influenza" in my little accountants book.



madbutnotmad
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20 Jan 2021, 7:27 pm

Velorum wrote:
I am absolutely fine with referring to myself or others referring to me as Autistic.

your not Roger Daultry's brother are you?...
(although joking aside, i know that Pete Townshend's brother is formally diagnosed as having ASD).



Udinaas
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20 Jan 2021, 7:54 pm

ezbzbfcg2 wrote:
I do wonder how many people with undiagnosed Asperger's won't be able to as easily learn about their condition when doing personal research. As soon as they see the word "autism," they'll disregard it, because like many unaware of the spectrum, autism still means classically autistic.

I think having categories within the spectrum is helpful, and Asperger's is still a relevant term.

This. And people on the milder end of the spectrum will be more likely to be believed if they say they have Asperger's than if they say autism. But the definition of Asperger's should be changed to only be based on current social mildness, not on whether there was a language delay in childhood.



diagnosedafter50
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21 Jan 2021, 7:38 pm

pawelk1986 wrote:
Since 2013 Asperger is no more official diagnosis only ASD is I wonder how many feel uncomfortable about it Asperger was not so stigmatizing like ASD is?

I wonder how you think about it?

I was diagnosed in 2020 with Asperger's.



Jiheisho
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21 Jan 2021, 8:07 pm

diagnosedafter50 wrote:
pawelk1986 wrote:
Since 2013 Asperger is no more official diagnosis only ASD is I wonder how many feel uncomfortable about it Asperger was not so stigmatizing like ASD is?

I wonder how you think about it?

I was diagnosed in 2020 with Asperger's.


I believe ICD-10 still contains Asperger's as a billable code in the UK. DSM-5 is used in the US and Asperger's is no longer a diagnosis.



dragonsanddemons
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21 Jan 2021, 8:49 pm

It doesn’t really affect me since I’m not near as “mild” as people typically think of when they think Asperger’s, and that’s actually the reason I just say that I’m on the autism spectrum (official diagnosis is Asperger’s syndrome). Looking at the official diagnostic criteria, I’m pretty sure that if I was re-assessed by the new ones, I’d be diagnosed with ASD level 2, not level 1.


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cyberdad
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21 Jan 2021, 8:55 pm

In my daughter's school she was the only child with autism. There were also 4 students with Aspergers. The girls with Aspergers chose to identify as Aspies.

In Australia diagnosis can be done using the ICD10 which still recognises Aspergers as a stand alone disorder. I have never met a parent or child or adult who prefers to use autism when they can be identified as Aspergers (or aspies) if they are high functioning.

Most NTs don't know they mean the same thing and think they are different.



ASPartOfMe
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22 Jan 2021, 7:15 am

cyberdad wrote:
In Australia diagnosis can be done using the ICD10 which still recognises Aspergers as a stand alone disorder. I have never met a parent or child or adult who prefers to use autism when they can be identified as Aspergers (or aspies) if they are high functioning.

Now you have met one. Prefer autistic since the revelations about Hans Asperger Nazi complicity. Search twitter "Asperger Nazi" you will meet a lot more. Unlike them, I don't insist others have to forgo using Aspie

cyberdad wrote:
Most NTs don't know they mean the same thing and think they are different.

Most NT's fit into the "'A little knowledge is a dangerous thing" category.


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pawelk1986
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22 Jan 2021, 11:34 am

ezbzbfcg2 wrote:
I do wonder how many people with undiagnosed Asperger's won't be able to as easily learn about their condition when doing personal research. As soon as they see the word "autism," they'll disregard it, because like many unaware of the spectrum, autism still means classically autistic.

I think having categories within the spectrum is helpful, and Asperger's is still a relevant term.


I think so too :)



Jiheisho
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22 Jan 2021, 12:33 pm

ezbzbfcg2 wrote:
I do wonder how many people with undiagnosed Asperger's won't be able to as easily learn about their condition when doing personal research. As soon as they see the word "autism," they'll disregard it, because like many unaware of the spectrum, autism still means classically autistic.

I think having categories within the spectrum is helpful, and Asperger's is still a relevant term.


Well, I found out about my autism doing online research. I did not need the Asperger's definition, which was no longer used as I was diagnosed under DSM-5. And apparently it is quite common for others hearing about autism on public programs to recognize their conditions. I have heard this mentioned by people like Tony Attwood.



cyberdad
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22 Jan 2021, 10:03 pm

ASPartOfMe wrote:
Now you have met one. Prefer autistic since the revelations about Hans Asperger Nazi complicity. Search twitter "Asperger Nazi" you will meet a lot more. Unlike them, I don't insist others have to forgo using Aspie


I think culturally north Americans have moved to the new labelling quicker than Australians. We still have Aspergers associations here in my state and their members choose to not associate themselves with Autism.
https://aspergersvic.org.au/



cyberdad
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22 Jan 2021, 10:04 pm

According to their manifesto the Aspergers Association of Victoria
We provide a range of member grassroot support services across the lifespan from kids to adults, parents and carers, professionals and employers to support discovery of strengths, manage challenges, and empower by Aspies, for Aspies, with Aspies. Our Board all have lived experience as do all of our staff and our volunteers.

They seem segregationist to me



CockneyRebel
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23 Jan 2021, 12:40 am

I have no problems with calling myself autistic, because it's the truth.


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ASPartOfMe
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23 Jan 2021, 11:27 am

cyberdad wrote:
According to their manifesto the Aspergers Association of Victoria
We provide a range of member grassroot support services across the lifespan from kids to adults, parents and carers, professionals and employers to support discovery of strengths, manage challenges, and empower by Aspies, for Aspies, with Aspies. Our Board all have lived experience as do all of our staff and our volunteers.

They seem segregationist to me


According to the Aspergers Association of Victoria manifesto

“Our truly unique peer-led, for-purpose organisation is celebrating Aspergers, celebrating strengths and celebrating 28 years of support. Since 1991 our organisation has been driven by the power of peer support and lived experience, delivering sector leading peer programs and services to empower our neurodiverse Aspergers autistic community.

Bolding=mine

North American organizations
“GRASP, the Global and Regional Asperger Syndrome Partnership, is a non-profit 501(c)3 organization providing support, education, and programs for individuals on the autism spectrum, related disabilities, and their families.”

“The Asperger/Autism Network (AANE)”

“ Asperger Syndrome & High Functioning Autism Association (AHA)”

Make of them what you will.


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cyberdad
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23 Jan 2021, 8:31 pm

ASPartOfMe wrote:
Since 1991 our organisation has been driven by the power of peer support and lived experience, delivering sector leading peer programs and services to empower our neurodiverse Aspergers autistic community..


They must have added the word "autistic" after 2013. In 2012 when I tried to have my daughter join their organisation they were very clear that membership required a diagnosis of Aspergers. My daughter was capable of conversing as she was maturing but when she was diagnosed she was non-verbal.

I don't know how they police membership now? But stating that they empower by Aspies, for Aspies, with Aspies suggest they maintain membership for high functioning people only.



MrsPeel
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24 Jan 2021, 5:26 am

cyberdad wrote:
In my daughter's school she was the only child with autism. There were also 4 students with Aspergers. The girls with Aspergers chose to identify as Aspies.

In Australia diagnosis can be done using the ICD10 which still recognises Aspergers as a stand alone disorder. I have never met a parent or child or adult who prefers to use autism when they can be identified as Aspergers (or aspies) if they are high functioning.

Most NTs don't know they mean the same thing and think they are different.


Until recently Australia seemed to use a mix of diagnostic tools and labels, including ICD10 and the DSM, depending on the practitioner. I think it may have been standardised recently?

Anyway, being diagnosed only a few years ago, I've gone straight to referring to myself as having "an autism spectrum condition" - because it was clear the term Aspergers was on the way out. So I think you might find things are starting to change now. Though I'm in Queensland, where Tony Attwood has had a huge influence, and I understand he's in agreement with the concept of an umbrella autism spectrum.

For my son, though, I tell service providers he has "Asperger-type autism", because that seems to help them get a first idea of his needs. (For instance, verbal and high IQ). I suppose I could say Autism Level 1, but the Asperger reference just fits him so well - he's the professor type, with very high IQ but a weird way of talking and socially clueless. So it's a useful shorthand to help people understand the nature of his autism.