Page 2 of 2 [ 25 posts ]  Go to page Previous  1, 2

Heta
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 21 Feb 2005
Gender: Female
Posts: 25
Location: Finland

06 Mar 2008, 3:01 am

KenG wrote:
Heta wrote:
May I ask a couple of questions?
Yes, you may.


Good to know that you don't object, although I'd probably ask anyway, I'm just uncontrollably curious sometimes :D

Quote:
Personally, I define "autistic-run" as *exactly* 50% or more autistic in decision-making.
(if it is 49% autistic in decision-making, it does not belong into the category of "autistic-run")


Then you'd have to drop AASCEND from your list. I've considered them so positive in their spirit and so obviously beneficial to their members that I woudn't want to do that. I tend to mention them as an exception when I do talks about this, as the approximately half-autistic-run organisation. I think it's rather ideal, really, that parents and autistic adults can work closely together and agree on their goals. If everybody is treated just the same, and the parents actually value what the autistic adults have to give, then I don't see why it would make a difference whether there are 45 % or 50 % autistic members on a board. I don't think they have quotas for either NT or autistic. But if there are any AASCEND members here, they would of course have more information than I have.



Heta
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 21 Feb 2005
Gender: Female
Posts: 25
Location: Finland

06 Mar 2008, 3:22 am

sartresue wrote:
Not in Canada, you say? topic

I have been loathe to find anything in Canada specifically for Autistic Adults.


How do you feel about taaproject? ( http://www.taaproject.com/ ) They now seem to have an autistic person as board president, and they express many positive ideas, but somehow I cannot bring myself to classify them as an autistic-run organisation. Still, they arrange opportunities for autistic people to meet and to speak publicly, don't they?



KenG
Veteran
Veteran

User avatar

Joined: 31 Mar 2006
Age: 56
Gender: Male
Posts: 2,131
Location: Israel

06 Mar 2008, 7:46 am

Heta wrote:
Then you'd have to drop AASCEND from your list.
It is not *my* list. It is the 'autistic-run organizations' list. It was *you* who supplied most of the data.
The Registry is an 'open source' project.
Therefore, everyone is free to compile/edit and/or distribute their own versions of the registry.
For example, you could compile and distribute the following versions on your own:
v.heta-pukki.1.0.1, v.heta-pukki.1.0.2, v.heta-pukki.1.0.3, etc.


_________________
AUsome Conference -- Autistic-run conference in Ireland
https://konfidentkidz.ie/seo/autism-tra ... onference/
AUTSCAPE -- Autistic-run conference and retreat in the UK
http://www.autscape.org/


Heta
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 21 Feb 2005
Gender: Female
Posts: 25
Location: Finland

06 Mar 2008, 8:00 am

KenG wrote:
...everyone is free to compile/edit and/or distribute their own versions of the registry.


Well then everyone has their own list, depending on their personal definitions of what an autistic-run organisation is. I prefer to keep one list on my blog, and just update it occasionally, instead of creating different versions.



alex
Developer
Developer

User avatar

Joined: 13 Jun 2004
Age: 40
Gender: Male
Posts: 10,224
Location: Beverly Hills, CA

06 Mar 2008, 9:39 am

LLC stands for limited liability company. Yellow sneaker media is the entity that manages Wrong Planet. Wrong Planet was founded in june 2004..


Heta wrote:
Well I said somewhere that if AFF is on the list, so should WP be. But I have had difficulty figuring out which ones consider themselves organisations, and which ones would also be considered such by any casual observer.

To be an "official" organisation, any group should have a founding date, clearly defined membership, and decision-making structures. Is there an actual WP association, society, anything like that? Who's the "we" who will enforce copyright, for example, if this were necessary? Is there a board somewhere, a democratic structure? I'm sorry if I've missed something obvious, haven't spotted that type of information on this site. I see Yellow Sneaker Media, LLC at the bottom of the page, but I don't know what LCC stands for.

WP is of course very well organised and serves anyone who turns up here in many ways. I don't mean to belittle that. I would just like to know how I could accurately describe it, if anyone asks why a discussion forum is included on a list of organisations.

I can only speak for myself of course, don't know what KenG's reasons are for omitting WP.


_________________
I'm Alex Plank, the founder of Wrong Planet. Follow me (Alex Plank) on Blue Sky: https://bsky.app/profile/alexplank.bsky.social


Sophist
Veteran
Veteran

User avatar

Joined: 23 Apr 2005
Age: 44
Gender: Female
Posts: 6,332
Location: Louisville, KY

06 Mar 2008, 10:20 am

Heta wrote:
Sophist wrote:
[The original idea involved a board, research + general lay members (autistic) + nonautistics, but this wasn't working so well as I understand it. So now there isn't really a board; just a group of people, mostly autistic, who wish to carry out and support advocacy-related autism research.


That clarified things a lot. I would categorise you guys together with ARGH, Autreach, autistics.org and other small (but significant) groups with loose organisational structure.

When there is a board, it often ends up being just a formality anyway, but it can affect the way the rest of the world views the organisation, at least in some countries.

By the way I'm working on an MEd in special education at the University of Birmingham, UK (distance ed). For my MEd thesis, I'm comparing concepts of empowerment among autistic adults and professionals, and trying to figure out respectful, empowering ways to teach autistic adults facts about autism. I don't have a lot of time for networking, but I'm going to stop by and see what AASPIRE is doing sometimes, and maybe give a description of my research if anyone is interested.


Then you may be interested in joining the group and participating. If so, I'd recommended contacting Dora, her email info is available in the contact information. :)


_________________
My Science blog, Science Over a Cuppa - http://insolemexumbra.wordpress.com/

My partner's autism science blog, Cortical Chauvinism - http://corticalchauvinism.wordpress.com/


Heta
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 21 Feb 2005
Gender: Female
Posts: 25
Location: Finland

09 Mar 2008, 6:34 am

alex wrote:
Yellow sneaker media is the entity that manages Wrong Planet.


Well this looks like a unique situation. Tricky one. Personally I haven't listed companies run by autistic people, or discussion forums except when they clearly act like an organisation... AFF, for example, has a clear mission statement, using "we" (although the "we" is not exactly defined. They say things like:
Quote:
We have the view that aspergers and autism are not negative, and are not always a disability.
...
We know that autism is not a disease
...
We are part of building the autism culture. We aim to strengthen autism rights...


So in my view, anyone with an active role (I wouldn't count forum registrations) is basically signing to such shared views. Someone informed me that this could be called a collective or an unincorporated members association, in UK terminology. But is a forum managed by a company an organisation? I think that I'm going to have to refer to this situation as a notable exception, like I do with AASCEND.



Heta
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 21 Feb 2005
Gender: Female
Posts: 25
Location: Finland

09 Mar 2008, 6:38 am

Sophist wrote:
Then you may be interested in joining the group and participating.


I think I'll give it a try in June, until then I'm much too busy. By that time I should have some research results beginning to come together, so I'd have something concrete to offer to the discussion.



KenG
Veteran
Veteran

User avatar

Joined: 31 Mar 2006
Age: 56
Gender: Male
Posts: 2,131
Location: Israel

07 Feb 2010, 11:15 am

The Global Registry of Autistic-Run Organizations is also available on the Aspies e.V website:
http://aspies.de/english.php


_________________
AUsome Conference -- Autistic-run conference in Ireland
https://konfidentkidz.ie/seo/autism-tra ... onference/
AUTSCAPE -- Autistic-run conference and retreat in the UK
http://www.autscape.org/