I AM CONDUCTING AN INTERVIEW WITH AUTISM SPEAKS
jojobean
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Joined: 12 Aug 2009
Age: 48
Gender: Female
Posts: 3,341
Location: In Georgia sipping a virgin pina' colada while the rest of the world is drunk
Zeraeph wrote:
I have so much to say about the awful reality of Autism Speaks, that I struggle to find words...but I don't have to, because somebody else found the words better than I ever could, and I hope nobody minds if, rather than plagiarising and paraphrasing them to pass those words off as my own, I just come out and quote them from AFF:
I am not into guilt tripping you John Scotty...that is unfair and wrong, you began to recognise your own talent and started to feel around for ways to parlay that into a livelihood...this isn't your first mistake and it won't be your last, but TRYING to make best use of your talent, overall, is probably one of the best decisions you will ever make in your whole life and the mistakes you make are the eggs you have to break to make that omelette...
We all make mistakes, I spent a month as an enthusiastic evangelist for Amway at your age
Quote:
Autism Speaks was founded by two aggrevied and bereaved grandparents of a kid with Autism. They were middleclass and not without social and media connections. The grandfather worked as an executive at Fox.
Now they took the view that Autism was (like the Generation Rescue crowd) the fault of mercury from vaccinations. They started a long running campaign against this and touted what amounted to therapetic leeching toxins from the blood as well as funding towards making a case towards pharamceutical companies. They warded potential parents off vaccinating their children and far from embracing the “gifts” of Autism that they now allude to, portrayed Autism as a cancer and a monster. A “leaden shell” behind which “normal kids are hidden and trapped, waiting for the mercury to be leeched out so they can be “normal.
They denounced all naysayers and in their efforts and scaremongering managed to dry up funding resources for other Autistic charities and engulfed similar charities like Cure Autism Now. They also took measure to sue naysayers including a 14 year old AFF member. You did know about this right? They had similar hopeful and deluded parents barracking for them and supporting them through funding and financial backing. Then something really strange happened.
The cases and studies did not support their theory. By this time they had scientists and a HUGE following. What did they do to the parents that were waiting for their children to be released from the leaden shells that they had PROMISED them they would do? What did they say to all the Autistics they had demonised? What did they do to all the groups that had denounced their abhorrent stances?
Well…nothing really. They abandoned the people that trusted them and that they lied and broke their promises to. They simply went of on the new best strategy. Biological and genetic research and obtaining vast amounts of genetic databases of material from Autistics to further their ends. Who would they need to work with for such patents? That’s right. Their good friends in Pharmaceuticals. But of course by now they had a presence of huge proportions because simply no other Autism charity could compete on a funding level with them in respect to Autistic ventures and due to the strong connections with celebrities and governments (oh a papal recognition from the Vatican) they basically write their own ticket.
Now It gets better. The fierce critics were by and large from Autistic online communities. Go to Wrong planet and look at some of the horro of Autism Speaks threads. Some one bumped them about 6 months ago so they ought not be too hard to find. (Yes I wonder who too LOL). Also of course you need to look here and especially on AFF’s blogsite.
So winning over the hearts and minds of these empty headed Autistic opponents was the next step. They have to be reasonable and play nice and look for opportunities to present themselves as a worthy organisation...
...Now there is another opportunity. A young enthusiastic little self-proclaimed activist opens up channels of communication and in such a way that glosses over any of the BS they have done in the past or suggestion that they are anything but a reasonable organisation worthy of a listen and that we can not beat them we may as well support them.
That in itself is pretty bad. But you know what is worse? YOU now trying to bask in the sun over this tremondous achievement. But that is forgivable. You are young and enthusiastic and maybe have no idea with the apparent little research you put into seeking out such a dangerous organisation. What is worse still is now berating anyone who doesn’t embrace this huge favour you have done by allowing them to think that we may be a soft touch and may want to actually extend the olive branch or some crap.
Now they took the view that Autism was (like the Generation Rescue crowd) the fault of mercury from vaccinations. They started a long running campaign against this and touted what amounted to therapetic leeching toxins from the blood as well as funding towards making a case towards pharamceutical companies. They warded potential parents off vaccinating their children and far from embracing the “gifts” of Autism that they now allude to, portrayed Autism as a cancer and a monster. A “leaden shell” behind which “normal kids are hidden and trapped, waiting for the mercury to be leeched out so they can be “normal.
They denounced all naysayers and in their efforts and scaremongering managed to dry up funding resources for other Autistic charities and engulfed similar charities like Cure Autism Now. They also took measure to sue naysayers including a 14 year old AFF member. You did know about this right? They had similar hopeful and deluded parents barracking for them and supporting them through funding and financial backing. Then something really strange happened.
The cases and studies did not support their theory. By this time they had scientists and a HUGE following. What did they do to the parents that were waiting for their children to be released from the leaden shells that they had PROMISED them they would do? What did they say to all the Autistics they had demonised? What did they do to all the groups that had denounced their abhorrent stances?
Well…nothing really. They abandoned the people that trusted them and that they lied and broke their promises to. They simply went of on the new best strategy. Biological and genetic research and obtaining vast amounts of genetic databases of material from Autistics to further their ends. Who would they need to work with for such patents? That’s right. Their good friends in Pharmaceuticals. But of course by now they had a presence of huge proportions because simply no other Autism charity could compete on a funding level with them in respect to Autistic ventures and due to the strong connections with celebrities and governments (oh a papal recognition from the Vatican) they basically write their own ticket.
Now It gets better. The fierce critics were by and large from Autistic online communities. Go to Wrong planet and look at some of the horro of Autism Speaks threads. Some one bumped them about 6 months ago so they ought not be too hard to find. (Yes I wonder who too LOL). Also of course you need to look here and especially on AFF’s blogsite.
So winning over the hearts and minds of these empty headed Autistic opponents was the next step. They have to be reasonable and play nice and look for opportunities to present themselves as a worthy organisation...
...Now there is another opportunity. A young enthusiastic little self-proclaimed activist opens up channels of communication and in such a way that glosses over any of the BS they have done in the past or suggestion that they are anything but a reasonable organisation worthy of a listen and that we can not beat them we may as well support them.
That in itself is pretty bad. But you know what is worse? YOU now trying to bask in the sun over this tremondous achievement. But that is forgivable. You are young and enthusiastic and maybe have no idea with the apparent little research you put into seeking out such a dangerous organisation. What is worse still is now berating anyone who doesn’t embrace this huge favour you have done by allowing them to think that we may be a soft touch and may want to actually extend the olive branch or some crap.
I am not into guilt tripping you John Scotty...that is unfair and wrong, you began to recognise your own talent and started to feel around for ways to parlay that into a livelihood...this isn't your first mistake and it won't be your last, but TRYING to make best use of your talent, overall, is probably one of the best decisions you will ever make in your whole life and the mistakes you make are the eggs you have to break to make that omelette...
We all make mistakes, I spent a month as an enthusiastic evangelist for Amway at your age

Innocence lost again. I actually thought they were trying to make amends
Jojo
_________________
All art is a kind of confession, more or less oblique. All artists, if they are to survive, are forced, at last, to tell the whole story; to vomit the anguish up.
-James Baldwin
jojobean
Veteran

Joined: 12 Aug 2009
Age: 48
Gender: Female
Posts: 3,341
Location: In Georgia sipping a virgin pina' colada while the rest of the world is drunk
Zeraeph wrote:
jojobean wrote:
I had a spinal tap when I was nine because some research doctor thought I had a degenerative brain disease.
I wont go too much into it, but I felt soo helpless and felt like the only thing I could do is scream for 3 hours until by mom withdrew consent when she came on the floor and heard me screaming.
I think that is a better reason than any I offered for not blithely assuming that qualification equals validation.
How horrifying for you!
Qualified people do not have to make "most wanted" lists to be monsters.
It was really bad, but after that whole thing, she gave up the curebie thing.
_________________
All art is a kind of confession, more or less oblique. All artists, if they are to survive, are forced, at last, to tell the whole story; to vomit the anguish up.
-James Baldwin
jojobean wrote:
Innocence lost again. I actually thought they were trying to make amends
I wish they were too, but this is the real world.
There is always a little, childlike, part of me that remains utterly bewildered as to why they do not care at all and are not frantic to mend all the damage they have done...but that is never going to happen.

The only real "happy ever after" will be the one we can make without and despite Autism Speaks and the rest of the Autism Industry...
Which is not the same as saying it will never happen.
Zeraeph wrote:
Gedrene wrote:
I am still waiting for your replies
I hope to heaven you are not also holding your breath!
Your fixation with me is both unseemly and unhealthy. The best way I know to deal with that, even for your own sake, is to refuse to let you hook me into any form of interaction, and that is all the reply you will ever get.
Selective quotation wont delete the fact that I said that you should give evidence for saying that other people are wrong or evil. The only fixation being shown here is one's inability to actually engage in an adult fashion with anyone who criticizes them. Maybe if you didn't have such a fixation on when I spoke to you then you might notice that you aren't the only person that I respond to on this thread or the only thing I talk about. Unhealthy fixation indeed.
By the way, after saying that you'd leave four times I don't think you can talk about any unhealthy psychological problems that anyone else has.
Gedrene wrote:
I am still waiting for your replies with categorical evidence as to where and when autism speaks lied in the examples I gave, or are you trying to deflect from that?
That you delete the rest of the sentence is very telling, especially since what you said to me was an ad-hominem deflection. Don't hold your breath! You say. Don't patronize me I say. Might seem a bit obvious to put in the rest of the sentence then, wouldn't it? Don't think yourself special by the way. I make sure anyone who feels like violating the truth for political expediency gets barraged with questions.
Last edited by Gedrene on 22 Sep 2011, 11:28 am, edited 6 times in total.
jojobean wrote:
Zeraeph wrote:
jojobean wrote:
I had a spinal tap when I was nine because some research doctor thought I had a degenerative brain disease.
I wont go too much into it, but I felt soo helpless and felt like the only thing I could do is scream for 3 hours until by mom withdrew consent when she came on the floor and heard me screaming.
I think that is a better reason than any I offered for not blithely assuming that qualification equals validation.
How horrifying for you!
Qualified people do not have to make "most wanted" lists to be monsters.
It was really bad, but after that whole thing, she gave up the curebie thing.
There are some people who can learn after all...too little, too late perhaps, but that is something.
Tambourine-Man wrote:
Gedrene wrote:
Tambourine-Man wrote:
I'm not interested in being a journalist. I don't know what a journalist is.
I'm autistic and I do a little writing.
I'm autistic and I do a little writing.
You should know what a journalist is. You said you wanted to do writing because it was the only thing you thought you were good at. That doesn't sound like a little.
What is a journalist? Is it anything like a diaryist?
Search Journalist on Wikipedia
How do you not know what a journalist is?
Gedrene wrote:
Tambourine-Man wrote:
Gedrene wrote:
Tambourine-Man wrote:
I'm not interested in being a journalist. I don't know what a journalist is.
I'm autistic and I do a little writing.
I'm autistic and I do a little writing.
You should know what a journalist is. You said you wanted to do writing because it was the only thing you thought you were good at. That doesn't sound like a little.
What is a journalist? Is it anything like a diaryist?
Search Journalist on Wikipedia
How do you not know what a journalist is?
Yeah, I'm not a definately not a journalist. I'm just autistic and I do a little writing.
Tambourine-Man wrote:
Gedrene wrote:
Tambourine-Man wrote:
Gedrene wrote:
Tambourine-Man wrote:
I'm not interested in being a journalist. I don't know what a journalist is.
I'm autistic and I do a little writing.
I'm autistic and I do a little writing.
You should know what a journalist is. You said you wanted to do writing because it was the only thing you thought you were good at. That doesn't sound like a little.
What is a journalist? Is it anything like a diaryist?
Search Journalist on Wikipedia
How do you not know what a journalist is?
Yeah, I'm not a definately not a journalist. I'm just autistic and I do a little writing.
You are just autistic? What does that mean exactly?
Well, the "we have never sought to eradicate autism" statement is blatantly untrue. There are numerous statements by Autism Speaks officials, and advertisements, which suggest otherwise. Too many to list, really. One of them was a statement about "making autism a word for the history books."
Tambourine-Man wrote:
Search for autistic on wickipedia. I can't believe you don't know what it means. 

Okay, I'll modify the question to drill it in to your mind. What is the significance of saying you're autistic when you're saying that you write a little, not that you're a journalist.
srriv345 wrote:
Well, the "we have never sought to eradicate autism" statement is blatantly untrue. There are numerous statements by Autism Speaks officials, and advertisements, which suggest otherwise. Too many to list, really. One of them was a statement about "making autism a word for the history books."
I wish I actually had the sources. I do think they are lying, but I want the sources.
Gedrene wrote:
Tambourine-Man wrote:
Search for autistic on wickipedia. I can't believe you don't know what it means. 

Okay, I'll modify the question to drill it in to your mind. What is the significance of saying you're autistic when you're saying that you write a little, not that you're a journalist.
They are both true. That is all.
Journalists wear neckties. I don't like neckties, I like funny hats.
I don't want to be a journalist.
Tambourine-Man wrote:
Gedrene wrote:
Tambourine-Man wrote:
Search for autistic on wickipedia. I can't believe you don't know what it means. 

Okay, I'll modify the question to drill it in to your mind. What is the significance of saying you're autistic when you're saying that you write a little, not that you're a journalist.
They are both true. That is all.
Journalists wear neckties. I don't like neckties, I like funny hats.
I don't want to be a journalist.
Well first autism doesn't change anything about your argument. Second, you don't want to become a journalist because you don't like neckties?
Gedrene wrote:
Tambourine-Man wrote:
Gedrene wrote:
Tambourine-Man wrote:
Search for autistic on wickipedia. I can't believe you don't know what it means. 

Okay, I'll modify the question to drill it in to your mind. What is the significance of saying you're autistic when you're saying that you write a little, not that you're a journalist.
They are both true. That is all.
Journalists wear neckties. I don't like neckties, I like funny hats.
I don't want to be a journalist.
Well first autism doesn't change anything about your argument. Second, you don't want to become a journalist because you don't like neckties?
What? I don't like neckties. They aren't supposed to wear funny hats either.
I just want to keep on writing. Hopefully people like what I put out.
Tambourine-Man wrote:
Gedrene wrote:
Tambourine-Man wrote:
Gedrene wrote:
Tambourine-Man wrote:
Search for autistic on wickipedia. I can't believe you don't know what it means. 

Okay, I'll modify the question to drill it in to your mind. What is the significance of saying you're autistic when you're saying that you write a little, not that you're a journalist.
They are both true. That is all.
Journalists wear neckties. I don't like neckties, I like funny hats.
I don't want to be a journalist.
Well first autism doesn't change anything about your argument. Second, you don't want to become a journalist because you don't like neckties?
What? I don't like neckties. They aren't supposed to wear funny hats either.
I just want to keep on writing. Hopefully people like what I put out.
Nothign wront with neckties and silly hats need context. That's why people call them silly. I am by no means negatively commenting on any future contributions you may give. I hope you do give positive contributions to real arguments with reasoned ideas. It would be far above the accusatory puke and culture of mindless opinion we have gotten on here for a long time.
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