Whats with all the Autism Speaks hate.

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ha ha very funny

This is actually how Autism speaks describes the autism spectrum on their website for over a million of their supporters to see, or anyone else that wishes to understand how the organization views the spectrum.

[quote autismspeaks website]

Five strategic directions were identified by multiple workgroups and the Scientific Advisory Committee. Their near universal endorsement is noteworthy as they may provide insight into particularly effective common strategies that can potentially influence success in several domains. First, the need for an individualized approach to diagnosis and treatment was identified as an important common goal by four of the five strategic plan workgroups and the SAC. Specifically, the need to identify biomarkers or clinical features that index meaningful subtypes of ASD, point to specific etiologies, and predict response to treatment was endorsed by all of these groups. It is recognized that autism is comprised of many different diseases with different etiologies, symptom profiles, courses and prognoses, and treatment responses. Given the multiple etiologies related to autism, incorporation of more comprehensive genetic and environmental exposure testing, assessment of underlying and associated medical conditions, and eventually the identification of new biomarkers will enable clinicians to provide more individualized and more targeted and effective treatments. Progress in this area will require a multi-pronged approach, including but not limited to studies focused on identification of useful biomarkers, (e.g., electrophysiological, immunological, metabolic), examination of genetic and other biomarkers as predictors of vulnerability to environmental triggers and moderators of response to treatment, and closer collaboration between researchers and clinicians, among others. [end quote]

Yes they still think of us as a disease or more precisely a collection of diseases.
And what do they do with a disease? Cure it, or in our case, them!
That will keep their laboratories busy spending our dollars.

Have fun finding that one Aghogday. (link deliberately withheld) I'm sure you will be able to come up with a perfectly reasonable explanation for this bile. You always do because haters gonna hate.
Over and out.

merig, I'm getting the impression you're being deliberately antagonistic and your responses are correspondingly less rational. Don't do that.

Meanwhile - it was from this PDF, page 16:
http://www.autismspeaks.org/docs/strate ... Update.pdf

Your impression is wrong.

I am not antagonistic but I am not sycophantic.

Whats irrational about that?

For your information I deliberately quoted the whole paragraph to make it easier for Aghogday to find. If I had wanted to annoy him I would just have quoted the sentence in bold.

Anyway well done for finding it Cornlake. Its good to see that the mods here are well versed in autismspeaks strategies.

his impression is right in my opinion

So prove me wrong by responding like an adult.
And no-one is saying you are. Neither refuting points nor agreeing with evidence is sycophancy.
No, if your intentions weren't antagonistic you wouldn't have said "(link deliberately withheld)" - you would have just provided the link instead, and you wouldn't have finished your post with a silly jibe...
...rather like you did in your response to me:

No worries.

I said on the other thread that I was just lobbing that quote into this debate. I have no intention on hanging around to debate Aghogday's explanation for it. I have learnt that I can't fight the whitewash on here.

I'm done. I think we have both made ourselves clear.

Thank you.

Well aghogday has presented an argument, backed by some information.
Now you could rebut that, but instead you seem to be running away from the discussion, while covering that with the time honoured lame duck excuse "I don't have time for this".

So yeah, you're right you've made yourself clear, but in different ways.

All we need now is for Cockney Rebel to pop in and say "Autism Speaks will never speak for me" and we have a typical WP Autism Speaks thread.

Face it; Autism Speaks are a lightening rod for the occasional Aspie disgruntled with the wider world; a Jamarāt of sorts.

look some people on this thread have been warned to chill out on this thread.if he wants some space respect it.or you could insight another fight and mods can come in and lock this thread.

Autism Speaks will never speak for me.

Hear, hear!

http://www.fragilex.org/fragile-x-associated-disorders/testing/

Fragile X syndrome is identified as a genetic disease on the Fragile X syndrome foundation page. Fragile X syndrome is currently identified as the most prevalent genetic causal factor associated with autism spectrum disorders. Other associated genetic diseases include disorders of immune dysfunction like 22Q11 deletion syndrome more commonly identified as Di-George Syndrome, diseases of metabolic dysfunction, and many other disease/disorder/syndrome associated factors.

The ICD International Classification of Disease, (ICD10) commonly used for insurance billing purposes in the US, classifies all these syndromes/disorders including ASD's under the broad classification of disease per medical definition. It is a semantic issue of describing detailed descriptions of each disease/syndrome/disorder associated with Autism Spectrum disorders, as opposed to making a broad statement of classification of disease per medical classification. The broad goals of finding potential cures for all these associated diseases may be far off into the distant future, and potentially never fully achieved, but never the less the general goal of cure remains in the general mission statement of Autism speaks, as a very complex goal more likely partially met through effective treatments and therapies toward the remediation of symptoms, not unlike the general mission goals of other foundations per the broad goal of cure for other disorders like Cerebral Palsy or fragile X syndrome.

Autism Speaks apparently is listening to some of the offense associated with the word cure, and is limiting the use of the word, as one no longer finds it, in their science mission of associated research goals in 2012 that I linked in the other thread. The quote you provided from Autism Speaks was published in Fall of 2010 in a science report, and certainly not hard to find the exact source of with google, as it is the same source you used in the other thread associated with Autism Speaks, to illustrate the science mission statement originally published in the organization's three year strategic plan for Autism comprising the years 2009 to 2011.

The organization now is approaching their research goals on a year to year basis, per the quote I provided from 2012, that no longer uses the word cure in their science research mission statement, on that section of Autism Speaks website. There was no technical medically viable reason to remove the word cure in 2012, other than to avoid potential offense from those that do not like to see the word cure associated with Autism Spectrum disorders at all, and/or do not agree with the organization's broad definition of what cure means, specific to the organizations research mission and goals.

And there was certainly no technical medically viable reason to avoid the word disease in classification of the many disorders/syndromes associated with Autism Spectrum disorder, under the general ICD10 classification of disease, in the statement you quote here.

Yeah I appreciate that CR, well played and a fair point too

Again, you prove my point. You show your intellectual hubris in response to something that implies a group has intellectual hubris. Now you put words in my mouth. Success comes in different forms, including intellectual achievement. I never referred to success from becoming famous. Money sometimes though not all the time, is acquired from application of intelligence. You need to learn to debate.

You don't seem to care. The problems aren't on your mind. Again, not all have weaknesses. Those who say that all have strengths and weaknesses are trying to imply that there is some fairness in intellectual endowment, in which nobody has any neurological advantage/privilege over anyone else.


"Different" is not relevant. It doesn't matter. The word is brought up to distract away from the politically uncomfortable question of disparity in ability.


Individuals tend to be less confrontational when they are in close contact in the same spot, especially if the argument being made is insignificant. There's nothing in particular for you to tell me to my face. That's not the point. Being fast at something has to mean a higher speed compared to something being relatively slower. If one is faster than average at learning, then they cannot require a higher amount of time than average to learn it.



Erotic love is a relatively contemporary concern. Marriage/mating has a basis in nature. Things have changed, but individuals are still motivated by instincts directed towards survival/reproduction. So love doesn't occur randomly. Individuals look for positive traits/qualities.


Besides motor impairments you mentioned, I don't know what other ones you have.


I talk here to at least refute the false claims and condescending ideas that are being put forth to prevent betterment.

It's not like I'm expecting this to benefit me within my lifetime. When cure comes, all who need it will be entitled to it. The price doesn't matter. Securing that will just be another predicament. I think such treatment/prevention should be guaranteed by the government. Poverty for many is nearly assured without cure, but there are tremendous opportunities to be available with cure. You're just bringing this up as a last resort attempt to refute the merits of cure. It's a lot cheaper for all in the long run to pay for cure anyway. I am what I am. That's why I'm sticking to my ideas.


You just won't admit I made a point.

Who makes these NT rules? You project weakness on our part, and overwhelming strength on theirs, but your side pretends you're going to get "society" to change so much according to some long list of vague fairy tale demands. What are "our" strengths? Which autistics have these strengths? What strengths do all autstics have? There is immense variation in abilities within the spectrum. Weaknesses do matter, as certain basic abilities are indispensable. Not all have some matching peculiar strength that supposedly makes up for any weaknesses.


Sometimes I can't tell if you're really serious when you say some things.

Are NT's who are unable to listen any less broken?