Autism Pride - No Thank You!
AMEN to that. Too much pride can be a sin, but that doesn't mean you should let others walk over you like you're some humble rug.
I'm just gonna say I love watching What Not To Wear and America's Next Top Model. I also like Project Runway and I have pictures of actors I find cute on my wall: just like many other females my age. You can be an Aspergian with "normal" interests, and NTs can like "weird" things.
Metaphorically, I think everyone is a bowl of delicious mashed potatoes, and Asperger's is some corn that was accidentally mixed in. Nobody really wanted the damn corn in the first place, but it's there whether you like it or not. Some people really want it gone, like ci. Others grow to accept it and are proud to have gotten the added ingredient.
As for me, I think the corn, or Asperger's, is a mixed blessing; sure it's out of place and usually annoying, but I have to say it adds an interesting flavor and I wouldn't be me without it. I'm not personally proud of it myself, but why stop others from having pride? Just let them be proud. Just because you hate your corn doesn't mean it's wrong for others to like it. It also doesn't mean that a few proud mashed potatos are going to ruin your chance of finding the giant spoon (cure) to pick out the corn in your bowl.
What truth exactly are you afraid is threatened by autism pride? I'm not sure I understand.
And, sorry for the corny metaphor (:roll:), but I couldn't explain it otherwise.
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I'm not mad, just terribly hurt.
Autism Pride is prone to interfering with the truth and expressions of compassion to preserve self-esteem on the macro-level. Seeming autism is a disability this can have good and bad results. I believe a balance is needed. The truth of needed services in macro awareness vs. the dignity argument.
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
An idealism that both leads to a better potential of happiness and in other circumstances for others self-neglect. Reality is the truth and reality does not lie. To face this truth is not always adverse to the bottom line but truth itself can lead to a better reality.
In that case, why the heck do you have an issue with someone being proud of who they are? It is possible to be happy with yourself and accept the reality you live in.
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Balance is needed within the universe, can be demonstrated in most/all concepts/things. Black/White, Good/Evil, etc.
All dependent upon your own perspective in your own form of existence, so trust your own gut and live the way YOU want/need to.
Having a problem with how someone is?
The problem is redefining a disability label which is not the entire self and for political reasons. It is misleading the public to have a bunch of ideologically ingrained folks seemingly represent the image of autism for said purpose of self-esteem. You got right wing radio folks calling people with autism brats that just need to grow up who do not want to fund social services and then you magically have these folks that want to redefine autism as this amazing difference which is not representing a seriousness of the disability.
My suggestion is before it gets to ugly to protect those who really are in need is to stop making the autism label a political item for self-esteem for abortion issues (right wing based) when the real solution is to stop focusing so much on the negatives in the first place which is just a diagnoses people have to get the help they need. There is to many conflicts of interest and the organizations that are large, been around for a while and seemingly trustworthy are attacked by some internet people that are profoundly high functioning that commonly cannot be proven credible and want to discredit them. Meanwhile the projected costs of autism are sky high. Smells fishy like the potential but not certainty of not so compassionate people influencing and perhaps manipulating and well that is mainstream politics as usual.
Pardon me for protecting myself and others for not trusting everything I see, hear and what others want me to believe for the sake of what they say as self-esteem(?).
This all may lead to clear cut societal violations of human rights in the form of awareness negligence resulting in abuse. And I will ethically fault the poorly devised pride movement and it's agenda's in the interviews I have with the media. Over the pride of self when autism is not written on peoples foreheads in the first place and as if the stigma is that great and effecting peoples lives as much as when people make mountains out of mole hills to get attention.
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
I think it might help if they simply stopped using the word "cure". Like mentioned before, there are plenty of symptoms that could be better understood and addressed that would significantly help people on the spectrum without changing who they are. Frankly, from the looks of it, some symptoms can already be addressed if discovered early and therapy done. Maybe we should be concentrating on getting kids tested early enough and into therapy if they need it. Put the shrinks to work.
Cure was innocent. Parents of profoundly effected children who could not speak and could not function very well at all. I think the cure idea is great because it helps autism to compete for the attention of the public for real solutions by means of research for adverse symptoms. Cures would be more accurate for context but that may confound the public.. Why should the human rights of individuals be effected in public awareness for research in competing for research dollars simply because of very high functioning people? This is an item of ethics and when folks begin to look past the identity of autism that is conceptually chosen I think they may begin to realize a bit of harm they are doing to the rights of others who by human rights law are very well protected.
While autism may be neurologically evident in those it is proven to be in the brain as a difference the symptomatology itself manifest as it is despite the uniqueness of the brain needs remedy when hardship is present in all ways it can. I do not believe it is the right nor the place of any audacity to demand, scheme against nor suggest nothing but the best possible outcome to respect the choices of individuals that choose absolute remedies. No conspiracy theorists, no abortion politician fearing possibilities and for certain not a peer who for the life of me I cannot fathom why it bothers so much to attempt to control others choices in public relations.
Yes therapy is needed and inclusion therapy in adulthood because autism is much like a jail sentence for those who experience something similar to a confinement from the world. To agree to something otherwise we simply want to ignore the reality of others who experience isolation and no damn advocate will say that's to insulting for his or her self-image and diagnoses label of autism. Adult inclusion is my gig in the big picture where I live. I don't call it therapy though. Though many things can be considered therapeutic to certain specialties.
This all is quite simple but some want to make it complex.
Anger dwells only in the bosom of fools.
Albert Einstein
Any intelligent fool can make things bigger and more complex... It takes a touch of genius - and a lot of courage to move in the opposite direction.
Albert Einstein
A question that sometimes drives me hazy: am I or are the others crazy?
Albert Einstein
God always takes the simplest way.
Albert Einstein
I have no special talent. I am only passionately curious.
Albert Einstein
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
I really don't believe you. I don't think cure would make me into a pop star. Plus individuals can accept a cure or decline it should one be developed. I hope you understand that I don't believe in forcing you to do anything against your human rights even in potential. I like talking to you on the forum.
who said that an autism cure would make her into a pop star? she didn't...
The identity is political and is effecting the quality of life of people because no one takes autism seriously with people saying how proud they are of it for abortion issues. By saying pop star I mean a big difference like that because most people don't want to be in the first place. Autism as a label is just for the difficulties and I do not know why people other then the abortion issue and for the sake of not liking being labeled in the first want to brag about a disability label when intellectually we are so diverse other then the conditioned social clique stuff that has ingrained this social ideology I have always felt to rebel from.
I think you folks especially with the pride politics are doing a great disservice to those that need the disability taken seriously. I am not going to go into anymore detail with regard to me as It will be called pity and I am of the highest functioning allowed in social service regional center with autisms. Regrettably I'm going to have to do some political persuasion to counter this stuff. Abortion politics and ideological agendas adverse to quality of life funding ought to make themselves clear but for the time being the pride movement is suspect of adverse motives in design or influences but not necessary in all manifest intents of course. My apologies but this world is a mean world and nice is not always nice in intents and I've learned that the hard way..
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
I think you folks especially with the pride politics are doing a great disservice to those that need the disability taken seriously. I am not going to go into anymore detail with regard to me as I am of the highest functioning allowed in social service regional center with autism because of the emotionally bully pride advocates tend to do. Regrettably I'm going to have to do some political persuasion to counter this stuff. Abortion politics and ideological agendas adverse to social service program funding ought to make themselves clear but for the time being the pride movement is suspect of adverse motives in design or influences but not necessary in intent. My apologies but this world is a mean world and nice is not always nice in intents and I've learned that the hard way..
honestly, i don't know what i would be like without autism (or any of my mental illnesses) so i'm not sure i want to be without them, even though they do cause me problems. i think the "autism pride" thing is because many of us like ourselves for who we are and don't particularly want to know what we would be like without autism. i have noticed that while autistic people are quite different from each other, there are also certain personality traits that are very common in autistic people. also, autistic obsessions tend to change people and their lives... if i wasn't autistic i probably wouldn't be a computer programmer and i probably wouldn't care about cat genetics and i probably wouldn't be able to solve a rubik's cube... because those are all a result of my obsessions. i don't want those things to go away. regardless of what you have decided, autism is not just a label for bad things. there are good aspects too (obsessions can be good, also many autistic people have interesting skills regardless of whether or not they are savant skills) and the good aspects are things that many autistic people are reluctant to give up.
Cure then is multifaceted and human rights to choose are held intact. Cure(s) for different symptoms as autism is different symptoms and some symptoms within range are beneficial and for other people not beneficial at all such as hyper-focusing which can be adverse and other times not. It's for us to judge personally and not society but society has an ethical and moral obligation to improve our rights, treatment choices and respect who we are in those choices. However as it is human rights that protect the cure modality for cure agenda research it will persist, are endorsed by me and any politician adverse to it online on this forum or others that can be brought to this forum to chat I will object in ways that will leave them blue in the face.
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
the problem being that if there were a cure for autism it would very likely be forced on children before they were old enough to decide for themselves.
Remember autism manifest neurologically. A cure all is improbable because of innate design which is a difference but certain symptoms adverse to an individual such as sensory overload is key to cure research as well as a lack of speech by understanding the brain and even causally in development. Adults have intact their human rights to choose for themselves and parents have the moral and ethical say so in their own lives and their children's. Pride in the inability to speak, pride in sensory overload and so on is ethically corrupt. Autism (autistic) pride denotes these two highly common symptoms as the label implies these symptoms. Keep with the Neurodiversity concept as that is innate difference but not necessarily innate functional limitation or adverse to choice.
Pride was the wrong approach for a diagnoses label especially calling someone it and against their choice. All the autistic community implies separate from the autism community is those of a specific belief and not all those with autism. So it is misleading.
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
To claim that even one person is proud to be non-verbal or proud to be overwhelmed by stimuli is ridiculous. NO one thinks that! Most of the members of this site and the vast majority of those that promote self-advocacy are either very high-functioning or they're Aspergians. For those who are greatly debilitated, there is nothing wrong with parents, or other who care, wanting to improve the quality of life for others... as long as we remember that they are not broken.
What IS wrong is to claim that there is something wrong with those who would be perfectly happy being left alone. I was diagnosed as an adult; Asperger's syndrome was not even available as a diagnosis when I was a child and if it WERE, my parents would have never had me evaluated, because they did not ever want to feel like something was WRONG with their super-smart little boy.
So, I got the privilege of being called lazy, uncooperative, or stupid by teachers. I got bullied and taunted by classmates regularly. I embarrassed myself continuously and I grew up feeling like I belonged to some other strange culture... AND I grew up into an adult who did'nt know to interact with people properly... and I wanted to die every day. To make it worse, friends (the few that I had) and family told me that nothing was wrong with me... while at the same time psych docs put me on medications for metal illnesses I did not have.
I was autistic, not crazy! That explained everything! Now, let's pretend we all knew that when I was fifteen! Wouldn't it have been WONDERFUL if there was a group of people who understood me and supported me and and helped me to realize that my differences made me a special, talented person and not a freak of nature? I KNOW that this is not what you are talking about, ci, but the Autism Pride Movement comes much closer to providing that support than the curebies ever could. Autism Speaks and "concerned parents" merely say "something is WRONG with you and we need to fix it" ...yeah, I heard that most of my life and it is (as my therapist once pointed out) a miracle that I'm still alive.
If you feel you need to help people who are miserable, then fine... have at it, but I cherish the opportunity to now be proud of myself for the abilities I have, instead of being ashamed of my shortcomings.
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"If you can't call someone else an idiot, then you are obviously not very good at what you do."
What IS wrong is to claim that there is something wrong with those who would be perfectly happy being left alone. I was diagnosed as an adult; Asperger's syndrome was not even available as a diagnosis when I was a child and if it WERE, my parents would have never had me evaluated, because they did not ever want to feel like something was WRONG with their super-smart little boy.
So, I got the privilege of being called lazy, uncooperative, or stupid by teachers. I got bullied and taunted by classmates regularly. I embarrassed myself continuously and I grew up feeling like I belonged to some other strange culture... AND I grew up into an adult who did'nt know to interact with people properly... and I wanted to die every day. To make it worse, friends (the few that I had) and family told me that nothing was wrong with me... while at the same time psych docs put me on medications for metal illnesses I did not have.
I was autistic, not crazy! That explained everything! Now, let's pretend we all knew that when I was fifteen! Wouldn't it have been WONDERFUL if there was a group of people who understood me and supported me and and helped me to realize that my differences made me a special, talented person and not a freak of nature? I KNOW that this is not what you are talking about, ci, but the Autism Pride Movement comes much closer to providing that support than the curebies ever could. Autism Speaks and "concerned parents" merely say "something is WRONG with you and we need to fix it" ...yeah, I heard that most of my life and it is (as my therapist once pointed out) a miracle that I'm still alive.
If you feel you need to help people who are miserable, then fine... have at it, but I cherish the opportunity to now be proud of myself for the abilities I have, instead of being ashamed of my shortcomings.
There are two major conflicts in your argument with one leading to all sorts of what can be called bullying for insecurities which may explain the behaviors of others in the autism awareness community. I was wondering if you want to explain them to me before I write about them or do you want me to just reply.
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
1. I realize that you might be upset that I called YOUR argument ridiculous, but I stand by it.
2. You mentioned "two major conflicts," then only made a veiled suggestion of one.
3. I am not sure what your response (which, in turn threatens a response) means, but I'll assume that you do not know what bullying is. Please look it up; I am not reference material.
4. Do I wish to explain or allow you to just reply? I don't think either are necessary or desirable.
5. If you don't support pride in autism, then just don't participate in it. Live your life as you see fit and let others be happy in their own philosophy. This seems reasonable enough.
Thanks.
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"If you can't call someone else an idiot, then you are obviously not very good at what you do."
Last edited by dyingofpoetry on 24 Mar 2011, 3:51 pm, edited 1 time in total.
No I am talking about your psychology. I have little concern over pride itself but pride goes out of the way to attack research. In what you said about yourself if it were an example of the psychology of pride what 2 conflicts could arise. If others pride were to effects others with ASD who just don't bother with the concept of autism in day to day life also think about this.
I am not going to get petty here and demean you. I want you to think about your argument.
[youtube]http://www.youtube.com/watch?v=4IjfpyZVtyE&feature=player_embedded[/youtube]
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
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