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ci
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30 Mar 2011, 12:08 pm

aghogday wrote:
ci wrote:
Good. But you likely may agree that ASAN's approaches could be better? Even if I did agree with some of it I feel now to get far far away from it. Neurodiversity is alienated as a concept because of very bad public relations. In order for people to agree to something like neurodiversity you really need to embrace compassion in leadership and be realistic in representations. I could introduce and make popular the concept where I live as part of an encompassing inclusion awareness campaign year around. But I am as equally threatened by some of the views related to it just as I am sensibly comfortable with the concept.

Leadership needs confidence, strength and good approaches. For neurodiversity I think I could do very good for it. Yet I am unsettled because of the likes of the video. Neurodiversity has nothing to do with abortion, anti-cure and so on. It is simply embracing what is to improve acceptance regardless of an individuals choices and perspective to modify by means of scientific advancement. Yet the phrase is plagued with ideological agenda's.

Neurodiversity innately has nothing to do with a womens right to know whats happening in her body, right to abortion and has nothing to do with anti-cure of adverse symptoms one chooses to improve.


I like the support that ASAN gives to those that want to be accepted in the mainstream world.
And as you express neurodiversity in itself is a good concept.

On the other hand I see the functionality issues with lower functioning autism as severe disabilities, not just differences that people should be expected to live with if science can come up with answers to improve their functionality.

Autistic people that accept their condition should have a choice of living life as they are, but autistic people that would like treatments to help their condition deserve the cure research that might lead to such treatments.

So essentially, you and I agree on the pros and cons of ASAN. I like for people to have as many choices as possible in life to have the best life possible. In my opinion it would be good if ASAN would support Neurodiversity and support research for a cure as a reasonable goal to establish better treatments for those that are severely limited by Autism. I think you and I agree on this also.

Regardless of their ideology though, I see no significant threat posed by the organization to impact Autism Research. We may still disagree on this point, but if so, I agree to disagree.


It is but a potential but the more harm done in small ways the injustice still exists. It's not criminal but unethical.


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vermontsavant
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30 Mar 2011, 1:28 pm

i have never been a asan saporter.i actualy agree with you a lot actualy,but dont seem to notice that.im sure you must think im a moran but you know me by now to know im not aparty to the elite of autisic culture.however im not an extremist and i dont think the asan is a hateful bigoted organization.nore do i think A speaks are nazi's just because they sapport pre-natal testing



ci
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30 Mar 2011, 1:35 pm

vermontsavant wrote:
i have never been a asan saporter.i actualy agree with you a lot actualy,but dont seem to notice that.im sure you must think im a moran but you know me by now to know im not aparty to the elite of autisic culture.however im not an extremist and i dont think the asan is a hateful bigoted organization.nore do i think A speaks are nazi's just because they sapport pre-natal testing


It is a good balance you have. This is what I am trying to achieve with what I write. Though I am steering clear of abortion related politics all together. I do not know why you would say the word moron.


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30 Mar 2011, 5:11 pm

what did you mean by you know why i used the word moran



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30 Mar 2011, 5:31 pm

ci wrote:
aghogday wrote:
ci wrote:
Good. But you likely may agree that ASAN's approaches could be better? Even if I did agree with some of it I feel now to get far far away from it. Neurodiversity is alienated as a concept because of very bad public relations. In order for people to agree to something like neurodiversity you really need to embrace compassion in leadership and be realistic in representations. I could introduce and make popular the concept where I live as part of an encompassing inclusion awareness campaign year around. But I am as equally threatened by some of the views related to it just as I am sensibly comfortable with the concept.

Leadership needs confidence, strength and good approaches. For neurodiversity I think I could do very good for it. Yet I am unsettled because of the likes of the video. Neurodiversity has nothing to do with abortion, anti-cure and so on. It is simply embracing what is to improve acceptance regardless of an individuals choices and perspective to modify by means of scientific advancement. Yet the phrase is plagued with ideological agenda's.

Neurodiversity innately has nothing to do with a womens right to know whats happening in her body, right to abortion and has nothing to do with anti-cure of adverse symptoms one chooses to improve.


I like the support that ASAN gives to those that want to be accepted in the mainstream world.
And as you express neurodiversity in itself is a good concept.

On the other hand I see the functionality issues with lower functioning autism as severe disabilities, not just differences that people should be expected to live with if science can come up with answers to improve their functionality.

Autistic people that accept their condition should have a choice of living life as they are, but autistic people that would like treatments to help their condition deserve the cure research that might lead to such treatments.

So essentially, you and I agree on the pros and cons of ASAN. I like for people to have as many choices as possible in life to have the best life possible. In my opinion it would be good if ASAN would support Neurodiversity and support research for a cure as a reasonable goal to establish better treatments for those that are severely limited by Autism. I think you and I agree on this also.

Regardless of their ideology though, I see no significant threat posed by the organization to impact Autism Research. We may still disagree on this point, but if so, I agree to disagree.


It is but a potential but the more harm done in small ways the injustice still exists. It's not criminal but unethical.


well any removal of personal choice is unethical, so if you are implying that the far reaching effects of people protesting a cure is unethical, then the far reaching effects of supporting a cure will also be unethical.
the only thing that will help is mediating the differences and understanding why people do like they do.
now i know why an autistic person wants a cure, i can also see why not, so we simply have to stop radicalizing eachother, in its basic form neurodiversity would allow for these things to coexist.
there is truth to both sides when they say they are afraid of the "ideological" effects of these "political campaigns"


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ci
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30 Mar 2011, 6:08 pm

vermontsavant wrote:
what did you mean by you know why i used the word moran


This may just end up being a mutual brain fart.


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ci
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30 Mar 2011, 6:09 pm

Oodain wrote:
ci wrote:
aghogday wrote:
ci wrote:
Good. But you likely may agree that ASAN's approaches could be better? Even if I did agree with some of it I feel now to get far far away from it. Neurodiversity is alienated as a concept because of very bad public relations. In order for people to agree to something like neurodiversity you really need to embrace compassion in leadership and be realistic in representations. I could introduce and make popular the concept where I live as part of an encompassing inclusion awareness campaign year around. But I am as equally threatened by some of the views related to it just as I am sensibly comfortable with the concept.

Leadership needs confidence, strength and good approaches. For neurodiversity I think I could do very good for it. Yet I am unsettled because of the likes of the video. Neurodiversity has nothing to do with abortion, anti-cure and so on. It is simply embracing what is to improve acceptance regardless of an individuals choices and perspective to modify by means of scientific advancement. Yet the phrase is plagued with ideological agenda's.

Neurodiversity innately has nothing to do with a womens right to know whats happening in her body, right to abortion and has nothing to do with anti-cure of adverse symptoms one chooses to improve.


I like the support that ASAN gives to those that want to be accepted in the mainstream world.
And as you express neurodiversity in itself is a good concept.

On the other hand I see the functionality issues with lower functioning autism as severe disabilities, not just differences that people should be expected to live with if science can come up with answers to improve their functionality.

Autistic people that accept their condition should have a choice of living life as they are, but autistic people that would like treatments to help their condition deserve the cure research that might lead to such treatments.

So essentially, you and I agree on the pros and cons of ASAN. I like for people to have as many choices as possible in life to have the best life possible. In my opinion it would be good if ASAN would support Neurodiversity and support research for a cure as a reasonable goal to establish better treatments for those that are severely limited by Autism. I think you and I agree on this also.

Regardless of their ideology though, I see no significant threat posed by the organization to impact Autism Research. We may still disagree on this point, but if so, I agree to disagree.


It is but a potential but the more harm done in small ways the injustice still exists. It's not criminal but unethical.


well any removal of personal choice is unethical, so if you are implying that the far reaching effects of people protesting a cure is unethical, then the far reaching effects of supporting a cure will also be unethical.
the only thing that will help is mediating the differences and understanding why people do like they do.
now i know why an autistic person wants a cure, i can also see why not, so we simply have to stop radicalizing eachother, in its basic form neurodiversity would allow for these things to coexist.
there is truth to both sides when they say they are afraid of the "ideological" effects of these "political campaigns"


Innately one cannot be cured without first choosing to be cured. To attack this choice in development impairs the choice being made in the future. Thus an evasion of liberty but yet not criminal merely unethical.


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Oodain
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30 Mar 2011, 6:37 pm

ci wrote:
Oodain wrote:
ci wrote:
aghogday wrote:
ci wrote:
Good. But you likely may agree that ASAN's approaches could be better? Even if I did agree with some of it I feel now to get far far away from it. Neurodiversity is alienated as a concept because of very bad public relations. In order for people to agree to something like neurodiversity you really need to embrace compassion in leadership and be realistic in representations. I could introduce and make popular the concept where I live as part of an encompassing inclusion awareness campaign year around. But I am as equally threatened by some of the views related to it just as I am sensibly comfortable with the concept.

Leadership needs confidence, strength and good approaches. For neurodiversity I think I could do very good for it. Yet I am unsettled because of the likes of the video. Neurodiversity has nothing to do with abortion, anti-cure and so on. It is simply embracing what is to improve acceptance regardless of an individuals choices and perspective to modify by means of scientific advancement. Yet the phrase is plagued with ideological agenda's.

Neurodiversity innately has nothing to do with a womens right to know whats happening in her body, right to abortion and has nothing to do with anti-cure of adverse symptoms one chooses to improve.


I like the support that ASAN gives to those that want to be accepted in the mainstream world.
And as you express neurodiversity in itself is a good concept.

On the other hand I see the functionality issues with lower functioning autism as severe disabilities, not just differences that people should be expected to live with if science can come up with answers to improve their functionality.

Autistic people that accept their condition should have a choice of living life as they are, but autistic people that would like treatments to help their condition deserve the cure research that might lead to such treatments.

So essentially, you and I agree on the pros and cons of ASAN. I like for people to have as many choices as possible in life to have the best life possible. In my opinion it would be good if ASAN would support Neurodiversity and support research for a cure as a reasonable goal to establish better treatments for those that are severely limited by Autism. I think you and I agree on this also.

Regardless of their ideology though, I see no significant threat posed by the organization to impact Autism Research. We may still disagree on this point, but if so, I agree to disagree.


It is but a potential but the more harm done in small ways the injustice still exists. It's not criminal but unethical.


well any removal of personal choice is unethical, so if you are implying that the far reaching effects of people protesting a cure is unethical, then the far reaching effects of supporting a cure will also be unethical.
the only thing that will help is mediating the differences and understanding why people do like they do.
now i know why an autistic person wants a cure, i can also see why not, so we simply have to stop radicalizing eachother, in its basic form neurodiversity would allow for these things to coexist.
there is truth to both sides when they say they are afraid of the "ideological" effects of these "political campaigns"


Innately one cannot be cured without first choosing to be cured. To attack this choice in development impairs the choice being made in the future. Thus an evasion of liberty but yet not criminal merely unethical.


true, but that is also equally as true of the perception that the current cure movement implies about autistic people.
nothing as dehumanizing as being treated like a subhuman, and some of that comes from simply not knowing and when the only opinion they then form, is formed around the idea that autistics should just be "cured", well that leads to some effects i find personally more damaging than any i have yet to witness from opposing a cure, if you say that the anti cure movement hinders people in seeking treatment(helping aleviate symptons) i think you are wrong, but it does speak of what happen could happen were a real cure ever found, now imagine what would happen to a child forced into having a "cure" by their parents, i wouldnt put it past mine, not because they want to, they simply dont know any better.

which is why i say that ANY radicalizations will only lead to more problems, there are legitimate issues on both sides and both have to exist(hopefully in a more moderate way though) simply because any one sided answer to such a complex issue would simply end up being worse than the ideological "war" already going on.

personally the only thing i want surrounding this issue is to promote neurodiversity, because as stated before it could cover both sides.


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ci
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30 Mar 2011, 6:40 pm

People choose to interpret a disorder label differently. Some proclaim it as an identity but the vast majority see it as the disability a person has they hope to remedy. The approach to the matter is way off by ASAN and destructive to their own point of view. Originally the label was just a label not a political identity to be used to force views or else folks are bigots.


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31 Mar 2011, 9:51 am

one thing this forum has no shortage of is blaming the asan or blaming autism speaks.one thing you hear little of is better ideas to replace failed ones.the finger has been pointed at A speaks and asan so many times its getting a little old.matter of fact i remember the day i first got bored with A speaks and asan bashing,i looked out my front window and a dynosaur was running through my yard.



ci
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31 Mar 2011, 1:41 pm

That is why I am a public advocate. I do not even consider these organization. The issues are very relevant on this forum though and certainly part of the bigger picture of the Autism Community. It is important to realize they do not govern the world of autism. The dramas can be distractions to real the progress. I believe both have been equalized here as to the negative and positives and wish folks would focus on something more inspiring and changing.


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31 Mar 2011, 2:22 pm

ci wrote:
That is why I am a public advocate. I do not even consider these organization. The issues are very relevant on this forum though and certainly part of the bigger picture of the Autism Community. It is important to realize they do not govern the world of autism. The dramas can be distractions to real the progress. I believe both have been equalized here as to the negative and positives and wish folks would focus on something more inspiring and changing.


Considering the polarization that occurs when people speak of ASAN, Autism Speaks, Abortion, A Cure, Anti- Abortion, A prenatal test, and the label of Autism. Maybe, we could focus more on wording that focuses on specifics that can make life better for people with Autism: treatments being developed that have shown promise to help with symptoms, mainstreaming efforts in society, efforts to help those that are not able to be mainstreamed in society, advocacy for those needing help finding their way through the maze of paper work to gain assistance when needed, etc.

But since this forum is about Autism politics; it would require an individual effort for all to avoid wording that stirs emotion and results in little change in opinion.



ci
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31 Mar 2011, 2:24 pm

I did attempt something like this. You start it.


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31 Mar 2011, 8:02 pm

ci wrote:
I did attempt something like this. You start it.


Okay.

In my experience one of the best coping mechanisms for sensory overload was escape into nature away from anything manmade. I spent years walking deserted beaches, coming back to the other world I knew, with the experience of homeostatis. At the time, I didn't realize how much it helped me.

Spending reasonable periods of time in the Sunlight, can also increase serotonin and dopamine, chemicals that some with autism suggested to be short on.

Also, from my experience, the overload of adrenaline used to cope with everyday life, particularly evident for Autistic people that are likely to experience more stress in life, can be resolved on a daily basis by physical exercise, if an individual is physically able to exercise.. By resolved, I mean the stress hormones circulated in the blood stream and be burned off, resulting in the possibility for homeostatis and comfortable sleep. Exercise also boosts natural endorphins, serotonin, and dopamine. And in addition oxytocin, another chemical some people with autism are suggested to be short on.

Healthy special interests are of importance for people with Autism. A special interest like pornography could be particularly harmful for someone that has Autism. For some that think visually, it could easily become the focus of their world.

Music is a great coping mechanism for Autism because it helps one express and understand emotions. For those that parent a child with Autism, the gift of learning a musical instrument can be a gift of coping that lasts a lifetime. It is important, though, that the child is not forced to play an instrument that they are not interested in.

I didn't accomplish any organized efforts to assist people with Autism, other than a support program at my place of work that I helped supervise. My intent was treating all of the individuals involved in a respectful dignified manner, and expecting the same the other people under my supervision in helping with this program. At the time, I didn't realize I had Autism, but certainly understood my value as an individual did not supercede anyone elses value.

It might seem like common sense for all, but it was surprising to me how cruel otherwise nice adults could be to those in a support program.



ci
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31 Mar 2011, 8:07 pm

So the coping is a form of treatment but not cure. So why evade the cure potential for this symptom. Also I expected a reply with classifications of political typologies. Yes I've seen the cruel. I won't explain entirely the circumstance but it had to do favoritism and ladies and reproductive activity potentials.


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31 Mar 2011, 9:51 pm

Do you want to know the truth about why I hate Autism Speaks. It's that scene in the Autism Everyday video where that mother is changing her 5 year old's diaper, cause I wear diapers, too. A soiling problem and a diaper will not keep many autistics who need diapers from living successful and productive lives. If you want to see the video, look for it yourself. I'm here to speak my mind, not to do the leg work


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