Autism Advocacy - Scare Tactics

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Not when women and ect are being called bigots, Nazi's and so on. You see the ASAN has guilted (even emotionally scared) so much it's like emotionally pinning the public in a political corner and guilting and then asking for otherwise very high functioning individuals to get services over research for those who are more disabled. I am not sure what they want in terms of program services. Where I live I am the highest functioning services are available to and no one like Ari is accepted in social services.

Sugar coating autism and then guilting the public to evade cure research rights seems like such a poor strategy by ASAN that perhaps they don't desire to win. Like a strategist is setting them up to fail but look like they want to win. It's such bad PR. Do they know how bad and what people think of it when they combine issues like the removal of the right to abortion and seeking tax-payer money for services. I have not found anyone that disagrees that the issues are of conflict of interest.

Certain issues simply cannot be combined like the of need of research dollars and re-defining autism for the sake of abortion seem like modality conflicts of interest.

I'm not sure how they are seekin to 'redefine' autism. The DSM is pretty clear. It involved the spectrum. I'm not sure anyone, even Ari, has stated a want or desire to take away funding or research for those on the most effected end of the scale.

Autism is expensive. With more and more diagnoses - of all varieties on the spectrum - more and more resources are needed to help them. The government's main concern in the 'public health crisis' is to control costs - first and foremost. The method in which they control costs of a genetic disorder is to eliminate the disorder to the greatest degree possible. The government only has a passing interest in helping people in their day to day life. Therapy is not their concern - cure or elimination of the problem is their concern. An organization that works hand and hand with that agenda will come under suspicion. It is assumed that they have the same agenda. Services for adults are nearly non-existant across our country - no matter their functioning level. Considering how many newly graduated young adults are entering the mainstream - in college, in jobs, or being abandoned from their education and therapies because they have aged out of services - money needs to go to addressing that population. That is what I hear Ari saying.

Is a cure possible? Lots of people think that is a pipe dream. At the moment, the possibilites for a flat out cure are highly improbable. The genetic test for autism may be possible but that only has limited uses. The development of that may lead to treatment research down the road. From past history on this partiuclar strategy - genetic testing for Downs did not lead to furthered treatment or a cure. As far as I know, no one is even pursuing that simply because the Downs birth rate is currently so low that it isn't practical. Which, was the goal of the genetic test in the first place. Past behavior is indicative of future behavior. The government has done it before - why would it be any different now?

ASAN isn't sugar coating autism - they are putting the spectrum into the Autism Spectrum Disorder. It IS a spectrum. The mainstreams opinion of autism and what is and isn't possible needs to change if those who are higher functioning are ever going to be permitted to incorporate themselves into that mainstream. You have millions of people destined to languish on public assistance if attitudes do not change, employers do not accomodate and the educational system doesn't stop creating victims rather than self assured functional adults that just happen to have autism. This goal in no way detracts from those that need more help or more assistance. In fact, if this goal is accomplished, more funds WOULD be freed up to use for even more research.

No one is suggesting repealing Roe vs Wade in this issue. If the Tea Party gets its way that may happen state by state anyway. The arguement is over the true motives of in utero genetic testing. I believe the argument is - money should be used to research autism treatment, therapy and education, not finding ways to eliminate it from the population. If they could find the specific mechanism that causes sensory overload and development a treatment that virtually eliminates it - that would be more useful to a great number of people and impact the functioning of peoples lives. It would allow some on the spectrum to work for the first time. I would love to see money going to THAT rather than to a genetic test that would suggest a probablity - but not a guarantee - of autism in an unborn child. Figuring out an environmental trigger - what is it that activates the genes they suspect in causing autism to switch on - that would be more useful than in utero testing - and it is something they are working on. Preventative care for mothers, earlier diagnosing and therapy for kids on the spectrum, adult supports so they can maintain independant lives - all are worthy goals. In utero testing supports none of those.

draelynn..

The issues don't combine and especially how they did it was outrageous. I was shocked and knew my own advocacy couldn't have anything to do with them. It would taint what I am doing with the angry pressure based do or else your a autism bigot modality. I'm just not seeing a way they can recover from it and deem ASAN a risk to many advocacy pursuits due to the tact of combining issues and the unfriendliness. Even so their advocacy in the macro media because of the approach has been rejected and it's not necessary because people are autism bigots or hate people with autism.

I'm still fairly shocked about how they behave in public relations and it's been a year since I found out. While I wouldn't myself want to be a general advocacy directive in the macro media I would be willing to provide technical consultation to better assure successful outcomes. As I said my focus and specialty is on opportunity inclusion. Can another group get together and be more ethically aware and professional? Maybe someone even you could do it?

Nathan Young

I wouldn't try to play victim of the video because as I said it is not real and it is made by a person with autism and not Asperger's for instance (me). Some self-advocates have gone to far with the concept of discrimination and have manipulated politics with it. The video does end up resulting in balance while assuring real discrimination is not ignored. It's a created perspective of another side (not my or our side) but a side that is on the brunt end of pride extremes. Though not many people with autism are pride extremist.

The video cannot be further explained and no further explanation is required. It is highly creative and very strategic. Those that don't like it may end up liking the result and those that won't like the result may have a bit of an attitude change. The issues of concern are to important to be handled by unprofessional or unbalanced advocates. Though their feelings are very important there are to many lives whose futures may not be improved or even made more worse off with their extreme tactics.

I've explained all that I can at this time explain. Some of the videos I've made are starting to increase in daily hits. However aspects of the video I simply just cannot explain. Some people are VERY angry and the things they say alienate others along with themselves. Sometimes how groups do their politics may end up being counter-productive and alienating to others. I suggest you read my paper in around 4 weeks time.

[quote="WildColonialBoy"]I prefer the follwing examples of advocavy[youtube]

Positivity is great.

Yet fronts for positivity have been used to evade treatment rights and truths such as autism isolation. The public relations problem is kind of complicated. While positivity in the daily lives of individuals with a form of autism or on the autism spectrum is important and very beneficial to outcomes what about other outcomes that are changed when one type of advocacy confronts the other. Namely ASAN has considered autism advocacy having to do with isolation "insulting" and they confronted it in the media. Meanwhile these very high functioning people who are well included want to say advocacy for those that experience isolation is not allowed and stigmatizing becuase it harms their otherwise not really disabled but using autism for their personal gain image. I'm sorry the likes of ASAN are insulted by my disability and if they want to have a little debate they should leave the pride at home and get real. They have been invited to come and debate me here on W.P but one of the board members put their tails between their legs and high tailed it.

People that are going to college full time, potential PHD folks and who otherwise have all the needed skills and transitional experience seem not to be like me and others who do need help. I think they are being self-centered, selfish and even though autism is not written on their forehead to insecure and are insulted at the realities of myself and others. Meanwhile they hold ransom the public image of autism in a way by using abortion politics and now are being handed jobs even though they have no substantial disability while using the image and idea of autism to essentially exploit autism and discard my and others reality which removes progress from those really in need.

You see ASAN to me is the true discrimination and they are savvy at it.

I am a very positive person anyways. Yet pride wants to call the truth pity. Autism is a disability the more you have of it the more disabled. I have a strong self-esteem and I am not afraid to tell the truth.

You see ASAN to me is the true discrimination and they are savvy at it.

I am a very positive person anyways. Yet pride wants to call the truth pity. Autism is a disability the more you have of it the more disabled. I have a strong self-esteem and I am not afraid to tell the truth.[/quote] you dont have to tell us you have strong self esteem(bordering on meglamania)we both know the asan doesnt represent the more impaired of the autistic community.thats because they are very high functioning and they advocate for what they know and have experienced.they are not malicious.join them and change them.you know enough about advocay that if you talked to them in a polite and respectful maner they would listen and take you seriously

I cannot because of the abortion conflict of interest. I will however keep producing YouTube videos and have the effect I want. They need to be polite and some of them attacked my civil rights inclusion progress. They have it good and I don't see why Ari does what he does. I think it's a kind of simi-professional emotional immaturity - insecurity.

Megalomania

meg·a·lo·ma·ni·a/ˌmegəlōˈmānēə/Noun
1. Obsession with the exercise of power.
2. Delusion about one's own power or importance

That's ASAN not me. I know my place and don't think of myself in a way to become a leader compared to what Ari has done. I'd just like to be behind the scenes and do my own thing. It's important for a self-advocacy network to be democratic and free flowing. Allowing the ideas and perspectives of a diversity and sharing it's platform with a diversity. When one perceptive sees to it that it's the most important thats when you get symptoms of magalomania that excludes other perspectives. Here where I live professionals and what not constantly are giving me good positive feedback. What I've been able to accomplish is very much the result of others helping and what has been created is for others and I am just wanting to and will be a member of in result.

True I was used as an example for self-determination publicly others should be inspired in their own lives to believe in possibilities. Thats far different then a narcissistic delusion of self-centered importance.Not all public confidences and examples are megalomania and in fact this perspective if it can be one is the manifestions of envy. Yet I don't see anyone else who has achieved similarly really make way for others to benefit and thats what drives my point. ASAN really is about people who have very mild forms of an ASD and are seeking to use autism to benefit themselves and discard other truths of reality as simply stigmas. To me that's an obsession of the exercise of a central power which is arrogant and prideful and to the benefit of themselves while excluding others.

autism politics are imposable,ive been on this crazy forum for 7 months and no matter how reasonable i am no one listens anyway,its hard but if people with a more disabled viewpoint got involved with asan over time they could be changed

Why when they attacked people trying to help. Even this website (W.P) owner attacked autism is a jail sentence advocacy. Though I can understand why he said what he said about it what about those who cannot communicate and are frustrated and what about those who are isolated and are frustrated. Then because of online social peer pressure myself and others have to keep quite or else called pity or that something else aside from autism is wrong with us. They I strongly feel are trying to silence the truth when that kind of portrayal can change lives. More so then autism is just a difference and be happy.

It would make me very happy for this social injustice to be gotten rid of and to like a wave of social justice clear the way of the self-centered and harmful advocates. This to make room for the truth to balance it out. Then focus on improving lives with proper public relations.

i agree with you about that.however here's the thing it would be hard to get any organization to represent everyone.so i guess the asan and autism speaks are our equiivent of the 2 party system.i guess your right about joining them if i did they wouldnt listen to anything id say anyway.what i disagree with you is you atack the asan to much.autism speaks are snake oil salesmen and there legaly guilty of layatril.the problem with AS is not that they favor cure but that they promise a cure,thats layatrill and thats a felony

Few stand up to ASAN because of the tactics they use. As far as Autism Speaks I don't know that everyone views a cure the same or expects the same results. To me research enhances understanding and when something like autism is understood better they know how to help better. As far as promising a cure for autism I am not sure if a promise is reasonable. I'd never promise to cure something which seems not to be the traditional medical pathology. Improving the quality of lives and choices of individuals with an ASD now that if happiness results seems to be akin to a cure. When people cannot speak or are not included and helping them to do so and achieve it to me that is a kind of a cure. A cure for exclusion or functional limitation such as not being able to speak or be included on ones own and that is a cure to be proud of.

ASAN needs people with autism to disagree with it and call them out on some things. That's the only way self-advocacy will evolve to become mainstream more effective. The mainstream cannot be treated like the enemy like some advocates have done. The mainstream needs to be made in to the ally, the friend and the potential.

ASAN uses social psychological divides to enhance loyalty. I do not ultimately depend on Autism Speaks or ASAN. They in some forms can be simply distractions. I am one of those kinds of advocates that just gets the job done and does not depend on others. That's why you never see me asking people to sign a petition, donate money or email a grievance.

yes what you say is right,but autism speaks distracts people with false promises.measles is coming back in parts of europe.were going to witness the production of a genration who was scared to vacinate.people on autism speaks have claimed to have cured there children,which is also a distraction from things you want to acomplish.if parent risk exposing there children to serious illness because they thought it caused autism.how is that different from proming a cure.different means same end.this is what the asan should be talking about instead of all that cultural genocide paranoia