I'm heartbroken by all the pessimism on here

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The Statistic is derived from the last and only research that will be specific to Asperger's syndrome, sponsored by the CDC, now that it no longer is considered a specific diagnosis as such.

The situation over Alison Singer was her personal opinion that ongoing limited research associated with individuals who might be individually compromised per issues like mitochondria dysfunction might be impacted by vaccines in limited cases. Science has proven that out as potentially associated in very limited research associated with mitochondrial dysfunction. It still was a scientifically based decision albeit not a popular internet one among either vaccine conspiracy theorists who wanted more research are those who wanted zero research.

Autism Speaks, as an organization, took the middle road of science instead of a few opinions here or there.

No one really knows what that 91% of the spectrum is in real life or is comprised of per causal factors as even with the billions of dollars that have been spent on research science has still only narrowed autism done to a set of behavioral expressed deficits with limited direct causal factors like fragile X syndrome.

But never the less, that is the majority of Autism SPECTRUM DISORDER AS IT STANDS NOW, and the last CDC sponsored studies show that intellectual and border line intellectual disability still comprises a majority of the spectrum, per more severely impacted individuals, having difficulty doing the most basic of TASKS AND functions to get by in life.

The greatER numbers per statistics supporting Autism speaks is not a personal judgement of that it is just statistics plain and simple, and the fact of the matter is Autism Speaks funding and support went up by 10 percent ON the last financial report so all of this Internet toil and trouble to harm the organization is relatively useless to that effect.

And truly there are some people who spend their time online that have by their own report stated that they think there is an organized effort by Autism Speaks to get rid of them, which is both patently false and sad too, as anxiety kills the human heart and greater potential for human productivity.

Autism speaks has a marketing division that promotes funding and a science division that focuses on the projects per cutting edge research to help those on the spectrum who are greatest impacted by human suffering.

Marketing 101 does emotional marketing to pull human heart strings per pointing out human suffering to reach the normal cognitive and affective empathy that pulling heart strings of human AFFECT as such.

It is non-sensical per marketing science to suggest that this can be done any other way, as MOST humans are motivated by emotion more over than bone dry information and facts. A science manual for that JUST WILL NOT WORK. :)

And to be clear this Autism Speaks ongoing conspiracy theory stuff, is a total non-factor in my life now.

The only reason I even researched this issue as I am capable of doing on any subject is it kept my own MIND off of life threatening pain PER REAL LIFE PHYSICAL ILLNESS, as it was a circular argument that I knew I could never win, as it IS based in emotionalism highly over facts.

IN OTHER WORDS, I was just killing pain, and the only reason I commented here today IS I am dead tired of dancing last night and too tired to get out in the REAL WORLD TODAY, which I much prefer over online life now that my physical illnesses ARE OVER WITH, INCLUDING the most disabling aspects per social reciprocal communication in REAL LIFE THAT I CURED PER REMEDIATION OF SYMPTOMS OF problems with emotional regulation and sensory integration through the art of movement, including martial arts and ballet like dance, as science now shows that movement through the cerebellum of the brain balances both emotion and sensory integration.

But I did not wait on the research to do it, I JUST DID IT CAUSE IT WORKS AND AS a direct result I now score 11 on the AQ quiz as opposed to 44 to 45 in June of 2013; a 95 on the EQ test as opposed to mid fifties in June of 2013, and my natural personality of ENFP has come to surface over INTJ as I have simply learned the 'art' of physical intelligence that drives both emotional regulation and sensory integration.

And yes, movement therapy is a new and growing therapy for children on the spectrum as it simply exercises a part of the brain that is NOT EXERCISED BY SITTING STILL AND STATIC IN FRONT OF SCREENS.

IF I STAY in front of a screen too long now I will literally scream and now that I am retired no one can force it on me 8 hours straight 5 days a week, in an activity that is totally against all common sense, mother nature, and human nature as well.

But the impact of that goes deep all the way from approximately one third of children who are pre-type two diabetic, to close to 50% of the population taking some kind of pain killer, and sky rocketing prescription of anti-depressants for both children and adults.

To stay still, in my opinion and the opinion of Einstein, overall, who suggests that doing the same thing over and over again and expecting a different result, and in this case that result is simple animal homeostasis, is just insanity, and a secret to folks now, that sadly is plain as a screen in front of a face sitting still.

In the long run it almost killed me, literally so, and I share that as almost dying from stress is truly not fun, and yes science evidences the specific way stress kills human beings now through the destruction of the respiratory, nervous and circulation system by adrenaline related neurohormones that are not burned off by normal physical activity and just slowly kills human beings.

Truly I think that Autism Speaks is stupid for not pursing this avenue of research, but even my doctor laughed at me, as she was not aware of modern research that indicates that eastern ways of movement therapy for illness are REAL AND SCIENTIFICALLY EVIDENCED AS SUCH NOW.

I WOULDN'T BE SURPRISED if even the top folks in the Science organization are not aware of this, as scientists often specialize and never move out of their specific field of study.

I as an autodidact who reads 10 to 15 times faster than the average human with my hyperlexic form of Autism Spectrum disorder and who is retired and can research an unlimited number of subjects have the advantage over even PHD's who specialize in their field only, and yes, I have three college degrees too, but that is less than 1 percent of the crystalized knowledge I have acquired over a lifetime per the speed of the input capacity of my brain which includes visual thinking moreover than verbal thinking.

And fluid intelligence is my forte over that as a non-verbal thinking person over verbal thinking person, per my form of Autism as a non-verbal child until age 4.

And I do type a lot at close to 130 words a minute when properly focused, and the autodidact formed 'brain of my knowledge' results in just this. :)

Last edited by aghogday on 19 Dec 2014, 7:33 pm, edited 2 times in total.

I don't think Autism Speaks is going to start picking us off with snipers, but they have clearly indicated by their focus on genetic research that they want to identify genes indicating autism. Why do you think they want to do this? So that autistic fetuses can be identified and aborted. And thereby cure the world of autism.

That is not their intention but if successful in determining a direct causal genetic factor it most definitely could be the intention of someone else FOR PROFIT as already happens with genetic tests for fragile X syndrome, A DIRECT CAUSAL FACTOR FOR AUTISM TOO.

In my opinion, and in the opinion of current research the Disorder of Autism per social reciprocal communication deficits is largely environmental and definitely IS in my case as assessed by the professionals who monitored me over the course of my severe physical illnesses too.

So, what this means is THERE IS NEVER GOING TO BE A ONE STOP GENETIC TEST FOR AUTISM, as it is literally impossible to do this; BUT, WHAT CAN HAPPEN as what the genetic research is already doing is to prepare parents for early intervention for therapies that may work in real life once the child is born, for a significant but not conclusive potential of a fetus developing Autism after being born, derived from genetic testing per probability of a mix of genes specifically correlated WITH but not DIRECT CAUSES OF Autism.

So YES, it is imperative that this research continues and maybe one day, scientists will get enough common sense, and doctors too that what you do not use in life you simply lose as IS definitely the case in my case study. :)

But YES, I still have ADHD and extreme tactile sensitivity issues, as well as incredible RRB's that are probably never going to go away, but I AM FRIGGING HAPPY AS A BIRD FLYING FREE IN THE SKY, SO SWEET SUCCESS IS THE SONG THIS SEAGULL SINGS, per JLS like behavior (Jonathan LIVINGston Seagull). ;)

AND IF no one else wants to hear it, that is their prerogative alone BUT IT SURE IS FUN TO BE HAPPY AND PEACEFUL IN MIND AND HEART ALL THE TIME, AND IT WILL PLEASE ME MUCH IF MORE PEOPLE CAN ACHIEVE THAT KIND OF REAL LIFE SUCCESS TOO IN LIFE, AS I SEE NOTHING ELSE THAT TRULY MATTERS BUT UNCONDITIONAL LOVE AS A PRACTICE IN LIFE. :)

Last edited by aghogday on 19 Dec 2014, 7:49 pm, edited 1 time in total.

If the cause of autism is environmental and there is no genetic indicator than the research will be useless too as a predictor.
I don't know if it's genetic or environmental, but I would like to see Autism Speaks spend more effort on finding ways to help those of us living with the condition now.

I SAW that was confusing how i wrote it so I clarified that in an edit above that it is a probability that is a factor for predicting autism for getting ready for early intervention in therapies and not a certainty per genetic testing.

The Autism Speaks organization is TOTALLY USELESS IN MY OPINION FOR MY KIND OF AUTISM AND MOST OF THE FOLKS I SEE POSTING HERE.

Other than as I stated in the comment above, AUTISM SPEAKS IS A NON-FACTOR IN MY LIFE, AND A TOTAL WASTE OF TIME TO DISCUSS OTHER THAN A NEGATIVE BONDING FACTOR FOR social unity on Internet sites, same as an opposing football team or another opposing religion in real life, WHICH has the same basic sociological effect and AFFECT FOR HUMAN BEING social BONDING.

SO YES, it may not be totally a waste of time to discuss the conspiracy theories after all, like it's a life or death situation if the New York Jets lose or win, depending on whose side one is on, and I do mean that sincerely, as sociology is science too.

So go Anti-Autism speaks all ya want too, if it works for you, as in my opinion, whatever works IS at least ONE way to go. :)

I prefer other more constructive things to do now, per my own personal opinion, but HELL NO, NOT EVERYONE AGREES WITH WHAT I DO, NOT EVEN MY WIFE, at times hmm.. and yes perhaps truly Most of the time as I AM GOING TO BE DIFFERENT AND GO MY OWN WAY, NOW THAT I CAN. :)

Last edited by aghogday on 19 Dec 2014, 7:59 pm, edited 1 time in total.

There are sites on the internet that say things like the only cure for someone with Asperger's is a toaster and a bathtub full of water. The media frequently shows us as being cold-hearted, robot-like psychopaths with no humor or empathy. There are so-called professionals who misdiagnose or dismiss woman as having Asperger's because we don't have all the negative traits or they aren't as severe because of our unique coping skills. There are who knows how many people on YouTube who use "Autistic" for anyone they think is "stupid" or don't agree with, and when they do it makes my blood boil even when it wasn't directed at me.

I'm 40 and unemployed. Before, during, and after my diagnosis in 2001 I went through hell and back. I spent the majority of my 20's moved from one home for people with mental illness to another. I was put on a million different medications to make me "less angry", and had all kinds of really awful side effects like RLS where I couldn't stop walking around even when I got leg cramps. I never really knew when or where they were going to put me next, what kind of residents or staff would be there, or how far away I would be from anything half-interesting outside the home. and when I complained about the constant change they said that was a part of life and to just live with it. No one believed I had a mental illness or disorder and blamed my behavior on being spoiled by my parents, especially my mom. I was kicked out of the home and left practically to die all alone at the hospital a week before Christmas.

The only reason I have a decent apartment of my own is because of my parents. I'm embarrassed and ashamed that I have to depend on them so much and I'm scared of what will happen when they aren't around any more. They told me they made sure things will be okay but they won't know if that will be true once they're gone. I'm really afraid of anything or anyone who might steal my freedom and I still have dreams about it happening again.

So why shouldn't I be pessimistic? I'm sick of people telling me how I should be like freaking Pollyanna just because I bring them down by telling them the truth. I've learned it's better not to tell them anything that's bothering me because they can't change anything anyway.

Just because it works doesn't mean it's right. Also, orgs for other disabilities, diseases, and disorders are able to raise funds without talking about how wanting to drive kids off bridges.

And the sad reality is a rare minority of parents do think about this.

Not talking about it does not change that reality at all.

Avoiding talking about it takes away the possibility that people who need support will get the kind of emotional support that they truly need to know they are not alone TO FRIGGING NOT DO IT IN REAL LIFE.

However, for anyone on the Autism Spectrum who has deficits in cognitive empathy this MAY BE almost impossible to understand, and I know nothing about you as an individual in real life, but yes, overall, this specific autism related factor of deficit for SOME folks on the spectrum does most definitely impact the ability to understand why other folks truly NEED EMOTIONAL SUPPORT IN LIFE, LIKE THIS.

WHEN people actually complain about it the overall perception of people with normal cognitive and affective empathy, quite frankly, is that there is psychopathic leaning tendencies with folks who do not understand the human condition like this.

But truly that too is a lack of understanding of cognitive empathy in that some folks on the spectrum do have deficits in cognitive empathy, but still have affective empathy that truly psychopathic leaning folks are lacking in per pro-social emotional affective empathy for others.

The reality is the autism spectrum is way too complicated for the average Joe on the street to understand and as many folks have noted on this site, they do not even understand it their self or their self for that matter as a lack of self awareness is also a common clinical noted issue on the spectrum.

More specifically put some Autistic folks have not developed an integral sense of healthy ego. And more specifically put a healthy ego is necessary per having a personality that will be attractive to other human beings, and that is just human nature, and as long as humans per majority are evolved like this THAT WILL NEVER CHANGE, no matter who says they want it to, on the Internet.

So if folks CAN ADAPT in a way that does not harm their self, that in my opinion is a way to go for potential success in life but I know that not everyone has either the innate or environmental tools to do that as quite frankly life is just not fair, as far as I know from my personal experience of some of the worst human suffering known to mankind far beyond the condition of Autism.

If you have those problems, talk about it in a therapist's office not in a fundraising documentary.

P.S. Wow did I screw up the quote tags in my last post.

Unfortunately, you were not there to tell her that, and considering she is likely on the broader autism phenotype too, with potential issues with cognitive empathy herself, considering all the genetic ties to autism in her own family, chances are that too, was part of her cognitive empathy equation as well, particularly the fact that she said it in listening distance from her daughter that she assumed could not understand what she said per literal think and not intuitive think per MORE OF the HUMAN possibilities in what it takes to master cognitive empathy well.

But anyway, that is simply marketing science 101, and that was the time to pull heart strings that many people agreed with who do have so-called normal cognitive empathy THAT the marketing effort was quite effective at that time, PER the general listening public as the documentary was lauded in the conference it was designed for.

Autism Speaks, considering the online Autism community environment, simply made the mistake of leaving it up on their Internet site and Youtube, AND NO that too is not a surprise considering the genetic potential per broader autism phenotype of the family members who run the organization with Autistic family members. ;)

Cognitive Empathy and empathy in general is EXTREMELY COMPLEX AND EXTREMELY HARD FOR MANY FOLKS TO MORE fully understand on and off the spectrum, as well.

there is likely a certain amount of truth behind criticism of autism speaks and ASAN

that's why im a lone wolf gone rogue and don't support any mainstream autism or disability rights organization because there all crooks

ahogday, if A$ are paying you to shill for them, I think they should ask for their money back!!

HMM, Another weak attempt at personally attacking me.

I speak for no one but the truth, and sometimes that means having few friends and sometimes that means having many friends.

That depends on if one hangs around people who speak for themselves or the crowd.

AS ALREADY stated in this thread and in many other places on this site I CURED THE MOST DISABLING RECIPROCAL SOCIAL COMMUNICATION DIFFICULTIES OF AUTISM THAT YES I AM PROFESSIONALLY DIAGNOSED WITH THAT I CAN PROVE THROUGH PHOTOGRAPHIC EVIDENCE IF NECESSARY, THROUGH MUSIC AND MOVEMENT THERAPY.

IN MY CASE, SPECIFICALLY A STIM, YES A STIM, OF DANCE WALKING A STYLE OF MARTIAL ARTS/BALLET STYLE OF DANCE WALK ON average 7 to 8 miles a day, now approaching 2800 miles in a span of 16 months, yes, everywhere I go in public, and yes, LIKE THE old TV show Cheers PER my entire metro area is my 'bar' AS METAPHOR and 'everyone now KNOWS my name' as the big dancing guy with shades.

Not only that I have zero social anxiety now and lead a group of twenty something year old folks in dance SOLO at one of the top 100 dance clubs in the U.S. per Old Seville Quarter in Pensacola, FL.

But instead of calling them for evidence of that here is the irrefutable proof of that here:

http://katiemiafrederick.com/2014/12/09/gods-muse-of-dance/

MODERN SCIENCE NOW SHOWS that human movement through the cerebellum of the brain and what can be termed PHYSICAL INTELLIGENCE BALANCES BOTH EMOTIONAL REGULATION AND SENSORY INTEGRATION.

AND DUH, GO FIGURE, smarty pants folks like ME, before, who spend all their time sitting still in front of a computer have problems with emotional regulation and sensory integration, including problems with expression PER non-verbal communication, which requires the physical intelligence of moving muscles to MAKE THAT HAPPEN.

THIS IS JUST COMMON SENSE FOR MANY SO-CALLED HIGHER FUNCTIONING AUTISTIC FOLKS IF THEY CAN JUST LEARN TO MAKE A SIMPLE CHANGE IN LIFE.

BUT IT IS SO DAM SIMPLE, not even Autism Speaks can figure it out.

But as also noted, as I CURED THE MOST FUNCTIONALLY DISABLING ASPECTS OF MY AUTISM PER RECIPROCAL SOCIAL COMMUNICATION DISABILITY THROUGH THE ART OF PHYSICAL INTELLIGENCE, MY SCORE ON THE AQ scan for Autism went from 44 to 45 in June 2013 to 11 later that summer, and additionally my score on the Aspie Quiz went from 195 to 92, and my score for the EQ Emotional Intelligence test went from the mid 50's to 95; AS A direct RESULT OF IMPROVING MY PHYSICAL INTELLIGENCE THROUGH FREE STYLE MARTIAL ARTS AND BALLET THAT REQUIRES ABSOLUTELY NO LESSONS AND IS entirely Instinctual and INNATE.

Additionally, I started writing free verse style CREATIVE poetry that science shows CAN BETTER CONNECT HUMAN EMOTION WITH LANGUAGE and CAN increase the intelligence of HUMAN EMPATHY, both cognitive and affective.

THROUGH THE evolution of human beings, AS OF about 12,000 years ago, humans STARTED BECOMING MORE SEDENTARY as a result of Agriculture and larger civilizations per social group unit size, where the sidewalks of life become much narrower as metaphor.

Humans have been DEVOLVING INTO MACHINES OVERALL, since then, as they become more proficient at sitting still AND BUILDING MACHINES TO MOVE FOR THEM.

While as foragers, our ancestors constantly moved through distance and space for survival in 360 degrees of movement for foraging everywhere they TRAVELED.

RESULTS OF OUR NEW SO-CALLED MORE INTELLIGENT WAYS OF STANDARDS IQ LIFE IS THE steady LOSS, IN THE OVERALL general population of physical intelligence, including emotional regulation and sensory integration THAT AGAIN IS DRIVEN BY PHYSICAL INTELLIGENCE THROUGH THE CEREBELLUM, and associated neurochemicals that impact the vagal nerve that runs from brain to gut orchestrating emotional feelings throughout the human body, AS WELL AS balancing harmful stress related neurohormones circulating through the blood stream per chronic SITTING STILL tension increasing STRESS until THE BODY FINALLY IF IT EVER DOES MOVE TO BURN OFF THOSE DAMAGING STRESS HORMONES OTHERWISE deleteriously impacting EVERY BODILY SYSTEM THAT ALLOWS HUMAN BEINGS TO LIVE IN THE LONG RUN WITHOUT LITERALLY DYING FROM CHRONIC STRESS AS SCIENCE NOW PROVES DOES HAPPEN TO HUMAN BEINGS, WHO live with chronic NEGATIVE stress and do nothing to CURE (remediate symptoms) THAT.

Also, as science shows college age adults have LOST APPROXIMATELY 30% OF EMPIRICALLY MEASURED LEVELS OF EMPATHY OVER RECENT DECADES.

NAH, I DO NOT WORK FOR AUTISM SPEAKS, I AM TOO DAM SMART FOR THEM, AS AN AUTODIDACT. :)

I'VE ALREADY ACCOMPLISHED THEIR GREATEST GOAL ON MY OWN, WITHOUT ANY OF THEIR HELP. :)

AND IF YOU DO NOT LIKE THE FACT THAT I AM THIS FULLY INTELLIGENT (with the intelligences of physical intelligence, emotional intelligence and sensory integration intelligence in tow) AND NOT AFRAID TO DISAGREE WITH MIS-TRUTHS, NO MATTER HOW MUCH 'A HERD HATES IT', I suggest you use the foe button and just ignore me as I have an almost unlimited supply of MORE FACTS AND FIGURES RELATED to this topic, as once again, TG, I HAVE ELIMINATED THE truly DISABLING PARTS OF AUTISM THAT Autism Speaks is still working on TO FIX FOR MY KIND OF AUTISM. :)

And one day maybe they will catch up with MY KIND OF NEW AUTISTIC SUPERPOWER INTELLIGENCE WHICH INCLUDES PHYSICAL, EMOTIONAL, SENSORY INTEGRATION AND FULLER HUMAN EMPATHY PER BOTH SOCIAL COGNITIVE AND AFFECTIVE INTELLIGENCE.

BUT I'M NOT HOLDING OUT TOO MUCH HOPE FOR THAT, AS nothing stifles learning more than SPECIALIZATION WHETHER THAT IS IN SCIENCE, or as Einstein suggests, INSANITY, PER HIS definition of doing the same thing over and over again and expecting a different result, as in this case is SITTING STILL AND EXPECTING TO EVER ATTAIN simple human animal homeostasis PER Peace of mind, and FULLER CONNECTION TO OTHER HUMAN BEINGS AND THE REST OF MOTHER TRUE AKA GOD.

SO, SUE ME CAUSE I'M SMARTER THAN AUTISM SPEAKS. ;)

And no, I did not say I am smarter or PRETTIER OR MORE CHARMING than anyone here; the 'jury' can determine that for 'themselves'. :)

Oops, I LEFT this tidbit out, up there.

AND science also shows that approximately one-third of school age children, now, are assessed as pre-type two diabetic; overall, in the general population pain killer use of some kind is approaching usage of 50%, and prescriptions FOR anti-depressants are sky rocketing among adult and children.

And again, DUH, sitting still is one definition for DEPRESSION AND DOING THE SAME THING OVER AND OVER, WHETHER IT IS RUNNING ON A TREADMILL OR SITTING STILL, CAN AND WILL CAUSE SOME TYPE OF ERGONOMIC INJURY AND PAIN, AS SCIENCE NOW SHOWS TOO, AS DOING THE SAME PHYSICAL MOVEMENT OR NON-MOVEMENT OVER AND OVER DAMAGES THE BIO-MECHANICAL PHYSIOLOGICAL TOTAL SYSTEM OF HUMAN BEING given enough time of this Einstein type of Insanity, IN INACTIVITY OR ACTIVITY, as defined by him.

Re: High functioning autistics only being 9%... I'll let Alex answer that one

The statistics I provided were not mine, they were from the CDC LAST SUPPORTED RESEARCH on Asperger's syndrome as diagnosed in the United States. And again, that's it, as the diagnosis no longer exists IN THE UNITED STATES, AND it is by far the largest study ever taken in the U.S., to date.

Asperger's is diagnosed differently in some other countries so mileage may vary in other countries depending on diagnostic criteria.