Page 3 of 3 [ 38 posts ]  Go to page Previous  1, 2, 3

eleventhirtytwo
Sea Gull
Sea Gull

User avatar

Joined: 23 Nov 2011
Age: 33
Gender: Male
Posts: 228
Location: Northern Ireland

27 Sep 2015, 6:41 pm

Fnord wrote:
neilson_wheels wrote:
Fnord wrote:
I was going to start a website dedicated to telling the story of being autistic from the perspectives of people with autism. It was gong to be called "We Are Autistic", but it looks like someone else has beaten me to it.
That website seems to consist of blank pages only.
Still, I can't use the name unless no one owns it.


If the other site has nothing on it, you could probably get away with registering the domain on a different extension, such as ".net".



B19
Veteran
Veteran

User avatar

Joined: 11 Jan 2013
Gender: Female
Posts: 9,993
Location: New Zealand

27 Sep 2015, 8:28 pm

[quote="Edenthiel"]The last decade or so has seen the tremendous growth of what is sometimes called, "Non-profit, Inc". Generally speaking, a few very socially adept people with envious sales abilities will find a cause they think they can use to raise donations and create an organization. They don't really care which side their organization is on, nor if they do any harm. Autism Speaks very much seems to be such an organization."

No, that's not consistent with the history of AS. They do really care which side they are on, they do intend to do harm (eradication of autistic people) and the genesis of the organisation was the affront that the grandparents Bob and Suzanne Wright felt on discovering that they had an (unacceptably imperfect in their view) autistic grandson. This perceived blemish on their reputation and egos -as perfect, successful people basking in that self image - led to the formation of Autism Speaks. They have a large staff and solicit millions every year, most of which they give to researchers who are seeking funding for projects that suit their agenda - the ultimate eradication of the scourge of autism from the human race.



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 68
Gender: Male
Posts: 39,637
Location: Long Island, New York

27 Sep 2015, 8:47 pm

My sister who is a speech pathologist that has autistic kids as clients was visiting today and I was lobbying her to buy the "Neurodiversity" book and she says that she has parents all the time demanding she "fix" their kids. Today people can resolve many things instantaneously, so many people expect every issue to be instantly solvable. That is what we are fighting against.


_________________
“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”

Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.


Edenthiel
Veteran
Veteran

User avatar

Joined: 12 Sep 2014
Age: 58
Gender: Female
Posts: 2,820
Location: S.F Bay Area

28 Sep 2015, 12:06 am

B19 wrote:
Edenthiel wrote:
The last decade or so has seen the tremendous growth of what is sometimes called, "Non-profit, Inc". Generally speaking, a few very socially adept people with envious sales abilities will find a cause they think they can use to raise donations and create an organization. They don't really care which side their organization is on, nor if they do any harm. Autism Speaks very much seems to be such an organization."

No, that's not consistent with the history of AS. They do really care which side they are on, they do intend to do harm (eradication of autistic people) and the genesis of the organisation was the affront that the grandparents Bob and Suzanne Wright felt on discovering that they had an (unacceptably imperfect in their view) autistic grandson. This perceived blemish on their reputation and egos -as perfect, successful people basking in that self image - led to the formation of Autism Speaks. They have a large staff and solicit millions every year, most of which they give to researchers who are seeking funding for projects that suit their agenda - the ultimate eradication of the scourge of autism from the human race.


Actually, that does sound very much like the other groups I was speaking of, I just didn't go into the zealotry. It's so very convenient when the two go together.


_________________
“For small creatures such as we the vastness is bearable only through love.”
―Carl Sagan


RoadRatt
Veteran
Veteran

User avatar

Joined: 26 Aug 2014
Age: 61
Gender: Male
Posts: 68,007
Location: Oregon

28 Sep 2015, 9:36 pm

Go get 'em Amythest Schaber! :)


_________________
No power in the 'verse can stop me. - River Tam (Firefly)


Ganondox
Veteran
Veteran

User avatar

Joined: 7 Oct 2011
Age: 30
Gender: Male
Posts: 5,791
Location: USA

02 Oct 2015, 4:24 am

eleventhirtytwo wrote:
Why not set up your own Autism charity directly competing with Autism Speaks while providing parents and autistic people with an alternative voice?


Problem is there already is many such charities:
Image

Then you can consider Autism Speaks call for unity:
https://www.autismspeaks.org/blog/2015/08/25/call-unity

What we need is unity AGAINST Autism Speaks among all their competitors, but of course Autism Speaks is unified and they all ultimately compete against each other for the same cause. The ultimate irony of the autistic advocacy movement is so much energy must be spent fighting a single group which is supposed to be supporting us, rather than actually addressing the fundamental issues.
Edenthiel wrote:
The last decade or so has seen the tremendous growth of what is sometimes called, "Non-profit, Inc". Generally speaking, a few very socially adept people with envious sales abilities will find a cause they think they can use to raise donations and create an organization. They don't really care which side their organization is on, nor if they do any harm. What is important is whether their target audience is likely to send in money enough to cover their salaries for the next five years. Over time, some of them have fine-tuned their shtick to target people at one extreme end of a controversial topic. Something I've noticed is that it usually is the side which opposes in some way the very existence of the the people at the heart of the matter. Those are the ones who are most willing to send in money and least likely to listen to reason; a shyster's dream audience.

Autism Speaks very much seems to be such an organization.

Our family has been affected by a different such group here in California. They've tried several times since 2007 to create laws that would essentially outlaw the legal equality of a group of people. Each time, groups opposing them - typically because they have loved ones that fall in the targeted group - must engage in a public campaign not only of education but also familiarity. By putting a real, human face on the targeted people, the hate group's vileness is exposed. And they lose, again. The crux of it though, is that they don't really care if they lose because they are then free to start up another campaign and solicit more donations from the extremists. It's like a cottage industry, really. In their case winning would deprive them of a target and thus, their salaries.

So rather than trying to defeat them, they must be made irrelevant. The body of educated, familiar people must grow until it includes their once dependable extremists. Also, once public opinion has shifted and solidified, it seems at some point their extremists become so few in number they are forced to find some other topic, some new target to vilify.


Okay, that seems to be a pretty good description of the situation, aside from the bias of the Wrights which is preventing the organization from changing trajectory.

Fnord wrote:
neilson_wheels wrote:
Fnord wrote:
I was going to start a website dedicated to telling the story of being autistic from the perspectives of people with autism. It was gong to be called "We Are Autistic", but it looks like someone else has beaten me to it.
That website seems to consist of blank pages only.
Still, I can't use the name unless no one owns it.


Did the trademark it? If not, nothing is stopping you. The .com domain is still open.


_________________
Cinnamon and sugary
Softly Spoken lies
You never know just how you look
Through other people's eyes

Autism FAQs http://www.wrongplanet.net/postt186115.html