Whats with all the Autism Speaks hate.
dalurker wrote:
Those questions have no relevance as such propositions have nothing to do with cure. Many who have the problems to be cured are being told what to think when they're told to put up with the things they have to deal with, that they don't deserve the opportunities others have. Of course, they disguise such orders with nice sounding phrases like the ones you anti-cure aggressors like to say. With a mental impairment, one very often cannot be what they really want to be, what they would choose to be, simply cause they lack some ability. It is a lot less easy to control and manipulate someone if they have ability of their own to do things with.
You very clearly were not subjected to diabolical little experiments to try and "cure" you by every other adult in your life throughout your childhood, as I was. If you had been, you might feel differently.
When people offer to "cure" you, they do not take no for an answer. This is telling people how to act, what to think, who to be.
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"Blending in society" is a loaded phrase. The goal is for one to be able to interact with others, which includes clear understandings in communications. With that ability, they can choose who they want to interact with according to their own ideas. There are different ways one exists in society. One should get to choose to what extent and with whom they interact, without having their options restricted and choices distorted by impairments in aptitude. They can make these personal choices for themselves. If individuals don't like each other, they shouldn't have to interact any further than is necessary.
And why do they need help with said social interactions? Is it *gasp* BECAUSE SOCIETY REFUSES TO ACCEPT THEM FOR WHO THEY ARE?!
Sweetleaf
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dalurker wrote:
It seems like you want there to be a lot of risk, so there will be fear. You know the solution would be wanted strongly, so the only thing to make them abandon it, is to make them think their life depends on remaining in a terrible condition.
No its just fairly common that many treatment options for various disorders can cause negative side effects or involve dangerous procedures, so I feel it nessisary to point that out as a possible factor one might consider when considering a cure for autism. Also as of now since there is not a cure and there are people who by your definition depending on remaining in a terrible condition, don't they deserve help and compassion from within the society instead of treated like curses upon otherwise perfect families.
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Tensu wrote:
dalurker wrote:
Those questions have no relevance as such propositions have nothing to do with cure. Many who have the problems to be cured are being told what to think when they're told to put up with the things they have to deal with, that they don't deserve the opportunities others have. Of course, they disguise such orders with nice sounding phrases like the ones you anti-cure aggressors like to say. With a mental impairment, one very often cannot be what they really want to be, what they would choose to be, simply cause they lack some ability. It is a lot less easy to control and manipulate someone if they have ability of their own to do things with.
You very clearly were not subjected to diabolical little experiments to try and "cure" you by every other adult in your life throughout your childhood, as I was. If you had been, you might feel differently.
The crap they were doing does not resemble the kind of techniques of cure which are to be researched. My experience wasn't like yours, but I had experiences of my own which were terrible.
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When people offer to "cure" you, they do not take no for an answer. This is telling people how to act, what to think, who to be.
You can't prove this. I can't get someone to be influenced by reason when such paranoia surrounds the argument. In so many ways, I was saying no when I was on the edge of losing to my impairments, and no was not accepted as an answer, as I messed up and lost out on what I was doing. My neurological problems said to me yes, that I will put up with failure. I had no choice of whether or not I wanted to be impaired.
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And why do they need help with said social interactions? Is it *gasp* BECAUSE SOCIETY REFUSES TO ACCEPT THEM FOR WHO THEY ARE?!
Because some of us have a neurological disorder. We have a problem interacting with others in basic ways often, as the brain is indispensable for carrying out social interaction. What is so difficult to understand of that? What is this "acceptance" you talk of? Having us live as if we were permanent children or pets, rather than as adults with needs and ambitions, with saccharine phrases of condescending acceptance? Stop making us beg for acceptance like a bunch of submissive weaklings. Let us become self-reliant.
Sweetleaf
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dalurker wrote:
Sweetleaf wrote:
I don't see how I am splitting hairs, I just don't think they are going to be able to come up with a cure.
You don't have the credentials to repudiate the professionals who choose to research it.
Never claimed to, it just so happens its a fact there is currently no cure for autism, and my opinion based on valid material I've read that they aren't likely to come up with one. If they do then I guess my prediction is wrong and no harm done
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Well those are some pretty heavy demands there, don't you think? No one is born with an specific abilities other than basic survival and even some of that is learned. No one here is suggesting ignoring underlying problems....but trying to make it so everyone has the exact same abilities, mentalities and strengths and weaknesses is a pretty extreme way to go about addressing any underlying problems.
Also you are of the opinion one has to have the same abilities as someone else to have any good quality of life, well that's not true for everyone and you're in no position to say it is. One can be disabled and still have quality of life, who are you to say they cant? Maybe not in this sick society in which your considered garbage unless you're a 'contributing member of society' but that is an issue with society it is perfectly possible to have quality of life and a disability........just because you don't think it is possible doesn't make it fact.
Also you are of the opinion one has to have the same abilities as someone else to have any good quality of life, well that's not true for everyone and you're in no position to say it is. One can be disabled and still have quality of life, who are you to say they cant? Maybe not in this sick society in which your considered garbage unless you're a 'contributing member of society' but that is an issue with society it is perfectly possible to have quality of life and a disability........just because you don't think it is possible doesn't make it fact.
Of course the demands are heavy. That doesn't make them bad. I'd say it's radical, but things are bad enough to warrant a drastic change. Sometimes disparities in abilities are way too much and are therefore unfair, depriving some of opportunities. We all know this is the way things are, due to our instincts, even if we hesitate to talk openly of it when confronted with the issue. I'm not the only one who experiences lower quality of life due to lack of ability. It's not any particular society. Individuals naturally want to contribute and be an integral part of things, even if they have trouble doing so. They also want to advance and get status. I can't help being an egotistical envious person. What do you define as quality of life?
Speak for yourself, I would not mind contributing and being an intricate part of something good, but this society is nothing of the sort, I do not want to advance to get status especially the material status valued in this society. Also I can't help being a non egotistical non envious person anymore than you can help being that way......and what I define as quality of life is having ones basic needs met and the means to enjoy oneself on top of that. So basically plenty of time for useful tasks, plenty of time for just chilling out and doing activities they enjoy and such I don't see what much more quality then that there would be.
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I never suggested communication isn't essential, just that there are other ways of communicating besides verbal words that should be taken into consideration, especially if one cannot communicate by talking. Also what side I am not on any particular side here just expressing how I feel about a cure or treatments what i meant by being socialist is I think it is societies responsibility to take care of its citizens including the disabled ones.....if that is the bad kind of socialist than so be it I guess.
Are you suggesting attempts at other forms of communication someone with low functioning autism who cannot talk might use should just be ignored and disregarded. For instance if a treatment causes obvious distress should it be continued just because that person cannot say 'no I don't agree with this treatment' or should those doing it take into consideration if the autistic was to express distress maybe a different approach should be used.
Are you suggesting attempts at other forms of communication someone with low functioning autism who cannot talk might use should just be ignored and disregarded. For instance if a treatment causes obvious distress should it be continued just because that person cannot say 'no I don't agree with this treatment' or should those doing it take into consideration if the autistic was to express distress maybe a different approach should be used.
There isn't much of an alternative to verbal communication through speech or typing/writing. Verbal communication exists for a reason. Caring for citizens includes health care. If stronger treatments become available, they are part of health care. Backward notions that would undermine the idea of health care are antithetical to caring for citizens. You can't go around saying you accept that it's society's responsibility to care for citizens, if you think as an unqualified professional, you can micromanage what is and isn't valid health care for other individuals. I don't need or want you denying me treatment.
That is why I think this society needs to change for the better, so it is able to do a better job at being responsible for its citizens. Also you never answered the question if someone who cannot speak expresses other sorts of distress at a treatment do you think that should be ignored or considered? Or should their lack of being able to speak give the impression they are too dumb to have any idea what they actually like or don't like for instance?
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Sweetleaf wrote:
dalurker wrote:
It seems like you want there to be a lot of risk, so there will be fear. You know the solution would be wanted strongly, so the only thing to make them abandon it, is to make them think their life depends on remaining in a terrible condition.
No its just fairly common that many treatment options for various disorders can cause negative side effects or involve dangerous procedures, so I feel it nessisary to point that out as a possible factor one might consider when considering a cure for autism. Also as of now since there is not a cure and there are people who by your definition depending on remaining in a terrible condition, don't they deserve help and compassion from within the society instead of treated like curses upon otherwise perfect families.
The rhetoric you promote shows no compassion. It is viciously dismissive and mocking. Those ideas haven't helped the conversation all of these years. And all the time spent on anti-cure paranoia could have been spent on promoting realistic understanding and assistance.
Sweetleaf wrote:
Never claimed to, it just so happens its a fact there is currently no cure for autism, and my opinion based on valid material I've read that they aren't likely to come up with one. If they do then I guess my prediction is wrong and no harm done
What valid material?
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Speak for yourself, I would not mind contributing and being an intricate part of something good, but this society is nothing of the sort, I do not want to advance to get status especially the material status valued in this society. Also I can't help being a non egotistical non envious person anymore than you can help being that way......and what I define as quality of life is having ones basic needs met and the means to enjoy oneself on top of that. So basically plenty of time for useful tasks, plenty of time for just chilling out and doing activities they enjoy and such I don't see what much more quality then that there would be.
Disability does deprive many of the means to do things beyond basic needs. It's just a fact. Pervasive disabilities really do get in the way of many activities, work or leisure.
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That is why I think this society needs to change for the better, so it is able to do a better job at being responsible for its citizens. Also you never answered the question if someone who cannot speak expresses other sorts of distress at a treatment do you think that should be ignored or considered? Or should their lack of being able to speak give the impression they are too dumb to have any idea what they actually like or don't like for instance?
Will the distress be understood? What guarantee is there of that? What if they have a serious pain that is getting worse but they can't come up with a reliable way to get it interpreted? It's not the fault of the person trying to understand, who often tries. These are the kinds of things that occur in real life that don't fit into your neat ideal approaches. If arguments get weak, making up absurd strawmen doesn't help.
dalurker wrote:
Quote:
When people offer to "cure" you, they do not take no for an answer. This is telling people how to act, what to think, who to be.
You can't prove this. I can't get someone to be influenced by reason when such paranoia surrounds the argument. In so many ways, I was saying no when I was on the edge of losing to my impairments, and no was not accepted as an answer, as I messed up and lost out on what I was doing. My neurological problems said to me yes, that I will put up with failure. I had no choice of whether or not I wanted to be impaired.
Quote:
And why do they need help with said social interactions? Is it *gasp* BECAUSE SOCIETY REFUSES TO ACCEPT THEM FOR WHO THEY ARE?!
Because some of us have a neurological disorder. We have a problem interacting with others in basic ways often, as the brain is indispensable for carrying out social interaction. What is so difficult to understand of that? What is this "acceptance" you talk of? Having us live as if we were permanent children or pets, rather than as adults with needs and ambitions, with saccharine phrases of condescending acceptance? Stop making us beg for acceptance like a bunch of submissive weaklings. Let us become self-reliant.
When I told people "no", they didn't take it for an answer. They tried to cure me anyway, and the cures attempted included medication, which is relevant to the present discussion. Since it happened to me, it can happen to others too.
I'm not begging acceptance, I AM DEMANDING IT! Tell me, why is the autistic method of social interaction "wrong" and the "neurotypical" method "right"? What constitutes an acceptable social interaction is an invention of civilization, and civilization's idea of acceptable social interaction is perfectly capable of changing. What right does society have to say that there is something "wrong" with you or I because we fall outside the norms it invented for itself?
Sweetleaf
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dalurker wrote:
Sweetleaf wrote:
Never claimed to, it just so happens its a fact there is currently no cure for autism, and my opinion based on valid material I've read that they aren't likely to come up with one. If they do then I guess my prediction is wrong and no harm done
What valid material?
Peer reviewed articles, non-peer reviewed articles on the internet, information learned when I was in psychology class....most of it points to autism likely being too complex for there to be a cure developed at least that is my impression, feel free to have a different impression.
Quote:
Speak for yourself, I would not mind contributing and being an intricate part of something good, but this society is nothing of the sort, I do not want to advance to get status especially the material status valued in this society. Also I can't help being a non egotistical non envious person anymore than you can help being that way......and what I define as quality of life is having ones basic needs met and the means to enjoy oneself on top of that. So basically plenty of time for useful tasks, plenty of time for just chilling out and doing activities they enjoy and such I don't see what much more quality then that there would be.
Disability does deprive many of the means to do things beyond basic needs. It's just a fact. Pervasive disabilities really do get in the way of many activities, work or leisure.
And I indicated I am unaware of this how? interferes with my means to even fullfill my basic needs let alone anything beyond that and its not that I like it but I don't think there's a cure or will be a cure. I said there are ways besides cures to solve some of those issues, so if autism cannot be cured maybe other things can be done to improve quality of life, I don't see how much more clear I can try and make my point.
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That is why I think this society needs to change for the better, so it is able to do a better job at being responsible for its citizens. Also you never answered the question if someone who cannot speak expresses other sorts of distress at a treatment do you think that should be ignored or considered? Or should their lack of being able to speak give the impression they are too dumb to have any idea what they actually like or don't like for instance?
Will the distress be understood? What guarantee is there of that? What if they have a serious pain that is getting worse but they can't come up with a reliable way to get it interpreted? It's not the fault of the person trying to understand, who often tries. These are the kinds of things that occur in real life that don't fit into your neat ideal approaches. If arguments get weak, making up absurd strawmen doesn't help.
What neat ideal approaches, it seems you're just avoiding the question since you still have not answered it. Should other forms of communication one might attempt to use if they cannot speak be ignored or acknowledged and considered where treatment is concerned in your opinion? I am not asking how neat or ideal you think my approaches are or whatever that means.
_________________
Tis the time to melt the Ice.
Tensu wrote:
When I told people "no", they didn't take it for an answer. They tried to cure me anyway, and the cures attempted included medication, which is relevant to the present discussion. Since it happened to me, it can happen to others too.
Medication isn't cure. What you are referring to isn't cure.
Quote:
I'm not begging acceptance, I AM DEMANDING IT! Tell me, why is the autistic method of social interaction "wrong" and the "neurotypical" method "right"? What constitutes an acceptable social interaction is an invention of civilization, and civilization's idea of acceptable social interaction is perfectly capable of changing. What right does society have to say that there is something "wrong" with you or I because we fall outside the norms it invented for itself?
There is no autistic method of social interaction. When you have met one autistic, you have only met one autistic. It's not an invention of civilization. Social interaction arose from hundreds of thousands of years of evolution, becoming further advanced along the way. There is no acceptability. Only sufficiency. You're not making any sense.
Sweetleaf
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dalurker wrote:
Sweetleaf wrote:
dalurker wrote:
It seems like you want there to be a lot of risk, so there will be fear. You know the solution would be wanted strongly, so the only thing to make them abandon it, is to make them think their life depends on remaining in a terrible condition.
No its just fairly common that many treatment options for various disorders can cause negative side effects or involve dangerous procedures, so I feel it nessisary to point that out as a possible factor one might consider when considering a cure for autism. Also as of now since there is not a cure and there are people who by your definition depending on remaining in a terrible condition, don't they deserve help and compassion from within the society instead of treated like curses upon otherwise perfect families.
The rhetoric you promote shows no compassion. It is viciously dismissive and mocking. Those ideas haven't helped the conversation all of these years. And all the time spent on anti-cure paranoia could have been spent on promoting realistic understanding and assistance.
What rhetoric? and how does it not show compassion to say we need a society in which the needs of people severely disabled by autism or other conditions should get the help and support they deserve, what is in-compassionate about that. You're idea that it should be impossible for anyone with a disability to have any quality of life is a lot more non compassionate then that. Maybe you should comprehend my points before putting a bunch of garbage in my mouth that I am supposedly spewing.
And what anti-cure paranoia are you talking about, I just find it unlikely they are going to find a cure for something that is a major difference in genetics and neurology I think its more likely they will find it to be an incurable difference, that is just based on the knowledge I have its not up to me whether that proves to be true or not. Quit trying to judge the type of person I am on how I feel about a cure or lack of one.
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Sweetleaf
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Sweetleaf wrote:
Peer reviewed articles, non-peer reviewed articles on the internet, information learned when I was in psychology class....most of it points to autism likely being too complex for there to be a cure developed at least that is my impression, feel free to have a different impression.
Too complex? That's not a scientific/engineering argument. That's a creationist argument. I don't just consider cure from what is taught in psychology. I went to college and had studied biology, chemistry, genetics, etc. I know that there are advancements going on.
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And I indicated I am unaware of this how? interferes with my means to even fullfill my basic needs let alone anything beyond that and its not that I like it but I don't think there's a cure or will be a cure. I said there are ways besides cures to solve some of those issues, so if autism cannot be cured maybe other things can be done to improve quality of life, I don't see how much more clear I can try and make my point.
Other ways won't solve all of those issues. Doubt of possibility of something doesn't make the goal bad. You don't need to attack the goal. Others want to look for a way out of this.
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What neat ideal approaches, it seems you're just avoiding the question since you still have not answered it. Should other forms of communication one might attempt to use if they cannot speak be ignored or acknowledged and considered where treatment is concerned in your opinion? I am not asking how neat or ideal you think my approaches are or whatever that means.
You're avoiding the question that concerns a harsh reality. Other forms should be acknowledged, but what if they can't be deciphered? In order for communication to work, it has to be understood.
dalurker wrote:
Tensu wrote:
When I told people "no", they didn't take it for an answer. They tried to cure me anyway, and the cures attempted included medication, which is relevant to the present discussion. Since it happened to me, it can happen to others too.
Medication isn't cure. What you are referring to isn't cure.
Quote:
I'm not begging acceptance, I AM DEMANDING IT! Tell me, why is the autistic method of social interaction "wrong" and the "neurotypical" method "right"? What constitutes an acceptable social interaction is an invention of civilization, and civilization's idea of acceptable social interaction is perfectly capable of changing. What right does society have to say that there is something "wrong" with you or I because we fall outside the norms it invented for itself?
There is no autistic method of social interaction. When you have met one autistic, you have only met one autistic. It's not an invention of civilization. Social interaction arose from hundreds of thousands of years of evolution, becoming further advanced along the way. There is no acceptability. Only sufficiency. You're not making any sense.
If medication isn't what you mean by cure, then what do you? I know sweetleaf already asked you this, but your response was vague. What exactly do you believe can "cure" autism?
Wether you want to use the term "acceptable" or "sufficient" nothing changes. Who decides what is "sufficient"? Why is what is considered "sufficient" considered such? Why are other forms of social interaction, be they those used by an aspie, an obsessive-compulsive, or whoever else may not "fit in" (or whatever terminology you would use) deemed "Insufficient"? And lastly and most importantly, why can't these preconceptions change? Why can't a wider variety of forms of social behavior, or lack thereof, be "sufficient" to the standards of our civilization?
Tensu wrote:
If medication isn't what you mean by cure, then what do you? I know sweetleaf already asked you this, but your response was vague. What exactly do you believe can "cure" autism?
We don't know exactly what forms cure will come in for the various individuals with varying impairments. Implementation will vary from person to person. It may involve forms of gene therapy. Something that will enhance any connections that may be lacking within the brain.
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Wether you want to use the term "acceptable" or "sufficient" nothing changes. Who decides what is "sufficient"?
There is no bureaucrat deciding what is sufficient just to be mean to you. Language changed gradually over time in many countries over time, but all involve verbal language in conjunction with alphabetic writing systems. Theoretically, you could start your own language based on abstract symbols, but those with the capacity to learn languages tend to learn the language they are exposed to as they grow up. After all, you are communicating right now with the English language. In order to have in depth communication with others, advanced systems of language are needed. Our species would not have had the level of success we have without our facilities for communication.
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Why is what is considered "sufficient" considered such? Why are other forms of social interaction, be they those used by an aspie, an obsessive-compulsive, or whoever else may not "fit in" (or whatever terminology you would use) deemed "Insufficient"? And lastly and most importantly, why can't these preconceptions change? Why can't a wider variety of forms of social behavior, or lack thereof, be "sufficient" to the standards of our civilization?
Again, there aren't really any other systems of social interaction for aspies. There may be proclivities or patterns, but there can be varying levels of skill in communication, which for aspies is not known to be low. Obsessive compulsive has nothing to do with this. These are not preconceptions. These are actual realities. There is a difference. Making up fake preconceptions or delusions won't change reality. Lack of communication is a bad thing. Period. Debating that is not sane. If standards are just considered to be things that come out of the whims of some prototypical jerk, I can only be suspicious of what would occur if your side gained power.
Sweetleaf
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dalurker wrote:
Sweetleaf wrote:
dalurker wrote:
Medication isn't cure. What you are referring to isn't cure.
Than what is 'cure'?
Something that treats the root, underlying cause, not just the symptoms. Something that really eliminates impairment.
And you don't think treatments to do that could possibly have any risks or harmful effects? I mean to eliminate the 'impairment' ones entire neurology and genetic structure would have to be altered(how is that not going to come with risks. So my pointing out it could be risky is hardly rhetoric.
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