a plan to destroy autism speaks

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Please do not destroy my child. I know it has been loud and unruly at times, given to Potty mouth Marketing, when it was tired, scared, and just not having a good day.

Child rearing its a long term process that takes a consistant parentual pressure, to guide them away from some things and toward others.

Like all babies it tried to get it's way by crying, screaming, and Marketing.

It took years of saying, "I cannot hear your message, for someone is screaming, crying, whineing, and marketing."

It took more years of tearing all marketing behavior up into bite size pieces, and showing that they tasted bad. I could not change all of behavior at once, but bit by bit marketing bites were dropped, and the child behaved a bit better.

I had to deal with it, but disiplining bad behavior is not the best way to raise a child, so I spent years praising their improved behavior. They were growing up in a big and scary world, and having someone consistantly on their side, supporting, defending, showed them what other people objected to, and also where they were good.

After a while potty mouthed marketing gave way to logical, ethical behavior, and they saw how life was better if they considered other people's views, and dealt with fairness to all.

A big step in their development came with learning to share. They finally saw that sharing their toys with other children, Alex, John Robison, they gained playmates that were helping them learn social skills.

In the last stage of development they learned that all other people share in a base of facts, science, which is our common language, and they could say anything in science, and be respected for having a view, and more so for being willing to present it beore the class.

I was quite proud of them, they had arrived at being their own person, and trying to become a better person. They had friends in autism, treated them as people, they developed Humanity.

It is always a long road as a parent, but I stuck with it, and the outcome is worth the effort. Since I am like a parent defending their child, something expected, when someone else came along and not only defended them, but saw the truth of their behavior and good intentions, wrote, researched, and spoke with the logic and science I had been pushing for years, I faded into the background, and let aghogday defend them.

I took on a new role, that we are not perfect in our views, science is still guesswork, and a lot of what you think you know is wrong, and until you understand that, you will be blinded by the world, other people's self serving goals, like Psychobabble and drug pushers, who all are looking for someone to use.

Something of a stern paternal warning that some kids are fine to hang out with, others will get you in trouble, and I will not be there, you will have to see with clear eyes and pick your own way through the world, and it is important, for you, and for a lot of people who have no hope without you.

It is not what you do but the world's perception of who you are that counts. Feedback is still coming in from words spoken in childish fits of marketing long ago. Behaviors are long remembered, and they are what people will think of you.

As Murphy said, "I built roads, good roads that lasted and still bear traffic, I raised ten sons, taught them trades, they became good men, but get caught screwing one sheep, and guess what you are remembered as."

I am proud of my child, but not of the world, our half knowledge of science, Fortune Tellers that have taken up Psychobabble, drug companies that rate marketing first, and thier profits next. So I took to denounceing the world around them, questioning the motives of all, as all things should be examined.

I thought I knew something. I made a study of it and found that I never knew what I thought I did. Now that I did know I tried to explain it to others, and had to learn again, I am one mind, knowledge is many, so I had to make it exchangable.

Now that I was sure, I set out to write it down for the many I would never come in contact with, and for the long future, and found once again, I know nothing, the more I learn, the less sure of anything I become, and the more open to new thought and knowledge.

If there is one thing I would pass on to my child it is this, knowledge is perfect, we are not.

Nicely put, and you can see this evolution, which has been quite quick, and in the right direction. It should be cause for optimism.

What they don't know is that the world would be VERY DULL without us because we are awesome.

I used to think that autism was some kind of disease thanks to autism speaks. Then I got diagnosed.

The biggest disease is ignorance.
With ignorance comes another disease....hate.

In our society, there is both.

So should there be a campaign with statistics and how much both ignorance and hate costs us?

I can guarantee you it's more than autism.

Non verbal autistic can sing.

[youtube]http://www.youtube.com/watch?v=S5I1VpHDZzg[/youtube]

It's not just autism speaks, you are right.

By Sue Herera Anchor
CNBC
updated 2/23/2005 4:42:11 PM ET

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One of the few things everyone in the autism community agrees on is the value of early intervention — the earlier the better. So imagine if autism could be diagnosed in the first few months of life, or even at birth. That's the goal of some promising new autism research co-sponsored by the National Institutes of Health and the National Alliance for Autism Research.

The project is called "Baby Sibs" because it focuses on the siblings of children with autism. Genetic research has shown that if a family has one child with autism, its chances of having a second child with autism are 1 in 15, well above the regular incidence of as many as 1 child in 166.

The program tracks siblings of children with autism from birth to see if those who do develop the disability show common traits that could lead to new diagnostic tools.

“Over the next few years, we're going to have a range of methods that will help us find children early at risk, maybe as early as four, five, six months of age," said Dr. Fred Volkmar, an expert in autism at the Yale Child Study Center. “And the hope is if we can start the intervention very early, we'll be able, we hope, in many children, to prevent the disability.”

Eye tracking in babies
At Yale, Dr. Ami Klin and Warren Jones have used a special eye tracking device to show that while watching a video, a typical child focuses on the speakers' eyes, while a child with autism watches the speaker’s mouth.

Now the team is figuring out ways to track eye movements of infants to determine whether children who will go on to develop autism demonstrate this viewing pattern as babies.

“The diagnostic value of this project is that we're focusing on very emerging skills, skills that babies are born with,” said Klin. “And we feel it is a disruption of those skills that leads to autism, and so by focusing on those skills we might be able to identify vulnerabilities even before the symptoms of autism emerge and, therefore, push back identification of vulnerabilities to the first months of life.”

At Vanderbilt University in Nashville, Tenn., Baby Sibs research focuses on whether the siblings who go on to develop autism demonstrate rapid head growth in the first few years of life.

"Children with autism have an unusual pattern of head growth," said Dr. Wendy Stone, a clinical psychologist at Vanderbilt. "Their head size as measured externally accelerates, and then it levels off. The question is whether that acceleration in head size can be a marker of autism."

Battle for research funding
But all this research costs money.

“The funding for autism research has increased dramatically,” said Dr. Thomas Insel, director of the National Institute of Mental Health. “In the last four years it's gone up at least threefold; it's now at about $100 million at the NIH."

But NIH spending per afflicted individual still lags well behind most other diseases — with only $66 spent per person with autism.

John Shestack, founder of Cure Autism Now, says that amount is not nearly enough.

“Sixty-six dollars sounds like dinner at the Olive Garden,” he said. “It's not an appropriate response to a national emergency. The rate limiting factor in autism research is money and political will. For the first time ever there is more good science than there is money to fund it.”

But why is it that the money that's devoted to research on autism seems to be much less than that associated with other diseases?

“What you're seeing in autism funding is a very rapid increase,” said Insel. “But you're seeing that increase lag behind what you've seen in other diseases partly because of where we've started from. The percent increase here is huge, 300 percent, but the fact is that before 1999 there was very little investment in autism.”

Search for genetic clues
The NIH is putting the bulk of its funds into genetics research.

Dr. Joseph Buxbaum heads up the Autism Genome Project at the Mount Sinai School of Medicine. Buxbaum says he expects major progress in identifying the genes associated with autism in the next decade.

“I think within ten years we'll have found the genes of major affect and most of the genes of minor affect,” said Buxbaum. “That will then lead to reasonable targets for drug interventions. It will lead to much better diagnosis and certainly earlier diagnosis.”

Buxbaum says there could be a prenatal test within 10 years.

“If we get to the point where we have 10 genes that predict risk to some significant degree, then there is a prenatal test,” he said.

Once genes are identified, there will be targets for drug intervention.

Jansen Pharmaceutica recently applied to the Food and Drug Administration for approval of its antipsychotic drug Risperdal for patients with autism. It's the first time in history a pharmaceutical company has targeted autism as a disease.

“There are over a million and a half people with autism,” said Shestack. “And they have it from age 2 to age 70. And there is a tremendous opportunity for a company that wants to do well by doing good.”

The NIH credits parent advocacy groups for raising awareness and money, and pushing forward research in autism.

In the past 10 years, groups like Cure Autism Now and the National Alliance for Autism Research have raised almost $50 million.

For more information, go to www.autismspeaks.com

http://www.msnbc.msn.com/id/7013251#.T9FftbVef9Y


UNLESS Autism speaks has really changed their stance I can't say I agree with aborting or coercing women by using fear tactics to abort autistic children. So did Autism speaks change their minds really or no?

You can't re-write history on this point.

Those who don't know who these alleged
fraudsters really are, it would be interesting
at this point that the folks at
Autism Speaks are being themselves, Autism
Speaks. As such, it would be humbling if I
must give my opinion about this issue and
give my fifty cents on how this group influences
our society. Sure they have access to a lot of
money, thanks to donors and parents who have their
back on both financial and physical support. But thanks to enlightened minds
and the groups supporting them, Autism Speaks is being asked to
disband, because of nasty things they have done by
themselves in the past. Maybe
because they have been too zealous, or that
they have been traumatised by their own experiences, but whatever those
are, I don't think it'd be ethical if
spawns who were diagnosed autistic while in the womb
of their mothers would be aborted, just like what
the people at Autism Speaks purportedly advocate? That, in my book, is
evil, and that must have irked other autistics. But
one thing is for sure: Does Autism Speaks really speak for us? And do they ever listen?