Curious: What exactly do we hate about Autism Speaks?
02 Dec 2011, 9:12 pm
BuyerBeware wrote:
I hate them because I am f***ing SICK of being seen as a disease, something broken, something that needs to be fixed.
I have strengths and weaknesses-- just like anyone else. Mine are just different.
I am f***ing SICK of hearing about what a burden I am, how hard loving me is, how unfortunate for my spouse and children, how unrewarding it must be for them...
BLAH, BLAH, BLAH.
Autism Speaks has done about as much for my well-being as the kids who pushed me down the stairs and told me to die in grade school.
Autism has a lot more to say than what they're willing to acknowledge.
Bunch of self-righteous NT parents who just want to revel in feeling sorry for themselves because they didn't get the life, or the child, they expected. GET OVER IT!
Love the child-- and the life-- you have. That's what I try to do every day-- and that's what your autistic kid is going to have to do someday. Stop making it harder.
I have strengths and weaknesses-- just like anyone else. Mine are just different.
I am f***ing SICK of hearing about what a burden I am, how hard loving me is, how unfortunate for my spouse and children, how unrewarding it must be for them...
BLAH, BLAH, BLAH.
Autism Speaks has done about as much for my well-being as the kids who pushed me down the stairs and told me to die in grade school.
Autism has a lot more to say than what they're willing to acknowledge.
Bunch of self-righteous NT parents who just want to revel in feeling sorry for themselves because they didn't get the life, or the child, they expected. GET OVER IT!
Love the child-- and the life-- you have. That's what I try to do every day-- and that's what your autistic kid is going to have to do someday. Stop making it harder.
Not all autistic children, have the ability to live independent lives. That's a documented fact. As a person with autism, my child with autism didn't survive, and I would have used whatever means within my power to help my child.
I never felt sorry for myself, I felt for the tortured short life that my child had; my problems as an autistic individual couldn't compare to my child's problems.
Autism is considered to have some genetic basis, so "NT" parents of autistic children, is a bit of a misnomer, unless there is some type of environmental cause that is completely responsible for autism.
Just because a parent is not diagnosed on the spectrum does not mean they would not be diagnosed if they were to go in for a diagnosis.
If one is healthy and their children are healthy, they are certainly blessed, but not everyone is as blessed, and deserve whatever assistance they can get in a life that was not meant to be fair.
And, for those parents that seek whatever hope and/or assistance that may be available for their children, who may have serious disabilities associated with Autism, I personally could never blame them or judge them for seeking help, whereever they can find it.
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
03 Dec 2011, 8:47 am
aghogday wrote:
...
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
(Billions? Where does that come from? Anyway...)
Autism Speaks does not speak "for" any autistics. It speaks "instead of" or "against", but I have yet to see it come out with a single unambiguous statement speaking "for" any autistic.
_________________
"Striking up conversations with strangers is an autistic person's version of extreme sports." Kamran Nazeer
03 Dec 2011, 9:00 am
aghogday wrote:
BuyerBeware wrote:
I hate them because I am f***ing SICK of being seen as a disease, something broken, something that needs to be fixed.
I have strengths and weaknesses-- just like anyone else. Mine are just different.
I am f***ing SICK of hearing about what a burden I am, how hard loving me is, how unfortunate for my spouse and children, how unrewarding it must be for them...
BLAH, BLAH, BLAH.
Autism Speaks has done about as much for my well-being as the kids who pushed me down the stairs and told me to die in grade school.
Autism has a lot more to say than what they're willing to acknowledge.
Bunch of self-righteous NT parents who just want to revel in feeling sorry for themselves because they didn't get the life, or the child, they expected. GET OVER IT!
Love the child-- and the life-- you have. That's what I try to do every day-- and that's what your autistic kid is going to have to do someday. Stop making it harder.
I have strengths and weaknesses-- just like anyone else. Mine are just different.
I am f***ing SICK of hearing about what a burden I am, how hard loving me is, how unfortunate for my spouse and children, how unrewarding it must be for them...
BLAH, BLAH, BLAH.
Autism Speaks has done about as much for my well-being as the kids who pushed me down the stairs and told me to die in grade school.
Autism has a lot more to say than what they're willing to acknowledge.
Bunch of self-righteous NT parents who just want to revel in feeling sorry for themselves because they didn't get the life, or the child, they expected. GET OVER IT!
Love the child-- and the life-- you have. That's what I try to do every day-- and that's what your autistic kid is going to have to do someday. Stop making it harder.
Not all autistic children, have the ability to live independent lives. That's a documented fact. As a person with autism, my child with autism didn't survive, and I would have used whatever means within my power to help my child.
I never felt sorry for myself, I felt for the tortured short life that my child had; my problems as an autistic individual couldn't compare to my child's problems.
Autism is considered to have some genetic basis, so "NT" parents of autistic children, is a bit of a misnomer, unless there is some type of environmental cause that is completely responsible for autism.
Just because a parent is not diagnosed on the spectrum does not mean they would not be diagnosed if they were to go in for a diagnosis.
If one is healthy and their children are healthy, they are certainly blessed, but not everyone is as blessed, and deserve whatever assistance they can get in a life that was not meant to be fair.
And, for those parents that seek whatever hope and/or assistance that may be available for their children, who may have serious disabilities associated with Autism, I personally could never blame them or judge them for seeking help, whereever they can find it.
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
Well, then, clearly YOU are not one of the people I'm bitching about.
I don't blame or judge anyone for seeking help. I'm just sick of hearing about what a burden "we" are.
Come it to that, I am not living an "independent" life. I can't hold a job that pays a living wage, it takes days for me to straighten myself out when I get upset, and I cannot deal with the rare (or not-so-rare) individuals who truly mean me harm. If my hubby weren't taking care of me in exchange for my service, I'd probably be living in the woods or in a shelter somewhere.
I'm still a person. Valuable in my own right. It's just that, thanks to the media climate created in part by Autism Speaks, I have to go out of my way on an almost daily basis to remind myself that I am not merely a burden that everyone would be better off without and, much more often than I would like, to get others to realize/accept that I-- others' abilities notwithstanding-- am not incapable of loving a partner, caring for my children, performing menial adult tasks, being allowed out of the house without a minder, controlling myself to a very reasonable extent without being heavily sedated.
Neither a psychopath, nor a sociopath, nor profoundly retarded-- just a person with a few interesting strengths and a few uncomfortable weaknesses of her own.
I don't deny that Autism Speaks gives something valuable to the parents of profoundly autistic kids.
But don't expect me to turn around and deny that they have, in their own way, made my life (and the lives of a lot of other high-functioning folks) in some ways harder than it was back in the 1980's and early '90s when HFA as a diagnosis barely existed.
_________________
"Alas, our dried voices when we whisper together are quiet and meaningless, as wind in dry grass, or rats' feet over broken glass in our dry cellar." --TS Eliot, "The Hollow Men"
03 Dec 2011, 5:52 pm
lau wrote:
aghogday wrote:
...
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
(Billions? Where does that come from? Anyway...)
Autism Speaks does not speak "for" any autistics. It speaks "instead of" or "against", but I have yet to see it come out with a single unambiguous statement speaking "for" any autistic.
Research has shown up to thirty percent of the population have some traits of autism. There are seven billion people in the world, so there is the potential there, that over two billion have some traits of autism. Just the potential, nothing conclusively proven. Traits of Autism don't cut off, after the diagnosis of autism, research shows they go much further into the population.
That's a pretty sweeping generalization, to suggest that autism speaks does not speak "for" any autistics. The organization is an advocacy organization for individuals with autism and their families,
From their website:
http://www.autismspeaks.org/about-us/press-releases/hacking-autism-technology-tools-selected
Quote:
“Not only have we seen innovations in technology rapidly advance to provide solutions to improve daily life for individuals with autism,” stated Autism Speaks Vice President for Scientific Affairs Andy Shih, Ph.D., “we have seen the tremendous effects of these technologies on language, academic skills, social skills and executive functioning in children with autism.”
This is a positive statement related regarding improving daily life for autistic individuals on their website. When the organization partners itself with another organization to develop and provide communication software to enhance the abilities for autistic people to communicate, as they recently have, they are helping some autistic individuals in the enhancement of their ability to communicate and have a voice in the world.
Not everyone with autism needs the software to enhance communication provided by this effort, but for those that do, it is nothing but a positive action that some autistic individuals will benefit from.
The statement quoted above is definitely a statement that speaks for autistic individuals, not against or instead of them.
03 Dec 2011, 6:14 pm
aghogday wrote:
lau wrote:
aghogday wrote:
...
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
(Billions? Where does that come from? Anyway...)
Autism Speaks does not speak "for" any autistics. It speaks "instead of" or "against", but I have yet to see it come out with a single unambiguous statement speaking "for" any autistic.
Research has shown up to thirty percent of the population have some traits of autism. There are seven billion people in the world, so there is the potential there, that over two billion have some traits of autism. Just the potential, nothing conclusively proven. Traits of Autism don't cut off, after the diagnosis of autism, research shows they go much further into the population.
That's a pretty sweeping generalization, to suggest that autism speaks does not speak "for" any autistics. The organization is an advocacy organization for individuals with autism and their families,
From their website:
http://www.autismspeaks.org/about-us/press-releases/hacking-autism-technology-tools-selected
Quote:
“Not only have we seen innovations in technology rapidly advance to provide solutions to improve daily life for individuals with autism,” stated Autism Speaks Vice President for Scientific Affairs Andy Shih, Ph.D., “we have seen the tremendous effects of these technologies on language, academic skills, social skills and executive functioning in children with autism.”
This is a positive statement related regarding improving daily life for autistic individuals on their website. When the organization partners itself with another organization to develop and provide communication software to enhance the abilities for autistic people to communicate, as they recently have, they are helping some autistic individuals in the enhancement of their ability to communicate and have a voice in the world.
Not everyone with autism needs the software to enhance communication provided by this effort, but for those that do, it is nothing but a positive action that some autistic individuals will benefit from.
The statement quoted above is definitely a statement that speaks for autistic individuals, not against or instead of them.
It does not. It is just another cure story - linked to a poor choice of project name ("Hacking Autism") from HP - who I could have hoped would have known better.
_________________
"Striking up conversations with strangers is an autistic person's version of extreme sports." Kamran Nazeer
03 Dec 2011, 7:55 pm
BuyerBeware wrote:
aghogday wrote:
BuyerBeware wrote:
I hate them because I am f***ing SICK of being seen as a disease, something broken, something that needs to be fixed.
I have strengths and weaknesses-- just like anyone else. Mine are just different.
I am f***ing SICK of hearing about what a burden I am, how hard loving me is, how unfortunate for my spouse and children, how unrewarding it must be for them...
BLAH, BLAH, BLAH.
Autism Speaks has done about as much for my well-being as the kids who pushed me down the stairs and told me to die in grade school.
Autism has a lot more to say than what they're willing to acknowledge.
Bunch of self-righteous NT parents who just want to revel in feeling sorry for themselves because they didn't get the life, or the child, they expected. GET OVER IT!
Love the child-- and the life-- you have. That's what I try to do every day-- and that's what your autistic kid is going to have to do someday. Stop making it harder.
I have strengths and weaknesses-- just like anyone else. Mine are just different.
I am f***ing SICK of hearing about what a burden I am, how hard loving me is, how unfortunate for my spouse and children, how unrewarding it must be for them...
BLAH, BLAH, BLAH.
Autism Speaks has done about as much for my well-being as the kids who pushed me down the stairs and told me to die in grade school.
Autism has a lot more to say than what they're willing to acknowledge.
Bunch of self-righteous NT parents who just want to revel in feeling sorry for themselves because they didn't get the life, or the child, they expected. GET OVER IT!
Love the child-- and the life-- you have. That's what I try to do every day-- and that's what your autistic kid is going to have to do someday. Stop making it harder.
Not all autistic children, have the ability to live independent lives. That's a documented fact. As a person with autism, my child with autism didn't survive, and I would have used whatever means within my power to help my child.
I never felt sorry for myself, I felt for the tortured short life that my child had; my problems as an autistic individual couldn't compare to my child's problems.
Autism is considered to have some genetic basis, so "NT" parents of autistic children, is a bit of a misnomer, unless there is some type of environmental cause that is completely responsible for autism.
Just because a parent is not diagnosed on the spectrum does not mean they would not be diagnosed if they were to go in for a diagnosis.
If one is healthy and their children are healthy, they are certainly blessed, but not everyone is as blessed, and deserve whatever assistance they can get in a life that was not meant to be fair.
And, for those parents that seek whatever hope and/or assistance that may be available for their children, who may have serious disabilities associated with Autism, I personally could never blame them or judge them for seeking help, whereever they can find it.
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
Well, then, clearly YOU are not one of the people I'm bitching about.
I don't blame or judge anyone for seeking help. I'm just sick of hearing about what a burden "we" are.
Come it to that, I am not living an "independent" life. I can't hold a job that pays a living wage, it takes days for me to straighten myself out when I get upset, and I cannot deal with the rare (or not-so-rare) individuals who truly mean me harm. If my hubby weren't taking care of me in exchange for my service, I'd probably be living in the woods or in a shelter somewhere.
I'm still a person. Valuable in my own right. It's just that, thanks to the media climate created in part by Autism Speaks, I have to go out of my way on an almost daily basis to remind myself that I am not merely a burden that everyone would be better off without and, much more often than I would like, to get others to realize/accept that I-- others' abilities notwithstanding-- am not incapable of loving a partner, caring for my children, performing menial adult tasks, being allowed out of the house without a minder, controlling myself to a very reasonable extent without being heavily sedated.
Neither a psychopath, nor a sociopath, nor profoundly retarded-- just a person with a few interesting strengths and a few uncomfortable weaknesses of her own.
I don't deny that Autism Speaks gives something valuable to the parents of profoundly autistic kids.
But don't expect me to turn around and deny that they have, in their own way, made my life (and the lives of a lot of other high-functioning folks) in some ways harder than it was back in the 1980's and early '90s when HFA as a diagnosis barely existed.
Autism speaks is all about giving something valuable to the parents of profoundly autistic kids. It's the only reason the organization exists.
None of their PR stuff identified from a few years ago, that I am aware of that people have seen as offensive, has been aimed at Aspergers, it was aimed directly at regressive autism, as far as I have been able to determine from the PR stuff that people have presented on this site.
My biggest concern, would be that autistic children would see that stuff, and be emotionally traumatized by it. I'm quite sure it would have traumatized me, if I was aware I had Autism as a child and saw the video.
There has been a preconceived notion that children that do not communicate with autism do not understand what is going on around them; a stereotype that has been dispelled in the last few years.
That makes the "I Am Autism Video" a potentially hazardous thing for those children to see for their emotional health. and the other documentary about living with autism every day, potentially emotionally damaging to those children as well.
I can't fault you for identifying with autism speaks portrayal of profoundly autistic children, they don't really specify they are depicting children that are profoundly autistic in those advertisements, but they really haven't focused much of their attention as an organization on portraying Aspergers, particularly folks that are adults who have Aspergers, at least from what I can see.
Listening to this from your perspective, it brings up a really good point, of how the elimination of Aspergers from the DSMV, may cause even more issues for individuals that don't want to feel associated with the depiction of more severely autistic children that has been the standard so far, when autism is portrayed in the media.
On the other hand, maybe some people that do currently experience Aspergers in a disabling way will have access to the support they need, to avoid the life in the shelter or as a homeless individual, when there is no family member for support. That part remains to be seen, I guess.
As far as the sociopath part of it, this depiction of people that go on shooting sprees, associated with Aspergers, really doesn't have anything to do with Autism Speaks as far as I can see, it seems more just the fact the individual happened to have the disorder, and committed a crime.
Unfortunately, that is about the only time anyone hears the word Aspergers in the mainstream media.
I wasn't diagnosed to late in life; from my perspective, I'm glad I escaped one as long as I did.
03 Dec 2011, 8:32 pm
lau wrote:
aghogday wrote:
lau wrote:
aghogday wrote:
...
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
Autism has millions, potentially billions of unique voices, no one, no organization, no medical expert, could possibly understand or come close to speaking for all of them, in how they experience life. And "no one" is inclusive of each autistic individual as well.
(Billions? Where does that come from? Anyway...)
Autism Speaks does not speak "for" any autistics. It speaks "instead of" or "against", but I have yet to see it come out with a single unambiguous statement speaking "for" any autistic.
Research has shown up to thirty percent of the population have some traits of autism. There are seven billion people in the world, so there is the potential there, that over two billion have some traits of autism. Just the potential, nothing conclusively proven. Traits of Autism don't cut off, after the diagnosis of autism, research shows they go much further into the population.
That's a pretty sweeping generalization, to suggest that autism speaks does not speak "for" any autistics. The organization is an advocacy organization for individuals with autism and their families,
From their website:
http://www.autismspeaks.org/about-us/press-releases/hacking-autism-technology-tools-selected
Quote:
“Not only have we seen innovations in technology rapidly advance to provide solutions to improve daily life for individuals with autism,” stated Autism Speaks Vice President for Scientific Affairs Andy Shih, Ph.D., “we have seen the tremendous effects of these technologies on language, academic skills, social skills and executive functioning in children with autism.”
This is a positive statement related regarding improving daily life for autistic individuals on their website. When the organization partners itself with another organization to develop and provide communication software to enhance the abilities for autistic people to communicate, as they recently have, they are helping some autistic individuals in the enhancement of their ability to communicate and have a voice in the world.
Not everyone with autism needs the software to enhance communication provided by this effort, but for those that do, it is nothing but a positive action that some autistic individuals will benefit from.
The statement quoted above is definitely a statement that speaks for autistic individuals, not against or instead of them.
It does not. It is just another cure story - linked to a poor choice of project name ("Hacking Autism") from HP - who I could have hoped would have known better.
If it were not for technological devices for communication, some autistic individuals would have never had the opportunity to communicate with others with language. This effort is aimed in that same direction, and has nothing to do with a cure for autism, instead as specifically indicated in the statement it is about improving the daily life for individuals with autism.
What is it about communication devices or the software for these devices that cures autism? It's an accommodation for communication, not a cure for anything.
That would be like suggesting that a hearing aid was a cure for a hearing deficit.
There are children with autism that have real problems communicating that benefit from technological communication devices.
03 Dec 2011, 9:22 pm
i definatley agree about facilitated communication not being a cure.one point i wanted to make to aghogday is that just because autism speaks is run consistantly and truthfully in line with its mission statement does not make them good.prospective gang members often have to sign a mission statement and promise to give there heart and mind fully to there gang.many of these gang members truly live up to there gangs mission statement,usualy by,asaulting,stabbing and killing as many rival gang members as possable
_________________
Forever gone
Sorry I ever joined
03 Dec 2011, 10:57 pm
vermontsavant wrote:
i definatley agree about facilitated communication not being a cure.one point i wanted to make to aghogday is that just because autism speaks is run consistantly and truthfully in line with its mission statement does not make them good.prospective gang members often have to sign a mission statement and promise to give there heart and mind fully to there gang.many of these gang members truly live up to there gangs mission statement,usualy by,asaulting,stabbing and killing as many rival gang members as possable
There is no all good in anything in relationship to human beings. Anywhere there are human beings there are potential failings, mistakes, and misunderstandings.
Assaults, Stabbings, and Killing is pretty much what is expected from the result of a Gang's mission, but not from a charitable organization.
There are however, many examples of abuses within charitable organizations. Autism Speaks is certainly not immune to this potential, nor is any other charitable organization, because they are composed of humans with positive and negative attributes.
Unfortunately with Autism Speaks, the organization has made mistakes, they as an organization, have publically admitted to that have offended some autistic people. This, however, doesn't mean that the organization is benefitting no one with Autism. That doesn't seem to be a reasonable position to me.
I wouldn't go as far as to suggest they are fully meeting every goal in their mission statement either; but through every third party organization qualified to provide an objective analysis of the organization as a non-profit charitable one, it appears they are meeting or exceeding reasonable standards as they exist for non-profit charitable organizations.
The BBB doesn't hasn't registered any significant, verifiable complaints about the organization either.
04 Dec 2011, 10:11 am
vermontsavant wrote:
i definatley agree about facilitated communication not being a cure.one point i wanted to make to aghogday is that just because autism speaks is run consistantly and truthfully in line with its mission statement does not make them good.prospective gang members often have to sign a mission statement and promise to give there heart and mind fully to there gang.many of these gang members truly live up to there gangs mission statement,usualy by,asaulting,stabbing and killing as many rival gang members as possable
http://en.wikipedia.org/wiki/Facilitated_communication is not what HP have been doing.
http://www.hackingautism.org/ is, but you have to allow HP to run scripts on your browser, or you'll get nothing other than the navigation sidebar.
A quote from there: "Hacking Autism doesn't seek to cure autism, but rather it aims to facilitate and accelerate technology-based ideas to help give those with autism a voice."
Essentially, HP funded development of some apps (some of which were free) for fairly expensive bits of hardware.
As Autism Speaks seems to have been the main arbiter of which apps got to the "gallery", there seem to be only apps for LFA children. I admit didn't look at all 30-odd.
_________________
"Striking up conversations with strangers is an autistic person's version of extreme sports." Kamran Nazeer
04 Dec 2011, 10:54 am
aghogday wrote:
...
The BBB doesn't hasn't registered any significant, verifiable complaints about the organization either.
The BBB doesn't hasn't registered any significant, verifiable complaints about the organization either.
They do seem to have cleaned their act up a little.
http://www.bbb.org/charity-reviews/nati ... rk-ny-1456
It's interesting to see that, for 2010, Mark Roithmayr (President) got $391,892 and Geri Dawson (Chief Science officer) was handed $456,420 - which would be on top of any salary from UNC, etc.
_________________
"Striking up conversations with strangers is an autistic person's version of extreme sports." Kamran Nazeer
04 Dec 2011, 2:46 pm
lau wrote:
aghogday wrote:
...
The BBB doesn't hasn't registered any significant, verifiable complaints about the organization either.
The BBB doesn't hasn't registered any significant, verifiable complaints about the organization either.
They do seem to have cleaned their act up a little.
http://www.bbb.org/charity-reviews/nati ... rk-ny-1456
It's interesting to see that, for 2010, Mark Roithmayr (President) got $391,892 and Geri Dawson (Chief Science officer) was handed $456,420 - which would be on top of any salary from UNC, etc.
The median salary for 2008 for CEO's in the organizations in the fundraising generating category Autism Speaks is in was 336K out of 139 organizations in this category. It is likely they are higher in 2010.
There is nothing at all unusual about the salaries of Autism Speaks employees, other than it looks like too much money, if one is not aware of the complexities of what it takes to run a charitable organization with world wide influence, which includes a global bio-medical research division, or if one is not aware that the salaries paid are close to the mean of salaries paid in similiar sized charitable organizations, in the US.
It's much easier to understand when one gains this perspective.
http://www.charitynavigator.org/__asset__/studies/2010_CEO_Compensation_Study_Revised_Final.pdf
Quote:
Size 2008 Median Salary # of charities
$13.5 - $25 Million - $211,899 - 266
$25 - $50 Million - $265,005 - 229
$50 - $100 Million - $336,104 - 139
$100 - $200 Million -$378,942 - 81
$200 - $500 Million - $429,754 - 46
Over $500 Million -$695,379 - 38
$13.5 - $25 Million - $211,899 - 266
$25 - $50 Million - $265,005 - 229
$50 - $100 Million - $336,104 - 139
$100 - $200 Million -$378,942 - 81
$200 - $500 Million - $429,754 - 46
Over $500 Million -$695,379 - 38
They don't come close to the top 25 CEO compensation packages for Non-profit charitable organizations:
http://www.charitywatch.org/hottopics/Top25.html
Quote:
Harold Varmus, M.D., Past President/CEO Memorial Sloan-Kettering Cancer Center $2,557,403
John R. Seffrin, CEO American Cancer Society $2,222,272
Includes $1.5 million in a retention benefit approved in 2001, "to preserve management stability."
Edward J. Benz, Jr., M.D., President/CEO Dana-Farber Cancer Institute/Jimmy Fund $1,252,705
Robert J. Mazzuca, Chief Scout Executive Boy Scouts of America - N.O. $1,211,572
Thomas C. Nelson, Past Ex-Officio/Past COO AARP Foundation & AARP, respectively $1,176,614
Includes a separation payment of $682,285. The full amount of Thomas Nelson's compensation was paid by AARP, not AARP Foundation.
Edwin J. Feulner, Jr., President Heritage Foundation $1,098,612
Harry Johns, President/CEO Alzheimer's Association - N.O. $1,065,524
Includes $392,218 retirement and other deferred compensation.
Ernest Allen, President/CEO National Center for Missing & Exploited Children $1,057,604
Includes $432,542 retirement and other deferred compensation, of which $338,953 is a catch-up amount for underfunded retirement benefits in previous years.
Gail McGovern, President/CEO American Red Cross $1,032,022
Includes a one-time reimbursement of $473,570 for relocation costs to work at the national headquarters.
Wayne LaPierre, Executive VP/Ex-Officio National Rifle Association & Foundation, respectively $970,588
Christopher DeMuth, Past President American Enterprise Institute for Public Policy Research $939,059
Includes $528,972 in supplemental executive retirement plan payments.
Steven E. Sanderson, President/CEO Wildlife Conservation Society $927,534
Michael L. Lomax, President/CEO United Negro College Fund (UNCF/The College Fund) $877,582
Includes $686,080 in retirement funds for 5 full years of service.
Joseph V. Haggerty, COO
United Way Worldwide $864,875
Includes $318,578 SERP imputed income.
Jonathan W. Simons, M.D., President/CEO
Prostate Cancer Foundation $850,188
James E. Williams, Jr., President/CEO Easter Seals $833,000
Alan J. Lewis, Past President/CEO Juvenile Diabetes Research Foundation International $813,732
Joseph Krajbich, M.D., Orthopaedic Surgeon Shriners Hospitals for Children $807,917
Includes $401,435 retirement and other deferred compensation.
William E. Evans, Director/CEO St. Jude Children's Research Hospital/ALSAC $795,538
Robert J. Beall, President/CEO Cystic Fibrosis Foundation $760,446
Rabbi Marvin Hier, President/CEO Simon Wiesenthal Center $759,026
Howard Rieger, President/CEO Jewish Federations of North America $707,454
Shulamith Bahat, Past Associate Executive Director American Jewish Committee $706,563
Includes $530,798 deferred compensation and retirement payments in respect to 50 weeks salary and accrued vacation.
Rabbi Yechiel Eckstein, President
International Fellowship of Christians & Jews $702,417
Abraham H. Foxman, National Director Anti-Defamation League of B'nai B'rith $689,398
John R. Seffrin, CEO American Cancer Society $2,222,272
Includes $1.5 million in a retention benefit approved in 2001, "to preserve management stability."
Edward J. Benz, Jr., M.D., President/CEO Dana-Farber Cancer Institute/Jimmy Fund $1,252,705
Robert J. Mazzuca, Chief Scout Executive Boy Scouts of America - N.O. $1,211,572
Thomas C. Nelson, Past Ex-Officio/Past COO AARP Foundation & AARP, respectively $1,176,614
Includes a separation payment of $682,285. The full amount of Thomas Nelson's compensation was paid by AARP, not AARP Foundation.
Edwin J. Feulner, Jr., President Heritage Foundation $1,098,612
Harry Johns, President/CEO Alzheimer's Association - N.O. $1,065,524
Includes $392,218 retirement and other deferred compensation.
Ernest Allen, President/CEO National Center for Missing & Exploited Children $1,057,604
Includes $432,542 retirement and other deferred compensation, of which $338,953 is a catch-up amount for underfunded retirement benefits in previous years.
Gail McGovern, President/CEO American Red Cross $1,032,022
Includes a one-time reimbursement of $473,570 for relocation costs to work at the national headquarters.
Wayne LaPierre, Executive VP/Ex-Officio National Rifle Association & Foundation, respectively $970,588
Christopher DeMuth, Past President American Enterprise Institute for Public Policy Research $939,059
Includes $528,972 in supplemental executive retirement plan payments.
Steven E. Sanderson, President/CEO Wildlife Conservation Society $927,534
Michael L. Lomax, President/CEO United Negro College Fund (UNCF/The College Fund) $877,582
Includes $686,080 in retirement funds for 5 full years of service.
Joseph V. Haggerty, COO
United Way Worldwide $864,875
Includes $318,578 SERP imputed income.
Jonathan W. Simons, M.D., President/CEO
Prostate Cancer Foundation $850,188
James E. Williams, Jr., President/CEO Easter Seals $833,000
Alan J. Lewis, Past President/CEO Juvenile Diabetes Research Foundation International $813,732
Joseph Krajbich, M.D., Orthopaedic Surgeon Shriners Hospitals for Children $807,917
Includes $401,435 retirement and other deferred compensation.
William E. Evans, Director/CEO St. Jude Children's Research Hospital/ALSAC $795,538
Robert J. Beall, President/CEO Cystic Fibrosis Foundation $760,446
Rabbi Marvin Hier, President/CEO Simon Wiesenthal Center $759,026
Howard Rieger, President/CEO Jewish Federations of North America $707,454
Shulamith Bahat, Past Associate Executive Director American Jewish Committee $706,563
Includes $530,798 deferred compensation and retirement payments in respect to 50 weeks salary and accrued vacation.
Rabbi Yechiel Eckstein, President
International Fellowship of Christians & Jews $702,417
Abraham H. Foxman, National Director Anti-Defamation League of B'nai B'rith $689,398
04 Dec 2011, 3:21 pm
lau wrote:
vermontsavant wrote:
i definatley agree about facilitated communication not being a cure.one point i wanted to make to aghogday is that just because autism speaks is run consistantly and truthfully in line with its mission statement does not make them good.prospective gang members often have to sign a mission statement and promise to give there heart and mind fully to there gang.many of these gang members truly live up to there gangs mission statement,usualy by,asaulting,stabbing and killing as many rival gang members as possable
http://en.wikipedia.org/wiki/Facilitated_communication is not what HP have been doing.
http://www.hackingautism.org/ is, but you have to allow HP to run scripts on your browser, or you'll get nothing other than the navigation sidebar.
A quote from there: "Hacking Autism doesn't seek to cure autism, but rather it aims to facilitate and accelerate technology-based ideas to help give those with autism a voice."
Essentially, HP funded development of some apps (some of which were free) for fairly expensive bits of hardware.
As Autism Speaks seems to have been the main arbiter of which apps got to the "gallery", there seem to be only apps for LFA children. I admit didn't look at all 30-odd.
It seems obvious that the program is directed at children with deficits in communication, so it's not too suprising that the software is not directed towards children that can communicate well. No evidence that autism speaks was the main arbiter of which apps got to the gallery. The Doug Flutie Organization was partnered in this effort also.
Anyway, this is what it is all about:
Quote:
Jordan: Freedom: Jordan has evolved from a non-communicative and tortured boy trapped in his body to a young man brimming with possibilities and stories to tell. His heart-warming and eloquent "Silent No More" passage recounts this journey and the role technology played in setting him free. Jordan's touching words inspired our Hacking Autism logo–a freed bird with a song to sing.
That's not autism speaks quote; it's HP's quote, and it's not the story of an organization, it is a story of a boy who was helped by technology to make contact with the world.
http://www.hackingautism.org/#/idea-gallery
HP, Autism Speaks, and the Doug Flutie organization are all working together to enhance the ability of autistic children to have a voice in the world. There is no way to get around that fact. And there is nothing negative about free software, that enables the children to enhance and achieve their communication goals.
04 Dec 2011, 3:38 pm
vermontsavant wrote:
i certainly dont think autism speaks is going to be commiting any violent crimes.it was an analogy that illustrates that not being hypocritical or meeting ones mission is not and end's in and of itself.
No problem, I realize you where making an analogy, but some do take things a bit literally, so I just wanted to clarify, in case anyone listening too it, took it as a literal statement rather than an analogy, particularly with all the past talk about NAZI's, and Eugenics.
Some people have taken those NAZI statements literally in the past, and literally think autism speaks is trying to get rid of autistic people, as per what happened in the Holocaust.
The NAZI talk, is no less potentially psychologically damaging than the offensive videos that Autism Speaks made, for people listening in on the website here, that don't realize that's an extreme analogy, also, although as sad as it may be, some people seem to intend it as a literal statement as well.
04 Dec 2011, 7:26 pm
http://en.wikipedia.org/wiki/Godwin's_law
_________________
"Striking up conversations with strangers is an autistic person's version of extreme sports." Kamran Nazeer
| Similar Topics | |
|---|---|
| teen who was shot speaks after case dismissed |
05 Jun 2025, 7:54 pm |
| Sometimes I Hate Being Autistic. |
25 May 2025, 9:08 pm |
| I HATE CHAPPEL ROAN. |
28 Jun 2025, 11:42 pm |
| Random thing you hate for no particular reason |
25 minutes ago |
