Autism squeaks, but it's better than Autism Squeaks speaking

Post Reply New Topic

i meant he could be lying about what the slogan meant.

It's always possible than anyone could be telling a lie at any moment. Most are judged by their reputation. In this case the individual that made the statement, Bob Wright, has a storied career as the vice president of GE, the president of NBC, and founder of the networks MSNBC, and CNBC. His Bio in Wiki presents a life of achievement without any accusations from reputable sources that this individual lived anything but a reputable life. There are lots of bio's in Wiki that include the achievements and mistakes people make in life, per skeletons that exist in people's closets. I tend to judge people by their actions, and up until this point there is no evidence that this individual has ever made any public statements evidenced as lies, and he has been scrutinized in public life, almost his entire life. There aren't many people that can meet those type of standards, particularly at the highest levels of effort at success in society.

But don't take my word for it, I am just an anonymous person on the internet, the information is documented:

http://en.wikipedia.org/wiki/Bob_Wright

No doubt he knows how to build a business. He produces products that sell.
SCI FI Channel, has my support.

Spreading uninformed opinions about my life, Neurology, without ever asking, comes out like, "Jews are the problem." At least go meet some Jews before making such statments.

Second, he is going to represent the families of the autistic. Most people have some problems with their family, it is not just the autistic.

Jews are the problem so we are going to Speak for Semites. We will eradicate them, drive them into the sea, clean the earth of them!

We support the genetic misfits that produced the autistic.

I vary in my view, is he calling for Genocide, or Eugenics?

One thing I am sure of, he in no way supports my tribe.

He wants to raise money from my people to buy the weapons to destroy them.

Screwing people does work at GE, Look at that Reactor they sold the Japanese. Consolidating Media does produce a larger market, until it is like owning all the news papers no longer read, and now the TV, who is losing viewers to the internet, where it is free, and comes from many points of view.

Being the Mouthpiece for the Establishment is so 70s.

Look what credits his group owned, mass unemployment, America losing 40% of our net worth, National debt heading for Greek levels, and over a 100,000 dead in Iraq, or a million, plus, ignored by the controlled media.

He has shown his loyalities, he offshored the DNA to China.

This guy made some money, selling out my Tribe, Nation, Economy, our place in the world, and our future.

Psychopath Suits that killed the American Dream, for money.

If there is ever any money for Autism, Bob wants to suck it up for his tribe of money suckers. They are living large off of exploiting another group.

70,000 have joined Wrong Planet, none has ever said, Autism Speaks did me right.

Now the Mouthpiece for Psychbabble and Drug Pushers, anything to stay in the game, and run it down till it is a wasteland.

Bob did great! That is all that counts.

I see this thread has become what I like to call a typing competition, where the person who posts last or writes the longest, most circular and indecipherable posts wins.

Let's go over some things:
**An organization that wishes to represent a group of people cannot both represent them and not represent them at the same time.
**An organization claiming to represent any members of a group will at face value be taken as representing the entire group.
**Medical research to help disorders and conditions is welcomed by communities, research to purge it from existing "sufferers" is no better than finding a cure for faith or sexuality.
**There is nothing wrong with supporting Autism Speaks.
**There is something wrong however in negating what the organization is and isn't in order to convince everyone said organization is working in THEIR best interests.
**Expanding on the above point, individuality and free thought is sure a b***h! How dare people determine what their best interests are!

aghogday. Just so you know, there are a lot of influential people out there that do a lot of good work on the surface but are also capable of being quite the sociopath and pursuing twisted agendas. Ever looked into the guy behind Kony 2012? Or what about all those lovely motor companies finding new green ways to make cars run when they already bought up heaps of working green or renewable free energy patents?

If you ask me, I think you should find a new special interest.

I've done a pretty extensive search and can't find any reputable verifiable third party source that has anything but good things to say about Bob Wright's reputation. In fact, Tom Browkaw wrote a piece about him for the 2008 edition of Time's top 100 influential people in the world, where Bob Wright and his wife were listed among the heroes in the world. Also regularly interviewed by Charlie Rose, still up for view in archives.

As reported by Brokaw they started off with modest means worked hard, and didn't forget their roots, as they used their resources to help people other than themselves. They could have focused their resources on their grandson and left it at that.

Tom Brokaw, has an excellent reputation as well, knowing Wright for two decades, working for him and writing about him after they parted ways in the NBC organization.

It's not that Bob Wright is a saint, or that there are too many CEO's of major corporations out there that care about people other than themselves, but it's pretty unlikely that they are bad people that had Tom Brokaw fooled for two decades.

http://www.time.com/time/specials/2007/article/0,28804,1733748_1733756_1735237,00.html

There is no doubt that the founders started off with absolutely no knowledge about autism, as the founder readily admitted to that in another article as all he could think of was "Rainman" after a diagnosis was provided after three days of extensive testing where the doctors said there would no treatment for his grandson reported as hiding under tables and biting. He wasn't going to settle for that answer and did have the resources to pursue answers.

That's had some twisting and some turns, but the world without Bob Wright and the organization he founded would have meant a great deal more hardships for people that benefit from the efforts the organization has been evidenced as successful in to date; particularly advocacy efforts with that influence provided by someone of his reputation and those he hired, that has led to insurance reform and expansion of insurance programs for the coverage of treatment of autism spectrum disorders.

He found out that some people not of his fortune were having to take 2nd and 3rd mortgages out on their homes to gain the best support for their children with autism spectrum disorders, and decided he was going to do something for those disenfranchised families, giving them a voice on the national level that has indeed made a difference in a significant number of lives, if just for the parts specific to insurance reforms through that influence in advocacy efforts.

http://money.cnn.com/magazines/fortune/fortune_archive/2007/03/05/8401263/index.htm

There is no way autism speaks would have been possible without this unique man's knowledge, resources, influence, and the will to make it happen.

It would be hard for anyone to tarnish his evidenced reputation, as it stands. That can't be said for too many high powered CEO's, of big corporations, spending decades in that arena. From the evidence that exists in this case, apparently they are not all bad people, when it comes to caring about others that aren't as advantaged as they are. But, still human and subject to human error.

First of all, the research that autism speaks funds is a little bit more than a special interest of mine, as I had a child that died as a result of an immune system co-morbid problem associated with autism, that autism speaks has in part funded research for. You are not going to convince me that if it was possible to purge a condition like that associated with an autism spectrum disorder that it would be the equivalent of curing one's sexual orientation.

It's not likely that condition is going to be purged but you can bet it's worth a try.

As far as your other points, there are many examples of organizations that attempt to represent people and do not effectively represent them. Autism speaks already made that clear here in the interview provided on this website that not everyone is pleased where their focus is in research, in what is understood as the entire autism community of families friends and individuals with autism spectrum disorders.

There are plenty of organizations that represent members of an identified group that aren't considered at face value representing other members of a group, because of differing needs. I've had autism for decades, and still don't see the organization representing myself at face value, because there is nothing the organization can possibly do for me as an established adult, however they definitely represent the needs at face value for many other people across the spectrum, including children with serious co-morbid conditions that I can relate to on a personal basis.

And as far as your last two points, every person's best interests are subjective and vary among individuals; it is not likely that any organization could meet the best interests of all they intend to represent no matter how hard they try, particularly large organizations serving large groups. However in some cases it can be evidenced what organizations do not do, and that was the point that I was addressing.

My point was on evidence of the founder of the organization's intention in coming up with the idea of autism speaks. I have provided several different resources including his own comments as to what his intention was per the idea of "autism speaks" to give a voice to families effected/disenfranchised nationwide, whom were in the same situation that he was in with his grandson.

It was not an evidenced intention to speak for individuals with autism that can speak for themselves, as is often an interpretation of that intended phrase that upset some because they can speak for themselves, as well as some that report that they don't struggle with symptoms of autism, nor do some see themselves as having a disorder, dysfunction, or disability. That's not a problem, but others look toward the mission of the organization as a valuable one, making a significant difference in the lives of some individuals.

The phrase autism speaks and what it means per that intention is a separate issue than what the organization's overall mission is as evidenced in their 2010 annual report, which in part is to help all those that struggle with autism.

There is not necessarily anything to be done for those that do not require assistance from the organization with autism spectrum disorders, particularly those having no idea the organization exists, requiring no assistance. But that doesn't necessarily mean that's not going to change in the future for those individuals, only time will provide that answer.

I present the evidence that I find on the issue, and don't expect anyone to agree with it.

I'm sorry if you don't like my wordy communication style, but it is what it is. And not everyone here has the same abilities in communication. It is after all a support site for individuals with autism spectrum disorders, of which I am part of that overall group.

There is no one organization that can possibly represent, provide a voice, or meet the needs of all individuals with autism spectrum disorders, and associated family members or friends, or even reach all of the individuals in effective communication that they exist as an organization to help them. The government can't even do it, at this point in time.

[quote="Inventor"]No doubt he knows how to build a business. He produces products that sell.
SCI FI Channel, has my support.

Spreading uninformed opinions about my life, Neurology, without ever asking, comes out like, "Jews are the problem." At least go meet some Jews before making such statments.

Second, he is going to represent the families of the autistic. Most people have some problems with their family, it is not just the autistic.

Jews are the problem so we are going to Speak for Semites. We will eradicate them, drive them into the sea, clean the earth of them!

We support the genetic misfits that produced the autistic.

I vary in my view, is he calling for Genocide, or Eugenics?

One thing I am sure of, he in no way supports my tribe.

He wants to raise money from my people to buy the weapons to destroy them.

Screwing people does work at GE, Look at that Reactor they sold the Japanese. Consolidating Media does produce a larger market, until it is like owning all the news papers no longer read, and now the TV, who is losing viewers to the internet, where it is free, and comes from many points of view.

Being the Mouthpiece for the Establishment is so 70s.

Look what credits his group owned, mass unemployment, America losing 40% of our net worth, National debt heading for Greek levels, and over a 100,000 dead in Iraq, or a million, plus, ignored by the controlled media.

He has shown his loyalities, he offshored the DNA to China.

This guy made some money, selling out my Tribe, Nation, Economy, our place in the world, and our future.

Psychopath Suits that killed the American Dream, for money.

If there is ever any money for Autism, Bob wants to suck it up for his tribe of money suckers. They are living large off of exploiting another group.

70,000 have joined Wrong Planet, none has ever said, Autism Speaks did me right.

Now the Mouthpiece for Psychbabble and Drug Pushers, anything to stay in the game, and run it down till it is a wasteland.

Bob did great! That is all that counts.[/quote]

i'd like this if there were a like button. +1

@aghogday thanks for clarifying your position on this and giving information / reasons why you support AS. With the utmost respect for what you have written (your last post was very humble) I will agree to disagree and let you press forward. Enjoy the discussion.

-JM.

Thanks, it's not likely autism speaks is looking toward anyone that posts in these forums as a potential financial supporter, anymore than the muscular dystrophy association is looking for contributions from those that have that disorder, as both can be disabling, but muscular dystrophy is overall more likely to be incapacitating. It is more likely that if autism speaks were too read here it would be to learn how people feel about the issues associated with that organization. I see a unique value in their research, but can see unique value in most things in life. I try to provide a different perspective, as there are usually no fine lines that separate what is good and bad in life.

Charity is a business, a big business, this one has raked in a half billion.

Like a religion their higher truths are not open to being questioned, and and picking some topics from the focus groups, they shape the media message.

We study co morbid conditions that might be associated with autism, even though Autism it's self is not understood,

Because the money is for Autism, many other conditions are being brought in that have no proven connection to Autism, but they do bump up the numbers, and widen the donor base. Fetal Alcohol Syndrom, Mental Retardation, Birth Defects, are now all held to have a possible connection to Autism, for funding and fund raising.

Big tent Autism has taken in all of the back ward problems, the minority defects, and pushed Autism out of the tent. All they wanted was the name and the money. There are enough defects to study forever and do nothing, but cash the check.

Mainstream Autism has become the orphan, while every condition under the sun is being called autism. There have always been some hopeless cases, but Autism, as defined by Asperger, all of his cases grew up, and merged into life, with more or less problems, no one did followup, but it was established, they were the more common version of autism, and were almost human.

This is the front line, not those in the back wards with lots of autisms as Tangerineman man said he learned from Autism Speaks,

It is job security for the charity business, but it is not a study focused on Autism.

It has not been an educational organization. A Chapter formed in New Orleans, Just by the numbers we have at least 2,500 autistics. A half dozen people got together, looking for some information, education, and what they got was instructions to buy some t shirts, and go collect from everyone you know, and send the money to New York. The Chapter disbanded.

Our part in autism was to stand at red lights with buckets, begging in the streets. We also were expected to buy our begging shirts. All that was gotten from Autism Speaks was a goal to raise $5,000 for them.

What people wanted was information, and a half billion dollars later, there has yet to be a one page news letter.

People who donate do want to know where their money is going, half to New York suits for funraising, and half to the Chinese to study our DNA, was not a program that could be sold in New Orleans.

What people wanted was some knowledge, an overview of autism, what we got was go to the web site and Marketing will take care of telling you what you need to know to raise funds for marketing.

New Orleans is Civic, and has long had a tradition of public support of the Arts, Public Health, Universal Health Care through the Charity Hospital System for all. Museums, Universities, Symphonies, and Mardi Gras is privately funded.

If you want funds for a Museum, you had better be able to speak art, with people who know art.

We know what a crook looks like, sounds like, and smells like, Autism Speaks flopped in this town. We have leading Universities who do a lot of work in Public Health, The Tulane School of Medicine was almost everything in developing Tropical Medicine. Their recent work has been a study of Lead, and the social and medical effects there of. Working with the University of Colorado, the study was national, peer reviewed, and they say a lot of what Autism Speaks is claiming to be Autism, is Lead Poisoning.

Autism Speaks is not peer reviewed, published, and does not make the entire results of their funded studies public, like honest people do.

All they make is unsupported claims, backed up by Marketing Professionals.

They also make $25,000,000 a year doing so. Another $25,000,000 goes for vauge unfocused Studies, that are not published.

It is not Civic, not Science, it is The Charity Business.

The research grants the organization funds result in peer reviewed published studies. The organization links the grants they fund, at the link below by year, providing full descriptions of the studies, as well as links to the organizations that have been funded to do the studies, where publications of the completed peer reviewed published studies can be found.

http://www.autismspeaks.org/about-us/grant-search

The annual reports and form IRS form 990's are provided on the website that provides a detailed analysis of where the money goes, which is detailed by a pie graph on the third party watch dog group the charity navigator organization that analyzes non-profit charities at this link:

http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=12720

4.5% of the 50 million dollars in revenue went for administration expenses that include salaries.

In the more detailed report linked below in the Annual Report for 2010, Over 21 million was spent on total research expenses, as detailed, inclusive of over 14 million dollars awarded in grants and awards for research. Over 15 Million dollars was spent on awareness and services expenses. Over $2 million dollars was spent on Administration expenses, including salaries expenses, and over 11 Million dollars was spent on fundraising expenses.

http://www.autismspeaks.org/sites/default/files/documents/as_annual_report_2010-web_01.pdf

Autism Advocacy along with research, awareness, services and fundraising is evidenced as resulting in a complex organization that involves technical expertise in business, marketing, finance, public relations, and science.

These are not unsupported claims; they are evidenced facts.

The Charity Business is legal.

The problem is like AIDs, yes, it is a problem. There is an association of homosexuals with AIDs, some of them are bisexual, and others just into IV drugs. Some are hookers, their customers, and the customers other wives girlfriends, and what not.

AIDs Speaks, to the Families of homosexuals, promotes Awareness that Homosexuals cause AIDs, and raises money to study AIDs.

I would say you are defaming homosexuals without AIDs, excluding them from the process, and putting Hetrosexual New York Suits in charge of the Message, and Money.

Autism and Autistic are much the same. Autism can be a real problem, we know it. The vast majority of Autistic are not back ward problems, but we are all painted with the same brush.

There is a connection of Black People and being in jail. Most Black People are not. An organization run by Non-Black People, called Black Crime Speaks, would be called racist even if they hired the best white people.

Islam Speaks would have the same problem.

Native American Speaks.

Amish Speaks.

Autistics outnumber most of them. It is a set of traits that are shared by perhaps 30% of the population. Now everyone who fiddles with a pen while speaking, who does not make intense eye contact, is being publically labeled. Public perception being what it is, they see one of those brain damaged ret*ds with that Autism Disease.

I do have a vested self interest in this, my life has not improved because of money sucking New York Psychopath Suits. Not caring about others does define the type.

Based on one claimed case, who is most likely in a Private Prep School now, who may or may not have a Dx, they have laid claim to the lives of millions, who they will not speak to.

Autism was considered a childhood condition, we are known for getting better, and for just being a girl, passed without notice.

We all knew we were different, and everyone is. Not the worst by far.

Autism is measured among eight year olds going into Third Grade. They did the school thing and passed. They are not chained to a wall in a back ward. They are functioning eight year olds, most likely with strong educational skills. They will have a few problems, all kids do, and a big one, becoming teens in five years.

Autism is just not that big of a deal for the vast majority. Comparing it to Muscular Dystrophy is way over board. Those people get worse and die, Autistics function, finish school, and after the teen years, do usually function in the world of employment.

A lack of social skills? Yes, and like that Liz girl on the first page, every time I see her I know she just wants me. Alex is showing that stuff can be taught, and comes in real useful. She got a Degree in Flirting? Life is good!

Psychopath Suits have ripped employment, but if there were jobs, we could learn how to get and keep them. Just because it does not come natural, it can still work for us.

We also have our natural strong points, we have survived much worse times. What we need to learn is how to be us, not how to prevent or cure us. Particularly when the chosen model of perfection is a Psychopath Suit.

We have been around for thousands of years, we are a type, and it is a rejection of humanity the way we are being labeled. We provide many useful services, have talents, and a few quirks.

This article about us in The New York Daily News is pure slander.

I don't fault Mr. Bob Wright for mobilizing his resources to help his grandchild and others with regressive Autism; i would have done the exact same thing under similar circumstances IF I had his influence.

The most diagnosed form of Autism Is PDD-NOS not Aspergers or Classic Autism. With PDD-NOS, Classic Autism to High Functioning Autism, and Aspergers, there exists a large number of people who have Autistic Traits and/or co-morbids THAT prevent them from functioning IN society.

It is a spectrum THAT can NOT be neatly packed in exact pre-defined categories. There are commonalities shared with individual characteristics THAT span the full breadth of humanity as should be expected. It's no coincidence THAT there are some Adults with Aspergers who can't hold down a job yet there are some Adults with so-called 'low functioning Autism' who can.

It's NOT Clear Cut.

In regards to Autism Speaks, Autistics can't have a combative relationship with this organization and then in turn expect help. One can not dictate the agenda of an organization THAT clearly represents a group who are part of the Autism Community. Adult Autists are either going to have to expand their view of an Autistic agenda THAT along with education and services includes genetic and brain research or start/develop organizations THAT focus on THEIR own agenda.

One more thing, and again I will choose my words carefully. All is NOT always as it seems. In the vast majority of movements THAT caused social change, there were people with resources( who did not necessarily belong to the group within the movement )THAT were backing these movements/grass root efforts.

Resources were made available to these so-called movements because people believed in their agenda.

TheSunAlsoRises