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sinsboldly
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27 Sep 2009, 7:23 pm

[youtube]http://www.youtube.com/watch?v=SXYN5kZrgyo&NR=1[/youtube]

"I'm autistic: I can speak
My voice is different, not weak
And if you listened you would know my mind's the same
I'm grateful that you don't ignore me
But you cannot speak for me
So let me on your board or change your name

Yes, I am odd
And that difference causes pain
That don't make you God
And it don't make you sane
I'm your equal in my humanity
I am smart
I am sensitive
I'm autistic

I'm autistic, I am real
I can think and I can feel
I'm a lover, I'm a husband, I'm a wife
So please don't hire a muggle
Who can't understand my struggle
To make a horror movie from my life

I'm autistic, please endure me
Even if you cannnot cure me,
Please don't tell me that my life is yours to take
I'm autistic, please support me
It's too late now to abort me
But there's still time for the difference I can make"


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Aimless
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27 Sep 2009, 8:11 pm

That was a good video, but I would have really liked to have seen video of people with autism speaking for themselves. I saw the "I Am Autism" video afterwards and thought is was extremely heavy handed. I'm a little confused when I see a kid standing by himself and I'm told that this is such a big tragedy. To me the idea of never being alone is what's truly frightening.



anneurysm
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27 Sep 2009, 8:44 pm

Great video! I too checked out the original Autism Speaks video...it broke my heart. My feelings about this are summed up in one of the comments on it:

"Diversity is a GIFT to the human race. To cure an autistic person is to remove them from being. How will a prenatal test tell if a fetus is low or high functioning on the autistic spectrum? A marker for the autistic gene will show up invetro, so future wonderful, gifted people will never come to be. The cure will be a death sentence for human beings."


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Given a “tentative” diagnosis as a child as I needed services at school for what was later correctly discovered to be a major anxiety disorder.

This misdiagnosis caused me significant stress, which lessened upon finding out the truth about myself from my current and past long-term therapists - that I am an anxious and highly sensitive person but do not have an autism spectrum disorder.

My diagnoses - social anxiety disorder and obsessive-compulsive disorder.

I’m no longer involved with the ASD world.


sinsboldly
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27 Sep 2009, 9:15 pm

Aimless wrote:
That was a good video, but I would have really liked to have seen video of people with autism speaking for themselves. I saw the "I Am Autism" video afterwards and thought is was extremely heavy handed. I'm a little confused when I see a kid standing by himself and I'm told that this is such a big tragedy. To me the idea of never being alone is what's truly frightening.


here is the lead story on the Portland, OR news channel of Autists speaking for themselves.
http://www.koinlocal6.com/content/media ... vCatId=156


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27 Sep 2009, 9:38 pm

It wouldn't play for me. I've seen the newscast of the protesters carrying signs if that's what you meant. Autism Speaks talks about people with autism like they've been possessed by demons. I'd like to see some people talk about their autism like some here on WP have posted on YouTube, but in particular their reaction to Autism Speaks agenda. Autism Speaks plays a great game of boohooing about the tragedy of isolation but they are actually reinforcing that very thing. It's very condescending.



Ravenclawgurl
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27 Sep 2009, 10:22 pm

judt another reason for me to not to like alfonso cuaron




he ruined the harry potter movies

his rendition of Prizoner of azkaban was completly difeerent from the book

plus he told everyone to "modern up" when the book took place in 1993!! !! !


im sorry, my obssesion is the harry potter books and im still mad he ruined the movie!! !! !! !! !! !! !! !! !! !! !! !! ! !



Sarafina7
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28 Sep 2009, 1:50 pm

Ravenclawgurl wrote:
judt another reason for me to not to like alfonso cuaron




he ruined the harry potter movies

his rendition of Prizoner of azkaban was completly difeerent from the book

plus he told everyone to "modern up" when the book took place in 1993!! !! !


im sorry, my obssesion is the harry potter books and im still mad he ruined the movie!! !! !! !! !! !! !! !! !! !! !! !! ! !

You don't have to apologize. My interest is also Harry Potter and I didn't like The Prisoner of Azkaban Movie.



Danielismyname
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29 Sep 2009, 3:20 am

Most (82%) with Autistic Disorder (LFA/HFA, not AS) can speak adequately as adults. (Source: American Psychiatry Textbook and Professor Attwood.)

I don't know why people continue to purvey that "real" autistic people can't talk. "We've" been talking back since Kanner's days [and then some].

I didn't mind the Autism Speaks video though, as I see that carers and caring siblings are unsung heroes, not just the people who have to live with it themselves (where basic day to day stuff is an arduous struggle in the least).



Featherways
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29 Sep 2009, 9:06 am

I'm so often told by Autism Speaks supporters that if I can talk, that means that I have no problems. How they get this idea I have no clue. Yes, I can talk, but it Q means that I can get myself into one diplomatic nightmare after another, not that I have this amazing skill with words. I find it massively hard to advocate for myself most of the time, because although I know the words, I can't use them well enough to make a difference. And if 90-95% of communication betwen other people happens using non-verbal stuff, that means I'm also missing 90-95% of what's happening when two people meet. No wonder I am often so confused about communication and others are so confused about exactly what I mean or what I am thinking. Having some use of language is not necessarily better than having little use of it - it's just a different kind of problem.



trekster
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30 Sep 2009, 1:50 pm

the autreach IT organisation (which promotes alternative communication aids to speech) mentioned something that sticks in my mind.

"not being able to speak is not the same as having nothing to say"

Alexis


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