Page 1 of 1 [ 5 posts ] 

Tahitiii
Veteran
Veteran

User avatar

Joined: 1 Jul 2008
Age: 70
Gender: Female
Posts: 2,214
Location: USA

11 Jan 2010, 5:49 pm

I want to say, "don't support them." Ok, who should I recommend instead?
Some people actually want to give money or other kinds of support.
ASAN (Ari Ne'eman, et.al) and ANI (Jim Sinclair) make sense to me, but their message is too complicated. Who is out there and active in a way that the average non-thinker can appreciate in fifteen seconds or less?



zeichner
Supporting Member
Supporting Member

User avatar

Joined: 10 Sep 2008
Age: 67
Gender: Male
Posts: 689
Location: Red Wing, MN

11 Jan 2010, 7:49 pm

There's Autism Society of America - http://www.autism-society.org

This is from their Mission & Vision page:

Quote:
Our Mission
Improving the lives of all affected by autism

Our Vision
The Autism Society is the leading voice and resource of the entire autism community in education, advocacy, services, research and support. The Autism Society is committed to meaningful participation and self-determination in all aspects of life for individuals on the autism spectrum and their families. The Autism Society accomplishes its ongoing mission through close collaboration with a successful network of chapters, members and supporters.

Autism Society Mission Areas
The development of five “core competencies” as a means to implement the Autism Society's Mission and Vision is proposed in the Autism Society's new strategic plan. Those areas include:

Advocacy
* Proactively informing, influencing, guiding and developing public policy at the federal, state and local levels in collaboration with the greater disability community
* Advocating for multi-disciplined approaches to autism research
* Advocating for inclusion, participation and self-determination in all aspects of life for individuals on the autism spectrum and their families

Education
* Providing accessible and relevant information that supports stakeholder ability to make informed choices
* Maintaining an authoritative body of autism information and knowledge
* Supporting proactive community outreach and education

Support
* Encouraging and fostering a strong grassroots network that is an integral part of a larger community
* Creating local connections

Services
* Building capacity within local communities for service delivery to individuals and their families

Research
* Translating research results into applied practice in everyday lives
* Identifying and promoting research that will improve the lives of people on the autism spectrum and their families


I'm a member - I think they do good work. They have State chapters, where they organize support groups, run programs for kids & plan fund raising events. What really attracted me, is that the membership isn't all parents with kids on the spectrum - they welcome adults on the spectrum & they have people on their Board of Directors & other leadership positions who are on the spectrum.


_________________
"I am likely to miss the main event, if I stop to cry & complain again.
So I will keep a deliberate pace - Let the damn breeze dry my face."
- Fiona Apple - "Better Version of Me"


Shareese
Blue Jay
Blue Jay

User avatar

Joined: 6 Jan 2010
Age: 38
Gender: Female
Posts: 90

15 Jan 2010, 1:00 pm

Let's all get one of those shirts that says "I don't need Autism Speaks. I'm autistic. I can think for myself." We'll ALL wear them on the same day. that day we can also post flyers everywhere that say the same thing. Who's in? I hope I can find someplace to order one; in my country we aren't allowed to order things with debit cards... maybe on a US site I could, but I doubt it.



alex
Developer
Developer

User avatar

Joined: 13 Jun 2004
Age: 40
Gender: Male
Posts: 10,224
Location: Beverly Hills, CA

15 Jan 2010, 1:03 pm

ASA does not have a good track record in advocacy for autistic people. their large parental membership seems to be somewhat responsible for the mixed messages they send.



zeichner
Supporting Member
Supporting Member

User avatar

Joined: 10 Sep 2008
Age: 67
Gender: Male
Posts: 689
Location: Red Wing, MN

15 Jan 2010, 4:02 pm

alex wrote:
ASA does not have a good track record in advocacy for autistic people. their large parental membership seems to be somewhat responsible for the mixed messages they send.

So what are the reasons that their track record is bad? They seem to have a lot of support services - classes, seminars, camps, support groups, etc.


_________________
"I am likely to miss the main event, if I stop to cry & complain again.
So I will keep a deliberate pace - Let the damn breeze dry my face."
- Fiona Apple - "Better Version of Me"