Sounds like a good bloke!
Ari Ne'eman is an American autism rights activist who cofounded the Autistic Self Advocacy Network in 2006.[1] On December 16, 2009 President Barack Obama announced that Ari Ne'eman would be appointed to the National Council on Disability.[2] Ne'eman has a diagnosis of Asperger syndrome, which would make him the first person with an autistic spectrum disorder to serve on the council. After an anonymous hold was lifted, Ne'eman was unanimously confirmed by the United States Senate[3] to serve on the Council on June 22, 2010.
[edit] Personal lifeNe'eman grew up in East Brunswick Township, New Jersey, where he attended East Brunswick High School.[4] He displayed obsessions characteristic of Asperger syndrome from an early age - eventually leading up to an interest in public policy.[5] He engages in stimming, such as pacing and hand-flapping. He has sensory processing issues that affect his reactions to certain sounds and textures.
Early in childhood, Ne'eman was verbally advanced and socially isolated. He was bullied, and in his early teens he struggled with anxiety and would self-harm by picking his skin.[6] For a period in high school, Ne'eman went to a segregated special education school. He was frustrated by the segregated school because he felt it was a "day care" that focused on "normalizing" disabled students instead of challenging them academically. He said that he and his fellow students "were being written off because of what society expects of people with disabilities." Using his advocacy skills, Ne'eman was eventually able to return to a mainstream school.[7]
This experience had a strong affect on Ne'eman's view of the world. He has said that although he himself was successful at returning to a mainstream school, "what is, I think, most frightening to me is that for many students out there that kind of message is absorbed--the idea that they are inferior is absorbed, and that can be very damaging because it really puts a limit on people's potential." [8]
Upon graduating high school, he founded the Autistic Self Advocacy Network. He then attended the University of Maryland, Baltimore County where he became a member of Alpha Epsilon Pi. [9]
[edit] Autistic Self-AdvocacyAri Ne'eman believes that autism is a neurological difference and not a disease that should be cured. He is against what he sees as the stigmatization of autism in the media and adopts a "civil rights" perspective when engaging in self-advocacy.
Ne'eman believes that society should focus on developing supports for those with autism rather than searching for a cure. He believes a cure for autism will not come anytime soon and genetic insight gained on autism may be used to develop prenatal tests for the condition that will result in the premature termination of autistic fetuses.[10] He urges scientists researching the genetics of autism to be cautious of the ethical implications of their studies.
Proponents of a cure for autism, such as Cure Autism Now co-founder Jonathan Shestack, have criticized Ne'eman for this. Shestack has stated that Ari Ne'eman doesn't understand the suffering those severely affected by classic autism and their parents endure. Criticism of Ne'eman's views may have been a factor in the hold on his confirmation.[11] However, it has been suggested that Republican senators were intentionally blocking many of President Obama's nominees; in May 2010, there were 96 people waiting to be confirmed to Administration posts.[12]
In addition to being on the NCD, Ne'eman is a public member of the Interagency Autism Coordinating Committee and a board member of TASH. He previously was Vice Chair of the New Jersey Adults with Autism Task Force, and served on the New Jersey Special Education Review Committee.[13