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Ai_Ling
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02 Nov 2011, 10:54 pm

Well I found a few stats off of this website: http://exceptionalminds.org/index.html

I dont know how accurate this is: heres what they say:

Quote:
The Quality of Life for Adults with ASD is unacceptably low:
10% have some type of occupation
4% live independently
3.5% socialize outside the home
95% report no friendships
83% of adults with autism have fewer than two social contacts per week outside their homes.


I just found these numbers interesting. This site is for an animation studio that specifically trains autistic individuals to create animation and films. Sounds like a pretty cool program.

But back to the numbers: do you guys think this is accurate? Any other thoughts? Personally I dont know a whole lotta aspies/autistics.



lightening020
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02 Nov 2011, 11:14 pm

it's true for me.......sadly

....can't speak for anybody else, but from the posts on here it does seem so....



Angel_ryan
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02 Nov 2011, 11:32 pm

thanks for posting this the link is cool



Apple_in_my_Eye
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03 Nov 2011, 12:23 am

Does the page say if the list in in regards to AS, autistic disorder, PDD-NOS, or all of them combined?



Ai_Ling
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03 Nov 2011, 1:12 am

Apple_in_my_Eye wrote:
Does the page say if the list in in regards to AS, autistic disorder, PDD-NOS, or all of them combined?


That is what I was wondering. I just assumed they were pertaining to the entire spectrum. The program is likely meant for those of all autism diagnosis's. Though one might wonder, they could have only reported "autism" data to make a statement. They are after all trying to provide a service and emphasis, they could make someones life better.



DreamSofa
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03 Nov 2011, 5:53 am

Quote:
Quote:
The Quality of Life for Adults with ASD is unacceptably low:
10% have some type of occupation
4% live independently
3.5% socialize outside the home
95% report no friendships
83% of adults with autism have fewer than two social contacts per week outside their homes.


It would be helpful if the source of the statistics determined where people were on the spectrum before making such generalisations.

I've got Aspergers and have a good job in the public sector, have lived independently since the age of 17, socialise outside the home and have friendships. It's not that my life has been all unicorns and rainbows inasmuch as I'm very stubborn and am appalled at the idea of ever having to ask for help.



Gedrene
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03 Nov 2011, 8:39 am

From what I do know people just treat many of us who could otherwise be capable like children, which of course begets adults that don't look after themselves. Furthermore there's the social issue. People simply look at us and think their rules apply despite our lack of social programming, so we don't reach out.

As for how accurate the statistics are I want to see where they got them from.



Ai_Ling
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03 Nov 2011, 2:01 pm

DreamSofa wrote:
Quote:
Quote:
The Quality of Life for Adults with ASD is unacceptably low:
10% have some type of occupation
4% live independently
3.5% socialize outside the home
95% report no friendships
83% of adults with autism have fewer than two social contacts per week outside their homes.


It would be helpful if the source of the statistics determined where people were on the spectrum before making such generalisations.

I've got Aspergers and have a good job in the public sector, have lived independently since the age of 17, socialise outside the home and have friendships. It's not that my life has been all unicorns and rainbows inasmuch as I'm very stubborn and am appalled at the idea of ever having to ask for help.


I was thinking something similar too. I have Asperger's and I have a job, a min wage job now but I recently graduated and everyone knows I have good potential for a good paying, high level job. I've lived independently in college dorms since I was almost 19. I've have friendships and socialize outside of the house. I thought most aspies have friends even if they're very few in number. I realize aspies have lower executive functioning levels but that low??



aspie48
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03 Nov 2011, 7:14 pm

these stats can't be accurate, if they are thats very disturbing.



Apple_in_my_Eye
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03 Nov 2011, 7:30 pm

I don't have a link, but I remember seeing some stats out of the UK that had about an 80% unemployment rate, FWIW. It does seem insanely high, but maybe there is a greater percentage of "LF" than "HF" people.



glider18
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03 Nov 2011, 10:07 pm

Ai_Ling wrote:
The Quality of Life for Adults with ASD is unacceptably low:
10% have some type of occupation
4% live independently
3.5% socialize outside the home
95% report no friendships
83% of adults with autism have fewer than two social contacts per week outside their homes.


I am among the 10% with an occupation (teacher going on 24 years in the profession).

I live with my wife and two sons. Before that, I lived with my parents. So I have never actually lived on my own. In college, I still lived at home and commuted each day.

I do not socialize much at all outside the home. And, I like it that way. For me, not socializing outside my house is a good quality of life for me. I am happy this way.

In school I had a best friend. But today, I really have no friends that I would communicate with. And like the above response, that is fine with me. My friends are my family and my interests. To me, that is a good quality of life for me.

I do communicate with other teachers and students---that's my job. But as for typical socializing contacts, I probably have fewer than two social contacts a week outside my home. And again, that is fine by me. I do not desire the socializing.


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anneurysm
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03 Nov 2011, 10:51 pm

I wouldn't be suprised if these statistics did include people from across the spectrum.


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Given a “tentative” diagnosis as a child as I needed services at school for what was later correctly discovered to be a major anxiety disorder.

This misdiagnosis caused me significant stress, which lessened upon finding out the truth about myself from my current and past long-term therapists - that I am an anxious and highly sensitive person but do not have an autism spectrum disorder.

My diagnoses - social anxiety disorder and obsessive-compulsive disorder.

I’m no longer involved with the ASD world.


aghogday
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03 Nov 2011, 11:30 pm

Apple_in_my_Eye wrote:
I don't have a link, but I remember seeing some stats out of the UK that had about an 80% unemployment rate, FWIW. It does seem insanely high, but maybe there is a greater percentage of "LF" than "HF" people.


According to statistics from Wiki, about 10 percent of diagnosed cases on the Autism Spectrum disorder are HFA and Aspergers. About 5 out of 10,000 diagnosed with Autism and about 4 out of 10,000 diagnosed with HFA. Close to 70 percent are diagnosed with PDD NOS, out of all diagnosed ASD disorders. Close to 20 percent with classic Autism are diagnosed out of all diagnosed ASD disorders. Rhetts and Childhood Disintegrative syndrome are rare.

http://en.wikipedia.org/wiki/Epidemiology_of_autism

Estimates I have seen specifically related to Aspergers indicate that a majority don't maintain steady employment, but I haven't seen any evidence specific to Aspergers that suggests that the unemployment is 90 percent at any one given time.

No doubt there are real studies out there somewhere behind the numbers on the website; they are quoted by other sources as well, although no references to the actual study exist on the internet that I could find.

My understanding is that research in this area is extremely limited, particularly when it comes to HFA and Aspergers because the identified number of diagnoses are rare at this point in time.

Considering there is no direct reference to the actual study on the internet, chances are it was based on a limited population of diagnosed autistics; however it does specifically state ASD's, so it likely does include autistics from across the spectrum.

I'd like to see the actual study it was based on. I wouldn't be surprised if some of the individual bulleted statistics were taken from different sources, considering they only match up together as a source from that one site, if one does a search on the internet.