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LennytheWicked
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11 Apr 2012, 8:50 pm

So, I made a mock trailer for a broadcasting project by filming my younger, LFA brother practicing for Special Olympics. My teacher and several students thought it was very good [some people actually voted for it, and I never get votes] and apparently my dad heard about it. Now, my dad is very supportive of Autism Speaks despite my protests that they don't help autistic people, and writes me off when I tell him as much. [My own dad writes me off as being too high-functioning to get it, then insists that I need an IEP.]

He wants to let the ASA use my trailer.

Do we even like the ASA? I know that my dad is a schmuck, and just hates everyone that disagrees with him, so I'm ignoring his opinion in specific. I'm not sure if the ASA is as vehement about 'eradicating' autism as Autism Speaks, and I do know that they've helped some families get access to therapies [here in Illinois, they pushed for senators to make a law that forced insurers to cover those therapies].

I really just don't want to say, "OK," and then have them say, "SEE?! AUTISM IS COMPLETELY HORRIBLE!! !!1" on public television, or the Internet, because I don't think my brother is horrible even though he's fourteen and still doesn't speak.



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11 Apr 2012, 10:33 pm

IEP?
ASA?

Got a link to the trailer on youtube?



Jory
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11 Apr 2012, 10:51 pm

LennytheWicked wrote:
Now, my dad is very supportive of Autism Speaks despite my protests that they don't help autistic people, and writes me off when I tell him as much. [My own dad writes me off as being too high-functioning to get it, then insists that I need an IEP.]


Your dad is a condescending prick. :?



LennytheWicked
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12 Apr 2012, 4:30 am

Jory wrote:
LennytheWicked wrote:
Now, my dad is very supportive of Autism Speaks despite my protests that they don't help autistic people, and writes me off when I tell him as much. [My own dad writes me off as being too high-functioning to get it, then insists that I need an IEP.]


Your dad is a condescending prick. :?


I've noticed. :I That's why I'm ignoring him.



TheSunAlsoRises
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12 Apr 2012, 9:39 am

Made a Mock Trailer, Do We Actually LIKE the ASA?

Do you Actually LIKE the ASA ?

What is your personal opinion........


TheSunAlsoRises



vermontsavant
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12 Apr 2012, 12:00 pm

what is the ASA,is that different than the ASAN


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LennytheWicked
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12 Apr 2012, 9:30 pm

TheSunAlsoRises wrote:
Made a Mock Trailer, Do We Actually LIKE the ASA?

Do you Actually LIKE the ASA ?

What is your personal opinion........


TheSunAlsoRises


I don't know much about them, or else I wouldn't ask. I feel sort of indifferent.

Let me put it this way: I dislike Autism Speaks very strongly. I dislike them because they focus on the families and almost completely ignore the people who actually have autism, and because many of their supporters act like very large children. [IE, my dad.]

I'm wondering if the ASA is similar to Aut. Speaks in that way, and if it is I'm not letting them use my stuff. If they're more about providing therapies and such than prenatal testing, I probably prefer them.



aghogday
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12 Apr 2012, 9:46 pm

vermontsavant wrote:
what is the ASA,is that different than the ASAN


The ASA "Autism Society of America" is a nationwide organization that has been around since 1965. Almost 40 years before ASAN or Autism Speaks started their efforts.

It is an advocacy organization for Autism like Autism Speaks, however they do not focus on research in as strong a manner as Autism Speaks does.

The founder Dr. Bernard Rimland, also founded one of the oldest autism research organizations, the Autism Research Institute, ARI, as well as the Defeat Autism Now organization that has consolidated itself recently with the Autism Research Institute. The ARI researches alternative means of treating autism.

Dr. Bernard Rimland is credited as playing a big part, in his early research, in dispelling the "Refrigerator Mother" theory of Autism.

http://en.wikipedia.org/wiki/Bernard_Rimland

He lost favor with the medical community, during the last part of his career, because he supported the theory that vaccines could be behind the increase of the prevalence of Autism.

http://www.autism-society.org/about-autism/causes/environmental-health.html


ASA, still questions mercury in the environment as well as other environmental factors as potential factors associated with autism.

The ASA, has accomplished noteworthy goals described in Wiki, per link below; the organization has approximately 50,000 members and 200 chapters across the country, and is in part, responsible for new legislation assisting autisitic individuals, through their advocacy efforts.

http://en.wikipedia.org/wiki/Autism_Society_of_America


ASAN has joined forces with ASA, in concern over the DSMV revision. ASA appears to be the one of the few advocacy organizations that ASAN has worked in cooperation with. It appears like the organization is viewed favorably by the ASAN organization.

Maybe one day ASAN will work together with Autism Speaks as well, considering that Autism Speaks is also supporting the concerns over the DSMV, and funding research in an attempt to ensure that all autistic individuals are treated fairly with the DSMV revision.

Autism speaks and ASA have had a cooperative working relationship, supporting many common initiatives in the past.

As with most advocacy organizations ASA has a unique mission, and unique goals; that they fundraise for to meet that mission and goal. They don't receive nearly the funds that Autism Speaks does. And the funding of ASAN is not even high enough to be reported by 3rd party watchdog groups that monitor charities.

ASA appears to be as good an autism advocacy effort as any other, if one agrees with their mission below. However, overall, their mission is not that different than Autism Speaks as they focus on awareness of autism. The ASA organization does not focus much funding on actual research.

The ARI, founded by Dr. Rimland, focuses on complementary research, although some of the research is more controversial in the scientific community than the research that Autism Speaks focuses on.

Autism Speaks receives a level of funding for marketing, along with marketing expertise, that sets them apart in their ability to reach people in the general population.


Description of the organization from their site below:

http://www.autism-society.org/

Quote:
About the Autism Society
[
b]The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.[/b]

Founded in 1965 by Dr. Bernard Rimland, Dr. Ruth Sullivan and many other parents of children with autism, the Autism Society is the leading source of trusted and reliable information about autism. Through its strong chapter network, the Autism Society has spearheaded numerous pieces of state and local legislation, including the 2006 Combating Autism Act, the first federal autism-specific law. The Autism Society's website is one of the most visited websites on autism in the world and its quarterly journal, Autism Advocate, has a broad national readership. The Autism Society also hosts the most comprehensive national conference on autism, attended by 2000 people each year. Our information and referral team, our program staff, and our strong chapter presence serve thousands of families each year who are searching for help in their journey with autism.

The Autism Society's national office is headquartered in Bethesda, Maryland. We are proud to be one of the few organizations to have members with autism serving as active board directors. The Autism Society's Panel of Professional Advisors sets the standards for our Options Policy that governs our practices, and we are proud to count the top professional experts in autism on our PPA. The Autism Society's Advisory Panel of People on the Spectrum of Autism is a first-of-its-kind advisory panel comprised solely of individuals with autism, who help Autism Society staff create programs and services that will advocate for the rights of all people with autism to live fulfilling, interdependent lives.

Each year, people with autism, families and professionals volunteer thousands of hours to help the Autism Society achieve its mission of serving all those affected by autism. To each and every one of you, thank you.



LennytheWicked
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13 Apr 2012, 2:32 am

aghogday wrote:
vermontsavant wrote:
what is the ASA,is that different than the ASAN
Paraphrasing for space: lots of fantastic straight information, glorious, glorious straight information.


Thanks, Ahogday, that was informative.

What I took from that is that they don't read all of the science magazines, but mean well. It's the meaning well which concerns me a little bit more. I personally don't believe that Autism Speaks means well for anyone besides the families, which is perhaps a pessimistic way of looking at it.

I don't know that Autism Speaks would want to work with ASAN; I would assume the people on the former's staff are high-functioning or friends or family of people with autism who support them using their own brains. I've had a few bad run-ins with Aut Speaks here, for example my dad once told me to go get interviewed at a meeting. They asked me how I did at school, so I said, "I do really well, it's easy for me," and they tried coaching me into saying it was a challenge and I needed a lot of help. [Are you sure? Because for most people like you, it's really hard.] And I told them, "But I don't need a lot of help," and they kicked me out of the interview. =P

I may let them use it if they ask again. I'm going to consider it.



aghogday
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13 Apr 2012, 1:42 pm

LennytheWicked wrote:
aghogday wrote:
vermontsavant wrote:
what is the ASA,is that different than the ASAN
Paraphrasing for space: lots of fantastic straight information, glorious, glorious straight information.


Thanks, Ahogday, that was informative.

What I took from that is that they don't read all of the science magazines, but mean well. It's the meaning well which concerns me a little bit more. I personally don't believe that Autism Speaks means well for anyone besides the families, which is perhaps a pessimistic way of looking at it.

I don't know that Autism Speaks would want to work with ASAN; I would assume the people on the former's staff are high-functioning or friends or family of people with autism who support them using their own brains. I've had a few bad run-ins with Aut Speaks here, for example my dad once told me to go get interviewed at a meeting. They asked me how I did at school, so I said, "I do really well, it's easy for me," and they tried coaching me into saying it was a challenge and I needed a lot of help. [Are you sure? Because for most people like you, it's really hard.] And I told them, "But I don't need a lot of help," and they kicked me out of the interview. =P

I may let them use it if they ask again. I'm going to consider it.


Your welcome, I personally think ASA has done good things for Autistic individuals for almost 50 years now.



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16 Apr 2012, 5:58 pm

[quote="LennytheWicked"][quote="Jory"][quote="LennytheWicked"]Now, my dad is very supportive of Autism Speaks despite my protests that they don't help autistic people, and writes me off when I tell him as much. [My own dad writes me off as being too high-functioning to get it, then insists that I need an IEP.][/quote]

Your dad is a condescending prick. :?[/quote]

I've noticed. :I That's why I'm ignoring him.[/quote]

I concur,my best advice would be to tune him out,find something you're incredibly talented at and could make a career for yourself,and then if he suddenly supports you b/c of being successful write him off :) proving people wrong does noe harm and he honestly doesnt sound that great,my mothers the same >.<