Parents of Children with ASD's

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2913943/

Interesting study linked that shows a significant higher association of the middle, and narrow autism phenotypes, per parents of children with ASD's, compared to a control group of parents without ASD's, using the AQ tool, to determine phenotypes.

Higher scores below in the graphs indicate the moderate to narrow phenotypes of autism, detailed in the research linked.

There is the potential that some of these parents, in the middle to narrow autism phenotype, might meet the requirements for a diagnosis, if they were actually diagnosed, as such.

Relevant information, when parents of children diagnosed with autism, are broadly generalized as non-autistics. Many of the individuals that are directly involved in many of the autism organizations across the US, have identified themselves as parents of autistic children. Per this data, some of them likely have a greater insight into what is is like to have an autism spectrum disorder, than a lack of an actual diagnosis, might indicate.

lol.

I didn't get my diagnosis until after my son got his. They should look at both parents though(have yet to meet a single mother of an autistic child where there isn't something wrong physically or psychologically) and I've often thought that right after a child's diagnosis the parents ought to head off to the psychologist themselves(b/c raising autistic children is no easy task and the parents should get all their health issues in order if they can) and a doctor.

It was while I sat with my son's psychologist for 6 solid hours arguing point by point and rocking that she finally told me I probably am diagnosable too. Later I went through a formal diagnosis and it came out I am too. Interesting how close to a special interest it is that the parents are so focused isn't it?

what does control parent mean,im guesing a N.T parent as opposed to asd parent.but why the term control parent.


what with you posting new threads(not that thats bad at all)i have never seen you post a new thread now youve done three in 24 hours.

i dont do new threads amuch anymore because they only get condeceding responses

The term "control" is a social science research term that is used in studies. It means a group that doesn't have the characteristics, or that isn't given the same treatment or situation, as the group being studied. The purpose for this is to ensure that results from the group actually being studied are likely due to the conditions or situations being given them and not any other factor. It doesn't mean "control" in the typical sense.

My son's an aspie and I've always suspected I'm either on the spectrum or close to it. I have a NVLD also, and that often shares many characteristics with ASD. It wouldn't surprise me at all if a greater percentage of parents of ASD have some aspects of it themselves.

Considering all the co-morbid conditions associated with Autism it would be interesting to see a full scan of parents of children with Autism, also inclusive of some of the co-morbid conditions that also have potential similar genetic associations, such as symptoms of ADHD, Depression, Bi-Polar, Non-verbal learning disorder, Schizophrenia, etc.

Considering prenatal stress and hormones are an associated factor in brain and language development, as well as associated with ASD's, some of those issues would likely contribute to stress in pregnancy, if either parent was affected by those conditions.

Not only are some of the individuals that run and volunteer for associations that focus on Autism, potentially somewhere on the middle or narrow phenotype of autism, as defined in the previous post, but there is evidence that at least some research scientists that study Autism, such as Michelle Dawson, are actually diagnosed with the disorder.

Also interesting is that while she as an individual supports the neurodiversity movement, Autism Speaks has provided close to half a million dollars to the research group she is part of to study issues associated with Autism.

While Autism Speaks PR efforts have received the bulk of criticism since that organization was founded, science has been methodically working in the background of that organization as well as many others, likely very much influenced by research scientists on the broader autism phenotype, many of whom function quite well within that niche.

The outcomes could be significantly different for some with an alternate life experience behind the register at McDonald's or Wal-mart, where social demands might exceed the inherent capacity for social adaptation.

Overall the whole of those whom have a personal stake in Autism Spectrum disorders, are like a huge community, where some don't realize how closely related they are to their neighbors, and in some cases potentially their parents per innate autistic like characteristics.

In honor of Fathers Day, I can say, I never understood my father until I understood that I had an Autism Spectrum Disorder, and the details of what that meant.

I always sensed that he cared, but it took a very long time for me to figure out why he could rarely express it through those emotional expressions that one usually sees on other fathers faces. I too, was not fully aware that I lived in similar shoes, per that issue.

He will never likely understand that at age 80, but I suppose he may be more fortunate than I, in some respects per that issue.

All that matters is that I understand that he cares. His three wives, and my one wife, likely had more difficulties than either of us, dealing with the reality of that limitation, that in part, appears to be inherent. I suppose though, in part, that it can be better than seeing angry expressions.

I have to wonder now though, if he or my wife will ever truly know how much I care. For me at least, that seems like one of the more difficult parts of autism, for those in families, as well as relationships existing beyond those boundaries.

I usually only post a new topic if I am really interested in something. The DSM5 organization, and the deadline for the commentary period provided that motivation, along with a few thoughts about Fathers day for this thread, per my father and son, as well as the general relationship of parents, autism, children with autism, and autism organizations comprised in part of parents of autistic children.

At least for me, there appears to be a common issue of similarities, that may provide potential conflict as well.

Also, I gave in to my resistance to change and moved from Internet Explorer8 to the free Firefox13 browser, a few days ago, per advice here on another thread.

For all practical purposes it seems like my IE8 gradually quit working and I became accustomed to the glitches, as well as limited by them, in what I was willing to do per patience and time. Change can be good.

Some of the options available on this website, beyond the glitches, were neither designed for or compatible with my versions of IE. Having those options makes it much easier to post. Also, my understanding is that newer versions of IE, work better than what I was using.

My mummy scores high on the AQ test (above the threshold of possible ASD).

Same with me --- My son was the first diagnosis in our family - his psychiatrist at our first meeting told me that I was also Asperger's - and now looking around I know that my brother is (still undiagnosed and can't see any reason to get one). I am also very sure my mother was - Looking back I can recognize so many of the traits in her. I had an uncle on her side of the family - that also was - as I like to quote The Star Wars movie -- "The force is strong in my family!" - If my family is any indication of the situation out there - Most Asperger's are not diagnosed. If we had moved my son to the school that he will attend next year (a science centered small secondary school) in stead of the larger magnet middle school - he would not have had the problems with depression due to bullying and we would not have been diagnosed, and therefore most of the world would still consider us NT for figuring the ratios of NT to Asperger's.

I think that there is a lot more Asperger's around than we "officially" know about. The one bright spot of the new DSM-5 is that that the official treatment community in abandoning the the terms related to Asperger's will leave it open to us to use and define as we see fit. I have been saying that we the unofficial support community should define Asperger's, Aspie, and Asper for our own non-medical treatment usage to the point that we remove the terms of Syndrome and disability from any direct connection with these words. We need a name for ourselves that does not require a diagnosis of disease or malady.

This is funny but I am definitely nt with an as daughter and my brother is definitely as with a nt son. So I guess the genetics can skip around a bit.