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Crazyfool
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17 Sep 2015, 1:45 pm

No I'm not here to debate a cure by any means, but all the lurking I've done on these forums, I've come to the conclusion that an alarming amount of us seem to suffer a great deal. I for one, know I do a great amount.

I'm definitley not promoting any kind of cure and I don't wish to stir that pot either, but I feel something needs to be done whether it's therapy, medications, advocating, job place adjustments, societal adjustments....maybe a combination of all of these, I really do not know, but I feel something needs to be done.

I see too may people, young and old alike, talking about how suicide might be the most sensible means to end their pain. I can speak for myself here in saying that, I am truly burdened by my ASD, so much so that I think about checking out merely everyday.

There are cancer patients that live with dire pain everyday of their lives but still find pushing through it worth it to see another day, and the fact that some of us here suffer so much emotionally that they seem to think another day doesn't hold that same value.....It breaks my heart and all I want to see is this pain and suffering brought down to a manageable level.

Most of us here are completely verbal, hold average or even above average IQ's, but even with those assets in mind, many struggle to find fulfillment and happiness in life. Genevieve Edmonds, a well known advocate and author publishing books related to autism, had sadly decided to end her own life. I've done my research and there seems to be a trend among aspies and suicide that isn't being taken seriously enough.

What does will it take? How many more cries for help and posts of teen's and adults posting their plans to eventually die by their own hand, before we can finally do something about it.

Don't get me wrong, I am clueless as to what needs to be done but I'm consumed by the thought that something needs to be done and done quickly.

Any suggestions? What can we do as a community or better yet as a society to help people on the spectrum live more fulfilling lives? There's gotta be something or someone that can help....



b9
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17 Sep 2015, 1:54 pm

i never really identified with you. you seem too eager to foist yourself into the arena.
there is something about how you are you which i do not share.
but other than that...i am off to bed and i do not care.



glebel
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17 Sep 2015, 2:18 pm

Ignore the previous poster :roll: . As far as helping us, society just needs to come around to the point of view that we can be of value, in some facets of work and society actually of more use than NTs. Bear in mind, Asperger's is a 'new' syndrome, and people in general have to get use to it.


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RubyTates
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17 Sep 2015, 2:25 pm

Crazyfool wrote:
No I'm not here to debate a cure by any means, but all the lurking I've done on these forums, I've come to the conclusion that an alarming amount of us seem to suffer a great deal. I for one, know I do a great amount.

I'm definitley not promoting any kind of cure and I don't wish to stir that pot either, but I feel something needs to be done whether it's therapy, medications, advocating, job place adjustments, societal adjustments....maybe a combination of all of these, I really do not know, but I feel something needs to be done.

I see too may people, young and old alike, talking about how suicide might be the most sensible means to end their pain. I can speak for myself here in saying that, I am truly burdened by my ASD, so much so that I think about checking out merely everyday.

There are cancer patients that live with dire pain everyday of their lives but still find pushing through it worth it to see another day, and the fact that some of us here suffer so much emotionally that they seem to think another day doesn't hold that same value.....It breaks my heart and all I want to see is this pain and suffering brought down to a manageable level.

Most of us here are completely verbal, hold average or even above average IQ's, but even with those assets in mind, many struggle to find fulfillment and happiness in life. Genevieve Edmonds, a well known advocate and author publishing books related to autism, had sadly decided to end her own life. I've done my research and there seems to be a trend among aspies and suicide that isn't being taken seriously enough.

What does will it take? How many more cries for help and posts of teen's and adults posting their plans to eventually die by their own hand, before we can finally do something about it.

Don't get me wrong, I am clueless as to what needs to be done but I'm consumed by the thought that something needs to be done and done quickly.

Any suggestions? What can we do as a community or better yet as a society to help people on the spectrum live more fulfilling lives? There's gotta be something or someone that can help....


I can't really advise anyone on the best course of action, but can only tell people what worked for me. Sure, I still get down some days but for the past couple of years I have been feeling okay and comfortable in my own skin.

I always advise other Aspies to stop any kind of drinking, drugs, artificial stimulants, and the like. I say this because most of us seem to have a lot of food sensitivities and I believe what we put in our guts really affects us.
I have also stopped eating any gluten, sugar, or dairy all together. Sometimes I slip up with the sugar but usually keep it to a minimum. This has really helped control my emotional mood swings sometimes and led me to feel more evened out.
Also, b12 injections really helped with this a lot as I was deficient in most of my b vitamins, and started taking a good multi vitamin, too.
Secondly, I recommend living alone if you can. When I was living with my family I would absorb all of their negative energy and never felt accepted or like I could be myself around them. Now that I live alone, I love it and can relax and do the things that come natural to me, like laying around in silence and not watching the horrible news at all.

Basically, I feel like you need to overhaul your life if you want to start feeling comfortable in your own skin. This is just what worked for me. Someone else's predicament could be completely different and they do not need to make such drastic changes to their life to see results.

I see still struggle socially, but have gotten to a point where I do not care anymore.
As far as jobs, you just have to do the best you can because it is an NT world and you need to play their game a little bit if you want to get something out of it.



izzeme
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18 Sep 2015, 3:27 am

I think the most needed "something" that is needed for those on the spectrum (and all those involved: parents, partners, children, caretakers...) is a few strong role-models, people with clear ASDs that have become successful, however you wish to define 'success'.

Once these are there, once everyone can see that being an aspie does not need to be a limitation, i think that the rest will follow easily: family can see that their child isn't doomed, the child has someone to look up to and strive to follow, and society (most importantly: employers) can see that ASDs are an asset to the workforce, instead of a burden due to the accomondations required.



ASPartOfMe
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18 Sep 2015, 8:56 am

izzeme wrote:
I think the most needed "something" that is needed for those on the spectrum (and all those involved: parents, partners, children, caretakers...) is a few strong role-models, people with clear ASDs that have become successful, however you wish to define 'success'.

Once these are there, once everyone can see that being an aspie does not need to be a limitation, i think that the rest will follow easily: family can see that their child isn't doomed, the child has someone to look up to and strive to follow, and society (most importantly: employers) can see that ASDs are an asset to the workforce, instead of a burden due to the accomondations required.

I know I posted this last week but I think these people are the positive role models you are looking for. http://www.people.com/article/all-autism-wedding-san-diego#


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SocOfAutism
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18 Sep 2015, 10:07 am

ASPartOfMe wrote:
izzeme wrote:
I think the most needed "something" that is needed for those on the spectrum (and all those involved: parents, partners, children, caretakers...) is a few strong role-models, people with clear ASDs that have become successful, however you wish to define 'success'.

Once these are there, once everyone can see that being an aspie does not need to be a limitation, i think that the rest will follow easily: family can see that their child isn't doomed, the child has someone to look up to and strive to follow, and society (most importantly: employers) can see that ASDs are an asset to the workforce, instead of a burden due to the accomondations required.

I know I posted this last week but I think these people are the positive role models you are looking for. http://www.people.com/article/all-autism-wedding-san-diego#


That was a cute story. Alex was their DJ!

I'm not trying to hock my work or anything, but I am currently working on a project where I am gathering the stories of autistic adults at work, whether they have chosen to disclose or not. My next project will involve autistic adults in positions of authority. I hope that publishing these kinds of positive stories with practical coping strategies will help correct some common misunderstandings about autistic people.

Yes, there's stuff all of us can do to promote autism acceptance and neurodiversity.