House Passes Autism Act
ASPartOfMe
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Joined: 25 Aug 2013
Age: 68
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Location: Long Island, New York
The U.S. House of Representatives passed the Autism Collaboration, Accountability, Research, Education and Support, or Autism CARES, Act, by a voice vote Wednesday.
The legislation, H.R. 1058, would renew a federal law that originated in 2006 and ensures support for research, prevalence tracking, screening, professional training and other government activities related to autism.
As it stands, the current version of the Autism CARES Act is set to expire at the end of September, meaning that without action from Congress, programs established through the act will come to a halt.
Under the measure approved by the House this week, the federal government would spend $369 million on autism efforts annually through 2024.
One key change in the renewal legislation is its extra focus on the needs of individuals with autism in all age groups. The phrase “across the lifespan” has been added to several provisions in the bill including sections talking about screening and research on interventions.
Additionally, the measure would increase the number of self-advocates, parents and autism group representatives on the Interagency Autism Coordinating Committee, a federal autism advisory panel, from two to three each. And, it would require officials from the Departments of Labor, Justice, Veterans Affairs and Housing and Urban Development to join the committee.
The bill would also ask the Department of Health and Human Services to produce a report for Congress on the health and well-being of individuals with autism.
Kim Musheno, vice president of public policy at the Autism Society of America, said the shift to consider people across the lifespan is significant.
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“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
Yes!! I am so excited about this. I actually went to Capital Hill last week and lobbied for this with Autism Society. If any of you guys were there, we may have met each other. Please call your senators and have them vote for this. It has to pass in the senate next month.
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"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."
Wreck It Ralph
I have also written a proposal to Kim Musheno for respite care for HFA's, not just for caregivers but for us as well. I find that this is a huge need in my life and some of my HFA friends have really supported this idea. I proposed that places that provide respite to people who are eligible to receive 24/7 care also provide respite to those of us who might be having critical moments when we need to be in sensory safe environments that provide us food and rest so that we can recover from the constant bombardments of sensory and environmental overloads that we deal with. Many of us are high functioning and live in our own homes and have relatively "normal" lives. But there are times when we can become so overwhelmed that we are not able to function and we need extra help to recover. A lot of us do not have support systems that enable us to rest and be taken care of temporarily so that we have a chance to recover a little bit. I am proposing that places that provide this kind of care for lower functioning people so that their families can have a break also allow us to come and spend the days that we need as well so that we can rest and recover. This is a HUGE need in my life and it would make such a difference in my quality of life. If you guys feel like this kind of service would help you, please comment because the more I can show Kim that this is needed, the more likely we will be able to get this.
When I talked to her about it, she had no idea that this was even a need and she was really moved by this. She is actually trying to see what legislation she can tack my proposal onto. I want her to know that I am not the only one who would benefit from such a service so please comment if you would too.
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"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."
Wreck It Ralph
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