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ASPartOfMe
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22 Jul 2020, 3:49 am

https://www.peoplesworld.org/article/the-invisible-oppression-of-the-autistic-female/
Chloé Caldasso is a Los Angeles native with a background in film/television, social media management, and research. The daughter of Brazilian immigrants with a history of activism and opposing the conservative right, she has dedicated herself to taking a stand against all forms of oppression and exploitation. Through her writing, she hopes to do her part in globally uniting people into solidarity and action.

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When I was in the 3rd grade, I befriended a boy who joined our class halfway through the year. He had a difficult time fitting in, to say the least, but I had always been the type of kid to embrace others eagerly. We became fast friends, our favorite pastime being movie talk. At least I thought it was our favorite pastime. It turns out it was my favorite pastime. I learned this when he confronted me mid-sentence one day with a frustrated look on his face, “Do you talk about anything other than movies?!”

Several years later, I almost followed someone off the bus at a stop that wasn’t mine because I wasn’t finished telling them one of my famous “ghost stories.” What I didn’t know then, what my family and friends didn’t know then, was that I was an autistic child.

Now, I’m an autistic adult, and all those seemingly innocuous memories are more important than ever. But I’m not here to talk about what it means to just be autistic. I’m here to talk about what it had meant to be an autistic girl and what it now means to be an autistic woman. Can you think of a single autistic woman other than maybe Temple Grandin? It’s harder than you think, but there is a reason for that, and it’s not because we don’t exist. It’s because capitalism and misogyny have made us invisible.

Who is the first autistic person that comes to your mind? Dustin Hoffman’s character from Rain Man, maybe? Sheldon Cooper from The Big Bang Theory? Both male, both fictional. The reality is, most of the public’s conception of what an autistic person is like is extremely male-centric and two-dimensional, at that. What if I told you, the way most people understand autism is harmful to women on the spectrum? The way autism manifests in men is vastly different from how it manifests in women, and because of this, women often don’t get the crucial support they need during childhood development. I lived for twenty-four years without knowing I was autistic. Many women on the spectrum have very similar stories.

One of the most prominent behaviors in autistic women is what is known as “camouflaging” or “masking.” This is the behavior of mimicking neurotypical social norms in order to conceal social disparities. To provide a little insight about how this manifests, when I enter a social situation with people I do not know, I use a different social language. This is a language I have learned by passively observing others and have practiced for years.

Think of it this way: To me, a conversation is like a jigsaw puzzle. If I want to succeed, I have to figure out which puzzle pieces to put where in order to complete the big picture.

For instance, when someone says they just got engaged, my reaction—according to interactions I’ve observed over time—should be to look surprised, smile, congratulate them, and maybe lightly touch them on the upper arm to express sincerity. Maybe I couldn’t care less whether or not this person got engaged, especially if I barely know them. But mimicking neurotypical social norms in such a way is going to provide me a much more favorable outcome than if I didn’t. By camouflaging, I have been able to (mostly) successfully follow the rules of a world I don’t quite understand. This was crucial to my social survival as a child.

Learning this behavior came at a great cost, however, and not because I am autistic, but because I did not receive the support I so desperately needed as a child. I simply did not understand what I was doing or why.

Junior high introduced a whole new complexity to social relationships. This is true for us all. But I was woefully less equipped to navigate such complexities than my neurotypical peers. I cannot tell you how many friends I lost from junior to senior high who simply, one day, decided they wanted nothing to do with me anymore. I was still nowhere near as proficient at camouflaging then as I am now, so I had a much more difficult time knowing how to manage my behaviors.

One of the behaviors I struggle with most is fixation. If I’m interested in something, I obsess over it. I’ll binge watch a TV series and then sit down at my computer and make a very detailed file system in which I will download and catalog fan art I find on the Internet. It’s also incredibly difficult to pull me away from something once I set my mind to it. Parents often didn’t like me because of this. I was a pusher. If I wanted something, I pushed and pushed and pushed until I got my way. Honestly, I was likely too intense for other kids. Which is fine. I understand now how I could have handled situations better. But the issue is, I knew none of this back then. So, when friends suddenly started ignoring me and avoiding me at all costs, it was devastating. What did I do wrong? Why won’t they at least tell me what I did? It was a vicious cycle that broke me down mentally and emotionally. Once a jubilant, eager child, I became a skeptical, depressed young adult.

When I was 18, I lost a very close friend. It happened the same way it always did. I suddenly was not a person she wanted to be around anymore. Several months later, I intentionally overdosed on sleeping medication and ended up in the hospital. I just couldn’t take it anymore. Obviously, there was something terribly wrong with me and I would never be able to figure out what it was. I had been agonizing over it for years. It was a dark time in my life. I felt completely helpless and avoided making any new friends out of fear of being hurt again. It was the one part of me I actually felt in control of.

Sometime later, I befriended someone who asked me if I was autistic. It was the first time in my life anyone had asked me such a question and I vividly remember thinking how strange it was. See, this person was autistic, and they recognized autism in me. That’s when I started reading about autism. I wish I could describe to you how it felt to recognize myself for the first time in 20 years. All my life, the world around me felt out of focus, but now I could finally see the details. It was the biggest relief I’d ever felt, but no one should ever have to experience such a sense of relief under the circumstances I did.

All too often, young autistic girls suffer the way I had. Because of the emotional trauma associated with such experiences, we are frequently misdiagnosed with mental disorders such as bipolar disorder, borderline personality disorder, paranoid personality disorder, or histrionic personality disorder, to name a few. Some women go their entire lives without knowing they are autistic. Because of this, in conjunction with the successes of camouflaging, we are systematically gaslighted from a young age.

I can’t tell you how many times I’ve heard the words, “You’re autistic? Wow, you’re so well-spoken! Are you sure?” With a single exchange, my entire existence is invalidated and erased. Yes, I’m sure. I have the scars to prove it.

Living with autism in a neurotypical world is challenging enough as it is, but throw capitalism into the mix, and there is a whole new dimension to it. With the service industry growing exponentially, the job market is evolving to select for outgoing, socially skilled workers. This makes it drastically more difficult for autistic adults to provide for themselves and live fulfilling lives.

Not only have I been autistic in a neurotypical, capitalist world all my life, but I have been female all my life. While I struggled to fit in, I was also institutionally pressured by patriarchal social values to conform to female gender norms. In consequence, autistic women are criticized much more harshly than their male counterparts regarding social behavior. We don’t have the privilege of being excused for our social missteps because of our autism the way men often are, and it’s a larger problem than you’d think.

Consequently, female autistic voices have been silenced and forced out of the autism narrative. This is unacceptable. The future of autism awareness must be about providing autistic women opportunities for their voices to be heard while simultaneously holding men (autistic men included) accountable for the way they so often push us aside. In a world that grows more and more tolerant, we need to be vigilant not to leave the underrepresented behind.

Italics=Chloe's


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Amity
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22 Jul 2020, 5:12 am

Her story is relatable, too many autistic women slip through the net and the gatekeepers are often the mores in our worlds. Perhaps though, women can raise the profile of autism and push for accomodations in a way that men alone cant.

Yet I find the last paragraph highlighting autistic men, alarming, its divisive, a "with me or against me" mentality and that's somewhat typical of today's world. I'm not a fan of a faction type approach, there is more potential in unity.


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22 Jul 2020, 5:29 am

I relate to a lot of that.
It's good to see someone bringing to public discourse some of the more gender-specific ways in which we struggle, which have so far not been well recognised.



ASPartOfMe
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22 Jul 2020, 11:19 am

Amity wrote:
Her story is relatable, too many autistic women slip through the net and the gatekeepers are often the mores in our worlds. Perhaps though, women can raise the profile of autism and push for accomodations in a way that men alone cant.

Yet I find the last paragraph highlighting autistic men, alarming, its divisive, a "with me or against me" mentality and that's somewhat typical of today's world. I'm not a fan of a faction type approach, there is more potential in unity.

The online publication that published her account "Peoples World" describes itself as a continuation of the "Daily Worker" which is a publication of the American Communist party so I expected a lot more of communist talking points then was in the article. A lot of what is in the articles is similar to what other Autistic women have described regardless of their politics.


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24 Jul 2020, 12:22 am

Oh, that explains why she referred to capitalism in the piece.
But yes, in general the piece doesn't seem strongly politically motivated.



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24 Jul 2020, 4:35 am

Lets assume I am on the spectrum as though I share more then 20 traits, I have not been assessed yet.
If I am on the spectrum then I have done so much masking that my whole autistism is more like a typical womans autism then a mans (If that makes sense?). In a way it may have been harder then if I was a woman because it has taken me far longer to realize this then it would have taken if I was a woman, because though women are harder to assess due to the masking, as I have been so good at masking, and the typical thought is that men are less likely to mask then women, I have found myself easily doubling the number of years that I have drifted through life not really having an identity. I had ALWAYS thought that I was one of a kind and I have been told this so many times! The real shock for me on finding this site was to find more people out there who were like me, and also in finding that the elements of what I assumed to be my "Unique character" just so happened to be autism traits. (I made a lits of the traits that a close friend mentioned that I have (This close friend knows a lot about autism) and the list went close to 30 traits... And only two I am not sure if I have, and also the majority of traits she recognized in me I did not realize were traits!)
I have felt like I was "Drifting" through life like one of those beach bums who has no purpose, while I watch others who are roughly my age set up homes and have families... It was like I did not know how to do that? How to be normal? How to get a girlfriend? How to act like a head of the household if I did? Things that come naturally to others seem to be a mystery to me, and attempts to find out could not be answered because how can someone answer such a mystery of how they ended up with a girlfriend and how things went from there? They just would say it is what happens inlife. They could not answer in a way that I could "Fathom" these mysteries out. All that I knew was that I was being left behind from lifes experiences, and I was following them along the riverbank not knowing how to dive in!
I remember when I was five or six and in school the teacher, Miss Rees, who was a kind elderly lady reading to the class the story of "The Ugly Duckling" and I remember thinking to myself "That's Me!"
But looking back, I don't think I am a swan yet. I feel that I am one of those scrawly grey nearly adult signets which is half way to gaining his beautiful feathers, and I am not too far off hitting my 50's!

But now, I am not too sure how things are panning out. With this virus stuff going on, will I be assessed? Will it give me answers? While I don't know if I need support or not, but in reality, my Mum has already done that as she supports me and I support her. It is wierd because I know that if I am on the spectrum, my Mum is too... But also, that in the past when I tried to live alone in my own house (Which due to burnout I had to quit a decent job and sell the house for half its value to prevent myself going into debt and also to unload as many responsibilities as I could as burnout can hit you like this!)... But for the brief time I tried living at my house on my own it just wasn't working.... I had plenty to do but I lacked the ability to do it! I mean... Well. I needed a prompt to get my thoughts in order. I had lots of the things I needed to do and also the little projects I had for myself, but with no one to talk to I could not bounce these thoughts into prompts and so I juat sat there not being able to do anything somehow!
And yet I have always struggled to retain my independence. Little did I realize how just by having my Mum here did it make a difference to my life. Just someone to listen and speak to express my thoughts triggers me into action. And yet, somehow most people I can't do this with as they either don't have the patience to hear, or I far more likely just don't connect somehow to be able to share my thoughts and feelings?

But anyway, life on this sparcely populated little mental island which needs a few people there but not too many or too much going on is a fine balance, as recently there has been a little too much going on and the island has been slightly too populated due to this lockdown. (I am not really on an island... Ok.. The UK is a group of islands but I am using "Island" as an imaginary concept to describe my feelings).


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27 Jul 2020, 8:47 pm

ASPartOfMe wrote:
she has dedicated herself to taking a stand against all forms of oppression

Well that's curious given that she failed to articulate any actual oppression in the article. Being abandoned by friends is not oppression. She got close to describing oppression when she mentioned women's issues, but she stopped at social expectations and criticism, which also do not constitute oppression.

People need to stop throwing around the word "oppression" to describe any unpleasant social experience.



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27 Jul 2020, 9:22 pm

I think that many of the problems the author identifies, like “camouflaging” or being misdiagnosed, are actually common for guys as well. I am sure that women face unique challenges. In fact...many of the wonderful books about being an Aspie that I have read were written by or about women. From the excellent "Nerdy, Shy and Socially Inappropriate" by Cynthia Kim, the heartbreaking "Finding Ben", "Songs of the Gorilla Nation", "Elijah's Cup"...I could go on.

The bashing of Capitalism is just silly. I think the PC is the greatest tool autistic people could ask for. It allows them to socialize without awkwardness, write without handwriting issues, and pursue our precious special interests to the nth degree. Master it and a realm of high paying jobs are available. If you can't work, Capitalist profits can provide SSI to keep you alive.

The Commies would have you working twelve hours in a rice paddy, with no computer in the hovel that you shambled back to.


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28 Jul 2020, 2:42 am

Romofan wrote:
The bashing of Capitalism is just silly.

She didn't actually say anything specific about capitalism.

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I think the PC is the greatest tool autistic people could ask for. It allows them to socialize without awkwardness, write without handwriting issues, and pursue our precious special interests to the nth degree. Master it and a realm of high paying jobs are available. If you can't work, Capitalist profits can provide SSI to keep you alive.

That makes sense if you're comparing the world with capitalism and the exact same world without capitalism. But capitalism has such a large effect on the structure of society that a world without capitalism would be wildly different than the world with it, so you can't compare them this way. A lot of disabilities likely would not even exist without the technologically advanced society made possible by capitalism (which includes radiation, large amounts of processed food, factories that cause injuries, international travel that allows the spreading of diseases, and people waiting until mid-life to conceive due to the extensive schooling required to maintain a well-paid career). Mildly disabled people like dyslexics would find it easier to support themselves because they wouldn't be disadvantaged by an employment system in which literacy and numeracy were so crucial. SSI wouldn't be as big of a deal in that world. And all those high-paying jobs wouldn't exist.

In other words, capitalism isn't inherently useful, rather some capitalism creates favorable conditions for more capitalism.

And not everybody's special interest requires a computer.

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The Commies would have you working twelve hours in a rice paddy, with no computer in the hovel that you shambled back to.

Oh. Are you another one of those people who have a view of communism that has nothing whatsoever to do with its ideological roots?

Computers are manufactured with toxic materials that destroy the health of the Eastern Asian wage slaves who have little choice but to build them. They also emit radiation. They aren't such a great thing, actually.



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28 Jul 2020, 4:01 am

You: She didn't actually say anything specific about capitalism.

Her: Living with autism in a neurotypical world is challenging enough as it is, but throw capitalism into the mix, and there is a whole new dimension to it. With the service industry growing exponentially, the job market is evolving to select for outgoing, socially skilled workers. This makes it drastically more difficult for autistic adults to provide for themselves and live fulfilling lives.

You: Computers are manufactured with toxic materials that destroy the health of the Eastern Asian wage slaves who have little choice but to build them. They also emit radiation. They aren't such a great thing, actually.

Me: Water is overrated. You can drown in it!

You: And not everybody's special interest requires a computer.

Me: Again, pedantic and argumentative. MANY special interests are enhanced richly by them

You: Are you another one of those people who have a view of communism that has nothing whatsoever to do with its ideological roots?

Me: My view of communism is based on its sordid history, not what theorists wish that history was


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28 Jul 2020, 11:07 am

Things like this just make me feel even more isolated, because I can’t relate at all. I can’t “mask” to save my life. I didn’t lose friends because I didn’t have any in the first place. It’s blatantly obvious to anyone who actually knows what autism is that I’m autistic no matter how hard I might try to “camouflage,” and for those who don’t, it’s still obvious that something’s “different” about me. I was diagnosed when I was in fourth grade and was not given any misdiagnoses beforehand. Overall, I feel like I can’t group myself with “autistic females” because it appears that in most ways, despite the fact that I am biologically female, my autism presents itself more in a masculine way.


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28 Jul 2020, 11:25 am

I can’t “mask” to save my life. I didn’t lose friends because I didn’t have any in the first place. It’s blatantly obvious to anyone who actually knows what autism is that I’m autistic no matter how hard I might try to “camouflage,” and for those who don’t, it’s still obvious that something’s “different” about me.

Whoa, those sentences set off some powerful memories for me! I grew up in a when and where nobody was talking about Aspergers...but everybody just knew that I was different. "You always seem so...happy" I was once told in an incredibly accusatory way (I was usually miserable, btw). "You walk so...funny". Always these observations that seem innocuous but were delivered in a judgmental tone.


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28 Jul 2020, 12:27 pm

I noticed she only talked about social stuff, I can relate to that. Me copying other people and doing it because it's something that nice people do or because it's part of being normal and I thought everyone lived this way but I was just slow at doing it. I can relate to having a friend and then all of a sudden they don't want to sit with you anymore or talk to you. I've always been shamed for my interests. I also think friends I had were just kids being my friend because I was a charity case because I came from a self contained classroom and had been put into a regular class with normal kids full time. So I needed role models, someone who could model normal behavior for me so I would know how to act in school because I acted like other kids in my special class because I thought that was normal behavior in school.

I once asked if anyone on the spectrum had been diagnosed with an adjustment disorder before they knew about autism because the therapist didn't know about autistic burnouts. No one has really said they have so I might be the only one. I remember I went through a nervous breakdown in 6th grade and got very depressed and I wanted to kill myself. I remember then I got so sick of not being accepted and not being normal I didn't want to be alive anymore. I also didn't accept myself so I had internalized ableism. Just like how gays may not accept themselves because of homophobia in society so they are also a homophobic. Some just took it to extreme and sprout homophobic stuff I didn't go making fun of disabled kids or go finding another kid that is more different than me and pick on them. I didn't go this far.

I also wonder how many girls on the spectrum would be labeled as having low self esteem like I was. Being treated like crap and always judged will do it. I was surprised Chloe didn't even mention anxiety when she mentioned what misdiagnoses women with autism may get.

Now today I wonder how my life would have turned out as a child if I had been born 20 years later, it's become cool to be weird and different and nerdy so I might have fit in better and have a better childhood and when bullying is actually taken seriously now than brushed off as kids being kids and just ignore it. I also wonder if I would have been diagnosed too sooner since autism is more known.

I am not sure how old Chloe is.


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28 Jul 2020, 12:51 pm

starkid wrote:
... Computers ... emit radiation...
Really?  What kind of radiation?

• Alpha Particles: Helium nuclei; two protons and two neutrons.  Easily blocked by a single sheet of paper.

• Beta Particles: Electrons and Positrons.  Easily blocked by a single sheet of aluminum foil.

• Gamma Rays: Very Short-Wavelength X-Rays.  Requires many tens of thousands of volts to produce.

• Gravitons: Propagates as gravitational waves, or ripples in the curvature of spacetime.

• Theta Particles: A byproduct of antimatter decay.

• Other ... ?
Gravitons and Theta particles are fictional particles from Star Trek.

Would you please elaborate on your claim?  Keep in mind that I work with computers and other electronic devices every day, and I've probably heard all about their alleged radioactive properties.