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ASPartOfMe
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07 Feb 2021, 2:57 am

Disability Studies Scholars Critique the “Autism Industrial Complex”

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Disability Studies scholars Alicia A. Broderick and Robin Roscigno argue that popular metaphors that portray autism as an enemy, alien, epidemic contagion, or otherwise dangerous serve to create a market for what they term the “Autism Industrial Complex.”

Broderick and Roscigno see these notions of autism as suggesting invasive behavioral techniques as the only plausible response. The researchers describe the business logic and surrounding discourses that legitimize coercive bodily control (and other forms of violence) over those diagnosed with autism.

Critical social and cultural analyses have pointed out that autistic people, including very young children, constitute a vast market for techniques of intervention levied by certified behavior technicians. Despite what some have called the “scientism of autism,” these diagnoses have come to profoundly shape contemporary debates about identity and normality. For example, the neurodiversity movement has emerged to depathologize traits, experiences, and ways of existing that are categorized as disorders. Still, other critiques focus on major “advocacy” organizations that have considerable funding for perpetuating dominant, often harmful ideas about autism.

Broderick and Roscigno, from Montclair State University and Rutgers University, respectively, deploy cultural studies and political economy as analytic frameworks to explore how autism has become big business. They argue that the “Autism Industrial Complex” (AIC) sustains and monopolizes a cultural logic of intervention upon those diagnosed by capitalizing on intervention services, certifications, ideas, and information about autism.

n their notion of the AIC, the medical-industrial complex and the education industrial complex create a series of networks that promote their products and services to generate profit. These networks also generate the ideas and beliefs that make these products and services appear necessary and legitimate.

The main “players” in the AIC are academic behaviorists, psychologists/psychiatrists, non-autistic parents of autistic children, the Behavior Analyst Certification Board (a private, non-profit corporation established in 1999 that certifies behavior analysts), and the advocacy/policy lobbying organization, Autism Speaks.

The main “players” in the AIC are academic behaviorists, psychologists/psychiatrists, non-autistic parents of autistic children, the Behavior Analyst Certification Board (a private, non-profit corporation established in 1999 that certifies behavior analysts), and the advocacy/policy lobbying organization, Autism Speaks. Charting these interests, Broderick and Roscigno write:

Yet, this profit-generating infrastructure, they claim, is only the autism industry. Only the serendipitous historical conditions that wed the popularity of behaviorism to autism’s emergence, alongside the ascent of global, neoliberal capitalism fully constitute the AIC. Asking what, in addition to products and services, are sold by the AIC, they write:

“…the central product that the autism economy is producing and marketing for public consumption… is autism itself, and that the integrally intertwined, complementary constituent product—that the AIC ‘is selling you’—is the cultural logic of intervention.”

Rhetorically, narratives of hope and fear, abetted by professionalizing legitimization (e.g., certification, evidence-basing, etc.), produce the need for and consent to interventions for autism. Accordingly, autistic identities are manufactured to be exploited as unwitting or unwilling raw material for profit extraction. They deride such identities as “cynical, bigoted, [and] culturally devalued notion of autism itself.”


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NaturalEntity
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07 Feb 2021, 2:31 pm

I'm an anomaly yes. What are they going to do about it? Inflict a form of abuse on me? As if that'll change a thing. I was born an anomaly and I will stay an anomaly. I don't care what they think about me!


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aquafelix
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08 Feb 2021, 7:43 am

I'm not sure autism is any more an industry than medicine is in general



carlos55
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08 Feb 2021, 3:14 pm

aquafelix wrote:
I'm not sure autism is any more an industry than medicine is in general


It’s all based on problem / solution dynamics

However, one criticism at big pharma is they prefer creating "customers" rather than curing anyone.
The opioid scandal comes to mind

I think in the US the 3rd biggest killer is pharmaceutical drugs that had been prescribed to people. Which is why I’m wary of taking any COVID-19 vaccine.


https://pubmed.ncbi.nlm.nih.gov/25355584/


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09 Feb 2021, 8:23 am

Great article. I'm so glad to see it being discussed.

This is what stood in my way a few years ago when I was trying to approach autism from a positive point of view. The idea that an autistic person may be better off in one way or another than a neurotypical person, or that they can reach great success in their personal or professional life was somehow offensive to nearly all the autism professionals I met.

It was very White Man's Burden.

(White Man's Burden was a poem by Rudyard Kipling. It is often referenced to signify the idea that White Colonialists were responsible for "improving" the conditions of other races by making them into an image of themselves.)