Have and of you been contacted and interviewed with regard to the following:
http://www.aspire-irl.org/aspire_research.htm
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The Economic Consequences of the Non-Provision of Services for People
with Disabilities in Ireland
Aspire has recently completed a detailed research proposal relating to the Economic Consequences of the Non-Provision of Services for People with Disabilities in Ireland . This study will examine the costs to society which result when parents or other family members are compelled to leave their jobs in order to take care of a child or adult with Asperger Syndrome due to the lack of professional services available. Specifically, these economic costs refer to the loss of this income to the state, total funding spent on disability allowances and benefits, and the long-term costs associated with a person with AS being unable to work due to the inadequate levels of social skills training or education and employment training which they have received to date.
We are in the process of incorporating the findings of this research into a wider study on the needs of people with AS and their carers in Ireland. We are currently interviewing our members (adults, parents and carers) and we would hope to have a finished paper by September 2008. Please refer back here for further information.
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It is usually regarded as common courtesy to consult, at least, adults, before claiming to represent them in any sense, let alone in a national level study.
Sadly, Aspire have a very poor track record in this respect hitherto, and were last spotted refusing to accept Adults with AS as members.
Even so, I am hoping to hear that something has finally changed for the better?
07 Oct 2008, 11:09 am
